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  1. Keith D Mitchell

    Carbamazepine (Tegretol, Equetro)

    I don't come around here much, but I did want to sound off on Carbamazepine. I started taking it a year or so ago as I developed MEM/TTTS on top of my tinnitus, which sucks. After months, my ENT mentioned Carbamazepine could help, and I've tried it. It doesn't affect my tinnitus at all, but it...
  2. Keith D Mitchell

    At My Wits' End with Somatic Tinnitus — Do I Continue with Wasted Treatment Attempts?

    How did you make out? I'm still in the same place, wiht multiple docs trying to push Nortriptyline on me. I had one give me Cabramazepine for 5 days, which was barely enough time to see if it worked, but it seemed to help calm my ear down. But they won't give it to me again, Nortriptyline is...
  3. Keith D Mitchell

    Confirming Middle Ear Myoclonus (MEM) Diagnosis with Botox?

    I know this is super duper late, but... you were symptom-free for 15 years. Did the muscles grow back and attach? Did you ever have that looked at again?
  4. Keith D Mitchell

    Be Honest. Do You Still Enjoy Life?

    I haven't posted in a bit, mainly because I've just been dealing. Some days have been amazing, others not so amazing. Like today, started off fine, had an argument with my daughter and then my tinnitus started making new sounds. Hopefully, it's temporary and if not, then I'll cope with it. I...
  5. Keith D Mitchell

    At My Wits' End with Somatic Tinnitus — Do I Continue with Wasted Treatment Attempts?

    I did get X-rays. One chiropractor says I have misalignment but this new chiro does not believe so. I've attached them.
  6. Keith D Mitchell

    At My Wits' End with Somatic Tinnitus — Do I Continue with Wasted Treatment Attempts?

    The last few weeks have been weird. Between using Sleepytime tea, and being completely tired, I've had some good rests. I've also experienced bouts of my ear fluttering out of nowhere, with clicking, for 15-30 minutes or longer. Last night it woke me up around 3 AM. That was fun. Today, I saw...
  7. Keith D Mitchell

    At My Wits' End with Somatic Tinnitus — Do I Continue with Wasted Treatment Attempts?

    The problem is this specific ENT organization has a monology on ENTs. If you were an independent ENT, they would offer you a job that you couldn't refuse. So all the good ENTs end up there. It's hard to find an ENT that's not part of this organization. An ENT I used to go to and was fantastic...
  8. Keith D Mitchell

    At My Wits' End with Somatic Tinnitus — Do I Continue with Wasted Treatment Attempts?

    I was half tempted to take a Q-tip and show the ENT how much fluid was coming out of my ear. When I did it, and I know I shouldn't, the top of the Q-Tip was so soaked that it falls apart.
  9. Keith D Mitchell

    At My Wits' End with Somatic Tinnitus — Do I Continue with Wasted Treatment Attempts?

    Just an update. I came back from my GP and he says there's definitely some fluid in my ear which could be causing the clicking. My ENT said there was none, but the GP says my ear drum is not transparent and he sees white deposits the inside of my ear. Seriously, what's with these ENTs?
  10. Keith D Mitchell

    I Have Both Tinnitus and Pulsatile Tinnitus — The Latter Is Triggered by Certain Body/Head Movements

    The clicking sound is similar to what I developed back in February 2021. Random sounds, walking, talking, blowing my nose, exhaling all cause my right ear to click. My ear also has clear liquid that discharges, never colored. That sounds stops whenever the stimuli stop. I've tired Flonase...
  11. Keith D Mitchell

    At My Wits' End with Somatic Tinnitus — Do I Continue with Wasted Treatment Attempts?

    Once again @Greg Sacramento, thank you for your input and wisdom. I'm not sure how much different a chiro is from a physical therapist, but if you're recommending it, I'm doing it.
  12. Keith D Mitchell

    At My Wits' End with Somatic Tinnitus — Do I Continue with Wasted Treatment Attempts?

