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@SugarMagnolia... It struck me later that maybe you only 'semi-understood' the Network idea as had not realized or seen the primary "Discussion" thread for it?! In case that is so, and in case others miss it too (and where actually this kind of back and forth more correctly belongs) here is the...

@Starthrower - yes very well put above! The only thing I would add to this one sentence below though, is the meeting part. I realize you are not disqualifying that at all from your description but it is at least as important to me as the travel and getting out aspect. Meeting new people if...

@Starthrower ... Very good suggestions! And indeed, the initial posting on "Support" was very much preliminary to see if there were much response for the idea, etc., etc. Ultimately I too see this being in a different sub-section/area of the Tinnitus Talk main page. Not sure if we are there...

@glynis ...Indeed, this is well within the range of what I was thinking. I did not just mean staying in and with someone in their own living space. Absolutely, more detached options would in many ways be a 'safer' re initial inter-personal aspects. Likewise, places that are 'somewhere else' than...

@SugarMagnolia - I presume your comment is a light-hearted banter (which is fine). Though of course if even somewhat serious or wishful thinking don't leave it there...step up! This thing will only work if people get involved. And yes I know all about "limitations" and "trepidations", as have...

Ummmmmmmmmm.....could we please keep this thread focused on specific aspects of the initial posting! The main point was to announce the "Travel-Meet Network" idea and caveats about me getting re-involved in Tinnitus Talk with specific requests re that. So I could understand if comments are made...

As an example to illustrate "place", I will use my own situation a few hours north of San Francisco in N. California: I have a guest bedroom that is never used. A beautiful and very quiet location with an incredible view and deck overlooking a huge valley. Hiking from the front gate. 10 minutes...

As someone with severe, long term tinnitus and hyperacusis I live a very secluded and isolated life, especially in comparison to my life 'before'. *[See my Profile for details!]. I used to love to travel, do classes, dance, perform, socialize, etc. yet for many years all I have done really is...

After an absence of nearly 3 years being a very active member of Tinnitus Talk, I have decided to come back primarily to present an idea because it is something that I would want for myself. However, the more I reflected on the idea the more I realized there may be others out there (likewise...

Geeeezuz...sorry, but I would not be a party to this philosophy. I would go for decreasing volume as a goal no matter what the situation, cause, trigger, etc., etc. Hearing and inner ears (let alone brain aspects) are incredibly delicate and complex, despite also being unfathomably resilient -...

@lapidus ... With me and this treatment I do not think Silverstein will be interested in reviewing my case for at least year. My condition is just too "extreme" and with trials and early stages of stuff like this, they want to stick to more 'normal' type cases. I have pretty much taken it off...

@Dale Danche ... Dale, not sure what mean about all the paperwork (are you on Covered California??? - Though answer in a PM if you want...) With Obamacare you basically "have" to have insurance so you must have some drug coverage??? Anyway go to this site here: http://www.goodrx.com/ Type in...

@Dale Danche ... I'm sorry to be a voice of more "concern" here, but I'm afraid I can relate to your situation in a very direct way perhaps more than 99.9% of "others". If you look at my Profile/Info. you will see some of my long and sordid affair with T and H. What happened to me in Dec. 2012...

A rather surprising review of Germany's relationship to noise and silence... No wonder I like it there so much! http://www.bbc.com/news/world-europe-35122755 Zimichael

@attheedgeofscience ...and if you don't want to try your novel approach there are always "the darts"! Pin up names of all the common AED's out there (let alone the 'speculative ones')...or print this handy list below (which leaves out a lot of others I have run into, for some reason). Stick it...

@Danny Boy ... This study you reference is that "Huang study" again, which if I recall, we have been over before. I am not going to wade through it all again. But my memory serves, it was the only one with speculative reference to KV3.1 influence as part of a huge laundry list of...

Xexus Danny...you are still saying this???!!! Where did you get this piece of info??? Ref. Keppra and basics, including zero evidence that it works on Kv3 channels see this post in other Keppra thread...

???????????????????????????????????? ....Do you have any basis for this statement? I notice you live in Spain, so perhaps you have some inside info. However, from my long overview of all this T and H stuff, I have seen a LOT worse research than this, and it makes decent enough common sense to me...

@Darbiter ... Ummmmmmmmmmm, well it's kind of obvious really, as if you have H. or SRT (sound-reactive- tinnitus), sounds above a certain level, or for an "x" amount of time start to "hurt", or damage you more, etc., etc. This can get tricky to explain as there is a lot of confusion about it all...

Ed... I was not going to add more to this thread, but I guess sometimes I just "feel the pain" so much I can't help it. You are correct in much of what you say, but man you are flat out wrong about some of this stuff for some people!!! Not everyone knows they have what I call "normal T" that...

