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  • Users: Luisa
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  1. Luisa

    Major Rumbling... Most Invasive... I Need Your Help.

    How nice of you Karen to send such a nice letter. I seem to be quite experienced in all kinds of Tinnitus as I understand your pulsatile Tinnitus. Glad to hear its not as troublesome for you as it can be. Im going to look for the open MRI. Ive had so many in the past year, it would be nice to...
  2. Luisa

    Major Rumbling... Most Invasive... I Need Your Help.

    Hi all, Ive written before, but still need to share whats going on, as I HAVE to find out if there are others experiencing some of this...Ive spent weeks with a Neuro-surgeon and had Cerebral Angiogram....as they felt I had an Arterio-venous Fistula in my head making this noise that could...
  3. Luisa

    I Need Someone's Kind Help

    Thank you so much Gary. Friends who understand is what I need for sure. I wish there was a way to form a local "in-person" support group. All the best....Luisa
  4. Luisa

    I Need Someone's Kind Help

    Hi everyone, I am having a difficult time understanding how this site works and connecting with someone. Because I had regular T for many years, this past whole year, where major new sounds and hummings were set off led me to Neuro radiologists who did a big cerebral angioram saying I had a...
  5. Luisa

    7 Straight Months of High-Level "Squealing"

    I would so Love to stay in touch with you! Im very confused by this site so Im going to send you my email and we can write that way. Much less confusing. Your hatred of your doctor...do I have a s tory...a Neurosurgeon put me thru brain surgery thinking my noise was a fistula that could...
  6. Luisa

    7 Straight Months of High-Level "Squealing"

    I had a strange thing in Oct that 3 teeth had trouble at the same time. I did have root canal however, the noise suddenly became to this maddening change before the root canals but after the teeth started. Ive had Tinnitus for 25 years frankly. It was always troubling, I always needed sound...
  7. Luisa

    7 Straight Months of High-Level "Squealing"

    How I'd love for some of us to get together. I see Chiropractors 3 times a week...I try to keep everything in alignment....your examples of car and truck are quite endearing. For years I had T in one ear, and had to always have a fan or some sort of noise on even on vacation. Suddenly in...
  8. Luisa

    7 Straight Months of High-Level "Squealing"

    Im so not used to
  9. Luisa

    7 Straight Months of High-Level "Squealing"

    Golly I don't know where to private message you. My dr Maksim Shapiro is renowned for working with tinnitus
  10. Luisa

    7 Straight Months of High-Level "Squealing"

    Having had T for so long, and knowing its ups and downs, I was never prepared for what began last October. Suddenly it became a level so loud there's no getting away from it. There seems to be no accustoming myself to it and it doesn't ever change. I visited a very famous doctor at NYU Langone...
  11. Luisa

    Eardrum Vibration? Tensor Tympani Myoclonus?

    My dear Eric...After suffering for so long with true Tinnitus in my right ear...learning to live with it...A MOTORBOAT developed in my left ear which never had any noise before. I liken it to a motorboat running and the engine skips as its vibrating...I can feel the vibration as well as hear it...
  12. Luisa

    I Am Reaching Out to My Fellow Friends Here

    My Tinnitus journey is only growing in most disturbing way, and thought to ask you all out there if anyone (since major neurologists dont know) if you've experienced anything to this level. My right ear has the very loud tinnitus and pulsatile has developed as well. I have forced myself after...
  13. Luisa

    Am I So Different Than All of You? I Only Have Loud Days...

    Take the step with the MRI..its really nothing...and I"ll be my house it will be normal results..and wont that make you feel better!....best of luck
  14. Luisa

    Am I So Different Than All of You? I Only Have Loud Days...

    Thanks!! Im going to do that right now..thanks for the referral...
  15. Luisa

    Am I So Different Than All of You? I Only Have Loud Days...

    Golly..Im sorry...I hate to see young people resorting to so much medication. If possible, please go to a good health food store and look at all the products available in Homeopathic remedies for sleep and rest...Im so surprised that they actually do work...without all the side effects we worry...
  16. Luisa

    Am I So Different Than All of You? I Only Have Loud Days...

