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Progress Report Progress Report Date: Jan 13, 2015 Current Retigabine Dosage: 100mg twice per day Current Side Effects: None. Had a full blood work up two weeks ago, including liver and kidney function. All tests were normal. Current Tinnitus Severity: 6 out of 10 Changes in Tinnitus...

I do believe this drug has reduced the overall volume of my T. I am still tapering up in hopes of greater relief. We will see what happens...

@valeri Sometimes it will spike to 10/10. But it does not last long.

@valeri I will try to answer your question as best I can. Before starting potiga, my T would decide what it would do each AM. Some days would start out as a 5/10 or a 7/10 or a 10/10. However it started is how it would stay all day, only to change after a night of sleep. Now I have many...

Progress Report Progress Report Date: Dec 22, 2014 Current Retigabine Dosage: 200 - 250 TID Current Side Effects: None Current Tinnitus Severity: 7 out of 10 Changes in Tinnitus: I Continue to have periods of silence or near silence about an hour after taking each 100mg dose. Only lasts...

I want to be clear...yes I have had some "total silence" since taking potiga but those periods only lasted an hour or two at a time. I hope as I taper up that those times will be more frequent and last longer. What is encouraging to me is the lower volume and less "head noise". A long day of...

Sorry about not being clear on my dosage. I started with 50mg TID for 5 days. I am now taking 100mg TID. In 2 days I will add another 50mg for a total of 150mg TID. Today, about an hour after taking my first 50mg, I experienced TOTAL SILENCE for the first time in 18 months. I could hardly...

New User Information Gender: Female Age: 46 How Long Have You Suffered From Tinnitus? (Date of Onset): May 1, 2013 How Did You Get Tinnitus?: Unknown Explain How You Got Tinnitus: Is Your Tinnitus in Which of the Following?: Left Ear, Head What Kind of Tinnitus Do You Experience...

My neurologist prescribed Potiga. I have had good luck with tegretol so he agreed to let me try it. I have an ENT but he is not near as knowledgable or as helpful as my neuro.

I have started Potiga. First 5 days at 50mg. Currently taking 100mg. Tapering up 50mg per week. It helps! I have quiet hours after taking the pill. Quiet lasts 2-3 hours. No side effects whatsoever.

I finally have it! My neuro gave me a script for Potiga! I have 90 50mg pills in my hand. Can't wait to start but I need opinions from you all. I have been on 600mg of carbamazaxepin for 3 months. My neuro wants me to wean down to 50mg before I start potiga. The thought of not having anything...

I have been following this discussion with great interest. I seen my neuro 3 weeks ago. He did not feel comfortable starting me on Trobalt "yet." He started me on tegretol 200mg x 2 daily instead which I agreed to try for 2 months but I don't have a lot of hope. Providing I get the script I...

Great advice insane. I am starting on half-caff coffee tomorrow. Scared of a headache if I quit all at once. I am sure stress relief would help. Hope to get some soon. I think a supportive Dr. would help to as so much of my distress is physical pain and discomfort in my ears and head. Thank...

Nana, while it may be uncomfortable at first, try listening to white noise with ear buds. Keep them in your ears all night long. I do this so the T does not wake me up. Good Luck

Hello all. I have been lurking on these boards for months now and reading your stories and helpful advice. Thank goodness for the Internet as it does give me some peace knowing I am not alone in this horrible T struggle. I know there is a lot of info in this post that may not have anything to...