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Cheers mate :beeranimation:

I think I am as habituated as I can get with my kind of tinnitus. I have several different tones and sounds going on, and they all tend to shift in pitch and volume through the day. There are days it drives me mad, but I have to say, there are more of the days I don't care at all about it. I...

Hi there! I am doing quite OK with my anxiety, but my tinnitus is still bothering me pretty much every single day. Some days are better than others and I do what I can to distract my mind from it by exercising, taking walks, meditating and so on. Find comfort in the fact that it does get...

First; I have had a mix of Pfizer (26th of June) and Moderna (31st of September). I reported my experience with the first dose of Pfizer earlier in this thread, and I will now address the second dose by Moderna. First 48 hours I had intense pain in the arm, nausea and some slight head ache...

I´ll keep updating this thread in case someone experiences the same thing. The last couple of days there has been some changes in the intensity of the sound. I have to move my head/neck more than before before I hear it and it has become a little weaker. I got the 2nd dose of COVID-19 vaccine...

The noise came back again during sleep and woke me up about 02:00 am. Not sure what to think, but there must be some muscle or neck related issue to this. It feels almost as if a tiny muscle in my ear is tense or irritated in some way. It takes very little movement in my neck to "activate" it...

I got back from chiropractor. After 3 hours, the tinnitus in question is gone again. I wonder how long it will last this time :unsure: I have a mid-range hearing loss yes, it runs in my family and we are about 6-7 with hearing aids because of this. None of the other members are suffering from...

I started seeing a chiropractor and he did some manipulation on my neck. I will have to ask him about doing an X ray. The beep beep beep from 2018 is gone. This specific part of my 4 different sounds is only affected by head/neck movement and only in one ear. Chewing, yawning or any other...

So, anyone with this kind of tinnitus? For the last 2 weeks I have been experiencing this in my left ear and I am clueless as to what causes it. My tinnitus spikes during movement of head from side to side, like shaking my head, and when I run or jog. When I nod my head or keep my head and...

It has been one month since my first shot of Pzifer. I had some minor fatigue and some increase in my tinnitus the following days. Currently I am feeling fine and in good shape. All through yesterday and today my tinnitus acted kinda weird and different. If I turn my head quickly from side to...

I received my first dose of Pfizer one week ago. First days I felt nothing but a sore arm, but from day 3 I have been feeling fatigued, tired and a little nauseous from time to time. My tinnitus spiked today, and I have been experiencing a slight sensation of hyperacusis the last couple of days...

Hi there! Actually I dont know what type of genetic hearing loss I suffer from. All I know is that my great grandfather had it, probably gave the mutation to his daughter (my grandmother) and she passed it on to my father and 3 of his brothers. The hearing loss is often called cookie-bite loss...

I have a genetic hearing loss that causes my hearing to gradually get worse, I'm about 50-60% deaf now at age 40. But, my father, has the same condition, and at nearly 75 he "never" experienced tinnitus, even though he's been working on noisy construction-sites all his life. He is nearly deaf...

Hi there @LilSass Thank you for taking time sending me your support and thoughts :) Being a long-time tinnitus sufferer, I am pretty sure you will be coping better than you do right now. Seven months is a long time in general, but not that long when it comes to habituation and tinnitus. May I...

@morgothaod Wish I did have an ear infection, that would have been a good reason for this spike. But no, I get my ears regularly checked up when I visit my audiologist. I think this is stress induced in combination with poor sleeping pattern over time.

Dear @friend74 I am sorry to hear about your T getting worse from the dentist treatment. Unfortunately, your story is not the only one I've heard about visiting the dentist. Some people practice a tecnique were the dentist does 5 seconds drilling then 10 seconds pause. But this demands a...

Dear @MindOverMatter Yes, this condition never cease to surprise me in how it behaves and affects me from time to time. Having T since 1996 you should think I would have zero issues with it, but the reality is different and I often think about how much it is draining my levels of energy. Being...

One and a half year since my last post, but here I am again with my T slamming me down to the ground . After recovering and habituating to the new sound 2 years ago, my right ear has "gone mad" once again. It happened just like that. In a moment, it hit me with ear-fullness and a static hum...

