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Its been maybe nine months since my second round of treatment with AM-101. I can say now it made no change in my tinnitus whatsoever. However my right ear is a little messed up from the treatment, it still pops very loudly whenever I burp. Annoying but nothing awful. I think the best thing to...

Three weeks out from last injection and I have major pain and popping in my right ear... anyone still have pain popping after three weeks? I dont think this is normal :(

Naturally- nothing to do with AM 101

Ive had hyperacusis since when my tinnitus started 5-6 months ago. However the hyperacusis has become much better than it was at the beginning, thankfully!

Week 3 update (Round 2 drug) - Tinnitus stable at a 3.5 (started round 2 at 5-6 ish) - Ears were fine up until I flew five days ago, now they have been continually painful and popping for last five days Dont think I will go for round 3 as I am worried about further hurting my ears with...

Shit my tinnitus has jumped back up to a 5 so damn frustrating! Was going down over two weeks then boom. @OddV how long did your tinnitus take to go down after receiving AM-101? Just FYI I had a long plane ride a few days ago and I believe that might be the reason why my tinnitus has increased...

Well my tinnitus was a 2 when I started looking at AM 101. Then a 3 when I got accepted into the trial. around a 3.5 at my first injection, then continued all the way up to 6 before my first real injection of AM 101. I know people have this feeling that tinnitus always goes down, but that wasnt...

2-week update after Real drug (round 2) Tinnitus from a 6 down to a 3.25 Small amounts of popping in my left ear have started up as of yesterday, but I took a long flight so that could be why. Glad I stuck it out. Had no relief after round 1 as I believe I received placebo.

1-week update after Real drug (round 2) Tinnitus from a 6 down to a 5-5.5 Ear fullness after injections gone away Ear popping after injections gone down. Eardrums have healed after injections though I have small blood clots (probably what is causing the popping as my ENT said)

Hey @JohnK I was just wondering if you had any popping of the ears. Whenever I burp it feels like my eardrums are popping and I was wondering if something was wrong with them lol. Im just hoping the injection sites are healing okay.

So my spike happened like this. Inserted injections and no spike. As I held my head to the side and let the injection sink in, over thirty minutes spike began to set in and got to max volume 15 minutes after injection. Then stayed super loud for three hours. After that it began to settle down a...

Funny how you guys had pain on the first day and not the others. For me it was the other way around. Non painful injection the first day and quite painful on second and third. Finished up yesterday evening around six. Tinnitus spike is still pretty loud, but nothing like what I experienced right...

Hey man- I had my doubts initially about the injections- but the fact is, this is our best shot of beating tinnitus. Its quite rare that someone knows the true cause of their tinnitus, and AM-101 is our best shot of beating it. Go into this study knowing you are doing the right thing.

Hey guys! Just had my first round of real injections. My tinnitus spiked so loud at first it was terrible. The first three hours after the injections my tinnitus was a fifteen out of ten. I actually drove around for three hours with the air blasting and music on because I couldnt bear the...

Cool thanks for the recommendation I will look into it!

Are you sure? I looked online and I found under side effects for nortriptyline that "tinnitus" was there. Anyhow I am nearly 100% sure its what has caused the crazy spike, as I have changed nothing else during the last 5 days.

My tinnitus has spiked from a 4 to an 11 out of 10 following five days of taking 20mg of nortryptiline (a tricyclic antidepressant I took for nerve pain) Literally have not been able to sleep, work, do anything! am mentally more battered than I have ever been before in my life Im obviously...

This is awesome stuff but- Just wanted to say- mine says worse however was only worse for two weeks its at baseline now. Sorry, probably should have given an update earlier :D Also- When you look at people who were given more than one round of injections (as the first 3 injections tend to be...

Hang tight man it gets better!!

cheers man Ill look into this!

Ooh cool thanks Debin I have had some success with my method so will definitely give audionotch a go as well. Just wondering has anyone tried this yet? I am curious to see how it effects others

Hi everyone A couple months back I went to an audiologist who discussed possible paths I could take to deal with my tinnitus. She mentioned a study (which I havent been able to find) about individuals who were given a machine which plays ringing at the tone of their tinnitus. In the study they...

From what I remember its some pretty general stuff about your tinnitus. When did it start, how did it start, basically a bunch of questions about the origin of your tinnitus. Thats from what I remember, had the initial call like 2 months ago.

