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Heya, sorry only just seen this. Actually about to start Carbamazepine to see if it helps :)
Heya, sorry only just seen this. Actually about to start Carbamazepine to see if it helps :)- Swampy
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Is a Sudden Increase in Transient Ear Noise Cause for Concern?
Ah, I get SBUTTs quite a lot! (I do have tons of other ear issues - MEM/TTTS, many tinnitus tones - high pitch variants, crickets chirping, deep revving/humming I can hear and feel & pulsatile tinnitus, slight hearing loss, patulous Eustachian tubes, and sinus issues / ETD at the same time... -
It’s very weird! I get quite a few everyday, sometimes they don’t go away quickly and can stick...
It’s very weird! I get quite a few everyday, sometimes they don’t go away quickly and can stick around all day, alongside muffled hearing, and then it gets even louder and reactive to all sounds too. Bloody nightmare on top of all my other ear issues. Sorry you have this. It wouldn’t bother me...- Swampy
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Can’t figure out why these fleeting/sbutt episodes are happening more frequently on top of...
Can’t figure out why these fleeting/sbutt episodes are happening more frequently on top of everything else. Very annoying.- Swampy
- Profile post
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For Those with Middle Ear Myoclonus...
I’m not sure I’m best to answer this. I have had MEM & TTTS episodes for about 10 years now, but I have a whole host of ear issues on top of that, and have had ear issues my whole life. In these 10 years I have had periods of remission from the thumping spasms (the sort from... -
Going mad from these TTTS/MEM episodes daily, along with frequent weird SBUTT episodes, &...
Going mad from these TTTS/MEM episodes daily, along with frequent weird SBUTT episodes, & worsening pulsatile tinnitus on top of everything- Swampy
- Profile post
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Loud Tone for a Few Seconds — Fleeting / Transient Spontaneous Tinnitus
I can’t really give any help sadly, but I’m in the same boat! I get many fleeting episodes, and sometimes they are not so fleeting and stick around for hours on end, and as well as having the muffled hearing/louder tinnitus from it, it also gets reactive and distorted often too and it’s quite... -
Heya! That’s no worries at all! I’m so sorry you’re getting this also :( I still have it yeah...
Heya! That’s no worries at all! I’m so sorry you’re getting this also :( I still have it yeah, have had it for a long time now, it doesn’t stop when I plug my ears, only temporarily if I hum myself or if I’m in a car with the engine running the feeling of that kind of masks it but otherwise it’s...- Swampy
- Profile post comment
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Daily Tinnitus Spikes and Reacting with High-Pitch Squeal to Talking, Flushing Toilet, Tap Running
Sorry for the mega late reply. I must have missed the notification for this! It ended up going back to normal for a while (just all my regular sounds and other ear issues and many daily fleeting episodes remaining) but I have had this same intense reactive spike / distortion on top of a regular... -
Low Bass-Like Hum, As If Something Was Vibrating Inside My Ear: Is This Tinnitus or Something Worse?
Heya, I have similar symptoms as well! I do have tons of other ear issues (high pitch tinnitus, crickets chirping tinnitus, pulsatile tinnitus, 3 different types of ear spasms TTTS/MEM, had a cholesteatoma, slight hearing loss, sinus issues and Patulous Eustachian Tubes). But I also have this...- Swampy
- Post #37
- Forum: Introduce Yourself
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Low Drone Tinnitus Does Not Need Much to Shut Down Completely
Ah, I'm so sorry... so probably it isn't linked to the sinus issues then. Hmmmm it's so weird though isn't it, as it behaves so differently to other tinnitus sounds and is almost like a feeling rather than a sound. Thanks for letting me know though and all the best to you and everyone :) -
Ear Clicking While Running
I also have this clicking! I do have a history of tons of ear issues as well. It's very strange, I've had it disappear sometimes for months and then come back again. It happens walking, going over bumps, down the stairs, talking etc. The weird thing was, if I was stepping on the spot for... -
Daily Tinnitus Spikes and Reacting with High-Pitch Squeal to Talking, Flushing Toilet, Tap Running
Got to still try to enjoy things, as long as we don't have volumes too loud and be careful mate. Wish you all the best! -
Low Drone Tinnitus Does Not Need Much to Shut Down Completely
Heya! Just jumping on this! I have lots of ear issues including this hum/revving drone too. It's so strange because it behaves very differently to my other tinnitus sounds. Example, if I hum, or sit in the car, the hum will dissappear but the other noises remain, and it is more of a feeling... -
Daily Tinnitus Spikes and Reacting with High-Pitch Squeal to Talking, Flushing Toilet, Tap Running
Ah thanks so much for your reply, glad it has reduced in severity for you :) Don't worry, I definitely do, I never have my volume loud on anything and avoid loud places as much as I can. Thanks so much and all the best to you :) -
Daily Tinnitus Spikes and Reacting with High-Pitch Squeal to Talking, Flushing Toilet, Tap Running
Heya! I haven't seen my audiologist yet, it's in a couple of days, but she did get me an emergency appointment to have my hearing checked out to make sure nothing serious was happening. Thankfully my hearing was the same as normal mostly (slight hearing loss) but my sound sensitivity test they... -
Daily Tinnitus Spikes and Reacting with High-Pitch Squeal to Talking, Flushing Toilet, Tap Running
Hey there! Thanks very much for the reply I appreciate it :) Yeah that's definitely it, fleeting tinnitus, but several times a day. Just find it very odd as I only used to get the fleeting tinnitus maybe a couple times a month but at the moment it's probably 20-50 times a day! Yeah definitely... -
Daily Tinnitus Spikes and Reacting with High-Pitch Squeal to Talking, Flushing Toilet, Tap Running
@Marcuso22, thanks so much for your reply, greatly appreciated! Have you ever experienced this reactive tinnitus yourself? Also just in general I'm wondering, with you and anyone with tinnitus which I assume is most people on this forum, how often do you get spikes? Like I say, I've had... -
Daily Tinnitus Spikes and Reacting with High-Pitch Squeal to Talking, Flushing Toilet, Tap Running
Hi guys, I have a history of tons of ear issues (patulous Eustachian tubes, sinus issues, 3 different tinnitus tones, pulsatile tinnitus, had a cholesteatoma, slight hearing loss and 3 different types of ear spasms - Tonic Tensor Tympani Syndrome/Middle Ear Myoclonus), but I just wanted some... -
Does Drinking Water Trigger Anyone Else's Pulsatile Tinnitus?