Stay strong

Elfin, you have been on my mind more than once. Hope you are doing well my firend! Wish you all the best :huganimation:

Hey! Sorry bout the late reply, but I have not been on this site for a while. I am happy to say that I am doing much better, both mentally and with the tinnitus.. It is still there, but it has settled and is now more stable than it was, making it easier to cope with. I can just hope it will...

Yeah, drugs are the very last way out, I've seen what that can do to some people. Maskers does not work for me cause I have a moderate/severe hearing loss so when I unplug my hearing aids, I really dont hear much. I've done tons of blood work the last year, but came up with nothing... Sleep...

I have been monitoring my sleep for about 1 year now via my Fitbit watch which provides me with sleep details. Each morning I am able to see my sleep pattern and how much time I've spent in the different stadiums of sleep, like REM, deep sleep, light sleep and awake. I have noticed that I am...

I just came across a message from the Norwegian tinnitus organisation about magnetic therapy. Several people have been stating that their tinnitus has become less intrusive after using this therapy for other reasons. Maybe something to it?

Yeah, I have like an electric frog croak in different variations and intensity. Started a year ago, and got some what worse a couple a weeks ago. Trying to keep focus elsewhere but it's not easy. But then again, I have a symphony of noises going on in my ears. I like your attitude of laughing...

I really hope your are right on this as it's my only hope for recovering my hearing. By now I have about 60db loss on both ears, but I have a cookie-bite loss, meaning my hearing is better in the bass and treble area of the audiogram. I wonder, what if only certain parts of the hearing is...

I'm not sure what qualifies for a genetic hearing loss, but there are over 400 different genetic hearing loss disorders, and the only way to know for sure is to do broad testing. Your question got my attention because I also have the same history of hearing problems as you and your family. My...

Mine started out with the static hiss before I also got a high pitch tone on top. A year ago, my right ear went crazy and I now also have a distant jet that varies in volume and intensity. Oh, and of course I have some intermittent and sudden random beeps and a buzz that also seem to live a life...

I am sorry to say it has not gone away.. Actually, it is worse these days, but there could be something causing it I am not aware of. The last year, my T has been playing with me in all kinds of variations. But it does always seem to settle after a while... Just give it time and do not stress...

Be glad that it is quiet, cause in my case it is pretty loud and disturbing. Seems like I have periods when it is worse than other... Like now, it is really bad again and bothers me all day.

Blocked ears due to cold could last for some time, 5-6 weeks is normal. You've probably have some fluid build-up in your middle ear that needs to dry up and this happens naturally over time. There are some things you could try, like different nasal spray or norephedrine pills, check with your ENT.

In general I think it is difficult to predict any timeframe bc of all the different variables in a project like this, however, phase II is scheduled to begin this year. Since this treatment is not developed to treat T alone but rather hearing loss, we need to wait for someone with hearing loss...

I cant even begin to describe how much I hope they succeed with this or at least find answers on how to succeed.

Status update, readers advisory - negative post My T still keeps tormenting me, and I fail to cope as good as I should do, even after all these years. I really thought that the mental and physical stress last year, was the cause of my T worsening. But now, since things are much better mentally...

I just want to reach out and say that I feel your pain and struggle. My T is all over the place in addition to moderate/severe hearing loss, it makes life a challenge, but I am still here. I really hope you find someone able to help you and guide you in the direction you need.. Just remember...

A warm welcome to you @Leimarie We are about the same age and my experience with tinnitus seems to be pretty much the same as yours. I am sorry that you are struggling, but you are definitely not alone in this, and you will probably find some comfort on this forum. I really know how it feels...

On the other hand, if T is caused by damaged hear cells, then could it be a positive thing that we have T in regards of regenerating hear cells? Meaning, the T is actually keeping these nerves active in some way... just a thought that crossed my mind.

It has been strongly suggested that in time, the connection will die yes, but they do not know how long it takes and it might be individual. In my personal opinion, wearing a hearing aid could probably keep these cells active and longer living that not wearing a hearing aid. Only time will tell!

Thank you for sharing your experience with us, and thank you for all the work you do!

Great news! I have experienced tremendous variations in my T the last year due to stress/burnout. In my 22 years of living with T I've never had so many different tones, pitches and sounds in my ears. But stories like this keeps me believing in better times.

