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  1. Dive Master

    Let's Increase Tinnitus Research Funding in the US — Our Input for NIDCD's Strategic Plan

    Done from Switzerland! No, filling a form is not wufluflu contagious :puppykisses:
  2. Dive Master

    70 months

    70 months
  3. Dive Master

    Sophrology

    @goodmorning : sorry to give you my home-remedies so late, but I don't visit TT very often now. My recipes : - sleep, regular hours, if not possible I give myself a shot of Lorazepam (40-50mg) - swimming, scubadiving (no eardrum problem, just noise induced T) : can't hear it underwater...
  4. Dive Master

    For a time at the beginning I have said I would prefer cancer or leg amputation over T. Even a...

    For a time at the beginning I have said I would prefer cancer or leg amputation over T. Even a gun could have made the job. It was time to shut it up. It seems to be the muscles which make your ear moving (I can do it, funny for kids), I know suturing. Plus my daughter is at med school. My ear...
  5. Dive Master

    I'm still under anti-epilepsy drug : lamotrigine which is a mood moderator and anti-depressant...

    I'm still under anti-epilepsy drug : lamotrigine which is a mood moderator and anti-depressant. I'm keeping busy, making sports, listening to Metal (at a very very reasonable level: high frequency guitars relieve me), and sometimes, I can even make a nap (with T coming back afterwhile).
  6. Dive Master

    It did spread on the other ear the first 2 months, but much lower and sounding like a fridge...

    It did spread on the other ear the first 2 months, but much lower and sounding like a fridge compressor. And gone. The first Trobalt intake acted like a T "succion" which made it instantly disappear. Afterwhile, the side effects were really scarring, and I became tolerant: Trobalt then made me...
  7. Dive Master

    T is apparently not just a sound. My ENT tried Lidocaïne local infusion whitout success.No one...

    T is apparently not just a sound. My ENT tried Lidocaïne local infusion whitout success.No one can explain so far. I learned not to complain (Typical answer: "some kids die from cancer you know it's far worse than your condition bla bla"). So paracetamol/diclofenac ointment/massage... One day...
  8. Dive Master

    Unfortunately I don't get the habituation concept. When T is at 4 (less and less however, and a...

    Unfortunately I don't get the habituation concept. When T is at 4 (less and less however, and a hummm) I feel physical pain, so my tolerance has not decreased: migraine/eye pain/head skin pain/tiny muscle pain behind the ear hard as wood and rolling under my finger, on my T side, the left one...
  9. Dive Master

    Hi Bill! Thanks for taking news. Well, T is now fluctuating during the day. Pretty much boring...

    Hi Bill! Thanks for taking news. Well, T is now fluctuating during the day. Pretty much boring at wake up, quite gone in the evening or sooner. I would give it a mean of 2 over 10, from 0 to 4 under stressful conditions/lack of sleep/hangover.
  10. Dive Master

    Comparison of Different Therapeutic Approaches

    Just to make you smile a little bit (translated from French): Freud's approach Your mother made your shit was there. Behaviourism Shit happens after the bell rings. Emotional Rational Therapy Take care of your shit. Cognitive Therapy Think about your shit in a rational way. Humanistic...
  11. Dive Master

    5 year anniversary

    5 year anniversary
  12. Dive Master

    (Another) Almost Successful Prazepam/Lysanxia Withdrawal

    I was on 30 mg a day, 10-20mg Prazepam equals 10mg Diazepam (cf. equivalence table) - please correct me if I'm wrong - and both have more or less the same half-life (time required to eliminate half of the dose). The trap is that there are few side effects until withdrawal where your condition...
  13. Dive Master

    (Another) Almost Successful Prazepam/Lysanxia Withdrawal

    Hi! Some news from South of France. I don't come a lot anymore on Tinnitus Talk, things I experience are on a long-term path. I do accept this, now. Wow. 4 years and a half since my car airbag blasted and left me with a noise trauma: an eeeee so loud I would have killed myself. It fortunately...
  14. Dive Master

    Starting 5th Year — Still Alive (but Not Kicking)

    @New Guy : I moved from suicide attempts to resignation in 4 years... 25 to 30 years left unless fatal disease (cancer etc.) and hoping for a T relief drug in the time lapse (na****m *****b*rbi**l = emergency exit door). @RicoS : fortunately my children are students now, living in Switzerland...
  15. Dive Master

    Starting 5th Year — Still Alive (but Not Kicking)

    Thanks for your replies. Yes living in France. Masking devices did nothing except annoyance , listening to crickets or waterfalls all day long is simply unbearable to me. I'm not talking about my T around me anymore , It's simply worthless, T = pain in the ear = consult an ENT... :mad::mad::mad...
  16. Dive Master

    Starting 5th Year — Still Alive (but Not Kicking)

    Hi all! Well well well. Still alive! rTMS did reduce somehow my tinnitus. It's a kind of soft and sweet white noise around my ear now. Sometimes it's fulling my head and by pressing my skull behind my ear tinnitus, is coming back home. Good dog. Weird. I'll have a new round right after a face...
  17. Dive Master

    Tinnitus Week 2018 / Day 7: What Advice Would You Give to Someone Else Who Has Tinnitus?

