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  • Users: ryant
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  1. R

    Update on AM-101 (aka Keyzilen)

    I’m not sure what caused the worsening of the tinnitus after the injection. Several other other people reported the same side effect.
  2. R

    Update on AM-101 (aka Keyzilen)

    I've posted about my experience before in a different thread about AM-101, and I'm curious how they are interpreting the data to show that it improved tinnitus loudness. After I had the first round of injections my tinnitus actually got worse, it was much louder than where it was initially...
  3. R

    Why ENTs Won't Help You — Lawsuits

    ENT's aren't able to help you with your tinnitus because there are zero effective medical treatments for tinnitus. It has nothing to do with lawsuits. There just aren't any effective medical treatments. There are some medications that can help to decrease the severity of tinnitus, but any...
  4. R

    Interview with Musician (Mike Michel) Who Has Successfully Treated His Tinnitus

    I thought this was an interesting and uplifting interview with a musician who has successfully treated his tinnitus and has been able to get back to what he loves to do, play and write music. Here's the article: Thanks to research and innovative therapy, Mike Michel is coming back to music...
  5. R

    Going to Bars?

    I use these: https://www.amazon.com/Eargasm-1-High-Fidelity-Earplugs/dp/B019M576XW They work pretty well. I can still understand what people are saying. Also, I keep them on my keychain so I don't have to remember to bring them with me, very convenient. There are several out there like this, I...
  6. R

    Chiropractor

    A chiropractor probably wouldn't help with tinnitus. They might try to sell you a supplement they say will help or try to manipulate your spine. I would be very cautious about spinal manipulation however. There are many cases where this procedure has been fatal, or caused a stroke. A few months...
  7. R

    Going to a Concert?

    I haven't read the other responses here, so I might be repeating what is already said. If you decide to go to the concert just wear a good pair of earplugs and stay in the back, never up close were the speakers are. Buy a pair of earplugs with a carrying case you can attach to your keys or carry...
  8. R

    62% Is a Pretty Large Percentage (Depression & Tinnitus)

    This is the article Mercola is referring to: http://jnnp.bmj.com/content/85/10/1138 He doesn't do a good job linking to the actual journal article in his reference list. I have not read the article, it is available only by subscription. I personally think Mercola is a quack and not to be taken...
  9. R

    Computer-Based Cognitive Training Program May Help Patients with Severe Tinnitus

    @NancyL - Have you tried this? I downloaded the BrainHQ app on my iPhone and tried some of the free exercises. They were fun and some where challenging toward the end of the exercise. I'm skeptical about many of the "brain games" but this one seems to have some legitimate science behind it. I'm...
  10. R

    Alcohol Quiets Down My Tinnitus

    Not sure if alcohol actually reduces tinnitus symptoms, it does seem to help distract the mind, or perhaps to dampen the sensory system. I know when I've had a couple of beers I'm not thinking about tinnitus. But i don't think it shouldn't be used as a crutch, especially daily. Not many people...
  11. R

    Loudness of Glass Breaking?

    That sounds about right I guess. My ears are so loud right now. I hope it's anxiety and not worsening. I have mild hyperacusis as well so it wasn't pleasant. Goddamnit I wish there was something to help with this :(
  12. R

    Loudness of Glass Breaking?

    Anyone know how loud (dB) the sound of shattering a large glass jar against a solid floor is? Today a friend accidentally dropped a large jar right next to me in a kitchen. The sound was the loudest thing I've heard since I got tinnitus. I worry an event like this that's out of my control will...
  13. R

    Zinc for Treating Tinnitus

    Be careful when supplementing with zinc. Prolonged or excessive use of zinc can lead to a deficiency of copper. Probably best to not take it daily for more than 1 month. Zinc is an important mineral, and deficiencies can be corrected with supplementation, but more is not always better.
  14. R

    "Baby Boomer" with New Tinnitus

    Cody, your tinnitus might go away on its own. If it is still there in a few months, there is a good chance it won't go away, but it will likely get better. You'll learn to deal with it better too. Unfortunately the over the counter stuff to treat tinnitus doesn't work, it's placebo effect. There...
  15. R

    Decibel Readings I Took While Flying This Past Month

    I used earplugs (musician type) on a flight last week and had pain in one of my ears on the decent because I didn't take the earplugs out soon enough to equalize the air pressure. I plan on using ear muffs, or foam ear plugs next time, definitely not the regular ear plugs. Also, in my experience...
  16. R

    New University of Michigan Tinnitus Discovery — Signal Timing

    Thank you for posting this! I thought it was interesting they mentioned that jaw function can change tinnitus. When I open my jaw wide, as though I'm yawning (but not yawning), the pitch of my tinnitus increases. I've wondered why this happens. Reading this article gives me hope. Thanks again.
  17. R

