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That,s exactly my experience. I couldn't explain it any better. I've visited a otologist in NYC who suggested cutting the muscles. However he cannot offer further diagnostics prior and couldn't determine if the surgery will have effect (being positive or negative). Kind of a leap of faith...

What type of surgery did you have, mvd? Where did you have it done? You believe that the operation has caused your tinnitus? Did your surgeon have realtime nerve monitoring during the operation? Did you have a pre and post op hearing test?

A neurosurgeon would be more interested in nerve compressions, a neurologist or neurotologist wouldnt be able to address cranial nerve conditions.

How about a MRI of your cranial nerves? I've read many of your posts and I share many (all) of your symptoms. I had an MRI that shows nerve compression on the trigeminal and nerve 8 complex. I am scheduled for an MVD surgery soon in attempt to alleviate the many issues. I am interested to know...

I certainly appreciate your input, especially from a fellow TN sufferer. You obviously know the pain. I have been told that MVD would be my next best (only) move however have been given lousy odds on MVD success due to the my 'complex and atypical symptoms'. The reason for my inquiry to the...

Pain is located inside my ear, jaw, and feont of face including gums and teeth, maxillary sinuses all on the right side. It is of a burning and tingling quality. It feels like someone sawed off my teeth is sticking pins in my gums, like electric fire in my face. Its every minute of every day and...

Im going to bump this old thread. I think that micro vascular compression is a topic not well enough explored. I'd like to hear from any member that has had an mvd either for a neuralgia or T, H. I have been having bizzare and excruciating ear, face pain T and H over the past year. Diagnosed...

I am not even sure how to explore the neuropathic pain link with TTTS. I constant have the trigeminal neuralgia (TN) pain to some extent, and sometimes it feels like my tensor or stepedious is constant too, as if it is in constant clenched or locked. I'm going to see Pollak again this week to...

It reacts to sound with a crunch sensation as well it flutters (pulsates really) without sound sensation. I have atypical trigeminal neuralgia as my face jaw, ear and teeth burn, ache and tingle to some degree all day every day. I have been seeing Natasha Pollak at Temple who has some papers on...

Thanks for this information. However T is the lowest priority for me and pales in comparison to my trigeminal neuralgia pain which is a progressive disease. In my case, doing nothing as you say could be the worst possible choice as they don't call trigeminal neuralgia the 'suicide disease' for...

I have hearing loss and a microvascular compression (as well as lyme disease as described in the OP's article) I am attempting to get a pre-surgical diagnosis is particularly difficult both either MVD or TTTS. I feel as if I have to flip a coin between brain surgery and TTS surgery. I think...

Hi All, I've had tinnitus for the better part of a year and now I have a new and more painful affliction. I am hoping that someone else can shed some light on my newest ear condition: When I hear a sudden sound, plates, people speaking close by, my own voice, or following any other abrupt...

I'd love to know which antibiotics?? I am investigating this as the cause of my own ear issues