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I am presently doing b12 injections as b12 deficiency is known to cause neuro symptoms one of which is T. I'm also taking folate with it and magnesium spray and a b complex liquid. Because my previously habituated T went crazy with a toxic overdose prescribed, I believe that caused neurological...

Does nobody out of the thousands on here have cycling tinnitus?

He's very lucky to get treatment. Here in the uk I got nothing and wasnade to wait 6 months to see ent.

I got tinnitus in 2012 maybe after loud sound exposure. Just left ear. I eventually habituated but early 2015 after a medication overdose ( prescribed) I developed hyperacusis in both ears and head T. I seriously wanted to die. It was caused in part by magnesium depletion in my brain. After...

I was disappointed. I emailed Julian Cowan Hill and he ignored me. Maybe because I said I could not get to London and could not Skype. But offered to pay for email or phone consults.

I thought you no longer heard yours? So how can it spike?

Sorry I haven't read all this thread, @carlover are you saying your T has now gone? If so is there any you tube stuff about this? I've seen so many things mentioned in thread I'm seriously confused

I started to read your pdf but it stressed me out. I'm going gluten free, can't face trying to go msg free too right now.

Well cthey do say vitamin D is good for mood but last year I was given a toxic amount without k2 and consequently my T got worse and I got H. I will hi wver be trying gluten free, I was asked to reduce it years ago by my Rheumy for my auto immune disease but the chance of T going down makes it...

Have you been checked out for migraine? Migraine and T are closely linked and often come together. Migraine can come without head pain. On MRI migraine and T have been shown to light up the same areas. Migraine comes with nausea and visual disturbances too and T in many cases.

Not T exactly but my son had many terrible migraines per week he cut out gluten among other things and his migraines are greatly reduced. It is known however that migraine and T are linked and on MRI both light up many of the same areas in the brain.

Hey Telis did you see the message I wrote to you?

Hughes syndrome, fibromyalgia and Sjogrens syndrome. Now depression thanks to T.

I think the lack of a calming medication won't be helping. You may not have been dependant but your body will have liked it. As for anxiety coming out of nowhere it can, because despite your best efforts fight or flight is clever and just the mere fact you are aware you are in noise can be...

I think the findings are recent. I wonder if the reason most of us are still here is because we process sound differently we mostly don't habituate.

I think T in general makes the risks so much higher not infections. But the fact you are still on this forum and having to ask the question suggests you are not confidant that it will not harm you.

Somebody did write on here that apple cider vinegar helped their T. I figure if you think it can help it will and if its harmless or free then give it a try. I like to feel proactive in this as nobody else is available to help us.

I can see how they could help as they are relaxing assuming they are not too noisy. I dont think they should make wild claims. You can get chair liners that plug in and do all the same massaging too for a lot less money.

I read an article once where the therapist told the client the T would get worse before better.

I am so glad you changed your picture from the dog. Mixed together with your understandable angry words made me scared to comment on your posts. However since you wrote so eloquently last week about your suffering you have been on my mind a lot. You say you fight everyday, especially pushing...

To some they may be sounds to others they are distress making signals. Recent research shows that those who do not suffer distress with T process sound in their frontal lobes, wheres those of us who are distressed by T process sound in our emotional centres. This has been proved on MRI scans.

To be honest I cope really badly, certain sounds I learn to cope with some I cant abide. Just another layer of torture. I would say the high noise at bed, or afternoon could be because you are very tired. I feel since T that I can 'hear' tiredness as opposed to feeling it. My high stuff comes on...

I agree, I think what I was trying to say is if a massive number of influential people had H, because that is what really makes life in this world hard, and they suddenly could no longer bear a debate in parliament, flights around the world, or a banquet they HAD to attend. maybe they would get...

My T this time last years was unmaskable, I could perceive it spinning around and around on either side of my head, I cried everyday. Mine is as a result of medical error. I'm cutting this very short, but I was taught hypnotherapy and on occasions after using what I was taught in bed I could...

I'm not good at explaining the science behind this logic, but can I say dont use negative because your primitive brain is still at the age of a 5 year old and does not understand negatives.

Yep mine does, but not every day. But mine spikes it with sound or mute. I blame my TV, 2 houses I go to this does not happen. Why would you buy a tv and always have it on mute.

Mine will do that, I guess you have reactive T like me. So the good ear has nothing that reacts and the T in the other reacts to the loud sound inside the head of the sneeze.

I agree sometimes I can feel T, its overwhelming, quite odd really, this is more obvious if the t is very quiet and high. I have to say I don't like masking, in fact mine wont be masked it just turns up its volume, I still spend a lot of time in silence or near silence. Actually trying to do...

Sorry I agree with the poster, not aimed so much at the rich but at those who could try harder. Imagine if the Obama, Cameron, or maybe our queen had the sort of T we have, loud, intrusive, destructive, depressive, exhausting and H too. Then maybe just maybe they would think, this is dreadful...

I don't know about that. Basically doctors know nothing about either.

I was given low dose steroids a few years back and they really helped the T. I still have loads left, many times I'm tempted.

I understand what you are saying. I had T that was stable, only responded to very loud restaurants or shopping centres. 90% of the time I never heard it. The drug fiasco of last year changed all that, the T I got was different, very reactive, stress being a massive trigger, any tiny mental...