    AM-101 Clinical Trial — Participants Updates and Discussion

    Lidocaine with suctioning - it was really loud, but it worked. I didn't feel the needle go in my ear at all.
  18. R

    AM-101 Clinical Trial — Participants Updates and Discussion

    the worsening of my tinnitus post-treatment lasted for a few weeks, and worsened immediately after the injections. My tinnitus went from a volume of 5-6 to a 8-9 scale (10 would be unimaginable loudness for me, haven't experienced that). I couldn't sleep at night, woke up in the middle of one...
  19. R

    AM-101 Clinical Trial — Participants Updates and Discussion

    AM-101 doesn't work for acoustic trauma. I haven't read any reports of it being a cure or even significantly improving symptoms of tinnitus for anyone. My tinnitus got worse after both treatments (blind study - not sure if it was the drug, and open label -100% drug). It's been several months...
  20. R

    Magnesium Threonate

    I've been taking this for a few months: http://www.swansonvitamins.com/source-naturals-magtein-magnesium-l-threonate-667-mg-180-caps?otherSize=SN546 I can not say if it has made a difference or not. I'm inclined to say that it may have helped a bit, but like most treatments for tinnitus...
  21. R

    Hearing Protection and Tinnitus: Keep The Tiny Hair Cells Safe — Discuss!

    I use these: https://www.amazon.com/Eargasm-Fidelity-Earplugs-Musicians-Motorcycles/dp/B019M576XW/ They work pretty well, and one thing I really like about these is the carrying case that I attached to my key chain. There have been many times when I was so glad I had them on my keychain. I have...
  22. R

    New to Tinnitus

    I've had tinnitus for a year now. The first couple of months were the worst. The tinnitus is still annoying, but I have learned how to deal with it better. Some suggestions most people try are sound machines to mask the tinnitus. I use a fan noise generator called lectrofan at night, there are...
  23. R

    AM-101 Clinical Trial — Participants Updates and Discussion

    AM-101 is back in the news: https://globenewswire.com/news-release/2016/12/06/895413/0/en/Auris-Medical-on-Track-to-Resume-Enrollment-of-Keyzilen-Tinnitus-Program-Following-Regulatory-Feedback.html They are resuming enrollment for treating tinnitus with Keyzilen (AM-101). I really wish I had...
  24. R

    Sound Options Tinnitus Sound Therapy

    I wonder how much it costs? I looked into the Levo System awhile back and it was priced over $5,000, not something I can afford, and not covered by insurance.
  25. R

    Best Noise to Mask Tinnitus?

    I use a fan/white noise generator called Lectrofan. I'm don't really care for the white noise sounds, but I do like some of the fan sounds. For me it creates an external sound distraction where if I need to focus on something other than the tinnitus I can listen for the fan sound. I have two...
  26. R

    Already 6 Hours Tinnitus Free with CBD Oil

    There are different types of CBD oil, the oil created from the hemp plant likely won't work. This is the stuff you find on amazon or being sold on websites. What you do want is cbd oil from a sativia or indica strain. There will be a small amount of thc, so it's not legal to ship. You have to...
  27. R

    What Do Y'all Do for Fun?

    Before I got tinnitus one of my hobbies was seeking out new music, and going to concerts. I listened mostly to hard rock and metal, which is one reason why I have hearing loss and tinnitus. My ability to listen to music the way I once did all changed after getting tinnitus so I had to seek out a...
  28. R

    Movie Theater Wayyy Too Loud!

    Correction: Not average >100 dB, but exceed 100dB.
  29. R

    Movie Theater Wayyy Too Loud!

    I have zero interest in going back to measure the sound with an expensive sound meter just to prove a point. I looked at the iPhone meter only when thought it was getting too loud. You're really assuming a lot. You were not there so you don't know how loud it was. I also showed you how the app...
  30. R

    Movie Theater Wayyy Too Loud!

    Well, all I know is it was loud as hell and had to bolt. I wouldn't have had that reaction at 80 decibels with earplugs. The paper I posted shows that it underestimates at loud volumes, not overestimates. Regardless, it's not that effective at gauging an accurate dB level, which is good to know.
  31. R

    Movie Theater Wayyy Too Loud!

    Thanks for the suggestion, I'll check it out. According to a study I looked that I'll post a link for, Decibel 10th is fairly accurate at 85 dB (slight overestimation) and it underestimates at 95 dB, meaning it may have been louder than I thought it was. The free app they tested that was the...
  32. R

    Movie Theater Wayyy Too Loud!

    I can't find a link to the actual story of the girl who got tinnitus from a movie but this article mentions it: http://www.prosoundnetwork.com/article.aspx?articleid=43674
  33. R

    Movie Theater Wayyy Too Loud!

