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  1. sonicboom2000

    Need to Take Mebendazole — Says Common Side Effect Is Tinnitus

    It is looking like I need to take Mebendazole for a few days to treat parasites. It lists as one of the 3 common side effects is ringing in the ears. I don't want to make my tinnitus any worse than it already is. Is this just temporary tinnitus? Does anyone have experience with taken...
  2. sonicboom2000

    Starting to Have Pulsating Tinnitus Occasionally

    I've been having the pulsating tinnitus when I wake up every morning since my last post. It is always only 1-4 beats and then it stops. If I lay in bed for 20 minutes after waking up I'll have it maybe 5-10 times. When I get up they are gone. I hear them 1-2 times during the day when I'm awake...
  3. sonicboom2000

    Starting to Have Pulsating Tinnitus Occasionally

    Thanks everyone for your prayers. I really really need them.
  4. sonicboom2000

    Starting to Have Pulsating Tinnitus Occasionally

    It's taken me 4 years to finally accept and somewhat habituate to my normal tinnitus. That included multiple stays in psychiatric hospitals for weeks and being drugged out of my mind. I think acrn has helped a lot. In the process I lost so much, my job, apartment, independence ect. I'm just...
  5. sonicboom2000

    Starting to Have Pulsating Tinnitus Occasionally

    No no no no. I heard it again today while I was waking up. 1 beat in my ear every 15 seconds or so for a few minutes. Is this how it starts? This can't be happening to me, not now after all I've been through. I wasn't able to work for 2 years because of tinnitus and just started feeling better...
  6. sonicboom2000

    Starting to Have Pulsating Tinnitus Occasionally

    I really pray it doesn't become permanent. That would be so bad. Even though I only hear it for a few seconds at a time it seems louder than my normal T and way worse because it makes me aware of my heart beat. I'm on a alpha-adrenergic blocker called Cadura. I've been on it for 3 years. It's...
  7. sonicboom2000

    Starting to Have Pulsating Tinnitus Occasionally

    I've been on this forum for years as I have bad tinnitus in both ears. It's been 4 years with tinnitus induced by an antidepressant cymbalta. The last few months I've started to finally habituate slightly to it but now this past week I've been hearing pulsating tinnitus while laying in bed in my...
  8. sonicboom2000

    Acoustic CR® Neuromodulation: Do It Yourself Guide

    Btw the beeps are much more tolerable to listen to at 7400. Omg those high frequency beeps were killing me.
  9. sonicboom2000

    Acoustic CR® Neuromodulation: Do It Yourself Guide

    So if I do 15000hz the highest beep is 20900 and I can't hear about 18000 for some reason. Is this normal hearing for a 31 year old? I did the test over finding the frequency and now I think it maybe 7400hz, about half of what I original thought, does this make sense? 7400 would work out better...
  10. sonicboom2000

    Acoustic CR® Neuromodulation: Do It Yourself Guide

    Someone said in another thread this treatment doesn't work if your tinnitus is a higher frequency than 10000hz? is this true?
  11. sonicboom2000

    Acoustic CR® Neuromodulation: Do It Yourself Guide

    What's your Tinnitus frequency?
  12. sonicboom2000

    Acoustic CR® Neuromodulation: Do It Yourself Guide

    The study that was done in Germany had it's patients listen to it 4-6 hours per day for 12 weeks.
  13. sonicboom2000

    Acoustic CR® Neuromodulation: Do It Yourself Guide

    I'm using the General Fuzz website. My tinnitus frequency is 15000hz so it is really high, after using it for awhile my left ear hurt. Could be unrelated or could I be causing hearing damage? Can high frequencies cause hearing damage even at low decibels around 70db? It's really good at masking...
  14. sonicboom2000

    Retigabine (Trobalt, Potiga) — General Discussion

    I'm trying trileptal right now. I'm going from 600mg a day up to 2400mg and seeing if that helps. I don't hold much hope though so I really think i'll need the trobalt.
  15. sonicboom2000

    Retigabine (Trobalt, Potiga) — General Discussion

    Could I use an American prescription and get it delivered from France? Its so cheap there.
  16. sonicboom2000

    Retigabine (Trobalt, Potiga) — General Discussion

    I wish I knew someone in France. Someone told me you don't need prescription in France, is this true?
  17. sonicboom2000

    Retigabine (Trobalt, Potiga) — General Discussion

    So I found a pharmacy that offers trobalt at 200mg, 84 tabs for $269. Will 600mg be enough? To go up to 400mg it costs $599 which is out of my price range :(.
  18. sonicboom2000

    Retigabine (Trobalt, Potiga) — General Discussion

    I have a prescription but insurance won't cover it. Has anyone had any luck getting insurance to cover Potiga when they don't have seizures in the United States? Also, Rite Aid wanted 1000 dollars for a month supply. Where is the cheapest legitimate place I could get the prescription filled and...
  19. sonicboom2000

    Losing All Hope, How Can I Cope?