    The sound is more like a hollow, metallic click. It's not very loud but if I'm listening, I hear it. What's driving me crazy is that it started a few months back. I thought it was an infection, but my damned ENT refuses to give me something for an ear infection until an allergy test. Which is...
  13. Keith D Mitchell

    At My Wits' End with Somatic Tinnitus — Do I Continue with Wasted Treatment Attempts?

    Also, I realized that clicking noise persists even if I plug my ear and gets worse when I'm tired. Or it randomly goes crazy for 10 to 20 minutes.
  14. Keith D Mitchell

    At My Wits' End with Somatic Tinnitus — Do I Continue with Wasted Treatment Attempts?

    Hello, I was hoping you'd see this post. A bit of an update. I saw a TMJ doctor last Friday. He said my mouth was fine. No reason to be concerned about the popping. So it's the spine straightening and correcting the C1 and C2. Honestly I don't know if that will help me. I definitely don't want...
  15. Keith D Mitchell

    At My Wits' End with Somatic Tinnitus — Do I Continue with Wasted Treatment Attempts?

    Coping. I had some chamomile tea that helped me sleep last night. The tinnitus isn't so bothersome today, but the anxiety is still sky high. My mom gave me a Bible today after talking to her about everything I've gone through.
  16. Keith D Mitchell

    Be Honest. Do You Still Enjoy Life?

    You're an inspiration. I don't know how you do it. Me, I can't look at my wife and kids anymore without breaking down. I wish I knew what changed, it wasn't this bad in the past 7 years. It wasn't this bad 5 months ago.
  17. Keith D Mitchell

    Sleep Strategies for Tinnitus Related Sleep Problems

    Despite living with tinnitus in my right ear for 7 years, I'm at a loss now. It feels like it's getting worse and has really impacted my sleep. The past week has been an episode of me trying to sleep, falling asleep, waking up, and crying. Only for my loving wifey to hold me and try to settle me...
  18. Keith D Mitchell

    At My Wits' End with Somatic Tinnitus — Do I Continue with Wasted Treatment Attempts?

    Sigh... I was hoping it might help. Now it seems it won't.
  19. Keith D Mitchell

    At My Wits' End with Somatic Tinnitus — Do I Continue with Wasted Treatment Attempts?

    Thanks for mentioning Klonopin and Gabapentin. Are those ototoxic? As for Prednisone, oh yeah, it causes anxiety, racing heart, and a bunch of other stuff. I'm seeing a liver specialist tomorrow and hopefully, they'll be able to tell me when I get off this stuff and until something safer. I'm...
  20. Keith D Mitchell

    Be Honest. Do You Still Enjoy Life?

    Only here, my ENT hasn't even mentioned it. Another personal hell with no treatment? Who would test for this? My GP? ENT? Lord I hope it's not the latter, they didn't even mention it. All they want to do now is get me to come in for an allergy test.
  21. Keith D Mitchell

    Be Honest. Do You Still Enjoy Life?

    The tone is only there when there are stimuli. So if that ever goes away, I'd be happier. Makes me sad that the medical world is still very much behind on a problem that affects the entire world. With more and more people suffering from this with each day.
  22. Keith D Mitchell

    Be Honest. Do You Still Enjoy Life?

    Not competes, on top of. So the tinnitus and then this sound. I thought it was an infection because I keep getting clear liquid in my ears at night. I can take a Q-tip (I know) and put it in my ear and when I pull it out, the Q-tip is completely wet. It's not Dysacusis, as that distorts the...
  23. Keith D Mitchell

    At My Wits' End with Somatic Tinnitus — Do I Continue with Wasted Treatment Attempts?

    So, the last few months have been hell for me. My tinnitus, until February 2021, had been at an acceptable level. Then out of nowhere, I started experiencing what I can only describe as a fast clicking noise when listening to certain sounds. The toilet filling up, certain fans, cars speeding...
  24. Keith D Mitchell

    Be Honest. Do You Still Enjoy Life?

