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Ginkgo biloba spikes mine like crazy, yet another expensive supplement that doesn’t help!

As with everything else I have tried, it didn’t help! I’ve tried every supplement known to man, some like Ginkgo give me spikes, as do probiotics. It’s ridiculous. The Otovent balloon is my party trick, but as with everything else, it doesn’t work!

How bizarre, I’ve been thinking the same, but thought it was just me. I’m on long term antibiotics so have been taking Probiotics for my gut, but noticed they give me a huge spike. I left them off for a week and no spikes! Ironic as they are supposed to help. Saying that, Ginkgo biloba gives...

Hi. Has anybody had any success with nasal irrigation, Neti pot etc? I have bilateral screeching 24/7, ETD and rhinitis. I have tried everything else so thought I’d give it a go. Today the screeching is extremely loud but after I used the Neti pot for the first time, the volume has gone off the...

Thank you Michael, I understand what you are saying. I do not use headphones, in ear or over, but am unable to sleep, I have a white noise machine but it doesn’t cut it. For my cause of tinnitus I entered "Flight", because I was fine before the flight, got on the plane as fit as a flea, got off...

Has anybody tried the new second edition Bose SleepBuds, please? Bose said they withdrew the original ones because of the batteries. The new edition's batteries they say hold a 10 hour charge, the original ones were longer. They are expensive but I’m happy to pay if they work? I have...

Lane, I should have added the antibiotic was for a persistent uti, nothing to do with my screeching, however after wasting a month on the particular one, the lab report confirmed I should not be taking that one, so it’s been changed to another one which is at least working for the bladder pain...

I too am convinced it goes up with the full moon, I didn’t actually know the date of this one, mine has been off the scale for a few days but I’ve been taking an ototoxic antibiotic, I can’t get my doctor to change it, so put the extra volume down to that, then just happened to see the full moon...

I’m a bit late to the party, but just want to add to this that SSRI’s are not always used to treat PPPD, that was my last diagnosis and whilst the jury is still out on whether it’s actually a condition, some refer to it as wastebasket syndrome, personally I’m not convinced, I have bilateral...

Just seen this thread, screeching tinnitus and full on wobbles all day, been keeping a diary recently of the tinnitus and the wobbles, back tracked to last month and the same occurred with the full moon, didn’t even realise it was today, so although I find it weird and unnerving it seems the...

I just don’t know, my ENT doctors have been spectacularly useless in my case, first they said Labyrinthitis then Ménière’s then Vestibular migraine then MdDS and now PPPD! Then they said we can’t help you, goodbye, disgusting way to treat someone but there you go!

I’m the same, walk like a drunken sailor, was bedridden for 4 months in 2017, now hardly walk at all, but I do cycle about 20-25 miles a week and have just started swimming two to three times a week, except today the wobbles and screeching is very bad, have done 4 miles on the bicycle , was...

Alcohol or sleeping pills for me, otherwise no sleep at all, I've tried and after tossing and turning till the wee small hours, now I don't even bother, it's either drink or sleeping pills, cannot bare another night of tossing and turning till 6 a.m!

After a balance test have been told the damage is viral, the flight I was on was just coincidental

Same here, balance problems, caused by damage probably viral to left ear, tinnitus so loud 24/7 nearly 8 months now , I had no stress in my life before far from it, now I dread each day, I go to sleep with the screeching/ generator with the aid of alcohol or sleeping tablets and wake up to the...

I have the same, sway like a drunken sailor most of the time, my tinnitus is always soooooo loud it drives me spare, had a balance test and it showed damage to left ear, NHS ENT basically said " it's frustrating " goodbye, absolutely useless, oh but one of them did apologise for another so...

Had final appointment with ENT today, basically though, get on with it, the damage done to the vestibular nerve cannot be undone, viruses are like that, sorry for filling you with loads of pills that had no effect blah blah bla, the rehabilitation therapy might help, " have you started it yet "...

@Michael Leigh @PaulBe Thank you for your replies and thank you Michael for the links you provided, I have read those also. It is encouraging that you think maybe just maybe mine will get better if and when the balance issues are sorted, but having been told to go away and get on with firstly...

@Michael Leigh @PaulBe , I'd just like to know how you habituated , I've had tinnitus and balance problems for 7 months now and not a second of the day goes by without it, it is so loud in both ears, screeching 24/7 and then in my right ear I get a generator in the evenings, I am not stressed ...

I was on betahistine for 6 months, apart from a week of beta blockers ( various ENT drs ticking their lists) and had the loudest tinnitus and balance issues, have been off them now 3 weeks ( Top ENT dr told me to come off) and I have to say although the tinnitus is still louder than I ever...

Rustington, West Sussex, since November 2016, Turkey before that

Since I had T and balance issues October 16, I found it difficult to walk so ended up staying in a lot, consequently I put on over 30 lb, just had enough of all of it and have started cycling only 4 miles a day at present but have found no change in my T, infact I cycle on the promenade where I...

Thank you Glynis, I have been on betahistine and cinnarizine for the last 6 months also given propanodol , didn't do anything for me, in fact the ENT told me to come off all of them and if anything I feel better for it.

Hi all, I have just been told I have this and it was probably caused by a virus and just coincidence that I thought it occurred after a flight. I am now on a waiting list for vestibular rehab, I'm told tinnitus is the brain telling us there's something wrong, so now I know. Is it possible do...