@Stotoph ... One way to get info on this vast Thread is to do a simple "within Thread search"..... This may help:

Having unfortunately had H. in various forms over my life (where it has lasted a fairly short time after acoustic trauma; to many years - after ototoxic damage; then two subsequent repeat "triggerings" from moderate sound exposure but for too long an 'exposure time'), I think I have fairly wide...

Bravo!!!

@Ed209 ... The UK is a civilized country (I lived there for many years and visited often). The USA is not in the same category. Even my brother (lives in Las Vegas) says he now walks out of movies due to them hurting his ears. I think it varies all over the map re volume levels for same movies...

This is why I don't post much any more. This from someone who has had T for five months. Oh well...everyone here is free to chose their own information sources and lives they want to lead.

1. I did not make that quote, it was in the top search item article in Google c/o Dr. Bedolla. 2. I'm not trying to "hold anybody back", I'm just adding an often "forgotten" element here on TT that there is variation in what kinds of T people have and the consequences thereof. Often...actually...

As is common with threads like this there are some "variables" that get left out... One is, whether you have any form of SRT = "sound reactive Tinnitus". If you do, don't follow the advice of those with "normal Tinnitus". Bone up on what's going on or you could end up in a lot worse shape for a...

You will find lots on Google, and under TT search too - often as "Morse Code" type tinnitus.

YES... I wrote to him today. See the exchange below. Please do not 'bother' him with any requests not already covered here!!! Incidentally, for those of you familiar with my past Thanos Tzounopoulos interactions you will notice the same theme here of: I am a research scientist, not a clinician...

Hey an apology here...re my post #65 above. Guess I was just somewhat "semi-conscious" when I saw all that stuff about me and reflexively responded, etc. However, most of it is TOTALLY OFF TOPIC...and that is one of my 'complaints' on TT, that stuff goes every-which -way and any serious...

I didn't get any email notifications saying there was 'action ' on this thread so missed all this 'pondering' about me, my age, my desire to perhaps be deaf completely, etc., etc. Let's clear some of them up - and a good little read of my PROFILE/INFORMATION TAB, will do just that. Like, if...

Done! However, if I were to add one more variable in the survey it would the 'impact of the use of earplugs or hearing protection'. For instance, how does one accurately answer many of the questions about reacting to loud sounds or situations when in reality, I am wearing earplugs before I even...

@lapidus... is mostly correct I think. I think Dr. Silverstein had to stick to the "scores boundaries" on the test evaluations, and if you fall outside those parameters then the Trial gets messed up. With a Trial you are under scrutiny to keep things more or less standardized - or it would be a...

As @erik said...this keeps coming around. See below for my experience with it in a "fake-out" IV dose... Way back in 2013: https://www.tinnitustalk.com/threads/new-here-but-not-to-tinnitus-hyperacusis-%E2%80%94-did-a-ketamine-trial.2867/ Way back in May 2014...

NO GO... I was ‘refused” as potential patient for the Hyperacusis procedure. My “quality of life” (aka. near zero) Depression/Anxiety scores were way too high for what Silverstein (the surgeon/doc) considers optimal for current level of possible improvement potential. He said to wait a year by...

I am not impressed by my Bose NC 15 headphones - thankfully given to me as a gift. However I say this in relation to how "quiet" they make sounds, rather than using them just as a better device to listen to music or movies on an airliner. Check out this link for a general idea of what to expect...

For those watching this thread here are answers below to a bunch of questions I asked, and probably you would ask - or at least need to know about, as some of them were not made that clear in the first few phone-calls. In no particular order, and c/o one of the assisting surgeons/docs, and...

Thanks! Hell maybe if I finally get my shit together enough to deal with the 500 things it takes to go across the country for this new H treatment (NOT to discuss here please - and no more PMs on it either unless to offer help - thanks!) I may be able to "do" more again and put more effort into...

Blujay...Good luck with this!!! H is even less understood than T...so if you find the answer please let me know. Thanks for the ice machine tip, etc., and yep I have traveled widely all over the world when had just T and learned a bunch of "sound travel wisdom". One is: Don't go to India if...

Hey @Sailboardman ...Not being a scrounge here, but I have been hustling looking at tickets and flights and costs and the motel across the way and...It's a big hassle for me to travel (just getting to an airport from where I am let alone travel with T and H). Anyway I soon began to realize that...

This... the procedure is intended to dampen excess vibration. I asked the exact same question on the phone, as I am not interested in a glorified earplug. If it were an earplug you would lose hearing across the board - which doesn't happen supposedly. And when I explained how I saw it as a kind...