    I used to, and for 7 years I thought I could beat this. But now I've developed a new sound that is driving me crazy. I have even thought about suicide and my wife knows it. She's being strong for both of us, but I can't take it anymore. I'm scared, there are no answers and frankly reading about...
  25. Keith D Mitchell

    Hello All. Recently Diagnosed with Tinnitus.

    I read both of your posts and they were insightful. I do want the MRI, but yet again the ENT I went to hasn't returned my calls. I even called them again today. I'm going to have to find another ENT and hopefully, they'll let me just schedule the MRI. Speaking of the MRI, I've seen lots of...
  26. Keith D Mitchell

    Hello All. Recently Diagnosed with Tinnitus.

    Getting back to this, it's not all sounds. It's not even loud sounds, it's light, barely noticeable sounds that cause my tinnitus to act up. That doesn't seem like noise-induced tinnitus, does it?
  27. Keith D Mitchell

    Hello All. Recently Diagnosed with Tinnitus.

    Michael, the case for my original onset was not discovered. It wasn't noise-induced though. I don't go to clubs, never have, or concerts. I use headphones but I never blast them. I recently went to an ENT, which if I'm being honest was not helpful. They did a test, said no middle ear infection...
  28. Keith D Mitchell

    Hello All. Recently Diagnosed with Tinnitus.

    I've had tinnitus for a while now and I've come to accept it. Frankly, it's not bad. From 1- 10, it's and about a 4, maybe 6 when I'm having a bad day. However, as the past week, there's been a weird development and I'm both scared and troubled by it. Because this has never happened before...
  29. Keith D Mitchell

    Woke Up with Ear Fluid in Right Ear — ENT: No Detectable ETD (Eustachian Tube Dysfunction)

    I've dealt with tinnitus for 7 years now and I've had a handle on it. But as of last week, I developed a clicking sound that only happens around certain sounds, or movements, like walking, typing on the keyboard, or even touching my hair. I was hoping it's because I'm sick as I noticed when I do...
  30. Keith D Mitchell

    Woke Up with Ear Fluid in Right Ear — ENT: No Detectable ETD (Eustachian Tube Dysfunction)

    I literally had a similar experience. I went to the ENT and they said my hearing was fine. I told them I feel congested, my right ear feels full and there's always a liquid in my right ear. They pretty much didn't care, said all was fine and I left. What you're saying doesn't give me any...
  31. Keith D Mitchell

    Hello All. Recently Diagnosed with Tinnitus.

    First off, hello! I haven't been here in years as I went off to deal with my tinnitus. And for the most part, I did, but now this new noise has me stressed. About 4-5 days ago, I started hearing another sound in my right ear, a clicking that only happens when bending over, walking, moving my...
  32. Keith D Mitchell

    Hello All. Recently Diagnosed with Tinnitus.

    And not just due to the "T" and the ear popping. I recently had a heart to heart with my wife about this who ordeal as she was tired of me complaining and bitching about it all. I finally used the "you don't know how I feel or how this shit is bothering me" card and to my surprise she responded...
  33. Keith D Mitchell

    How Long Did It Take To Get Your Life Back to Normal?

    I'm a little over two months with having "T" now and The last few weeks have been good. Ranging from being there but not caring, to non-existent or slightly there if there's noise around. If it's quiet, I mean super quiet then I can hear it, like siting in house alone or in my car. Thankfully...
  34. Keith D Mitchell

    TMJ? Worth Exploring This Avenue as the Cause of My Tinnitus?

    There's no concrete way to answer that. If the jaw is causing issues, then yes it should help and eventually cause the T to go away. However some have reported it helped, while others reported it didn't.
  35. Keith D Mitchell

    TMJ? Worth Exploring This Avenue as the Cause of My Tinnitus?

    Ironic my friend, we started this hell bound journey at the same time and are looking at the things. I actually called my dentist this morning about TMJ. My right ear just starting popping on and off this morning, and I had issues with the right side of my jaw, not when talking or eating, but I...
  36. Keith D Mitchell

    Hello All. Recently Diagnosed with Tinnitus.

