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  1. Rojo

    Hyperacusis Severely Worsened to Unlivable Suicidal Levels. Should I Go to Hospital/Get Steroids?

    Has anyone had steroids help with hyperacusis spikes and/or have them reduce the pain and sensitivity? I'm literally in pain from every single noise. My hyperacusis has worsened severely over the past two weeks. I don't even know how I could get to the hospital without even further destroying...
  2. Rojo

    I'm Literally on the Verge of Ending It. Please Give Me Hope I Can Get Better.

    I had digestive issues and GERD for 5 years - really badly for a year. Then Neomycin gave me tinnitus and hyperacusis that have just gotten progressively worse over the past 6 months from both noise and taking practically any medication. I went from just not being able to stand loud restaurants...
  3. Rojo

    Hospital ER for Steroid Injections?

    My sound tolerance was very low (spending a minute outside three times a day, listening to one song on low volume, etc.) and last week I was then forced to drive hours to a mental hospital, then back and forth to their day hospital all week, sit in noisy rooms with people talking for group for...
  4. Rojo

    Anyone Live in Maryland, USA and Could Help with Temporary Housing? I'm Desperate

    This is a pretty desperate plea for help. I'm currently suffering tinnitus and severe hyperacusis, discomfort and burning pain from even low levels of noise and small sounds. I've been living with my parents but they are now convinced I just have an anxiety disorder and they are forcing me to do...
  5. Rojo

    Where Can You Buy Sound Generators Directly?

    I'm seeing an audiologist and need to do sound therapy with noise generators, however when sold through the audiologist they are like $1900. I swear I've seen websites you can buy noise generators for like $300-$400. Does anyone know where you might be able to buy these directly, and if they...
  6. Rojo

    Anyone with Facial/Trigeminal Nerve Pain and/or TTTS Tried Carbamazepine?

    I'm basically being forced to try psych meds for my "anxiety" so I'm trying to figure out what meds might actually help me, most antidepressants have gone poorly (citolopram, paxil, amitriptyline, remeron) the only one maybe left to try is nortriptyline. Taking suggestions there. For nerve...
  7. Rojo

    Anyone with Bad Tinnitus/Hyperacusis Have Experience with Buspirone?

    My tinnitus is mid-moderate and my hyperacusis is severe (housebound), I'm starting a taper off of Ativan and it's already going poorly. I feel like I need help controlling my anxiety and my brain, I'm wary to try more drugs (they've all gone pretty bad for me almost immediately) and I'm also...
  8. Rojo

    TTTS and Hyperacusis — A Tensor Tympani Tenotomy/Stapedectomy? Anyone with Experience?

    I have very bad hyperacusis, and what feels like very bad TTTS. So bad it almost feels like much of my discomfort and ear pain is driven by the spasming and TTTS, and then I get trigeminal nerve and ear canal burning afterwards. Has anyone had experience with getting this surgery? I honestly...
  9. Rojo

    Did TRT (Tinnitus Retraining Therapy) and WNGs (White Noise Generators) Help Your Bad Hyperacusis?

    Hello, For anyone following my posts and the chat, I have severe and seemingly endlessly progressive hyperacusis that I can't seem to figure out how to help. I had a positive Lyme test and IV antibiotics that were completely brutal in December, I'm still on 1.25mg Ativan daily definitely with...
  10. Rojo

    Developing/Worsening of Hyperacusis via Side Effect, Tolerance, or Interdose Withdrawal on Benzos?

    Before withdrawal? I'm trying to figure out how likely it is that benzos have been making my hyperacusis worse over the past four months, and whether withdrawal might eventually make it better if I can get through, or if I can only expect worsening. I continue to get worse constantly and I'm...
  11. Rojo

    Terrible Reflux vs PPIs, Scared of Ativan but Dependent, Have Lyme but Antibiotics Were Onset. Help?

    So as the title says and my initial thread has talked about, I have really bad acid reflux. If I don't take my antacid, I have constant throat pain and irritation from what seems to be aspirated reflux as my esophageal sphincters seem pretty badly functional. It causes GI distress and now even...
  12. Rojo

    Please, I Need Help and Encouragement. Can't See Any Hope and Don't Know What to Do.

    Hi everyone, I had chronic larypharyngeal reflux/sensitivity and digestive problems for about 5 years that I personally swear started after I did MDMA two or so times that Fall while in college. I was on Nexium 20mg every day after the first year. Well last August/October after a large round of...