I decided last year to hit my T and H from all sides. I believed my T was drug induced, one consequence I felt it left me low on magnesium so began using a mag spray. I started facing noise in the car and shops everyday. I read EBV could be a cause so went down that avenue too, introducing...

I feel your pain, I really do. I can't say if this will help or not but my new audiologist told me he had T. He had it for 2 full years and everyday hid away after work in his room to keep quiet. Then realised this was no way to go. He began, in his words living again, joining in with family...

Yes I have withdrawn from life and am depressed. Concerts are no loss but I planned to see more musical theatre, I also loved driving to the coast but the car it hard now as is listening to crashing waves. This condition with H is the cruelest form of torture

I do but will find it hard to put into words. Every other day my T is on a quieter phase, but it's very high yet quiet. On the noisier days I wake up different sort of tired headachy and tearful, that day is always doomed. The quiet days it's better but sometimes the pitch is like a sensation in...

So sorry to hear of your loss Glynis x

Yeah life itself is a risk but if I could use earplugs and visit a loud venue without my t turning up, then I would be happy with a necessary party or restaurant. I know a man with T over 20 years his is not reactive and never changes he says, he plays in bands and visits loud venues OK if there...

Not a chance in hell. My T is reactive, even normal house sounds like kettle annoy it, it cannot be masked. I will never risk it, my aim in life now would be just to survive each day being careful, never mind taking risks. Earplugs don't help much either I still suffer in loud noise.

Looking at that list, there's nothing we can have, and I have had lots off that list but didn't get T off them.

I honestly cannot remember. I remember seeing the GP regarding it and contacting the BTA helpline but nothing else. I was a young mum of 2 and luckily for me I just stopped noticing it. I truely had forgotten I had ever had it. I lived a completely normal life of normal noise for over 20 years...

I first got T after the birth of my second child in 1989. I was busy obviously and as it wasn't reactive and I didn't have H I lived normally and it went totally until I forgot I ever had it. I got it again after noise in 2012, so over 20 years T free. My 2012 T was also gone 99% of the time up...

I can understand how you feel, my T is reactive which is the worst of both worlds. So no noise hurts and noise hurts. When I first got T I was unable to read for 6 months, but eventually I could. I cannot really mask mine either as many sounds turn it up, but sounds like a tap running will...

After I got T in 2012 I read all I could and learnt that ears need protecting. I think my original T came from a loud show. I continued to protect them if I had to go to a loud event. I went to one party. I avoided all loud places. Guess what my T suffered a set back in 2015, it was medication...

You are lucky, 2 months is great. In the uk I have been on a list 6 months and been told it could a total of 18 months to get seen.

I got my T a few weeks after a very loud musical. I visited my dr who said wait 6 months then we will look into it. I have slight hearing loss in the T ear and audiology said it does take time for the damage from noise to become apparent. So I believe if I had been given pred the day I reported...

I have my dad, if you say do you have T, he says " ah yes now you mention it I perceive it". He is very deaf too, very happy and the T does not bother him one jot. There is evidence to suggest that those of us in distress with T process sound in a different area of our brains to those who are...

If we are desperate we will try anything that won't kill us.

I've been trying the 'back to silence' but boy am I struggling, I have depression and maybe PTSD, plus hormone fluctuations, plus H, no energy and trying to 'live life' is hard. Without the strength to get out and do things and with H, even fun is torture. I know you have a positive story. Can...

Guess what I was going to right one of those comments that knock you down to earth. OK so i wont. I'm so glad you feel so much better already.

I had surgery last January, not teeth, before I went in I had stable T and no H. Afterwards H started to creep in and then following another medical blunder T an H were full blown and still are. As a nurse years ago we were taught not to talk over a patient coming around from surgery as hearing...

Oh god, those airbags are evil. I hope his ringing stopped poor guy. it scares me that that may happen to me one day with our multiple airbags.

Glynis, I know you are not in my area but honestly where does anybody get counselling?I saw a useless woman last year who thought that because one night her and her hubby spent ages looking for the hissing sound, which was a pop bottle, that she now knew what T felt like. I asked if she or any...

I get you I really we are all here because Dr's don't have a clue, then if you find one who has it, like a certain person who wrote on here (watch this get taken off) he has no sympathy at all, and from what I read is downright rude to people about it. I can understand you, I don't want to be...

Great video, but ironically the music running over it simply spiked my T and reminded me why I hate my life. If I did need to be reminded, since T is with me every waking minute.

Thanks that is encouraging, I wish I could have been there too. I am registered with place in Nottingham. before my H I could definitely have faced it too. I know you don't have the answers but for example David Baguley say H is all in the mind basically but offers no ways forward for us. He may...

I personally have sertraline (zoloft). It does make anxiety worse for a few weeks but then it settles and for me general anxiety is gone.

I think you raise an important point here, my T was very stable and not altered by stress at all, up to a period of extreme anxiety, medically induced I might add. It then came back ten times worse with H, and was made worse even by me speaking at one point. I had no noise trauma at all. I am...

I agree, it's a mystery and a damn nuisance. Mine changes with the wind. I sometimes think it's going as I can barely hear it, then boom back loud again. I even leave T forums thinking I'm going to be ok. I honestly hate hate hate it. How can we habituate to an ever changing beast?

Yes I agreed to try maskers supposedly matched to my T. I was told I needed them in both ears, even though I only had it in one, as T can jump. I wore them over 5 days for grand total of 16 hours and my T suddenly went very very high pitched, and in both ears. Over 9 months later, my old good...