    I have noise induced T after a car accident (airbag blast) for almost 4 years now. 1. Go to your ENT to exclude any disease (such as neurinoma), and forget him/her, since useless ("Try to cope with") from that point. 2. If T is unbearable and you feel you're in hell go to a psychatrist you know...
  18. Dive Master

    Tinnitus Week 2018 / Day 6: What Do You Find Helps Take Your Mind Off Tinnitus?

    Sailing, scuba-diving, hi-fi music, self head massage, reading on good days, kissing and talking to the dog on bad days (tiny yorkshire "toy size")...
  19. Dive Master

    Tinnitus Week 2018 / Day 5: What Makes Your Tinnitus Worse?

    Lack of sleep, sugar and alcohol 10% No identified reason 90%
  20. Dive Master

    Tinnitus Week 2018 / Day 4: Do You Use Apps to Manage Your Tinnitus? If So, Which Ones and Why?

    Tried many "nature" sounds apps but some are repetitive ad nauseam (the sounds loop again and again). Very irritating. I sleep with windows wide opened and focus on outside noises. Day sounds usually mask my T, now, and now only (after nearly 4 years).
  21. Dive Master

    Tinnitus Week 2018 / Day 3: How Does Your Significant Other Help You Manage Your Tinnitus?

    No understanding, no help. At best considered as a headache. At worst as a depression. Try to explain what is T, good luck...
  22. Dive Master

    Tinnitus Week 2018 / Day 2: How Do You Manage Your Sleep with Tinnitus?

    Managed to get rid of any medication on year 3. My T starts to fade during the day, when in bed, just a small hiss. On bad days (less and less) : I sleep in another room and listens Celtic/Brittanic music, very relaxing. Most important : keep the same sleeping pattern. I'm sleeping from 11 pm to...
  23. Dive Master

    Tinnitus Week 2018 / Day 1: What Techniques Do You Use to Manage Your Tinnitus?

    rTMS Psychiatrist Pink Floyd, Santana, Ted Nugent : their solo guitar totally mask my T Time, sleep, no stress, reading/crosswords on good days, scuba-diving
  24. Dive Master

    Pregabalin (Lyrica)

    For your records, I took Lyrica for 2 months, and 20kg... Useless and huge weight gain.
  25. Dive Master

    Far Far Far Much Better After 40 Months

    In French Murphy's law is translated by "LEM = Loi de l'Emmerdement Maximum", the time you need it, you can't find it or have forgotten it home...:cry:
  26. Dive Master

    Far Far Far Much Better After 40 Months

    @Agrajag364: this is my biggest fear, the revenge of T ! I have my survival kit always on me (with my house keys) anti-noise ear plugs, and finger in the the ear as soon as a Harley passes close to my car. Also when fire exercices are scheduled at work I go outside or leave away ASAP when not...
  27. Dive Master

    Far Far Far Much Better After 40 Months

    Hi all! Just a word to give you hope. I had a severe acoustic blast due to an airbag 3 years and a half ago on my left ear only. I told somewhere in the forum my story till the end of my Retigabine intake (16 monts ago I think). I'm having 1 rTMS session per month after an initial 1 session...
  28. Dive Master

    Need Help — Every Time I Wake Up from a Nap My Tinnitus Is Very, Very Loud

    Yep 2. I couldn't have a nap the first 2 years, now it's better and can afford it, when T is here the volume remains the same before and after the nap. However, sleeping late in the WE is still difficult. T is buzzing loud at wake up and usually fades 1 or 2 hours after when I'm surrounded by...
  29. Dive Master

    Deep Scuba Diving and Decrease in Tinnitus: The Effect of Nitrogen

    @flobo: Nice (06), CHU Pasteur. Le caisson le plus proche de Calais est au CHRU de Lille. @jer: acoustic trauma... probably accelerates inner ear healing, I'm not sure if it is correlated to T improvement...
  30. Dive Master

    Deep Scuba Diving and Decrease in Tinnitus: The Effect of Nitrogen

    @tinnitube : no more sessions planned, useless after 3 year. The med team told me it could help healing (not completely) before 3 months but I don't know. Also the French health care takes the sessions in charge 100% (yep, free), so you need good reasons to go for more sessions (try to convince...
  31. Dive Master

    3 Years and Still Alive

    170db!!! I'm freaking out!!! Maybe because of lateral airbags in new cars... Unfortunately my windows where closed because of the rain which caused my accident, the sound reflected all over the inside.
  32. Dive Master

