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  1. Hope2015

    I Need Tips for My College Life w/ Severe Tinnitus

    Thank you @Kane Moffat for bringing me here! Hello @Poyraz ! I am a student as well, I studied Economics for 3 years and in the second year of Uni I got tinnitus. Thank God this happened in the summertime so I kinda had some time to adjust. But..even in the first days when I got it I was during...
  2. Hope2015

    In Memory of My Dad

    This is so cute Glynis! May he rest in peace, I am sure he was an amazing man by the way he raised such a lovely person like you! Hugs :)
  3. Hope2015

    Retigabine (Trobalt, Potiga) — General Discussion

    Hello guys! I think I am an one of the exceptions over here. I had a really bad t week, I was exposed to kind of loud noises and I started this week to take Trobalt again, I took 200 mg in the morning and 200mg before sleep(last night I took 300 mg). I noticed that my t is more tonal than in the...
  4. Hope2015

    I Need Help with These Thoughts! Does It Get Worse as We Get Older?

    I don't think it's ok to wear protection in those places, I guess no one does because you can get H which is horrible. What do you think about this?
  5. Hope2015

    Retigabine (Trobalt, Potiga) — General Discussion

    @Karl28 , in the prospect says in the first week you should take 100mg 3 times/day.
  6. Hope2015

    I Need Help with These Thoughts! Does It Get Worse as We Get Older?

    Overprotection can lead to H from what I heard which is a hell too...right? In what situations you were and you did not protect yourself?
  7. Hope2015

    I Need Help with These Thoughts! Does It Get Worse as We Get Older?

    @Nucleo, did you protect your hearing?
  8. Hope2015

    I Need Help with These Thoughts! Does It Get Worse as We Get Older?

    I want to thank all of you for your answers @linearb , @Bertman ,@Nick Pyzik , @Natalie Roberts , @Andrew_89 and @I who love music . I have now more good days than before I am trying hard to be strong, to fight this but sometimes out of blue all these thoughts monopolize me, I think they are...
  9. Hope2015

    Tinnitus and Volume

    Hello @Gary Hoggett ! I think you have reactive tinnitus. I have it too, when I wake up after a good sleep and when I am not stressed my t it's softer, a hiss but after I eat something or I go out and I hear the cars, or I am in the mall where music it's loud my t will go crazy, very loud, I can...
  10. Hope2015

    Retigabine (Trobalt, Potiga) — General Discussion

    Last night I got so annoyed about my tinnitus and about the fact that trobalt(my last hope) doesn't work, so I took 400mg as a single dose. 30 minutes later I felt very sedated, I tried to listen to my t, I plugged my ears and I could hear only one sound and I felt like it comes from the center...
  11. Hope2015

    Retigabine (Trobalt, Potiga) — General Discussion

    Thank you for your advice, @locoyeti ! In this morning I took 200 mg, nothing happened, just kidney pain. I am ready to endure this pain and the side effects but I want to see something, at least a small benefit. I am 21 years old, I weigh 50 kilograms, I am thin, I would raise the dose because...
  12. Hope2015

    Retigabine (Trobalt, Potiga) — General Discussion

    Trust me it was a long journey until I got it, I had to wait 1 month for it. A friend from Spain brought it to me. I will consider myself lucky if I will see some benefit from it. I try so be patient but in the same time I am anxious and sad.
  13. Hope2015

    Retigabine (Trobalt, Potiga) — General Discussion

    It is my first day, I am afraid to take 1200 mg per day, I have to taper on, like in the prospect says, in the first week you have to take 100 mg 3 times/day and in the second week increase the dose with 50 mg. I am sad that I don't see any benefit, today I took 100 mg 3 times/day, last night I...
  14. Hope2015

    Retigabine (Trobalt, Potiga) — General Discussion

    Hello! I hope someone who tried Trobalt is online now. I started taking Trobalt last night, I took 200 mg last night and today 100 mg in the morning and 100 mg in the afternoon. I am 21 years old. I am dissapointed, no change at all in my t, sometimes it's even louder or more annoying. It is...
  15. Hope2015

    I Need Help with These Thoughts! Does It Get Worse as We Get Older?

    @Bertman , I am only 21, so that's why I worry a lot. Next year I graduate, I will be an Accountant, Economist, not an easy job but I just followed my dream and I hope this affliction won't be an obstacle. I think the same as you, as long as we protect our ears and we sleep we should be fine...
  16. Hope2015

    I Need Help with These Thoughts! Does It Get Worse as We Get Older?

    Thank you for your wide answer @linearb ! This made me feel better, horror stories from the internet really affect my habbituation. Even if mine it is the same since it started, sometimes crazy, sometimes better, I started to have good days too, to be able to ignore it and to get my life back...
  17. Hope2015

    I Need Help with These Thoughts! Does It Get Worse as We Get Older?

    I am overthinking everything since I got t, I used to overthink everything even before it but now I do even more. We know that tinnitus works on the same principle as epilepsy, hyperactivity of neurons, I know some stories about people with epilepsy. For example my neighbour had...
  18. Hope2015

    Has Anyone Seen a Neurologist?

    Hello @Lorac ! Yes I went to a neurologist, after 4 ENT's did nothing to me. Neurologist just listened to me and actually I told him what to give me, he didn't know more than me unfortunately. Well, you can try to see a Neurologist, I hope yours will know more than mine or he will be able to...
  19. Hope2015

    Retigabine (Trobalt, Potiga) — General Discussion

    I have the same question like you @Bart .
  20. Hope2015

    Post a Picture of Your Pet!