    I never read what you wrote as it was apparently deleted...This is a tough time for us all...I guess we are all entitled to say the wrong things...Just get well...stay well...and make this a Happy New Year...and I lived my first 22 years in England...Dont do the drinking...cant be good for your...
  17. Luisa

    Am I So Different Than All of You? I Only Have Loud Days...

    Yes to all your questions frohike....however, the long time it took to diagnose which two teeth had the nerve damage caused to Tinnitus to spike. I found out afterwards that the antibiotic (z-pak?) is ototoxic. It seems so much is!...I believe the nerve damage from the teeth sparked the new...
  18. Luisa

    Am I So Different Than All of You? I Only Have Loud Days...

    Thanks to a whole bunch of you for your responses...whatever has been deleted I didnt see...Ive coped quite nicely and raised a family for 20 years with T and just always brought a fan whereever I had to sleep...However...3 long months ago..I needed a double root canal and all HELL broke loose...
  19. Luisa

    Am I So Different Than All of You? I Only Have Loud Days...

    It seems so many here have ups and downs and go thru good times with their T. Mine has for a solid many months kept me holed up inside my house. Its so loud, squealing and intrusive, it brings on nausea and now that the MRI has shown no brain tumors, the ENT doctors are cutting me loose...
  20. Luisa

    MRI (Magnetic Resonance Imaging) Discussion & Experiences & Questions

    HI....Im talking about the Gadalidium dye...NOT the MRI...can it be ototoxic//
  21. Luisa

    MRI (Magnetic Resonance Imaging) Discussion & Experiences & Questions

    i have a big question. im having real long term LOUD tinnitus. Next step aside from accupuncture and chinese herbs im doing, is to allow the ENT to do the MRI with contrast. They insist contrast is necessary...NOW big question...SO many things make my Tinnitus louder and louder lately.. Im...
  22. Luisa

    MRI (Magnetic Resonance Imaging) Discussion & Experiences & Questions

    Ive had an MRI of the brain and ear canals ordered But Im upset to see its got to be with contrast which means being injected with Gadalidium....anyone know about this?
  23. Luisa

    Clonazepam (Klonopin, Rivotril)

    Thanks Karen...ABout the melatonin...it seems to make one very sleepy and dragged out the next day!....I have a good companies 3mg tablet that I actually break in half...Sometimes, I take a small piece of the clonazepam a few hour later....I can feel very drugged in the morning!...Is melatonin...
  24. Luisa

    Clonazepam (Klonopin, Rivotril)

    Thank you so very much Markku...I see you are very knowledgeable and contribute a great deal on this forum....Thanks for the info...i will read it all...Luisa
  25. Luisa

    Clonazepam (Klonopin, Rivotril)

    Im going thru without question the worst 3 months of my life and in spite of Accupuncture, chinese herbs beyond belief, and traditional medicine, I need to keep using the Clonazepam for a bit of rest from the relentless noises in my ears and head. Ive had tinnitus MANY years but it never...
  26. Luisa

    Clonazepam (Klonopin, Rivotril)

    Ive heard several differing opinions about Clonazepam. Some studies and websites claim it is useful in lowering tinnitus...others say its ABSolutely a no no drug as it makes or causes Tinnitus...what are you thoughts?
  27. Luisa

    Clonazepam (Klonopin, Rivotril)

    Thank you for a most comprehensive answer....Having someone speak with certainty and knowledge makes the advice all the more useful...especially since its what I wanted to hear...many thanks...However...5-10 mg seems incredibly high for melatonin
  28. Luisa

    Clonazepam (Klonopin, Rivotril)

    Please tell me... is small amount of Clonazepam ok with Melatonin? I need an answer asap...Im so desparate to not hear this noise tonite
  29. Luisa

    Clonazepam (Klonopin, Rivotril)

    many thanks for your reply karen
  30. Luisa

    Clonazepam (Klonopin, Rivotril)

    Im going thru a horrendous time with "the noise" now. Recent root canals put my noise from liveable with to squealing and I need help at night. Im very afraid because of other sleep problems to take sleeping pills, but Klonopin I take small amounts...(getting a bit more now) just to try to get...