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So, good news, I did not have the surgery and the whooshing went away on its own, sometime in middle or late July. I kept having the symptoms up to May/June of this year my PT was pretty noticeable and I was contemplating the coiling procedure. Also around this time I started getting...

I received a second opinion. Here is a summary: The symptoms are directly related to the arteriovenous malformation. This has probably been present for many years. It will not likely resolve on its own, it's also unlikely to rupture or cause any sudden complications. There is no immediate...

I am thinking that I may get a 2nd and or 3rd opinion just to be on the safe side. You may look into seeing a neurotologist, which you may or may not already know is someone that deals with neurological disorders of the ear. As far as you getting an MRI/MRA I would think that it is a good...

I started having PT early Nov. I had a carotid Doppler that came back normal. Then I had an MRI/A. Yesterday I met with a neurologist and I was diagnosed as having a Condylar vein dural fistula. In this particular condition the way they suggested fixing it is by using coils that are put in...

I met with a neurosurgeon today and he diagnosed me with a Condylar vein dural fistula which he said is a rare fistula. He's pretty certain it's just the right side. We reviewed the MRIs together. He talked with me about treatment through transvenous process using coils. He actually did...

I’m pretty sure I only hear it on my right. Early on when I first started to hear it when I plugged both ears it was difficult to tell which side it’s on but when they did the IAC the MRI tech asked me which side I hear the noise and I said my right, which is primarily where I hear it. I’m...

I did the MRIs last week with and without contrast and I just heard from the dr a few minutes ago. He said there is a malformed blood vessel/fistula that’s developed. He is pretty confident it can be fixed. He’s going to get me scheduled to visit with another dr and to review the procedure and...

Thanks, I’ve been doing pretty well. Same with me as far as keeping busy it’s barely noticeable, it’s just when it’s quiet, or if I wake up in the night it’s harder to get back to sleep. I am scheduled for tests Tuesday, Wednesday and Thursday of next week. My insurance requires I break the...

I just got a call and was told the Doppler test was normal.

Have you tried having any chriopractic work done? I’m willing to try anything at this point. I also read ginkgo biloba has helped some I wonder if a low dose aspirin might help also as a blood thinner to maybe help with the turbulence. I believe Ginkgo acts as a blood thinner as well. I have...

That stinks. Do you regret doing any of them? I saw some posts where some said the MRI made their tinnitus worse. I have the carotid doppler today in about 2 hours. So I guess Drs are telling you that you have to live with it? There is nothing else you can do right? That seems to be the...

Wow, this ENT I saw today was awesome. He was thrilled to hear the recordings. Completely different and amazing experience from Friday. He is going to get me scheduled for an MRI / MRA. The ENT I saw on Friday was very dismissive and told me I’ve been reading too much on the internet when...

Yeah, going to sleep is more difficult. I have been sleeping with relaxing music.

When I try pressing on veins in my neck it sometimes seems to change the sound but I’m not sure if it’s the pressing or just a coincidence because sometimes pressing doesn’t do anything. I just read about tensor tympani spasm which is a muscle spasm in the ear. If this is what I have I don’t...

I forgot to say that I also had my 11 year old son put his ear against mine and he could not hear it.

I was able to record it by putting the mic of my iphone to the right of my tragus on my right ear. I believe it’s the carotid artery that runs there? My wife says she is not able to hear it. I had her put a stethoscope to the same place I was able to record it. The noise changes to a...

Let me know if this works Pulsatile Tinnitus Recording

I saw an ENT today. I explained my symptoms. I told him I had recordings of the noises but he didn’t care to listen. He said he could not hear the noise when he put the stethoscope into my ears, but that he was hearing something in my carotid. He is going to schedule an appointment to get an...

Hi thanks for your reply! So today (11/21/17) is the last day of taking my prescription. The noise is still there. It sounds like foot steps in snow. I can hear it in both ears but it’s quieter in my left. On Sunday (11/19/17) I was able to record the sound that I am hearing using the...

I noticed it for the first time on the morning of Nov 2nd 2017. I woke up and at first I thought I heard the sound of breathing. I googled the symptoms and came across pulsatile tinnitus. I saw my GP who said my right ear (the one I heard the noise on initially) was redder than my left and...