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It was beautiful ;)

I have T and vertigo. The vertigo just started. I did talk to my ENT today and she is prescribing Antivert to take daily. And I have the valium and promethazine for the attacks. I did find a Meniere's support forum on Facebook today. I was so relieved. Everyone in there was talking about the...

What's worse is I don't have a doctor to help me deal with this. The symptoms etc. I have my neurologist and thank God for him. He prescribes the promethazine and valium. But without an ENT or specialist and not having any support groups to talk to, I feel completely alone.

My parents live less than a mile away. I work with my brother. I do all of the bookkeeping and phones, dispatch radio, everything. It is my parent's company. They are turning it over to him. He does nothing but watches tv all day and makes three times as much as me. But he's got the grandson...

I don't know. I've tried everything. I have NO support. No one to talk to. I have a dr that doesn't know anything about Menieres, my neurologist. I got a new ENT, who is ABSOLUTELY clueless. She keeps wanting me to take tests that I've already taken for the Meniere's diagnosis. Which I got from...

Guess not

I was wondering, does anyone else who has been diagnosed with Meniere's have really bad neck pain at times? Sometimes in between episodes I have severe neck pain. It starts at the base of my skull and goes down under my ears. It hurts to even turn my head. I have tried hot and cold ice packs...

I called my primary today to call in Betahistine for me today. She called it in. I was pretty excited to get on it to help with the vertigo. I called the pharmacy to see it is ready. Not avaliable in the US :(

Trying Lipoflavonoids may be worth giving a shot. They have a tendency to work for those who have Meniere's disease. I was diagnosed a year ago and was ready to throw in the towel with anxiety over T. And I tried them and it worked. i take 2 in the morning, 2 in the evening, and 2 at lunch. Once...

I just got back from the beach! Went solo. Stayed for 4 days. Had a blast. Did have vertigo and blaring T and little H. But had a great trip. Even took a boat ride to see Dolphins. Sometimes you just gotta say, do it anyway. Fun Fun. :)

Yea mine is Meniere's related. Spent tons of money and time getting diagnosed. About two and half years later finally got the diagnosis. I do have migraines with the Menieres. I have taken several different medications, but none of them have seemed to help very much. The vertigo is pretty much...

My positivity today is my acceptance of my diagnosis of Meniere's and the fact that today isn't as bad as Sunday. And that I can manage to live life around this. It will not get the best of me. I may have to change the way I do things, but not the things that I do.

Mine did the same thing. Came and went. The T and the H for over 6 months before I got diagnosed with Meniere's. The vertigo didn't come until months later.

Thanks. I went to my ENT last week. My hearing in both ears is now affected. It may have gone bilateral. She is a new ENT. I sent over my previous records and Balance testing results. Having a hard time getting her to return my call and go over everything with me. But I am fairly certain it is...

I feel the same way. I have meniere's. And have found that valium or xanax helps. Years ago, I took benzos for anxiety for about 8 years. Getting off of them took forever. And I am scared to start using them again to control my episodes. But dramamine and xanax really knocks my attacks out. I...

I was REALLY doubtful of the lipoflavonoids. But an hour after I took them, I had silence for the first time in forever. I usually get them at Wal-mart. $19.99 for 100 tablets. I take two in the morning two at lunch and two at night for the first month, then back down to two or three a day. I...

Ok. Guess no one on here has Meniere's. Thanks.

You might want to ask your ENT about Meniere's. With Meniere's sounds cycle. They come and go. Have you had vertigo or off balance feeling?

I had mine stay for 3 months once. It drove me nuts. It finally left, thank God. Comes back sometimes though. Funny thing is I get a warning that it is coming back. Day before I hear a bass noise in the distance. Not a constant bass. Just occasional boom boom. Like it's coming for me. UGH hang...

I have reactive T. It is a low hum. It stops when I talk then the minute I shut up it comes back. Some sounds cancel it out too. However, it comes and goes. I have meniere's too, so that may be why it comes and goes. However, my meniere's currently went bilateral so now my left ear makes...

Where can I get this cane?? Sounds great

I notice that my T, when it is loud I can look down and it stops, I look up it increases in volume. I did physical therapy, because my doctors thought it was my sternocleomastoid muscle was strained. There are exercises for it on youtube. I did e stem therapy too. It did help. My T comes and...

So I was diagnosed with Meniere's disease about two years ago. Still adjusting to it. In the last few months it has been pretty bad. Averaging about one attack every week. Luckily, I don't experience the vomiting, just the nausea and extreme dizziness with Loud Tinnitus and fullness in the...

So along with the tinnitus, I developed this lovely little thing of ear spasms. I had originally been diagnosed with Meniere's about two years ago. But since I have had some more recent symptoms, ms is being suspected. Or possibly intracranial hypertension. So wonderful. Anyway, me neurologist...

Wonder why it does that. Started last week. Very annoying

I have low frequency T. Mine always has the humming and DEFINITELY the vibrating. It used to just be the back of my head neck but at night and with little sleep or when Im really tired it vibrates throughout my whole body. Feels like everything is shaking internally. Steroids worked in the very...

Does anyone else's tinnitus sound like a slot machine or computers beeping? Driving me bananas. I wonder, since I work in an office environment 45 hours a week, has my brain copied that noise and play it back as tinnitus? Please let me know if yours does or if I'm just a freak. Thanks.

Hey guys. I went in for my brain MRI yesterday. Been having tons of issues. I was diagnosed with Meniere's a couple of years back, but things have gotten worse, so my neurologist suggested on the safe side to do a brain MRI. Anyway, I asked for something to calm me down before going. He...

I'm taking Baclofen for ear spasms. It's seems to help a little.

