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I feel the same about my tinnitus... I'm more than 6 months in and everytime I think "wow I don't hear my tinnitus in that almost silent place, it must have went down" it obsiously didn't. And the same goes for the opposite : "woah, my tinnitus is so strong, how the fuck am I supposed to live...

Are the 5% is related to the intratympanic injections done along AM-101 ? Is he doing follow-up visits as well ? Or is it more a general thing over perforated eardrums ? Quoting AM-101 phase 2 results (for the 227 patient which completed the study) : "In 93% of cases, the eardrum was already...

Does someones knows how do they measure T loudness for TACTT3 ? Only through participants reports ? Or do they still do the loudness matching test / minimum noise masking level ? (as I read in some other post for TACTT2).

The ENT responsible for the trial at my end told me that you don't have to fill the questionary every day. She told me that I would have to do it like a week or two before follow-up meetings. There may be a realtion between your T and your blood pressure in your case. I don't think that's a...

Welcome on TT, At onset the T can be unstable, since yours is new you still have a chance for it to lower with time. Even if it does not, most people will habituate to their T, but this takes time (several months at least). You could try some supplements as well (Magnesium, Vitamin B12, NAC...

I think that's the way to go ! Plus, you're helping science :) Good luck !

You are partly right. Most countries in Europe (if not all) accept tinnitus up to 6 month old, but in some other countries the trial is limited to 3 months old tinnitus. Here's the link for UK : http://www.tinnitus-study.info/uk-the-study

Hello Penate, This trial would only take place in America? Also, do you know if it would be dedicated to epilepsy? Or both epilepsy and tinnitus?

There's already a thread for ginkbo biloba : https://www.tinnitustalk.com/threads/ginkgo-biloba.1686/ I personnally tried it but it didn't do much.

I think it's because it is harder to measure the lowering of the T when it fluctuates. And because it's a clinical trial, what matters is not to cure everyone but to measure if the drug is effective or not. I believe that if the drug was out, you would have had access to it.

I've read that AM-111 is being tested following acute acoustic trauma or sudden deafness within 48 hours from onset. I guess everyone here is far from that timeframe ! Also it only works for people with severe hearing loss (others seems to have recovered on their own). Whatever, that's really...

I think we would need more data on this, How many epileptic patients has a neurologist ? How many patients among these are taking trobalt ? Then again, only one in five of those is supposed to have tinnitus. Mild ? Moderate ? Loud ? Some of them who are having it mild to moderate could not...

How can you guys be so pessimistic ? Maybe I will be too after so many years of T :confused: Medicine isn't something straight but there are people working in order that we get better. I wish I had numbers which would say how much is being spent on research today compared to 10 years ago. I...

This is supposed to be the last step before they receive the actual marketing authorisation. This comission gave a positive opinion uppon drug commercialization. So basically nothing should prevent this drug from reaching the market.

@Christian78 thank you for your support. I'll keep everyone updated :)

There's absolutely no evidence that participating in the trial and receiving the actual drug will guarantee your tinnitus to stay low over the years. The best it could do is lower your tinnitus (maybe you could get rid of it, who knows). The only way to prevent your tinnitus to get worse is to...

Just wanted to share my experience with Piracetam : At the onset of my tinnitus, I was prescribed Piracetam along corticoids. The first day I took piracetam alone (as corticoids were to be taken in the morning). It was instant relief ! My T went from 5 to 1 within half an hour (I felt so happy...

Didn't it actually helped some people over there ? https://www.tinnitustalk.com/threads/levetiracetam-keppra-worked-for-my-hyperacusis.8946/

I'm in a position close to yours, sometimes I feel like I'm OK with this and at some other time I feel totally desperate. I contacted a clinic where I could have the injections (I do not know if I am going to be accepted though). I could suggest you to take a look at the following post ...

Did anyone experience severe and lasting side effects ?

This is not a drug intended for tinnitus. This one is close to Keppra which didn't helped Tinnitus sufferers but helped hyperacusis. The interesting point is that it is more potent than Keppra and has way less secondary effects than trobalt. So I would say it's worth a shot.

It seems that this Bivaracetam will be sold under a product named "Briviact". I guess what's left is the Marketing Authorization itself (for UE availability). Not so much happened since January though :( "On 19 November 2015, the Committee for Medicinal Products for Human Use (CHMP) adopted a...

Hello Lauren, You may indeed suffer from middle ear barotrauma (which usually cause ear pain but not in all cases). Most middle ear barotrauma heal naturally without the need of meds. However, the vertigos and the hearing loss could also indicate an inner ear barotrauma (a small one maybe...

What is the cause of your tinnitus Hengist?

This thread amazes me

Hello Asvalian, You seem to be doing pretty good despite your "recent" T Concerning hearing loss, the human ear is able to hear frequencies above 8khz, but unfortunately most ENTs won't mesure hearing loss above 8khz (which could also lead to tinnitus). I would also second nucleo to take...

I'm currently working as a software engineer in Paris area. I'm glad I can put my headset on every time my T bothers me too much !

I had troubles equalizing pressure in my ears and I really likely overdid the Valsalva maneuver. What I did was like a small blast in the inner ear. (I contracted a cold at the end of the day as well, which would explain the troubles to equalize) The tinnitus came on the next day. PS : I'll...

Hello Nick, The informations you gathered here are really interesting, I've never heard of that before (not a long time T sufferer though). I may be in a situation close to yours (no hearing loss up until 8khz, not tested above sadly) although my trauma comes fromes diving. Please keep up the...

Why does it have to spread on the other ear ? Why brain, why ?

I really hope it will, either by me not paying any attention to it or by it disappearing totally ! I've always eaten healthy and I currently am in good shape. Although I did not have a physical activity in a week but that's because I've got a muscular pain going on. Thank you for the advice...

Thank you Eric and billie48 for your answers, I am afraid masking would delay the time I would need to habituate to it, but it sure is a relief. During the first month, I had some hopes that the T might go away after a few weeks. I began to lose hope right after that time. But if you think...

Bonjour Gosia, Thank you for you answer ! I'll try some of these in the near future. As for my T level, at the begining it would have been a 5 out of 10 maybe, it was quite loud (hard to sleep at that time). Now I would say between 2 and 4 mostly. Now I wouldn't say that my T isn't loud...

Hello everyone, It’s been a a little bit over a month since that my T appeared after a dive (no more than 20m/65ft). Doctors said I overdid valsava maneuver, leading to inner ear barotrauma, which led to the T (which appeard the day after the dive). Thankfully, I have no (or very limited)...