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  1. M

    Paxil for Tinnitus?

    I would recommend NOT starting Paxil, as that is unlikely to help you sleep better, in fact it is likely that it would make you more anxious. If you're going to take an SSRI, don't choose Paxil. Don't take psychiatric drugs unless prescribed by a psychiatrist.
  2. M

    Retigabine (Trobalt, Potiga) — General Discussion

    I'm pretty sure CBZ can change how you metabolize other medications, especially other antiepileptics, you might want to be extra careful that having both in your system doesn't increase (or decrease) the effects of either medication. I'd ask your neuro about that first, definitely.
  3. M

    How Many "CURES" Have You Tried?

    get trobalt lol
  4. M

    First Clinical Practice Guidelines for Treatment of Tinnitus

    dude, why are we complaining about the bta or ata when the publication has nothing at all to do with either
  5. M

    Argh, I Feel Jealous and a bit... Stuck

    well, you don't necessarily know that you will never be able to get rid of your T. perhaps you might have to cope with it for an extended portion of your life, but since none of us can really predict what will surely happen days, months, or years from now, it remains a complete possibility that...
  6. M

    Habituation of “Self” v. Habituation of “Body” ~ c. 58 Years of Tinnitus

    Yeah, when the reactivity is set off, there's a whole cascade of tortuous sensations and feelings that you really can only just "brace yourself" for...but when the sensations don't quit and you can't brace anymore and you're shaking and shivering, well, you know the rest... Some "reaction" indeed!
  7. M

    Taking pills and psychoactive support

    That actually makes a good deal of sense. @nills , be well.
  8. M

    Taking pills and psychoactive support

    uh... my post was directed towards @nills , the creator of this thread. if you read the original post, he talked down to people who were using or considering using medications to help tinnitus or tinnitus distress and essentially said that those who took meds were "sheep", and he extolled us to...
  9. M

    Taking pills and psychoactive support

    sorry i'm just sensitive because my tinnitus was caused by medication that i took to treat stubborn depression that wouldn't respond to other options. a lot of people know that medications aren't the safest and can really cause issues but i mean, you have to try some things some times. taking...
  10. M

    Taking pills and psychoactive support

    because unnecessarily judgemental and emotionally manipulative "calls of action" to abandon all medications on a support forum that lots of newbies see for the first time every day, should be confronted.
  11. M

    Taking pills and psychoactive support

    this thread is super condescending. don't call people out on their "smallness" and don't make that tired, obfuscated argument that extrapolates to and judges the personal character of those who choose to pursue or not to pursue pharmacological intervention. here at TT many ppl weigh out their...
  12. M

    Retigabine (Trobalt, Potiga) — General Discussion

    not exactly lol
  13. M

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    it's a conspiracy. they read this forum and they think we're nuts, and they don't want us within 100 yards of them if we get a placebo...
  14. M

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    "moderate to severe depression or generalized anxiety" yeah if the depression/anxiety was mild you probably either have a great handle on the reaction to your severe tinnitus, or you have mild tinnitus
  15. M

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    uhhhhhhhhhhhm. http://www.nhs.uk/Conditions/Tinnitus/Pages/clinical-trial-details.aspx?TrialId=EUCTR2014-002179-27-GB&Condition=Tinnitus~quiet&pn=1&Rec=0&CT=0 well here's the inclusion and exclusion data. if i'm reading this correctly...you need to have 20db of hearing loss and less than 60db...
  16. M

    Can Tinnitus Be Cured? What Is Going to End Up Being the Cure?

    if they're going to figure out a supposedly intractable condition any time soon I think it could be tinnitus. There are more "clues" and possible targets for tinnitus than for congenital diseases, other kinds of chronic pain, and nerve or brain damage / other neurological conditions.
  17. M

    Retigabine (Trobalt, Potiga) — General Discussion

    You all should definitely NOT contact GSK, as there is a possibility that if they are aware that retigabine is being used off label for treatment of tinnitus, that in light of having lost billions of dollars due to lawsuits regarding off label prescriptions in the past, they might try to more...
  18. M

    Retigabine (Trobalt, Potiga) — General Discussion

    I'm pretty sure the pills are coated, and that it also comes in a 50mg dose (mostly for geriatric users, for example someone with liver or urinary problems)
  19. M

    Autifony Therapeutics Phase I Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    "emotional and mental problems which we already have drugs for" <-- yeah, drugs that cause tinnitus.
  20. M