I got tested for Lyme. Had to really push to get tested. Since I live in the Southeast. It came back negative. I know there are a lot of false negatives. But I think getting my neurologist to test it again would be impossible.

Well, I do the MRI tomorrow afternoon. My neurologist says if it comes back clean maybe do a spinal tap. Really don't want to do that. May insist on going back to my ENT specialist before doing that.

Well I am taking steroids (which aren't doing much) right now with the Lipoflavonoids (which used to help alot, but not as of lately). I started taking Lysine (can't tell any difference in that). I took Nortriptyline a while back, but I forgot why, ha, we changed and started verapamil. I think I...

I was diagnosed with Meniere's about a year and a half ago. However, I don't really think it was the right diagnosis. I do have low frequency hearing loss in my right ear, did the MRI (came back clean), and did the balance testing (two organs in my right ear did not respond). I have been on...

is cinnarazine over the counter? What is AD?

Which is better to take for headaches during Meniere's episodes, Tylenol or Ibuprofen? I don't want to increase my tinnitus, but my daily headaches are bad. Suggestions?

gotcha

So over the head are much better than the ear plug ones? Thats the ones I have been using and was wondering if maybe it was causing me more issues than needed.

Cool. Thanks for the input. ;)

I've been having a rough time this week with some hyperacusis issues and off/on high levels of tinnitus. Today is finally pretty quiet and the hyperacusis is starting to get better. I want to go workout tonight at the gym but don't want to take any chances on another bad episode, however, I...

My T vibrates. It's the back of my head/neck area. If I raise my head it is louder. Lowering my head almost stops it. Its comes and goes. Worse when I lay down to sleep. Causes my to shake sometimes. It happens alot more often when I'm tired or not eating on schedule etc. I have Meniere's too...

Hmm.. Nobody I guess... Ok then

So I have been going through the ringer in the last few weeks. Dr visits, ER visits, Cardiologist, Neurologist. You name it. UGH Anyway, I think I may have a few things going on at once. Having been diagnosed with Meniere's disease over a year and a half now, it's been under control until...

Well no tinnitus today but severe Hypercausis and plugged ears. UGH sucks. Last night I had another attack. Very dizzy, loud roaring of ears, palpitations, numbness of face, vertigo, etc. Took Valium and Promethazine. It knocked me out thank God. Yesterday I was doing month end billing and the...

Yea it comes and goes. But usually when I take Lipoflavnoids after they build up in my system, it disappears completely. Yesterday, my ears were pretty quiet too. But I haven't taken them yet. They are sooo expensive. Like $40 a bottle, but for me they work.

Thanks for the prayers. Well I called my primary Thursday morning. I had broken out all over my body and was feeling horrible. She told me to head to the ER. So I went. They did a full cardio workup. Everything came back good. The EKG was abnormal and was told to follow up with my cardiologist...

My pup pup, Smokey <3

Oh and I broke out with a rash all over my body. They were in the circular form. I thought they were hives. My primary says no. But had no explanation for what they could be.

Well I guess I'll jump in here too. I was diagnosed a couple of years ago. I still doubt my diagnosis. I do have low frequency hearing loss in my right ear and have tinnitus that comes and goes. I get hypercausis that comes and goes too. I get the vertigo every now and then too. Here's question...

Yea I know. I went to my primary today. I had a bad spell on Sat. I'm not convinced it's menieres. It felt more like a seizure. Moves up and down my body numbing my muscles making them weak. I did video tape my eyes during it. They jumped around some. I was dizzy but still not convinced. Had...

Well I begged my doctor to do a Lyme test. He finally did after tons of resistance and it came back negative

Yea I have come to realize Meniere's has crazy symptoms and not eveyone's is the same. Right before an episode by eyelids twitch. I feel a little strange. Sometimes numbness on the face. And even weird chest palpitations. Hot night sweats cold sweats. Just a variety of crap ha

Thanks. It will be ok. I'll live. ha

Yep. All mine have given up too. Daily painful, not just bothersome, but painful migraines. One neurologist said have you tried drinking coffee in the morning? Really? I wanted to kill him. ha. So according to my Ultrasound guy today, my heart is healthy no problems. I know I should be happy but...

I am glad you are feeling better ;) My neurologist put me on Nortryptaline, mostly for the migraines. I found it did help. However, I know it is prone to cause you to gain weight. And well, I'm trying to lose weight, get back into shape and get ready to do the half marathon in April. He...

I did go to physical therapy with my neck for several months. It did help some. However, with the heart thing my doctor said until we know what's going on, stay away from Chiropractors.

I usually have good BP. When I went the other day it was high (which is rare). He put me on BP meds, but I haven't gotten them filled yet. I took my BP yesterday 3 times. All perfect. So I don't think that is the problem. I go into the hospital this morning for the 2D Echo. I'm sure it will come...

I have exactly what you have. My developed 2 years ago. The hum is constant until I start talking then it goes away. When I lower my head it stops. But starts up again when I am silent. I sometimes would feel dizzy. I went to every ENT imaginable etc. Took tests, MRI, etc. Came back with low...

So my Meniere's has been pretty much in control for the last couple of weeks. I stay on the Lipoflavonoids, which has helped with the T. I have noticed that when the weather changes, like a storm coming in, I seem to have more problems. Yesterday it rained a little bit. But today there is a...

I have it too. Been diagnosed with Menieres. It was a hum but now more of a rumble and it does almost feel as if it vibrates the back of my neck. I have found the lipo flavonoids have helped. They made my lessen 90% or so. Somedays I don't hear it at all. Worth a try. It has been said that...

Try taking Lipo Flavonoids. They have found that people with menieres have the most success with this supplement. I have found after a week, the sound is gone. They recommend (2) three times a day to start. I don't have the bad vertigo, just the I just got off a merry go around feeling at times...