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  1. Darren13

    Meniere's Disease

    My life has changed a lot since the bad start of menieres 11 months ago now. I've not worked in all that time lost my job I was doing for 25 years, had my driving licence taken from me and my firm has filed for ill health retirement. My doctor is backing me and agrees that this would help me and...
  2. Darren13

    Meniere's Disease

    I've had pulsatile tinnitus alongside the constant high pitched tone from time to time.
  3. Darren13

    Meniere's Disease

    I did attend ENT for for physical therapy but they said my my balance wouldn't change much and there wasn't a lot I could do but get along with it the best I can. This week I've been told I've as good as lost my job after being off work now for 9 months and not being able to return to my job...
  4. Darren13

    Meniere's Disease

    @Jkph75 They could only guess that I was born deaf due to my mother having a 52 hour bad labour and the stress on me that would have caused, once born I was rushed off to an incubator and my first 48 hours of life was touch and go as I was born blue and hardly breathing. I really only remember...
  5. Darren13

    Meniere's Disease

    I was born deaf in my right ear which they found out I was at the age of 6/7 when I had my first school hearing test. it never really seemed to affect me apart from my balance was always off which made things like riding bikes etc very difficult to do and took me longer than other kids to do...
  6. Darren13

    Meniere's Disease

    JAJ You sound like me I tend to laugh at everything it seems easier. My eye sight like yours is awful at times. I had them tested only 8 months ago and apart from needing reading glasses X1.5 at times all was fine, but with this Meniers there are days where my eyes do all sorts of weird things...
  7. Darren13

    Meniere's Disease

    No I didn't think you were minimising my MD lol. You have to look at it in a lighthearted away at times or you'd end up so depressed all the time and as we know that just makes matters all the worse. Losing my driving licence and now a possibility of my job are bad enough without all the MD...
  8. Darren13

    Meniere's Disease

    It's not been a bundle of laughs being 50 so far lol. I got MD a month after my 50th birthday. Typical
  9. Darren13

    Meniere's Disease

    @Jkph75 my deaf ear was fine as far as I know at first but now it has the same problems as my good one at the same time. Fullness. Earache hot feeling, again unsure if it has tinnitus. When I mentioned it to my doc last visit he said there's a good chance, I'm off to see ENT again at some...
  10. Darren13

    Meniere's Disease

    After nearly 9 months now I'm still going through all the symptoms there's been no let up, I'm already deaf in one ear and menieres started in my good ear last August with all the usual signs. Now about 6 weeks ago it appears to be affecting my deaf ear I go in cycles of about every 7-10 days ...
  11. Darren13

    Meniere's Disease

    In all honesty I'm not too bad first thing in the mornings after a good 7 hour sleep, but it's totally the opposite if I drop off for a cat nap, I'm all over the place for a good hour or so. So I avoid cat naps at all costs if possible.
  12. Darren13

    Meniere's Disease

    I'm only guessing that seeing as it's been 7 long months with all the symptoms of MD, that my body's starting to get used to how to cope with it more after all I've been off work all that time and been able to rest up as much as possible, I really don't know how I'm yet going to cope with going...
  13. Darren13

    Meniere's Disease

    I'm sure it won't get so bad that it will disable you completely, it does eventually get to a point where your body will get used to the problems and you begin to cope better. But that point differs for us all sone will take longer and you like me could be more vulnerable as we started with the...
  14. Darren13

    Meniere's Disease

    Like the two of you I've been deaf in one ear since probable birth or very early age. I read completely deaf people say we're lucky as we have half our hearing, but being deaf in one ear brings all sorts of unwanted frustrated problems that they don't understand about. And now MD in my what I...
  15. Darren13

    Meniere's Disease

    I know what you mean Mand about not telling anyone. I hardly told anyone only very close people to me that I was hard of hearing and just muddled through even though most of the time I couldn't hear a lot of what they were saying. It wasn't until I was about 48 that things came to a head and...
  16. Darren13

    Meniere's Disease

    @Mand b Hi No I haven't had balance testing done, I've always had bad balance in the deaf ear but coped as I was used to it however in the past few years as I was approaching 50 it was getting worse pretty quickly, now with the MD affecting my other ear my balance is awful, most daily...
  17. Darren13

    Meniere's Disease

    Hi again Mand b Answers to your earlier post I don't get many good days to be honest but as times go on I don't get too many really bad one, frustration is the main one due to being very unbalanced, at long last I'm looking to get back to work end of April after being off since mid August last...
  18. Darren13

    Meniere's Disease

    Hi Mand b I'm going to reply to your message later today, I'm a bit tied for time at the moment but just wanted to let you know I will be replying today just incase you come on and check. By the way I'm 50. And yes been suffering with lots of symptoms since mid August last year. Darren.
  19. Darren13