    More Wiring More Firing: Conditioning the Brain to Better Handle Stimulus-Response

    So even some of us whose tinnitus measures in excess of 20 dbSL (mine was 23 when it was about half as severe as it is now), you believe that mindfulness can still help mitigate reaction even to tinnitus that might be of a very high magnitude? (I decided to alliterate with M's haha)
  21. M

    More Wiring More Firing: Conditioning the Brain to Better Handle Stimulus-Response

    What if the sheer intensity of a stimulus, in terms of magnitude, is enough to cause the amygdala to perceive distress, rather than the idea that that stimulus necessarily poses any (future) danger? I would think the reason tinnitus is classified as being "dangerous" is not because it heralds...
  22. M

    Tinnitus Worsening After Weed

    Since T, I tend to just take a "hit" or two at a time, if I try a whole cigarette of it I'll get a big spike. I think spacing it out makes the spike more temporary.
  23. M

    Why We Don't Hear Tinnitus in Our Dreams and Why It Is a Clue

    I'm always so vexed by this as I often hear my tinnitus in my dreams...
  24. M

    Retigabine (Trobalt, Potiga) — General Discussion

    we are the world
  25. M

    Retigabine (Trobalt, Potiga) — General Discussion

    If you're getting results with the lower dosage, maybe stick there and see how it goes?
  26. M

    Retigabine (Trobalt, Potiga) — General Discussion

    Duude that's a crappy reason for Grmany to have withdrawn it. Of course it won't be as price effective as lamotrigine (lamictal) because lamictal is aggresively marketed worldwide for treatment of bipolar disorder and as an anticonvulsant. Seems like this was even before the warning of eye/skin...
  27. M

    Retigabine (Trobalt, Potiga) — General Discussion

    @Viking it would be great to see if trobalt has continued positive effects on your tinnitus and possibly mood disorders too. Im convinced that I have severe tinnitus and hyperacusis as part of a group of symptoms I developed from taking or withdrawing from lexapro, remeron, lamictal, nefazodone...
  28. M

    Retigabine (Trobalt, Potiga) — General Discussion

    did you try ezogabine?
  29. M

    It's mostly improved, getting it again tho because ive had chiropractic adjustments that change...

    It's mostly improved, getting it again tho because ive had chiropractic adjustments that change ur jaw position just by virtue of it being connected to ur neck muscles. Popping and cracking improved within a few weeks of daily(mostly daily) splint use
  30. M

    For about 8 months now. It helped with popping, clicking, and jaw pain and discomfort, but not...

    For about 8 months now. It helped with popping, clicking, and jaw pain and discomfort, but not so much the tinnitus. Its basically just a retainer you wear at night
  31. M

    Retigabine (Trobalt, Potiga) — General Discussion

    @Mpt , did you notice a decrease in tinnitus severity right away from taking the drug? How long did it take for you to notice a difference? What other effects did you have, etc.? I'm curious if a short term low dose of this could help people and wonder if T would stay down after stopping the...
  32. M

    Retigabine (Trobalt, Potiga) — General Discussion

    Hmmm... Well mpt now I'm considering taking the risk of having my retinas turn blue :watching:
  33. M

    So Musicians... How Do You Keep Your Career Going, Continue Performing and Listening to Music?

    Why do you think you'll have it for the rest of your life? The longer you stay alive the more improbable it becomes that there wouldn't be a cure or treatment
  34. M

    The pitch keeps getting higher and louder :(

    Im really sorry to hear that your t seems to be getting louder. I support you and i think a few of us (me included) have the same experience
  35. M

    Tinnitus Acting Up, Possible Sinuses?

    when my tinnitus spikes i get what you mentioned: headaches and pressure in the face and neck and the problem with sore eyes that i cannot focus. in fact noise exposure can greatly exacerbate these things for me. all these things you described are essentially 24/7 for me and are "connected" to...
  36. M

    Argh, not having a good month really...

    well, i don't think you will have to deal with this for the "rest of your life". our understanding of the human body will change dramatically in our lifetime, to the point where we will look at everything that is going on today and all the things that we can't seem to fix, and see it kind of...
  37. M

    Tinnitus vs. Tinnitus + Hyperacusis: Some Basic Differences

    I feel that perceptions are the most real experiences one has. Perceptions are more tangible and overwhelming than sheer logic when it comes to me at least. I actually agree with you in sentiment 100%, i just think perception of tinnitus, while in a literal sense is just a perception, is an...
  38. M

    Tinnitus vs. Tinnitus + Hyperacusis: Some Basic Differences

    tinnitus IS a perception. you don't need to have damaged hearing to have tinnitus because tinnitus is a central nervous system disorder. actually yeah don't ask me why that is, all i know is that it's happened to me several times
  39. M

    Can You "Feel" Your Tinnitus?