This is a little bit "off topic" but is relevant to this case re treatment of hyperacusis - so I will bend my rule of not plastering threads with "distractions"...which drives me nuts. Blujay...Overall volume level matters in general. The louder something is the more it "hurts" and the more I'm...

Dr. Silverstein just called me...Super nice guy and matches my "a real, caring doctor" vibe from the video. I am being sent all the forms in the mail to apply for the treatment. If found acceptable... ~ It will require me being in Florida for a week. ~ There will be three tests: 1. Overall...

Hey all re above post since mine...Yes, yes, yes. Please any info form anyone would be great as clearly there are "questions" galore if you have actually had this done @Sailboardman and it did bugger all, and maybe made your hearing worse! Now the key take-away I get from all this is that H is...

If you want a video and reminder of so many things that 'we' avoid...Restaurants, movies, concerts, crowds, markets, music events, etc., etc...plus a look at Silverstein, here it is *(Note the date = current)...

I don't know about anyone else, but with my level of "non life" with sever T, SRT (sound reactive T) and H....THIS LOOKS BLOODY DARN GOOD!!! The H and reactivity to sounds is what is keeping me out of "life" (well interactions with humans basically). Yes my T is incredibly loud, but it is that...

Dana...If you don't do a hunger strike in "public" or not chained to a fence, etc. then how will it be "noticed"? Needs to have high visibility and "newsworthiness" or it will not compete with say Donald Trump's latest rumoured shampoo brand...or whatever-the-hell. However, enough people, to...

@Dana ...Great post!!! One suggestion I had (but before I got my 5th. level of damage this lifetime, three weeks ago - which has kinda F'd me over and cut my possible 'travelability') was to do a TT gathering of some sort and within that create a performance piece that could be videoed, and...

With all due respect...In regards to people "understanding" @derpytia and what she is dealing with. I don't think you do. Just look at her 'history' here on TT. She is not falling into the: "It will all get better box". I can say from experience, unfortunately, that unless you are in that...

@Natalie Roberts ... You are welcome... Plus remember one other very important thing. According to your Profile you got T in October 2015...That is basically "zero time ago", versus say 59 years and counting. If you play it smart there is complete justification in believing that you will...

@Natalie Roberts ... Just to add a little more here regarding your: A lot of this is covered in my posts in this thread as it gets a bit "complex" to figure it out. Maybe go over those four descriptions in post # 27 again and you will see the differences in what I have managed to figure...

Natalie... Here you go: https://www.tinnitustalk.com/threads/tinnitus-vs-tinnitus-hyperacusis-some-basic-differences.5110/ https://www.tinnitustalk.com/threads/avoid-noise.7458/#post-89745 - The first is a thread. - The second is post number 13 in the thread (or check the whole thread...

@Natalie Roberts ... Natalie, you may find some the stuff I wrote in the past in the Hyperacusis Section useful to review. A search under my username there should bring some stuff up pretty quick. You will see I have a slightly different viewpoint on a number of things related to T/H, sound...

This about sums up my life except for hit-and-run trips to town for food and library for books. Good that you can attend a dinner with presumably more than one person...which is about my safe limit, IF they talk quietly. Sigh! Unbelievable how much this condition can screw up a life. Take...

@RaZaH ... This is "off topic" *(Yes I know, I am pretty pushy about that, but it makes life searching specific info on TT pure hell if threads go all over the place - just look at the Retigabine thread for example!!! Having T/H is hard enough without having to spend hours of headaches sorting...

@Cheza ... Three days later and I'm still dealing with the spike. It doesn't take much when you have reactive T on top of regular T. All that's required is auditory stimulation outside of the norm, or a sudden increase in volume. 'I feel your pain'...I'm two weeks into a sort of "stage five"...

@Blackbird26 ... Sorry to be short here, but your question is "off topic" so will answer in a PM *(And you can also do a search under my username, as I have posted extensively in the past about the dangers of "time exposure" to sound, especially for repeat T/H folks, as it is very easy to forget...

@linearb ... I sympathize with you "lack of understanding" re. exactly what I am suggesting, etc., etc. Indeed, I have given some vague pointers on the need for a more concrete set of guidelines for any hope in hell of a "meet-up" actually happening...which would be the object, rather than...

@Telis ... I would say that your summary above is about as succinct, and complete, and clear as could be possible in so few words. You nail it right on the head. And indeed I totally understand as all my energy for this project has been sucked out like a vacuum since my increased T & H damage...

Update to my last post above, that cross-links with this thread, from: https://www.tinnitustalk.com/threads/in-relation-to-the-tt-meet-up-idea-i-have-been-mentioning.12005/...