    3 Years and Still Alive

    @Bill Bauer , as I said in another post, you have to choose between possible T and (!)/or para/tetraplegia... death... I don't know about the loudness of newer airbags when they blast in "modern" cars, but mine was a 1998 VW Golf IV (250,000 km). The crash tests conducted (in 1997 before the...
  33. Dive Master

    3 Years and Still Alive

    3 years since my car crash and the airbag blast => very loud, intrusive noise induced tinnitus. I'm far much better, still bad days which p*ss me off, but the distress has gone away. I can read books again (crosswords soon), listening music with high quality speakers (no headphones, they kill...
  34. Dive Master

    Retigabine (Trobalt, Potiga) — User Experiences

    Progress Report Progress Report Date: Jul 1, 2017 Current Retigabine Dosage: 200mg the morning every 2 or 3 weeks (aspirin mode) and STOP. Current Side Effects: Drowsy, flying high after exactly 2 years of intake (up to 900mg per day). Current Tinnitus Severity: 2 out of 10 Changes in...
  35. Dive Master

    Deep Scuba Diving and Decrease in Tinnitus: The Effect of Nitrogen

    You'd better not, hypoxy starts at PpO2 < 0.16 bar. I actually did HBOT (10 sessions @ 2.5 bar, 15 m equivalent), it managed to soften T (from eeeeeeeeee to ssssssssssssssh). Level was identical.
  36. Dive Master

    Deep Scuba Diving and Decrease in Tinnitus: The Effect of Nitrogen

    It was a simplified article in a scuba review but I think the original paper should be here: https://www.researchgate.net/publication/6915946_Recent_neurochemical_basis_of_inert_gas_narcosis_and_pressure_effects His papers can be found here (English)...
  37. Dive Master

    Deep Scuba Diving and Decrease in Tinnitus: The Effect of Nitrogen

    As my pseudo suggests, I'm a seasoned scuba diver, although my T is not related at all. I dive deep air in the 40-60m area (once 80m) (130/200/260 ft) with oxygen mix for decompression. (helium is too expensive here to replace a fraction of nitrogen = trimix). I noticed many times when I...
  38. Dive Master

    Sophrology

    Sorry if I've been a bit harsh, but I've probably been recommended a very very very bad one (Guess what? Her specialty is "end-life support"... Yeah, good job sweetie...). Just to point out when you're said your T is related to the divorce of your parents and the fact you don't like motorbikes...
  39. Dive Master

    Sophrology

    For me: total waste of time. Plus, as all charlatans say (I put sophrologists, hypnotists and so on in this category): if you don't get better it's YOUR fault. She told me it was related to my childhood bla bla bla. I ended more distressed than before consulting with suicidal ideation. She...
  40. Dive Master

    Retigabine (Trobalt, Potiga) — General Discussion

    My experience is Trobalt helped me a lot the first year (200mg TID), decreasing my T from a 8 to a 2 and lasting. It's difficult to say if it's due to Trobalt, healing or habituation. Still, the first effects where awsome. The year after, I quitted progressively under medical supervision down to...
  41. Dive Master

    Retigabine (Trobalt, Potiga) — User Experiences

    Progress Report Progress Report Date: May 11, 2017 Current Retigabine Dosage: 200mg every 10-15 days Current Side Effects: None. Occasional small floaters, but non permanent. Current Tinnitus Severity: 2 out of 10 Changes in Tinnitus: Moved from pure tone to wooshing after 2 years of...
  42. Dive Master

    Retigabine (Trobalt, Potiga) — User Experiences

    New User Information Gender: Male Age: 45 How Long Have You Suffered From Tinnitus? (Date of Onset): Jul 2, 2014 How Did You Get Tinnitus?: Acoustic Trauma Explain How You Got Tinnitus: Airbag blast Is Your Tinnitus in Which of the Following?: Left Ear, Head What Kind of Tinnitus Do...
  43. Dive Master

    Retigabine (Trobalt, Potiga) — General Discussion

    Hi there, for what it's worth, for my bad days (which were good days 2 years ago - once or twice every 2 weeks) I tried this combo, in one shot: Lysanxia (prazepam) 20mg -> Cl channels Lamyctal (lamotrigine) 200 mg -> Ca/Na channels Trobalt (retigabine) 200 mg -> K channels Correct me if I'm...
  44. Dive Master

    Hello from the French Riviera

    Absolutely, Trobalt idea came from this forum and it took me time to step into it. The first intake was like a vaccum cleaner sucking up my T in a woosh. Waow. The first month side effects were really scary: very quick blinking of my left eyelid, intense sudation, total lack of arms and legs...
  45. Dive Master

    Hello from the French Riviera

    Hi all! My short story ;): Tinnitus on my left ear only blowing up (8-9/10) 6 weeks after a car crash with airbag blasting (130db) in May 2014. No concussion, RMI clear, noise induced I suppose, or the accumulation of previous acoustic traumas (noisy working environment in the offshore oil...
  46. Dive Master

    Almost 4 years and counting...

    Almost 4 years and counting...