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My surgeon is Dr.Mathew Hanson. There is a website that lists the names and state location of doctors familiar with middle ear myoclonus and can perform the surgery. My doctor is on this list although he was referred by my ENT, an old timer who knows something or two. Perhaps you can ask for...

When I saw Sismanis he recorded a CD of my ear spasms for my use in seeking help back home. It was useless as no ENT was familiar with middle ear myo nor took the time to find out. I still have the CD. Japongus how you managed to live with this for 16 years is amazing. Many ENTs cant...

I saw Sismanis in the US. He was practicing at a University in Virginia and highly recommended by Lib (he did her surgery). I believe he has retired since say 2008/9 unless he practices somewhere else. This I dont know. At that time the consultation fee was reasonable (about $200.00) and...

Funny it was Dr. Sismanis who originally diagnosed me with Myo some seven or so years ago. It took me many years to find an ENT specialist (neuro-otologist) in my area w/ myoclonus middle ear experience. Both my ENT and neuro confirmed seeing my ear drums spasm during examination. I too have...

You bet. Dont give up. You will get pass this and move on with your life. Good luck and keep me/us posted.

Glynis, Wishing you the best day ever. Happy Birthday.

Chelles my procedure was done through the ear - cutting ear dumb to access the muscles. Ive read about the endoscopic procedure being less invasive. As far as my ear being sensitive to noise without those tendons, its not so bad. Honestly, my ear was a lot worse with them. If a problem I...

Yes I noticed T when my ears got much worse from the myo, before the surgery. Aftet the surgery, the pitch got higher but it seems to be improving. I had/will have the surgery in the NYC area.

It is okay to be fearful. This disorder is complicated and rare. Finding a qualified and experienced doctor is half the battle. The muscles can continue to move although cut, but unable to beat/knock against the ear drum. My high pitched T is getting better or I am getting use to the sound...

Chelles I feel your frustration. Ive had MEM for eight years now. It goes into remission for a few years, but always comes back The surgery helped alot. The ear does not thump although I can feel the muscles move, they no longer knock against the ear drum. On the other hand, the bad ear...

Hi Michael, Hope you have found relief and the spasms have stopped. I totally get it. With me its the constant thump. Goes on for hours and hours. Had it in both ears but cutting both tendons in one ear provided some relief. This disorder is the strangest thing. Most ENTs dont know how...

The surgery is a simple out patient procedure. Your ear will be packed while healing resulting in temporary loss of some hearing. There will be some minor bleeding (change cotton swab daily). Hearing may take a few days to get adjusted too but not too bad. No sneezing, blowing nose or water...

My dr. saw the ear drums dimple to confirm myo. Both tendons were cut. When the thumps morphed in a continuous tone it sound like a broken speaker with static and pressure. The pressure feeling I suspect is/was the sensation of the muscles being pulled so hard and tight. It made it difficult to...

Well do my best to explain. The thumps/spasms were so bad it was felt and heard (subjective tinnitus). I felt my ear drumb moving all the time. Sometime with a feeling of fluid in the ear so it crackled, popped, snapped. The thumps would often morph into one long continuous note/thump with no...

Totally understand your hesitation in having surgery. I was desperate and had to take a leap of faith the surgery would offer some relief... it has. I still have myo in the other ear so it continues to thump. Once my doctor clears my healing ear, I will for sure schedule the other. The side...

Don't know enough about hyperacusis to provide an answer. All I know is my myo started first thing in the morning once my eyes opened. It would thump constantly stopping only a few seconds at a time. I had to stop taking important health medications because symptoms got worse after taking...

I did not have hyperacusis officially but the myoclonus was so severe in both ears from tensor tampani and stapedial tendons, my ears became sensitive to sound. I also suffer with a little bit of T. My neurotologist examined my ears and confirmed TTS once he saw the ear drums dimple. MRI came...

Had the surgery four weeks ago. I am happy with outcome so far. My ears were in bad bad shape. The mucles were not protecting my ears from loud sound so any noise (sometimes just on its own without noise), movement, change in pressure would trigger the deep painful spasms /thumps for hours and...

I have middle ear myoclonus since 2007. At first it started as a flutter in one ear then got worse with heavy deep thumps/spasms in both ears. Over the years my ears crackled, popped, snapped all day every day. One month ago I had surgery to cut the diseased muscles (tensor tampani and...

I am new to the board and learning so much. It has become a new best friend of many. Billie you have given me pause and hope about my life. My T may or may not be a result of my middle ear myoclonus. I will have surgery jn two weeks to cut the muscles/tendons. The T may get worse but having...

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Hello! Want to know how you are doing since your last update on MEM surgery? Are you feeling well with no more thumping? Has the post-op T gone away? I am planning to have same procedure and the onset of T along with ear packing and temporary hearing lost will just about drive me crazy. How did...

Dina, my neurotologist suggest I have surgery to remedy my MEM. I have severe thumping in both ears..madness! My biggest fear is the post-op tinnitus driving me further insane. And the worry it may never subside or go away...more stress... How was it for you?

PoodleChick have you recovered from MEM surgery? Did the procedure provide relief from myoclonus symptoms? I am especially curious if the post surgery T in fact did subside or go away? How are you doing? I suffer from the same disorder and considering having the surgery done.

Hi Hichem, The twitching may be middle ear myoclonus. Check out tensor tympanic, stapedial, and palatal myoclonus. Middle ear muscle spasms that can be very disturbing. Often brought on from stress/anxiety or other neuro disorder. A good ENT will be able to confirm. Hope you feel better.