I'm there with you Ford, cannot believe the volume in both ears never a second of relief, my birthday last week the first ever I didn't want to have!

Know how you feel portia, I'm 6 1/2 months in , sooooo loud both ears, no sleep and no hearing loss, also have balance issues and getting to the end of my tether, I cannot believe the volume of this tinnitus , talk about ruining what was once a care free happy life, I hate every day now but not...

No Glynis , no other medication, but have been using alcohol to help with sleep as I can't stand these noises and volumes, the ENT Dr's have told me to stop this ( easily said) and use sleeping pills, which I have , so after Easter I will try them, but wish I could just lower the volume of this...

Hello everyone, had a long appointment today saw two ENT doctors including the top man, had another hearing test , no hearing loss but they wanted to check anyway! I do not have Ménière's or vestibular migraine and nothing can be done for my tinnitus sadly, however I am being referred to a...

Sounds ( no pun intended) like he should be in another profession, none of us want to be in this situation, how very uncaring he sounds!

Hi, Glynis, apart from nasal sprays over the counter, the prescription meds are betahistine (Serc 16) then Cinnarizine , then propanodol , now back on Serc, nothing makes a different screeching tinnitus very loud 24/7 and unable to walk without feeling like I'm on a bouncy castle or ten bottles...

Thank you Candy, but the ENT ( a junior one I think) without examing me or so much as looking in my ears firstly said labyrinthitis , then Ménière's , medication didn't work , symptoms still the same so next on his list ( of things to fob you off with) is vestibular migraine, have had MRI scan...

I got mine from a plane journey, I did a 4 1/2 hour flight September 17 th 2016, usual crackling and blocking during take off and landing I've always had, no problem off the plane and went about my day, then 5 th October another 4 1/2 hour flight, got off the plane now tinnitus 24/7 and balance...

I'd like to meet your 42 year old dr that said that, I'm 6 1/2 months with tinnitus and dreadfull balance problems and have not had one single nights natural sleep and like you I'm at the end of my tether, why oh why don't they believe us , I had better things to do with my life than this I...

Sure mine is just reading off a list 1) labyrinthitis , 2) Ménière's , 3) vestibular migraine, take these pills and let's look at the results of your MRI, but I haven't had it yet, what a waste of everyone's time and my life! MRI 9/3/17 no follow up appointment, waited patiently then phoned...

Been on it 3 months now apart from 1 week on beta blockers which made the noises 1000 times louder, hasn't done a thing I've still got screaming 24/7 and my drum kit 12/7 and the wobbles, walking on a bouncy castle 24/7, my 6 week appointment with ENT , from 2 nd march is now 18th May, my tether...

Thanks will try @glynis, am hoping ( aren't we all) that they find something that can be treated on my mri but not holding my breath!

Well with me it's either the liver ( which regenerates) or a heart attack with the stress of this noise in my ears and the walking on a bouncy castle all day long, never been the best of sleepers anyway but the alcohol is the only way to get some other than taking a drill to my ears or as I...

It's the only way I ever get any sleep, I drink vodka but have changed the coke to lemonade because of the caffeine , I don't want to drink every night but the nights I don't I lay there with whistles and generators in my ears and get up at 2 a.m in a rage , so might as well have a few and get a...

I just had one and it's just like being pushed into a drainpipe but very noisy, it was over a lot quicker than I thought, I just lay there ( head in a cage) praying not to get an itch because you can't move! No side effects at all, good luck.

Yes I've done all those, more than once, even bought the baloon that you blow up with your nose! I spoke to a new doctor this morning she's going to write to the hospital to see if she can speed up my appointment to see them again as I had my mri on 9 th March and they said go back in 6 weeks!

No, after I arrived I went out with friends and we had a drink or two, next day we went on a boat trip, so on the Friday( the next day) when I started feeling lightheaded I put it down to too much partying and lack of sleep, but Friday evening when I was out ( no alcohol ) I kept feeling that I...

jkph75, selfishly it's nice to know I'm not the only one like this! I cut the salt when they said it was Ménière's and don't really have caffeine , trying hard with the alcohol , but prior to this had a very active social life and alcohol was part of it, unable to go out now due to looking like...

All I can say is that it's a drumming sound and if I push my ear really hard or move my head suddenly it might stop for a second, this morning it woke me up along with the screeching tinnitus and out of frustration I hit my ear hard and oh my god the screeching turned up the volume as did the...

Ed209 thank you I've looked that up and I don't think it's that, my hearing is apparently exceptional and there's certainly no loss , back in October when it started a gp looked at my eyes and said its not Ménière's , I also have to spend most of the day blowing my nose as I have tonnes of mucus.

Greg CA and the other replies, thank you, all I've had done is one nurse and one doctor look in my ears ( they were dry) one hearing test ( exceptional hearing for my age 56) and an mri scan 9/3/17 told to see ENT in 6 weeks, it is the same doctor I've seen three times, who said firstly...

Hi all I've just joined, can't seem to find anyone with my symptoms, which all started after a plane journey, my tinnitus is constant screeching in both ears, louder than I thought possible and then especially when I'm tired so most of the time a drum kit type noise in my right ear but under the...

Hi everyone, thank heavens I've found this site, as I'm ready to jump of a bridge! My problems started after a non eventful flight of 4 hours, I was partying with friends and had a boat trip, so when the dizziness, walking on a bouncy castle feeling and these continual gas kettle so nd drum...

Hello everyone, I expect like me you don't want to be here but hopefully I can find some help.Thank you