    Thank you @LadyDi ! Plato was my first pet, I loved him so much. Unfortunately he is gone for over than a year, I wish he returned :( PS: I love how Frances Jeanne is looking at you, so cute and funny <3
  21. Hope2015

    Post a Picture of Your Pet!

    My beautiful baby who ran away, miss him so much!:( His name was Plato, he was very clever. My Philosophy teacher gave it to me when I turned 19 :)
  22. Hope2015

    Which One Is the Truth? I'm Confused! (Can Drugs or Homeopathic Products Be Harmful for the Brain?)

    Hello everyone! I had a conversation about tinnitus with someone who graduated Biology&Chemistry. I told him I want to try trobalt or keppra or whatever just to get better, he said I should never try those drugs for epilepsy because it will destroy the chemistry of the brain and it can even...
  23. Hope2015

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    @Atlantis, we know or suppose that potasium channels holds the key to our problem because as you saw, there were some people who tried trobalt and lowered their tinnitus, and some of them 2 or 3 got cured. And there is a link between epilepsy and tinnitus, it goes on the same principle...
  24. Hope2015

    Getting Worse

    You can try at least and see, maybe you will have some relief. Maybe you can try trobalt? You can ask your neurologist about it, there are some persons who found relief from using it. See retigabine thread with users experience. We are in a delicate situation and we should try everything... I...
  25. Hope2015

    Getting Worse

    As @glynis said, maybe you should get your ear wax out and look for a hearing aid. Maybe that's why you hear it now louder because of the hearing loss, it is like when we plug our ears we hear it louder, but when we unplug them, we perceive it less because of the outside noises.
  26. Hope2015

    In Despair and Suicide Is My Only Thought

    Hello @curtis1988 ! I am sorry you are going trough heavy times but yes tinnitus in early stages makes you very depressed and even suicidal, but as the time pass you will get used to it, you won't feel the way you do right now at all! Also you have a son, you have to fight for him and in the...
  27. Hope2015

    I Will Have My First Plane Travel. I Need Some Advice! Thank You!

    @Mad maggot the cause of my t, I think it is listening to very loud music on headphones. When I was with the plane, sound of the jet didn't disturb me even if it was kind of loud, I didn't use ear plugs, but I think it would be wise to protect my ears more often.
  28. Hope2015

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Thank you @attheedgeofscience for sharing further informations. In the same time, I am sure you know the stories with people who were cured of t with trobalt, an epilepsy drug which works on potasium channels, right? And other people who tried trobalt, they experienced an improvement but they...
  29. Hope2015

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Ok everyone, I use to panic easy and quickly but I think here it is not the case. I think they have no reason to stop the trials. Why would they? Drug isn't going to work? It was explained logical how this drug is going to work on potasium channels. If trobalt worked for some people and even...
  30. Hope2015

    You Will Get Better — The Post I Wish I Saw Half a Year Ago

    Such a wonderful success story! Thank you for posting it! I find myself a lot in this story, sometimes I have those twitching muscles but not only in my legs but everywhere in my body, like in hands, legs, back. I noticed I have it when I am very anxious or stressed. I considered seeing a...
  31. Hope2015

    My Odd Experience with Benzodiazepines! Vibrations...

    Hello everyone! I just want to share with you my odd experience with benzodiazepines. I got my T about 4 months ago now from acoustic trauma(I used to listen to very loud music). After trying a lot of treatments that failed, for sleeping I started to use Xanax or Diazepam or Bromazepam. I use...
  32. Hope2015

    I Will Have My First Plane Travel. I Need Some Advice! Thank You!

    Thank you very much for your answers @Lorenzo74 and @mick1987 !!! My plane trip was ok, when I felt some pressure in my ears I used to swallow a lot and that helped me.
  33. Hope2015

    I Will Have My First Plane Travel. I Need Some Advice! Thank You!

    Hello everyone! Like my title says, on Wednesday I will have my first plane trip from Debrecen(Hungary) to Belgium, such a long trip. This is the first time when I travel by the plane and I am afraid because I have Tinnitus for 4 months too. Can altitude cause spikes? Or worsen Tinnitus? Should...
  34. Hope2015

    Disappointed

    I think it is ok to use a fan for example or a mask when you really need it. I am in the same situation like you, I had so many good days out with my friends but there are some days when I stay home and I hear it better and it drives me crazy again. I have it for 3 months, I have not habbituated...
  35. Hope2015

    I'm a Student with Tinnitus. Any Tips for Studying? Please!

    Thank you beautiful people for making time to write to me. You were very strong, I really appreciate all of you!I really miss my old life... :(
  36. Hope2015

    I'm a Student with Tinnitus. Any Tips for Studying? Please!

    Thank you very much for your answer billie48, I really appreciate! Even if I have it for 3 months it is very hard for me, I don't think I reached at that point to habituate but I would like to. My T is louder in the morning I don't know why, when I wake up, then I try to concentrate on other...
  37. Hope2015

    I'm a Student with Tinnitus. Any Tips for Studying? Please!

    Hello everyone! I have T for about 3 months...as I read here you all know my struggles, you know trough what I am going to. It is very hard to live for me and I used to have a very happy life. I try every day to stay positive but it is very hard. I cried a lot, I was to the ENT, the doctors...