    You know when I was on Cymbalta I noticed myself constantly grinding my teeth. Could this have cause the tinnitus? do people who mess up there jaw have constant Tinnitus that doesn't go away? Is their a way to correct it?
  20. sonicboom2000

    Losing All Hope, How Can I Cope?

    I feel like my ENT has totally let me down. Why hasn't he looked for the cause of it? Why havn't we determined that. Could it be a neck issue? A jaw issue. The brain? What the heck is causing this extreme torture.
  21. sonicboom2000

    Losing All Hope, How Can I Cope?

    Yeah I have severe sleep apnea. I've been treated for it with cpap for the last 2 years so I don't think that's it.
  22. sonicboom2000

    Losing All Hope, How Can I Cope?

    Tinnitus really suck. I can get through a depression knowing it won't last forever so I can power through. People get through the flu and colds or a broken bone because they know in time things will be better. However, with Tinnitus I know things aren't going to get better, more like they will...
  23. sonicboom2000

    Losing All Hope, How Can I Cope?

    All snri and ssri can cause tinnitus. In fact I think it was cymbalta that gave it to me really bad. However Remeron isn't a typical antidepressant so it doesn't have it as a side effect. I make sure my meds don't list tinnitus as a side effect which is a challenge because so many do. I even...
  24. sonicboom2000

    Losing All Hope, How Can I Cope?

    You havn't had T for that long? Are you still able to work? My T seems much worse when I lay down, especially since I'm on my side so the masking doesn't work as well.
  25. sonicboom2000

    Losing All Hope, How Can I Cope?

    Remeron, Trileptal, Latuda, Buspar
  26. sonicboom2000

    Losing All Hope, How Can I Cope?

    ADS?
  27. sonicboom2000

    Losing All Hope, How Can I Cope?

    Yes back in May. i have no hearing loss.
  28. sonicboom2000

    Losing All Hope, How Can I Cope?

    What exactly is Nac? I've never heard of that
  29. sonicboom2000

    Losing All Hope, How Can I Cope?

    I had a few good days and thought it was working, my ENT said it was probably placebo effect. He thinks it is the little hairs in the ear and that no vitamins or diet will be able to help. Which is very discouraging.
  30. sonicboom2000

    Losing All Hope, How Can I Cope?

    Thanks everyone for the words of encourage, I really need that right now. I'm trying to have hope for the possible drugs that could treat tinnitus, but it's hard when 90% of clinical trials fail and only 2% of drugs ever get released and a profitable. I just really hope something comes along. I...
  31. sonicboom2000

    Losing All Hope, How Can I Cope?

    I spent 2 weeks in a Psychiatric hospital in June. The drugs don't help enough. I'm on 4 different ones.
  32. sonicboom2000

    Losing All Hope, How Can I Cope?

    I'm loosing all hope. I just can't deal with Tinnitus anymore, it's getting worse not better. Before Tinnitus I already suffered from Bipolar disorder, depression, and anxiety and the Tinnitus has pushed me over the edge and made things completely fall apart. I lost my job in February, have...
  33. sonicboom2000

    Phosphatidylcholine Is Working for Me

    Doesn't acoustic noise damage the hairs? How would it damage the brain. What evidence says its the brain?
  34. sonicboom2000

    Phosphatidylcholine Is Working for Me

    I don't take an antidepressant but I'm on Latuda and trileptal for Bipolar. I also take provigil for sleep apnea.
  35. sonicboom2000

    Phosphatidylcholine Is Working for Me

    Unfortunately my Tinnitus has returned back to previous levels. I went to my ENT this week and he said it was probably placebo effect that he doesn't believe vitamins works because it is the little hairs in your ear. Sorry to everyone.
  36. sonicboom2000

    Phosphatidylcholine Is Working for Me

    That's interesting because in addition to the phosphatidylcholine i'm taking Magnesium and Calcium, Vitamin D and getting DHA from Fish oil. Good find. So maybe added the phosphatidylcholine to the mix after I was already taken the other stuff made things really work.
  37. sonicboom2000

    Phosphatidylcholine Is Working for Me

    Same for me. How old are you? Antidepressants definitely cause Tinnitus, look at the clinical trials all antidepressants which are snri's or ssri's can cause Tinnitus, some of them cause it in as high as 7% of people taken the drug. For most people this side effect goes away after...
  38. sonicboom2000

    Phosphatidylcholine Is Working for Me

    To bad I'm in the United States because that would be great.
  39. sonicboom2000

    Phosphatidylcholine Is Working for Me

    Thank you, I hope that helps for you. I've tried so much. I even convinced my ENT to prescribe me Potiga (trobalt) a few months ago, but I couldn't get it filled since insurance refused to cover it and it was really expensive. But I was ready to try anything.
  40. sonicboom2000

    Phosphatidylcholine Is Working for Me

    Not sure I havn't stopped yet, it's only been a month so we shall see. It's a pretty inexpensive supplement and it has a lot of other health benefits so I'll probably just keep taking it anyway. It really sucks that you got Tinnitus from an antidepressant like me. I'm bipolar and I have really...
  41. sonicboom2000

