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Paul, I had a sudden onset of a fluttering in my left ear, behind the eardrum. That quickly progressed to a rapid (too fast to count) thumping that was not synchronous with my pulse, so it was not pulsatile tinnitus. When I finally went to a specialty center (my earliest post details the other...

Yes, the procedure was easy and I had no pain or dizziness afterwards. I opted for general anesthesia instead of conscious sedation. I had both the stapedial and tympanic muscles cut as they said it was pretty much impossible to tell which of the two were spasming. I have slightly less hearing...

Several months ago I was on the Introduce Yourself page, saying hi and describing my problem. I was originally diagnosed with palatal myoclonus by two different ENTs. I did not agree with that dx, mainly because there were no palatal spasms to be seen by either doctor. One did say that it was...

A friend of mine also recently sent me a link to a study on using taurine to treat tinnitus. The lab results in rats were encouraging, haven't read the full study to see what the effects were on humans but I can post it here if interested. And I agree about the paucity of treatments for PM. I...

Kee, I suppose you have seen neurologists and they were also unable to help you? Or the meds were too rough to stay on? Supposedly low-dose Keppra is effective for many people with PM.

Hi JJ Thanks for the advice about the L-theanine. I did try it and didn't notice a difference but you never know till you try. However, in the better news department, I went to a new ENT and was given a much better exam and additional hearing tests, specialized ones designed to detect tensor...

I just saw this, it went to my Spam file. I just saw a new doctor, this one affiliated with Stanford Medical Center, and he suspects middle ear myoclonus as well. This is good news for me, since finding a Botox guy is not going well. I go back for a hearing test and then wait till my insurance...

Hi all. Just found this group online so yay for that. I started having what has now been diagnosed as palatal myoclonus just since June of 2015. It started with a huge yawn and a CRACK of the corner of my jaw, not painful at all, and then an odd fluttering behind the eardrum of the opposite side...