    Meniere's Disease

    @Mand b Hello just to let you know I'm in the same boat as you. Suffering with the same symptoms and yes been deaf in one ear since birth like you. I have had problems since mid August and after tests was diagnosed with MD in my good ear, I've not been able to work since mid August and I'm...
  20. Darren13

    Meniere's Disease

    So sorry to hear that Glynis I genuinely hope it eases off very soon for you. And I'm usually on here bending your ear for help myself. Let us know who it's going when you can. All the best.
  21. Darren13

    Meniere's Disease

    Hi Glynis I hope you beginning to feel a bit better now. Hope the Christmas and new year period weren't too stressful on the MD. Mine was pretty bad over that period unfortunately I think will lots of things going on around that time and the stressfulness of it. The MD managed to rear it head on...
  22. Darren13

    Meniere's Disease

    Hi Glynis Thanks for the comments My manager is coming out to see me Tuesday after having my occ health report' and obviously wants to discuss things. It basically states that I'm a danger to myself and possibly others in the state I'm in because of virtigo attacks and bad balance etc, and...
  23. Darren13

    Meniere's Disease

    I'm pretty much new to MD myself so I'm learning as I go along. I'm not sure if there is much you can do as yet, but you could try the usual tips low salt diet, low or no caffeine, and chocolate. And drink plenty of water. It's known to help some.
  24. Darren13

    Meniere's Disease

    Hi Glynis As you said Occ Health were very good and understanding. Unfortunately it doesn't hold out so good for my job, the difficulty of not having my licence now and not being able to be sure I'm 100% safe carrying out my duties within my job makes it difficult to hang on to it. Health and...
  25. Darren13

    Meniere's Disease

    Hi Jae Is it just hearing loss or do you suffer from any other of the problems associated with MD. I've read many others say that reducing salt and upping their water intake has helped and a few others say not, We're all different so what works for some doesn't work for others. But I'd give it...
  26. Darren13

    Meniere's Disease

    Glynis you're a Star. Thank you.
  27. Darren13

    Meniere's Disease

    I'm glad you said that Glynis. I heard a rumor that they aren't always very understanding and not always clued up on vestibular conditions like MD and just want to rush you back to work. Probably undoing anything good you had going on lol. Some one else also said like you that they are...
  28. Darren13

    Meniere's Disease

    Hi all I'm still on same medication as I feel very slowly the symptoms are decreasing each attack either seems less harsh and doesn't last as long or I'm getting more used to it or the medication has started kicking in a bit, How long it will last as you know is anybody's guess. But after a 3...
  29. Darren13

    Meniere's Disease

    Thanks Glynis Good tip there. I will let you know how Monday goes next week.
  30. Darren13

    Meniere's Disease

    Hi all. well still had a fairly bad last two weeks I'm back to the doctors again Monday coming. I think he mentioned about getting vestibular retraining on last appointment. Also I have a occupational health appointment the following week, I assume to talk over what I'm able and unable to do at...
  31. Darren13

    Meniere's Disease

    I've been deaf in one early all or most of my life up until then age of about 20 I was fairly fine with music. Since then I never listen to it to me it's a nuisance background noise and I can live without it. I'm now 50. Social gatherings party's with loud music playing I can tolerate for no...
  32. Darren13

    Meniere's Disease

    Thanks Glynis. I enquired to the wrong people lol. I went bus company and it should have been council. So them next. Again it's only to see if I get one if my license is revoked for a while my doc seems to think it will be. So staying one step ahead lol. I have cut as much salt out as poss in...
  33. Darren13

    Meniere's Disease

    Hi Glynis I had my last docs appointment. I'm still on Serc 3x 16mg a day. And found out that Ménière's is now officially on my medical notes. I'm back to see him again on 30th and still having plenty of problems, so finding it hard to cope still at this stage. My tinnitus has been raging for...
  34. Darren13

    Meniere's Disease

    Thanks for the replies Glynis and Teri I've had a pretty bad week this week with it all, tinnitus had gone fairly quiet in past 2 or 3 weeks, it was just a slight buzzing in the background but since the fall Monday has raged all week since, and I've felt all symptoms more strongly again, seems...
  35. Darren13

    Meniere's Disease

    Well after yesterday's fall I feel I've gone two steps back again I've felt drained today and very heady and wobbly. Good job I've not been back at work yet and it's whilst I'm still off.
  36. Darren13

    Meniere's Disease

    Thanks Teri. I did think it was a bit weird. If it's not one thing it's another, I've been of work for virtually 3 months with this last attack and as good as everyday in that 3 months I've had something in one way or another lol. Is it normal to carry on for so long without a let up ?. The...
  37. Darren13