Hi guys my tinnitus currently sits at about a 3.5, which is awful but manageable, however over the past 48 hours it has increased 3 times in my left ear to a 10, incredibly loud, for about 15 seconds each time. Naturally, this is scaring the absolute shit out of me that it will be permanent. Has...

Little update for everyone. Its been four weeks since my shots. The pulsatile tinnitus died away about a week and a half ago (never had before shots) however my tinnitus has gone up from a 3 to a 4. I believe wholeheartedly I got the placebo. Hopefully the next round will help me out.

ah okay thanks, just asking because I did and kept having painful popping in my left ear when I changed elevation. Your ENT say anything about it?

Yeah I am really not sure. The ENT I went to today seemed to not even know what pulsatile tinnitus was (n) And yes, I was injected in both ears but only have the pulsatile tinnitus on my left ear. Did you by chance fly immediately after your appointment? Or drive in high elevation?

Its pretty frustrating eh? Makes sleeping impossible. Like it wasnt already difficult with tinnitus lol. I have an ENT appt in an hour - Ill let you know what he says edit- good thing is though it seems like most cases of pulsatile tinnitus are curable. and who knows ours could just be a...

day 10 since injection. permanent pulsatile tinnitus in left ear from (I believe) injections. actual tinnitus level 4 out of 10 baseline is 3.5 out of 10.

I think I will do this. What is team trobalt? Individuals who happen to know about the drug? or Researchers who are looking into it?

Thats great to hear its lowering man. Hope it goes all the way down to 0!

ringing up to 7 tonight. not sure if i can take this another day

You still have that? How long has it been since your injections?

Cool will do. Enya is the bomb. It's just difficult because I have some friends from home who are visiting so I can't do much. Can't wait till this gets better!

4 1/2 days since injections. Ringing 5/10 from usual 3.5/10. My ears feel full and weird. Clicking and pressure sensation when yawning or burping. Occasionally feel ringing worsen with pulse. really frustrated by this. I've stopped going to class and sleeping has become difficult. Starting to...

Cant tell you how much better that makes me feel. thanks man :)

Hey, its been two days since my last injection and my tinnitus has gone up quite a bit. from a 3.5 to a 5 out of 10. I can hear it in class now, which makes paying attention difficult. another problem I have is that when I yawn or burp I get a terribly weird sensation in my ears. Like a bunch of...

Really moe? thats great to hear man. have you tried fish oil in the past and, if so, did it have the same effect? The reason I ask is because I take fish oil daily but would be willing to switch to krill oil if it had a chance at helping tinnitus (as I do not feel that fish oil helps my tinnitus)

Finished all three sets of injections- will update you guys on how I proceed. 2nd and 3rd shots into ear were pretty painful. Overall right now tinnitus is up a little bit, and my hearing is a tad muffled. But I dinna think it will last long

thanks man! Really good to hear that. Have my second one today. My tinnitus has gone back down to its original level, which is nice. sitting at about a 3.5 out of 10 right now.

Hi guys. Had my first shots into the ears today at around 5 o clock. tinnitus has risen from a 3 to a 5 and my hearing is very muffled. I am worried that I received the placebo because it was not painful- and people were saying before on this thread that receiving the real drug was painful.

Sorry man I cant imagine how brutal all this must have been for you. I have only had it for 2 months and its been frustrating. I have Am101 injections in a week so hopefully that will help.

Wrong attitude man. We can beat this thing! At least we can work on ways to reduce it till a good cure comes out.

cool. thanks for the reply!

Hi guys. I am enrolled in the AM101 study and am scheduled to have my injections october 15th-17th. I am a little confused because everyone here is talking about "rounds". What do you mean by rounds? From the information I was given, there are three shots (with 60% chance getting drug and 40%...

Sorry Cheza I am new here. Im a young fella, 22, and have had tinnitus for two months now. My dad sent me the email about his friend using CBD oil just last week, I had university midterms then, and that is why I am looking into it now. My tinnitus isnt so severe, maybe a 3.5 out of 10 but it...

Hey guys just wanted to give a little input on this thread. My fathers friend had bad tinnitus and it was helped immensely by ingesting a few drops of CBD oil each day. Im going to get some myself and let you know how it goes.