    And I hate it. I had a little spike earlier today and that was it. It's been mostly quiet, though I can't say if it's gotten better of if I'm starting to habituate. Either way I hate it as I know it's waiting around the corner to ambush me. "T" be a cruel joke.
  37. Keith D Mitchell

    Otoacoustic Emissions Tests Give Clues as to Cause?

    Good idea. I"ll post my results as well as I sure as hell can't read them, lol. Mind you these are before I went to the GP and got the amoxcillian for 2 weeks. I should had another test done but I and the ENT i followed up with didn't think it would make a difference.
  38. Keith D Mitchell

    Hello All. Recently Diagnosed with Tinnitus.

    While this is something I should have asked my GP and ENT, I missed that chance. Goes like this -> Ent says you got "T", have fun -> GP says your ear looks infected, take this *Cue Zelda Get Music -> 14 days later I follow up with my GP and says it looks better, still some fluid since the ear...
  39. Keith D Mitchell

    AM-101 Clinical Trial — Participants Updates and Discussion

    Because my "T" comes and goes. Apparently they won't want those who suffer constantly vs someone like me who gets relief from time to time.
  40. Keith D Mitchell

    AM-101 Clinical Trial — Participants Updates and Discussion

    I want to add that if your "T" comes and goes, you may be disqualified. I was told this yesterday. Since my "T" isn't constant, I was not a good candidate, even though I told them prior the 3 week phone tag game we played.
  41. Keith D Mitchell

    Hello All. Recently Diagnosed with Tinnitus.

    When I originally went to an ENT, they gave me two audio tests; hearing and the other one, I forget what it's called. But basically it showed that my hair cells did have some damage which prevents me from hearing certain frequenices outside of 8K. I don't understand that as I can hear up to 16K...
  42. Keith D Mitchell

    Hello All. Recently Diagnosed with Tinnitus.

    Yep, I'm boned... it's in both ears now. So an ear infection that was caught in tme has lead to this and it's completely unbearable. I give props to everyone who's suffered as long as you have but how do you cope. I can't even imagine another year of this already Severely depressed. How am I...
  43. Keith D Mitchell

    Hello All. Recently Diagnosed with Tinnitus.

    Sucks ;( Here I was thinking I was getting better after a full month and then "T" is like, you didn't think it be that easy.... did you???????? Mauahahaaa! Seriously though, this sucks and it's been going all day ;(
  44. Keith D Mitchell

    Hello All. Recently Diagnosed with Tinnitus.

    So for the past few days / week, my ringing has been pretty good. In and out for the most part, but not really as loud. The last few days it was great. I can sleep with no issues, in fact I found my self falling a sleep in my office while coding. Even this morning was great.... until I took a...
  45. Keith D Mitchell

    AM-101 Was My Savior

    I'm still waiting to hear back, likely won't get an answer until next week, but I remember the persons exactly words regarding this. As this was my second time talking to them, the first time she flat out denied me as I didn't know the cause of the ringing. That changed once I said it was...
  46. Keith D Mitchell

    AM-101 Was My Savior

    I'm actually in talks regarding the trial now and what I was told is they are only accepting people that meet the two requirements; 1. Have had tinnitus for less than 3 months 2. Tinnitus was due to an infection and not by loud noise. It may be different depending on the study/who's running...
  47. Keith D Mitchell

    Hello All. Recently Diagnosed with Tinnitus.

    So ever seen the onset of my Tinnitus introduction, I stopped doing most of things I enjoyed. And while I'm still pretty bummed about it,I'm forcing myself to get back into my normal grind, so I figured why not share my latest endeavour. So let's start over :) I'm Keith Mitchell, co-founder...
  48. Keith D Mitchell

    Hello All. Recently Diagnosed with Tinnitus.