    Phosphatidylcholine Is Working for Me

    Yes please report back. I take it twice a day as I have the best results that way. At first you may notice sometimes when your tinnitus sounds a lot less, but that other times it can be higher. that's how it was for me first few weeks of using it. but doing it twice a day seems to help keep it...
  42. sonicboom2000

    Phosphatidylcholine Is Working for Me

    Vitamin D, B complex, Biotin, Multi, Calcium Magnesium, and Phosphatidylcholine. But I recently added the Phosphatidylcholine and that seems to do the trick. I've taken Multi, Vitamin D (take for low vit d, I live in MA so most need it here), and Biotin (take for thinning hair) for years with no...
  43. sonicboom2000

    Phosphatidylcholine Is Working for Me

    Not sure, what I take contains this. I take 1 pill, twice a day with food. Soy Lecithin 420 mg Linoleic Acid 384 mg Phosphatidylcholine 420 mg* Linolenic Acid 48 mg Phosphatidylinositol 15mg
  44. sonicboom2000

    Phosphatidylcholine Is Working for Me

    Interesting. I take it because I follow this technologist/inventor Ray Kurzweil who is famous for predicting the future. Anyway he is famous for taking 200 supplement pills a day in an effort to live longer and reach the singularity. That's neither here nor there but in his book he recommended...
  45. sonicboom2000

    Phosphatidylcholine Is Working for Me

    Ray and Terry's. I take two capsules. http://www.rayandterry.com/phoschol.html Yes, an antidepressant Cymbalta left me with permanent tinnitus even after I stopped taking it over 3 years ago and nothing has seemed to help until this.
  46. sonicboom2000

    Phosphatidylcholine Is Working for Me

    No I have not. From my understanding Phosphatidylcholine occurs in the body naturally, but becomes less and less as one ages. I'm only 31 so not sure why my level would be low to begin with, but it seems to be helping.
  47. sonicboom2000

    Phosphatidylcholine Is Working for Me

    I've been trying a number of supplements for over a year trying to help with my Tinnitus and nothing has seemed to work until I happened upon Phosphatidylcholine. It seems to have really made my Tinnitus go from about a 7 to a 2 after only a few weeks of taking it. Has anyone ever tried this...
  48. sonicboom2000

    Retigabine (Trobalt, Potiga) — General Discussion

    I talked to Danny Boy on Skype about his experiences with Trobalt. If anyone wants to listen they can view it at
  49. sonicboom2000

    Retigabine (Trobalt, Potiga) — General Discussion

    What kind of doctor prescribed it for you, ENT, Neurologist, Psychiatrist? Did insurance pay for it? If not how expensive is it? I'm in a fight with the insurance company to cover it for me.
  50. sonicboom2000

    Retigabine (Trobalt, Potiga) — General Discussion

    Prescriptions now a days are all sent via computer to the pharmacy. It's not like I have a written prescription on a piece of paper to take to send the Canadian Pharmacy? And isn't it illegal to get drugs from Canada this way? I doubt my doctor would be willing to fax them the prescription.
  51. sonicboom2000

    Retigabine (Trobalt, Potiga) — General Discussion

    My doctor wanted me to start slow, start at 300mg a day (100x3). I guess they don't make 100mg pills since he prescribed me 160 50mg pills for the month costing over 1000 dollars says rite aid. :(
  52. sonicboom2000

    Retigabine (Trobalt, Potiga) — General Discussion

    I finally got my ENT to prescribe me Retigabine, Potiga as it's known in the United States after a lot of convincing. But another road block has been placed in front of me. The health insurance company denied paying for it and my doctor did a pre-authorization and again denied. There is an...
  53. sonicboom2000

    Retigabine (Trobalt, Potiga) — General Discussion

    I live in Massachusetts. Ritigabine is available, yet no doctor wants to prescribe it to me. This is maddening. My T is ruining my life and theirs a drug out there that can help, yet doctors don't want to help me out.
  54. sonicboom2000

    Retigabine (Trobalt, Potiga) — General Discussion

    Doesn't look like my ENT is going to prescribe me Retigabine. Not sure what I could say to convince him? Should I try my psychiatrist? I'm bipolar and have been on seizure medications for mood stabilizers before that he has prescribed so maybe he would be okay with prescribing Retigabine? Or...
  55. sonicboom2000

    Retigabine (Trobalt, Potiga) — General Discussion

    Dannyboy I thought you got off Retigabine? Are you still on it? If your off has your tinntius returned?
  56. sonicboom2000

    Retigabine (Trobalt, Potiga) — General Discussion

    An Anti Depressant
  57. sonicboom2000

    Retigabine (Trobalt, Potiga) — General Discussion

    Cymbalta an SNRI
  58. sonicboom2000

    Retigabine (Trobalt, Potiga) — General Discussion

    I've been reading these forums for awhile now. I have really bad tinnitus, in both ears as a result of the antidepressant Cymbalta. I had a suicide attempt 3 weeks ago due to tinnitus and depression and ended up in a psychiatric hospital. i just couldn't take it anymore. Well they drugged me up...