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Will you try the full program, with the migraine medications and all? I'd be interested to know what they prescribe you in your specific case.

If someone told you you are going to be fine beyond any doubt, they would be lying. Some of us have worsened over the years to a suicidal state (or even committed suicide). Others get better over time. Read some of the success stories.

Does the program cost include seeing Dr. Djalilian himself? If yes, how many times? We need more people trying this.

I'll be curious to read both of your progress reports. @Mathilda, did the assistant mention how many are feeling better after the treatment?

Are you suggesting that if there’s a country where her device is not patented, Tinnitus Quest should try to create a copy and market it to patients? I don’t think any self-respecting organization would do that. It’s childish to even consider. From what I’ve read about Tinnitus Quest here...

Your story regarding NeuroMed provided me with very valuable insights. Thank you for spending the time writing it! Please keep us updated on your progress. I might end up trying this, but the price is a little steep for me at the moment.

I agree. I'm disappointed to see this being promoted in this way. I wouldn't spend any money on it.

:eek: It's 47€ for 15 sachets? 119€ for 45 sachets? That is on the expensive side. Have you tried these individually in same or higher doses as in your expensive supplement: N-acetylcysteine (NAC) Quercetin Bioflavonoids (orange, lemon, lime, grapefruit, tangerine, hesperidin and rutin)? If...

The clinical trial device looked like this: Of course they want to design a better-looking and easier to use device for the general market availability?

@linearb felt good effects from the Susan Shore Device, while he was using it. Those good effects didn't last after the trial.

I am corrected to be a fool. Their fault for choosing that name that causes confusion!

According to this page, YCombinator has funded Auricle in 2024. YCombinator doesn't seem to have funded Neuromod, though. I used this search. I was hoping YCombinator had funded Neuromod. That would have been a pleasant conflict of interest...

It literally does not mean that. "In searching our database of FDA cleared and/or registered medical devices, I was unable to find a manufacturer or device with the name "Auricle." Therefore, you may want to check directly with the manufacturer to learn the current status of their device with...

Yeah, maybe the acoustic shock you experienced last month is still having some negative impact. Time will probably help...

The idea is that they protect from impulse sounds, but yet you can still have a normal conversation when the gunshots are not going off, since they have the ability to amplify quieter sounds. They are very different to your normal Peltor X5As.

I think you misunderstood @dd314. I don't think there's been any new upgrade to correct any latency issues, but the CEO claims that the latency has been corrected for since day 1, and is a non-issue.

@gameover, are you still suicidal, permanently better, or something in between?

They never had a clinical trial with 400 participants. The second trial had only 99 participants. The plan was to have more, but due to COVID-19 they reduced the number.

I find that so perplexing. @BB23 is apparently ready to throw in the towel and be placed six feet under, so why be scared of trying anything and everything? I would rather have tried everything before I call it quits, I wouldn't mind the potential risks and side effects at that point.

Did you ever find a good unit?

For example these: https://1of1custom.com/collections/custom-ear-plugs/products/total-block

Good luck with the conference this year, @Hazel! Thanks for working so hard on our behalf. It is slightly odd. Even if there wasn't anything new to announce or discuss as such, she could still go over the latest trial results, recap the science, and create more awareness around the device.

This is a BIG problem. Tinnitus UK and the American Tinnitus Association should NOT take money from Lenire and have them sponsor their events and website. They do mention in small print that they don't endorse Lenire but that doesn't help: it still gives credibility to Lenire in most people's...

From now on, always with hearing protection!

Will you become a millionaire?

That's scary for you I bet, but also interesting you can experience such good days and such awful days. Many of us are stuck in the awful days!

Cortexi is a scam, just like "Ring Stop" and all the others. Spend your money on a good dinner instead!

There is a warning in the first post. I agree with that warning that nobody with hyperacusis at least should try this but I can't see it being harmful for regular tinnitus if the volume is kept low.

Did the horrible taste go away eventually?

What does this sentence mean?

I would also be hesitant sharing about my tinnitus with my employer, it seems too personal and I'm afraid they might think it lowers my ability to perform well.

Worthless crap that "independent" study, just like Lenire is. No placebo control whatsoever.

These distortions often go away in 12-24 months.

Elmer is originally from the US, moved to Ireland later in his life to be with his wife or something.

That's interesting, it's so much money and you could do so much good with that in the world, I would struggle to put my own tinnitus above the possibilities the $10 trillion would grant. But I get your comparison, basically most severe sufferers would prefer silence over a boatload of money.

Is this still the case, 24 hours after, six days total?

OMG, you were just trying to treat one issue and got hit by a worsening of another. Medication induced tinnitus can take a long time to clear up, but it can clear up. It's only been 5 days since you stopped it so have hope.

The majority of them probably did follow instructions to a tee. Being given a chance at reducing your tinnitus by following protocol, I bet it's more likely you follow instructions than not. I think you are trying to sugarcoat things by accusing trial participants of not following protocol...

One successful cochlear implant story within this:

Why do they do that in general?

To think that Auricle or Dr. Shore's work is a scam, is preposterous. This is decades worth of research. It would be the world's most idiotic long con. They know tinnitus patients would quickly spread word if the device doesn't work. It's not an automatic millionaire maker when it's not even out...

Great find! I guess the PDF slides are interesting to see how the software GUI works.

I hope you have a nice Thanksgiving, @gameover.

There was a reputable journal publication, peer reviewed by Will Sedley and Roland Schaette. It was all a sham at the end...

You look happy, and both of you look kind people. Happy for you!

Stop the nonsense. You are asking people to drop critical thinking and become blind sheep. In the world of science, there have been more promising developments (than this device) that ended up being relatively ineffective in the real world.

@Daystar, may your good fortune continue!

It depends on the situation. If you have earwax impaction, it might not come out of your ear with just olive oil, but might require syringing, microsuction or using the curette. In that case it's best to use olive oil or Debrox before the procedure. But after your ears are clean, olive oil is...

Have you had any better days this week @gameover?

For the next year or two, it's just a waiting game. Nobody's getting their hands on any device in 2024 yet, that's for sure.

They are obviously aware of it but tinnitus is so hard to do clinical trials for with the lack of objective measurements. Every single pharmaceutical clinical trial has pretty much blamed their failure on that. No pharmaceutical company wants to take the risk anymore, even with the potential...

I can't wait to try this device. But OMG it would be heartbreaking to be in the group for whom it doesn't do anything positive. This is the only realistic treatment in the near <3 year timeline.

One of the best success stories ever. So happy you are back to something resembling normalcy! Go get those girls and enjoy your life :beeranimation: :rockingbanana:

I experience this too but then again my tinnitus is VERY somatic!

Except that I think Magnesium L-Threonate is the only form of supplemental Magnesium that can cross the blood brain barrier. Unless I'm mistaken... And apparently the form may matter otherwise too:

During washout nothing is done, no active or placebo treatment at all, just chill.

But it was for trial eligibility. Obviously you can try the device for intermittent tinnitus when it's out in the market...

Were you aware of these attacks before you noticed your tinnitus? Or did your tinnitus come first and then you became aware of the attacks later?