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  • Users: Lep
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  1. L

    Retigabine (Trobalt, Potiga) — General Discussion

    I agree with you but if I can't even drive my car the time I tried 500 mg....how can I take 900 or 1200 mg???
  2. L

    Retigabine (Trobalt, Potiga) — General Discussion

    first three days 100 mg second week 100+100 third week 100+100+100 fourth week 100+200+100 I'm on trobalt since august but dosage remained low because to tiredness.Supply wasn't a problem.
  3. L

    Retigabine (Trobalt, Potiga) — General Discussion

    @locoyeti I think I'm going to taper off in the next future,last spike disappeared but the old tinnitus is always the same.
  4. L

    Retigabine (Trobalt, Potiga) — General Discussion

    1st day:100 mg 2nd day 100 mg 3rd day 100 mg 4th day 100+ 100 until day 11 100 +100+100 from day 12 to day 19 100+200+100 from day 20 until today (another month)
  5. L

    Retigabine (Trobalt, Potiga) — General Discussion

    The first time I took trobalt for only 5 days,I haven't any effect.Tinnitus increased 10 days after the discontinuation,I can't explain you why but I think it doesn't depend on trobalt.
  6. L

    Retigabine (Trobalt, Potiga) — General Discussion

    Started at 100 mg/day for 3 days,then 100 mg every week until current dose.I want to reach 600 mg/day but it's difficult,500 mg made me like a zombie...I'm very thin, only 50 kg. My tinnitus is central with chronic migraine,it's quite young but very hard (10 spikes in 15 months)
  7. L

    Retigabine (Trobalt, Potiga) — General Discussion

    Ok guys, I want to update about my retigabine story.As you know,I stopped the medication after a few days because I had vision problems with a low dose (200 mg). After 15 days being "meds free" my tinnitus and migraine worsened...I restarted desperately the therapy 45 days ago.Actually I'm on...
  8. L

    Retigabine (Trobalt, Potiga) — General Discussion

    I'm very happy for you...no doubt,italians are the bravest :P
  9. L

    Retigabine (Trobalt, Potiga) — General Discussion

    @Zimicheal actually I'm not on Retigabine but I want to restart therapy.I'm going to talk with my neurologist in a few days.
  10. L

    Retigabine (Trobalt, Potiga) — General Discussion

    @rtwombly @locoyeti blurred vision disappeared the first day without trobalt
  11. L

    Retigabine (Trobalt, Potiga) — General Discussion

    @rtwombly yes but in my case the side effect wasn't improving in 3-4 days,maybe it was worsening...maybe I will try again in the future if other drugs don't work.
  12. L

    Retigabine (Trobalt, Potiga) — General Discussion

    Am I the only guy whose therapy was unsuccessful? Damned blurred vision...this is possibly a miracle drug and I can't take it...
  13. L

    Retigabine (Trobalt, Potiga) — General Discussion

    @benryu 's excellent post encourages me to continue the treatment but I am worried.I know blurred vision is very different from retinal changes but 8 weeks seems a long time to see if it improves.My neurologist in on holidays so I can't call him...really I don't know what to do.Yesterday I took...
  14. L

    Retigabine (Trobalt, Potiga) — General Discussion

    My experience with trobalt is very short,i haven't had positive effects on my tinnitus in a week of treatment and I'm taking out because of very little sight problems.However,I recommend it: It's a very promising drug.
  15. L

    Retigabine (Trobalt, Potiga) — General Discussion

    initially my thinking was the same but after 3 days I'm starting to be worried
  16. L

    Retigabine (Trobalt, Potiga) — General Discussion

    Hi guys,I am another retigabine guinea pig.Initially I wanted to write only about long term results but now I have a problem: I'm taking retigabine since the beginning of this month,I started with 100 mg/day and then increased to 200 mg/day after two days.Now I think I'm having a very slight...
  17. L

    HIFU (High-Intensity Focused Ultrasound) Surgery

    I'm sure I've read this information on a study about HIFU but I don't remember where...regarding my story,I had an acoustic trauma nine months ago (while listening to loud music) with first tinnitus onset in the right ear and a slight hearing loss at 4k hertz. They disappeared with some steroid...
  18. L

    HIFU (High-Intensity Focused Ultrasound) Surgery

    Hi all, I joined this forum three months ago but I have never written anything because my story is very sad so I don't want to discourage new tinnitus sufferers. I know that benzodiazepines usage is a contraindication to this surgery but I am starting to need them to cope with my tinnitus. My...