    I did in the beginning and was told I didn't qualify. I'm actually talking to them again about now, seeing it's been over a month. THough with the trial, I thought it was 3 month or under, so not sure why I didn't qualify the first time.
  49. Keith D Mitchell

    Hello All. Recently Diagnosed with Tinnitus.

    Despite this being a little of a month since this annoying ringing in my ear has started and despite my best efforts to get over it, to ignore it and get on with my day to day, I'm finding that I'm failing. More than I'd like to admit. More than I'd like to show my wife and kids, I hate for them...
  50. Keith D Mitchell

    Hello All. Recently Diagnosed with Tinnitus.

    Thanks. I was dreading going to work cause I feared this would happen and I was hoping I was free ;( Well doc says another month or so and doesn't think this is chronic tinnitus. In fact when I mentioned Tinnitus, he kept saying no... it wasn't. I dunno. Either way, I let this stop me from...
  51. Keith D Mitchell

    Hello All. Recently Diagnosed with Tinnitus.

    Heh, and now the ringing is back, in both ears. Oh well, it was a good 3-4 days.
  52. Keith D Mitchell

    Hello All. Recently Diagnosed with Tinnitus.

    I wanted to give an update. I went back to my GP since I finished my amoxcillian. He stated the infections looks to be gone or on the way out. He checked my left and right ears, stating that the right seems to have some fluid left as the ear drum didn't move as much as the left ear drum and to...
  53. Keith D Mitchell

    Dan's Corner, aka Ask Danik

    So, Dan, I've wondered about this this I developed my lovable ringing in my ear. So far I've had it for a month but only started medication for 2 weeks now. 875mg x2 of amoxcillian for an apparent ear infection. Since then I feel that my T has gotten better, it's still there but not as loud and...
  54. Keith D Mitchell

    Thought I Was Getting Better.

    I was going to make this very same thread. I've had a handful of good days, though I can't tell if the amoxcillian has run its course and has helped my infection and healing is started or what. For most of today, it's been on/off, off for a very long time, on for small periods... until I got...
  55. Keith D Mitchell

    Hello All. Recently Diagnosed with Tinnitus.

    Yesterday was perhaps my best day since I've had the ringing in my ears. Seeing how it's been a little under a month now, all I had was a little chirp but mostly silience. THis morning I'm hearing the low pitched Eeeeee, but it's not really noticeable. Is it usual for ringing caused by...
  56. Keith D Mitchell

    Hello All. Recently Diagnosed with Tinnitus.

    Well I can at least confirm that there is liquid in my ear. The last few nights I've been getting the same wet sensation but my inner ear has been wet. I was able to confirm that there is a clear / brown liquid in my ear, so it would seem it's draining but not enough to cause puddles to show on...
  57. Keith D Mitchell

    Hello All. Recently Diagnosed with Tinnitus.

    Well, I should more specific actually. In my case, my ringing or "T" was thought to be brought on my an ear infection. One that an ENT didn't catch up my GP did, go figure. So I've been on Amoxcillian for 8 days now and my right ear feels better, not as clogged but I did have a major "wet"...
  58. Keith D Mitchell

    Hello All. Recently Diagnosed with Tinnitus.

    Hey all, I meant to say thanks for the advise but I've been so busy. The T however, comes and goes, but the last few days were pretty good. I had maybe 10+ hours both days with little to no noise, it came back however much later but I can still catch Zzz's easy. I'm two days away from finishing...
  59. Keith D Mitchell

    Hello All. Recently Diagnosed with Tinnitus.

    That's good to know. So a follow up, how typical is it for T that was caused by such an infection to clear up or become less noticable? I'm all over the place it seems ;*(
  60. Keith D Mitchell

    Hello All. Recently Diagnosed with Tinnitus.

    Hello Again my fellew people, So I went to see my GP last Thursday and he prescribed me some Amoxcillian, as he stated I had a mild ear infection. So I've been taking 875 mg of it 2x a day, in addition to calicum, b-12 and lipofalavonoid. He stated that the ringing may be an effect of the...