    I "feel it". Very much so.
  40. M

    Autifony Therapeutics Phase I Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    "Uh, Dad? Can I have eighty thousand dollars to make me not be crazy anymore?"
  41. M

    Those with Hyperacusis and Tinnitus, Please I Need Insight

    Even noise-induced H can be improved with sound therapy
  42. M

    Scared because I suddenly lose my hearing and get tinnitus

    Actually, I get that a lot, especially when my tinnitus has been aggravated by meds or noise, and I have no measurable hearing loss in either ear. I think it might be related more to the brain or blood flow rather than hearing. It's pretty common with people that have T, even for people that...
  43. M

    Wellbutrin and Tinnitus?

    Tinnitus is a possible side effect of Wellbutrin. In the literature from the manufacturer they report a 6% incidence of tinnitus.
  44. M

    Thunder

    Noises far below the threshold required for auditory damage have given me long-term (still unabated) worsening of my T and H (the worsening happened mostly immediately afterward and then stayed worse indefinitely). If a noise were actually suitable to cause me proper auditory damage and I were...
  45. M

    Thunder

    I pretty much have to hide in the downstairs bathroom and plug my ears. That's what I did last night...
  46. M

    Stupid Stupid Fluttering.

    What benzos have you tried? I wonder if Flexeril would do anything, thought I read one person apparently helped his H by it, don't know anything about it myself though. I still think a lot of these conditions could be central nervous system related and not necessarily because your ears are...
  47. M

    Autifony Therapeutics Phase I Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Oooo exciting, what kind of response did you get?
  48. M

    What Has Tinnitus Taught You?

    tinnitus has taught me that i'm not the type of person who can handle having tinnitus very well.
  49. M

    Autifony Therapeutics Phase I Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Think i'm just having an off day. There's a few treatment options im still exploring
  50. M

    Autifony Therapeutics Phase I Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Like, if this doesn't work, I might actually be done with this shit. All of it.
  51. M

    Autifony Therapeutics Phase I Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    I feel like if autifony doesn't work for anyone or if it gets discontinued for safety reasons, i will likely descend into abject hopelessness. It feels like i have my whole life riding on this, because habituation isn't happening and i've completely lost my ability to relax. I haven't felt...
  52. M

    Autifony Therapeutics Phase I Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    I didn't think of it that way. At the same time, I feel like all sorts of psychiatric medication is fast-tracked without too much intensive oversight and approved for use quickly, at least in the US. That's at least how it seems sometimes. And the people at autifony are essentially psychiatric...
  53. M

    Autifony Therapeutics Phase I Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    I wonder if/hope that these trials will be completed faster than am101 on account of that involving injections into the inner ear, and autifony only requiring that you ingest a pill every day of the trial.
  54. M

    Autifony Therapeutics Phase I Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Well, in the magic autifony rat cure study, the drugs were delivered 30 days after the noise exposure, after the mice had already developed tinnitus, so that "critical period" of induction might have already passed and yet there was still the extinction of tinnitus correlated behaviors in the...
  55. M

    Tomorrow Is 6 Months... Does That Mean I Will Always Have Tinnitus?

    There's no real meaning to it, I think. I don't see why all the sudden on the very day of the 6 month anniversary it would become permanent for everyone who has tinnitus. It really seems meaningless and unsupported, I wouldn't pay attention to that at all. Moreover, I don't see why anyone's...
  56. M

    Learning That Spikes DO Go Back Down

    Lucky. My spikes often settle into permanent increases that layer upon one and another to create the effect of it getting noticeably worse every month.
  57. M

    Autifony Therapeutics Phase I Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    @bill 112 , that's why I'm having a lot of hope for Autifony, because I believe my T and H were mostly triggered by antidepressants and antidepressant withdrawal. Combined with too much loud music, I feel like the ion channels got all overstimulated and out of whack, contributing to a chronic...