Yeah, it's kinda like an electric chirp... I get it just completely random, not depending on any position.

So I would like to know if anyone else experiences what I do. I have a random beeping that occurs only in my right ear. It's in a completely different frequency than my baseline tinnitus which is constant. It has no pattern.... sometimes it beeps 1 time, other times it beeps several times...

@Joe Bananas Well, since that post, things have gradually gotten worse again and my T is back to being terrible, especially in my right ear. Since it came back I really just hit rock bottom and I have not been doing anything to even try to make it go down again, other than getting enough sleep...

No, I have yet to try the notched therapy. Do you recommend any service or do you create the files yourself? Any relief would be a blessing in my case... At the end of the day I am just so exhausted bc of the different sounds. If I just had one sound I believe I would be able to cope better.

@kate08 & @Tinker Bell I am also experiencing random beeps now and then. It started about a year ago in my right ear.. some days it happens several times, and other days it never happens. I experience both a few beeps, and longer streaks of beeps... always in my right ear. It happens pretty...

@just1morething Yeah, I have been considering AD's on many occasions during this periode, but I have every time decided I do not want to go down that road. I am pretty much free from the anxiety and stuff now, but something happened to my T during all the stress and panic attacks. I just dont...

Update: After coming down with cold and a stomach flu during christmas, my T just got worse and worse. I almost lost it in the worst periods but made it through. After that, my level did get somewhat better for å short while. But it did not last.. I really think I have one of the worst cases of...

Could you get your chiropractor to elaborate on what method he used that resulted in your T going away!?

I am so sorry to hear all of you suffering, and I am also sorry to say that I am in it with the three of you. What strikes me, is that we are all veterans when it comes to T and how to cope with it, still we are struggling so much. I had habituated to my sound before I got new sounds last...

I am thrilled and honoured to be able to contribute with my forthcoming movie project in order to create more awareness on Tinnitus research. I see there is some focus on how the world and media perceives us with Tinnitus and that there might not be enough suffering to pursue a possible cure...

Being supportive and understanding when I need to take time outs from different settings. Shows empathy when I feel sad for not being able to attend concerts or go out and socialise like I once did.

Since I am suffering from a moderate/severe hearing loss, WNG or other sound sources does not apply to me. Luckily, I have been able to sleep during my 22 years of T even though I have severe T that fluctuates by the hour. My emergency routines on bad nights is to do some meditation and...

@historicalagency Ok, so all three of us are on the northern part of the planet. Just an interesting observation... I have not found any help so far... Checked my ears two times, done 3 audiograms and nothing. It could be muscular, but so far I have not felt the need of checking it up. Sucks...

This sounds familiar. I had pretty much habituated to my hissing and high pitched sound when last year new sounds developed and it acts like you say; eeeeEEEEeeeeeEEeeeeEEeeeee Almost impossible to not lose it mentally. I find it strange that more and more people seem to experience worsening...

Absolutely very interesting, and an important step in the right direction nevertheless. Things like this creates a buzz and more and more researchers are now looking into gene therapy again. I have a inherited hearing loss, so I am keeping up with this in addition to regeneration of hear cells...

For cancer; CT019 or CAR-T are now FDA approved For blindness; LUXTURNA by Spark Therapeutics (Not FDA approved) For huntingtons; Sangamo Therapeutics (Not FDA approved)

Well, there are currently 2463 studies going on worldwide within the field of gene therapy according to wiley.com After the recent breakthrough in treating cancer, blindness and Hunters disease using gene therapy, the field is now literally exploding and according to researchers things will...

I think the answer to this could be nano technology, or nano medicine. For years, nano particles has been tested and developed within the research field of a variety medicine. I found an article dating back to 2011 from my country talking about how they would use shrimps(?) in developing nano...

I feel exactly like you do, and find it hard to know if it is the T that makes me depressed or other things. So most likely, T is the main cause, and then every other negative feeling/thought/experience comes on top of that. My depression is worst in the morning and varies through the day. I am...

This sounds very much like fluid behind the ear drum and usually this clears up by itself in about 5-6 weeks. If still persistent after 3 months, I would visit the ENT again and get a check-up. As for the anxiety and stress part, I have indeed experienced my T getting worse due to major...