    No, the movie I went to yesterday's was not at an IMAX theatre. I used an iPhone app called Decibel 10th to get the decibel readings. I know these apps are not 100% accurate, but they are the best thing I have to gauge loudness. Although, I think this one is fairly accurate. When I saw 95dB, and...
  34. R

    Best Earplugs in the Market? Need Advice!

    I use these, got them on Amazon: http://eargasmearplugs.com/products/eargasm-high-fidelity-earplugs They work pretty well, and I like the case that I can attach to my keys. Although I plan on getting a pair of these custom earplugs soon: https://www.64audio.com/product/EP-Custom-EarPlugs
  35. R

    Hmmmm. Splenda Is Not Recommended?

    May have already been mentioned here but I'd recommend stevia instead of Splenda. Not due to tinnitus however. Recent study showed risk of cancer with suclarose: https://cspinet.org/new/201602081.html http://www.tandfonline.com/doi/abs/10.1080/10773525.2015.1106075?journalCode=yjoh20& The study...
  36. R

    Movie Theater Wayyy Too Loud!

    I did speak with the manager as I was leaving, he apologized and gave me a free movie ticket, which I won't be using myself. He wouldn't turn the volume down. I won't be going back to any theaters. It may not have been loud enough for permanent damage with the ear plugs but every time I'm in a...
  37. R

    Movie Theater Wayyy Too Loud!

    went to the movies with my girlfriend and another couple today for the first time since getting tinnitus about a year ago. I also have developed mild hyperacusis since this started. I wore my earplugs and figured the volume would be fine. I was wrong. The movie was averaging 90-95 db according...
  38. R

    AM-101 Clinical Trial — Participants Updates and Discussion

    The results for TACCT2 trial published today are disappointing. I managed to get into the trial just before it closed and went though two rounds. My experience was similar to what many have already posted. The first few weeks after the injections my tinnitus worsened and then returned to...
  39. R

    Tinnitus After One Loud Blast from Earbuds. Chances It Will Go Away?

    It's hard to say Steve if it will get better or go away, in most cases it does. You may reached a point where another episode of loud music like you had could result in tinnitus that doesn't go away. I'd suggest buying some earplugs and carrying them with you and wearing them whenever you are in...
  40. R

    Does Anyone Here Know of a Good Sound Meter Device for Android Smartphones?

    I got a pair of these on Amazon recently: http://www.eargasmearplugs.com They come with a keychain case so I carry them around and use them when I need them. They work pretty well to minimize noise in public places. There have been several times at restaurants or noisy places where I was glad I...
  41. R

    Does Anyone Here Know of a Good Sound Meter Device for Android Smartphones?

    Yes it is free, found it in the appstore on iPhone
  42. R

    Awareness Idea for Patient Research: Join the Dots

    I agree 100%. Also, education for those who attend concerts. Many of us on this forum have tinnitus from not wearing hearing protection at a concert. All it takes is one show that is too loud. I didn't know much about tinnitus before I had it. Certainly didn't know it could be permanent or that...
  43. R

    Does Anyone Here Know of a Good Sound Meter Device for Android Smartphones?

    I have one on my iPhone called Decibel 10th. Not sure if it is offered on Andriod.
  44. R

    Awareness Idea for Patient Research: Join the Dots

    That's a great idea. I have a couple of these: http://lectrofan.com I use one at work in a quiet office and one at home when I'm sleeping, it works pretty well. I'm thinking a routine of aerobic exercise, 5 days a week for 20-30 minutes may help. Being consistent with an exercise routine is...
  45. R

    Awareness Idea for Patient Research: Join the Dots

    I've also thought about the link between decreased gray matter and tinnitus. Here are a couple of things I found: A consistent long-term routine of aerobic exercise has been shown to increase gray matter. http://www.neurobiologyofaging.org/article/S0197-4580(14)00349-2/pdf Meditation has...
  46. R

    Otoharmonics (The Levo® Therapy System for Tinnitus)

    Well, I can't find a single person who has used this. And no response here either. The system I was offered was priced at $5,000. Perhaps that's why no one is using it. I did find an app that can help to match tinnitus frequency and could essentially be used for the same purpose, and it's only...
  47. R

    AM-101 Clinical Trial — Participants Updates and Discussion

    It was 2 weeks ago. I did call back to confirm. They said no exceptions. I was very disappointed.
  48. R

    AM-101 Clinical Trial — Participants Updates and Discussion

    I hope it comes to market soon. I was denied the treatment. The office manager of the clinic I called told me they are only accepting people who have had tinnitus for 2 months or less at this time. When I called I was 2 months and 1 week. He asked me when the T started before he would tell me if...
  49. R

    Otoharmonics (The Levo® Therapy System for Tinnitus)

    Hi, I'm new to the forum. Was wondering if anyone has actually tried the Otoharmonics Levo system? I've had T for over 3 months now from noise induced hearing loss at a concert. My audiologist recommended the levo system. It is really expensive and I don't want to spend the money if it's not...