I think it means the issue isn't my veins or arteries, but that it is a body issue? Not too sure really but going to have it looked into more by someone else. Hope you find answers too!- Swampy
- Post #5
- Forum: Pulsatile Tinnitus
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Does Drinking Water Trigger Anyone Else's Pulsatile Tinnitus?
Hey there, I've had recent intense pulsatile tinnitus spikes, which can happen randomly but does happen when swallowing water too! I also have PET and a host of all other ear issues. I've been told my pulsatile tinnitus is somatic, but going to hopefully have more testing done to try find out...- Swampy
- Post #3
- Forum: Pulsatile Tinnitus
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Pulsatile Tinnitus Gone Insane: Random Intense Whooshing Spikes
Thanks so much for both of your replies, I really appreciate them! I am going to hopefully have a blood test soon to check for iron and hopefully figure out why this has got so intense after years of being mild. Thanks guys :) Hope you are well.- Swampy
- Post #4
- Forum: Pulsatile Tinnitus
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Superior Semicircular Canal Dehiscence (SSCD) Diagnosis
Heya! Your pulsatile tinnitus sounds very similar to mine. I've had pulsatile tinnitus and many other ear conditions (various tinnitus sounds, Patulous Eustachian Tubes, sinus issues, TTTS/MEM, cholesteatoma etc) for years. But since I had 2 operations for other issues to stiffen my eardrums a...- Swampy
- Post #12
- Forum: Pulsatile Tinnitus
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Pulsatile Tinnitus Gone Insane: Random Intense Whooshing Spikes
Hey guys, I was wondering if anyone here could advise me please. Sorry this post will be long but I appreciate any help. I've had tons of ear issues my whole life, I've had Patulous Eustachian Tubes (autophony) since young, then as the years went on I developed regular tinnitus, high pitch...- Swampy
- Thread
- Replies: 3
- Forum: Pulsatile Tinnitus
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For Those with Middle Ear Myoclonus...
Hey! Just wanna say I have also started getting, for the last month or so, the clicking sensation and feeling in my throat/nose area. Mine is normally worse when walking though, feels like popping candy. It usually gets worse when going up and down the stairs and going over bumps and things too... -
Pulsatile Tinnitus, Patulous Eustachian Tubes, Vibrations and Many Other Things...
Heya. The middle ear bones in my right ear (cholestestoma) were being eroded I believe. Not 100 percent sure which ones exactly or how bad they were. I'm sure I got told one of them had been completely eroded but I will need to triple check that when I see my specialist next. I know when he...- Swampy
- Post #19
- Forum: Pulsatile Tinnitus
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Left Ear Spasms Everytime I Talk or Hear Noise. Please Help.
Hey sorry I can't be of much help but sounds like possibly Tonic Tensor Tympani Syndrome? I've had the same exact thing before, hopefully it'll settle down soon. Try to keep as relaxed as you can (way easier said than done I know). Wish you all the best. :)- Swampy
- Post #2
- Forum: Hyperacusis and Ear Pain
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Pulsatile Tinnitus, Patulous Eustachian Tubes, Vibrations and Many Other Things...
Hi everyone. So sorry I haven't been on this forum for ages! Just wanted to say I hope you're all doing well. I know for PET there are options such as a bio-plastique injection which has been offered to me, but I haven't taken that route yet as it can cause a permanent head pressure and other...- Swampy
- Post #15
- Forum: Pulsatile Tinnitus
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For Those with Middle Ear Myoclonus...
Hey there. I don't really have any help to add but I suffer with this also. I get the rapid thumping/spasm sensations that can last for days after a hiccup or burp or yawn. Not sure if it's related to any other ear issues I have though as I also have Patulous Eustachian Tubes, sinus issues/etd... -
Pulsatile Tinnitus, Patulous Eustachian Tubes, Vibrations and Many Other Things...
Hi everyone, this is my first post here. I have lurked on this website for a couple of years now, here and there, but decided it was time to make an account. I also want to apoligise, this post will probably be quite long, i hope that's okay. I also hope it's okay to talk about the ear...- Swampy
- Thread
- Replies: 27
- Forum: Pulsatile Tinnitus