    Meniere's Disease

    Hi Glynis Is it usual with Menieres to get leakage from one ear. The strange thing is the menieres has been attacking my left working ear but this week it seems to have switched to my right deaf ear in the form of brown leakage and painful. Although the leakage seems to have stopped after...
  38. Darren13

    Meniere's Disease

    Hi all Quick update. The Mir scan results have come back as normal. So I guess it's more of an indication that is is Menieres as they would have ruled out anything else it could have been. Got doctors appointment in just over a week again this time to talk over the medication and some of the...
  39. Darren13

    Meniere's Disease

    MRI scan done just got to wait for results now. Just to see if there is any thing else wrong with me. I assume if nothing else shows up its more a case that it is Ménière's I'm suffering with as diagnosed by my ENT specialist a couple of weeks back.
  40. Darren13

    Meniere's Disease

    Thanks Teri Yes it's all only just new to me really. Even though I've had it for 3 years or so, I just thought until now it the giddiness etc was just my deaf ear catching up with me now I've approached 50 lol. So it's now adjust to what I can and can't comfortable cope with I suppose as time...
  41. Darren13

    Meniere's Disease

    Hi Teri Over a year. That sounds like a real drag.... Makes my 8 week stint seem nothing to yours lol. I thought the symptoms after an attack would disappear after a few hours/ days. Im Awaiting my MRI scan which should be hopefully soon, I'm being sent to a private clinic as the waiting...
  42. Darren13

    Meniere's Disease

    Forgot to say the head where it's so sore throbs when I've tried myself out. After walking the dog for 20/30 mins or if I'm a passenger in a car after 10 mins the gerking around irritates my head and spaces me out, very uncomfortable.
  43. Darren13

    Meniere's Disease

    Can any one explain why after nearly 8 weeks of a bad attack I'm still plagued with problems, I have very sore head pains from the back of the neck to my temple, the whole area is sore to touch and aches on and off. I find it hard to speak properly when tired or irritated or have a long...
  44. Darren13

    Meniere's Disease

    Thanks Glynis. Even though I now know I've had Ménière's for about 3 years it's only really now in past 7 weeks really affected me. I shrugged the other times off thinking it was just my balance affecting me as I'm getting older due to my deaf ear. Also when visiting doctors those times nothing...
  45. Darren13

    Meniere's Disease

    One other thought. Anyone here know if I need to tell the DVLA of my condition my specialist I saw said no. But I'm sure I saw you need to ? I haven't been able to drive since the attacks started 7 weeks ago and even being a passenger in a car is difficult due to motion sickness when wife...
  46. Darren13

    Meniere's Disease

    Thanks Glynis Yes I'm on Betahistine 3x 16mg. Been off work for 7 weeks now and another 8 to come due to all the usual symptoms with Ménière's and others like slurred speech or stuttering and pains side of head by temple that freeze my brain up at times to almost falling to the floor if not...
  47. Darren13

    Meniere's Disease

    Hi Teri I just had appointment now with the specialist and conformation on Ménière's disease now. Mir scan to follow to check for possible tumours.
  48. Darren13

    Meniere's Disease

    Hi all. No other person in my family as far as I know have had ear problems. I was born or from very early age with a deaf right ear, apparently the nerve is dead. And I see you are 20-25% more likely than most people to have ear problems ie Menieres when you get older. I've just raced 50 lol...
  49. Darren13

    Meniere's Disease

    Finally got the ENT appointment through 4 weeks time. My tinnitus still remains it's been pretty much every day for past month nearly. Although other symptoms have arisen in past week or so, very sore side of head on both sides tender to touch type, mild headaches, and aching limbs as in spine...
  50. Darren13

    Meniere's Disease

    Hi. Yes still awaiting an ENT appointment, if I think I'm still unfit for work by the end of this week I will have to visit the doctors again so I will get them to chase it up again. I'm having a go at the head excercise that the Ménière's society sent me.
  51. Darren13

    Meniere's Disease

    Last two days hasn't been so bad which is good. I'm still experiencing problems for example hearing in the affected ear is muffled and still has a full feeling on and off. Plus a pain now and again that side of head. Also my eye sight isn't right my eyes are struggling at times blurry etc. the...
  52. Darren13

    Meniere's Disease

    Hi. Not as such suddenly it happened about 3 years ago first. I suddenly started spinning out for a few hours and couldn't stand. This happened about once a week for about 6 weeks then went. Then it did the same thing about six months later, again the exact same thing and time frame.next was a...
  53. Darren13

    Meniere's Disease

    Hi all I think I might have MD, I've been recently suffering with the usual symptoms. Dizziness feeling sick. Full sensation in ears. Tinnitus, unbalanced. Also slurred speech on occasions and slight memory loss. Now the thing that makes it worse is that I'm an SSD sufferer Single Sided Defness...