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  • Users: Stina
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  1. Stina

    My Mum Seems to Believe Antidepressants Are the Cure

    Tinnitus does not cause your body any harm or indicate a serious health condition (in most cases). Its a problem for most people because it causes stress, anixiety, depression - eg. your mind. Tinnitus cant be treated nowadays but stress can and this is where antidepressants come in. They help...
  2. Stina

    Behold, My Hearing Test Results!

    I also have normal hearing according to the standard test. As LadyDi said, you may have hearing loss in higher frequencies. However, as far as I'm concerned a normal hearing test is positive news: it would be far worse if you had both hearing loss AND tinnitus!
  3. Stina

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    That is sad news given how many people had their hopes on this drug. However the advancements in medicine have been quite fast and most fields so hopefully ear related issues will catch up as well. I hope the people with loud tinnitus will find a way to cope and not give up hope. I am sure...
  4. Stina

    Do You Think I Can Still Practice Electric Guitar at Home?

    If you are able to hear your own normal speaking voice it can't be too loud :) Its an easy way to check.
  5. Stina

    Does It Actually "Go Away?"

    I dont think there is sufficient statistical data about how long tinnitus lasts but if you really want to know you should contact someone who is able to read and understand such papers. From my experience I would say that life rarely turns of the way we want to so instead of focusing on hoping...
  6. Stina

    Valdoxan Anyone? Any Other Medications That Help? CBN?

    I simply used valdoxan without other ADs and without sleeping pills. I suggest you speak to your doctor - morning depression can be a result of your depression, sleeping pills and/or valdoxan so only a doctor can give you the right advice.
  7. Stina

    Valdoxan Anyone? Any Other Medications That Help? CBN?

    It did but they only became noticeable after taking it regularly (1 pill every night) for 3-4 months. Valdoxan is not a sleeping pill, it is meant to be taken regularly and like other ADs will take time to start working. However people are different so its logical that one pill doesn't have the...
  8. Stina

    Valdoxan Anyone? Any Other Medications That Help? CBN?

    Ive been taking Valdoxan for about a year and about a week ago during I routine check I found out that it may have affected my liver as my bilirubin levels where a bit higher than normal. I haven't spoken to my doctor about it yet but in case anyone here takes Valdoxan make sure to get your...
  9. Stina

    Being Young with Tinnitus

    In general I agree with the statement of fear but does being brave really have to do with doing something that will very likely create a problem? Brave can mean accepting the consequences and not doing the thing you want to do. I think a person can figure out why they love loud events so much...
  10. Stina

    Being Young with Tinnitus

    Im 24 so Im also pretty young. I never really enjoyed clubbing or concerts so its not a big loss for me but after getting tinnitus I wouldn't even consider going to a loud event. I see people with tinnitus attending loud events and getting increases all the time. Some of them get the loudening...
  11. Stina

    For What Situations Do You Wear Earplugs? And How Has Your Tinnitus Progressed?

    My cause of tinnitus is the incurable condition called stupidity, eg. listening to loud music for years and years with my MP3 although my parents warned me about hearing loss. I haven't had an increase yet but it might come. I wear plugs in all situations that are too loud. I would advise you to...
  12. Stina

    Do You Consider Your Tinnitus a Disability?

    Exactly, Im investing into my future:D
  13. Stina

    Do You Consider Your Tinnitus a Disability?

    Well in the beginning it was quite a shock. I was used to getting conditions treated and this was the first one that couldn't be fixed. I was also developing generalized anxiety disorder at the time and hadn't realized it yet myself so that made matters worse... I guess I was (still am) young...
  14. Stina

    Do People That Have Tinnitus From Acoustic Trauma Tend to Have More Spikes?

    So little is known about tinnitus and I am not a doctor so I don't really understand it. But I think other causes such as taking certain medications and maybe even stress can damage nerves in the ear. Therefore I doubt people with acoustic trauma are more prone to increases (except for the fact...
  15. Stina

    Do You Consider Your Tinnitus a Disability?

    Well like with most chronic diseases it depends on the severity of the case. I have very mild tinnitus so no, it is not a disability. However, if it were loud and accompanied by hyperacusis i would consider it a disability.
  16. Stina

    Still No Sleep Even on 2 Sleeping Tablets :(

    If you keep having constant sleeping issues I don't think its is very good to take sleeping pills as a solution. Perhaps you sshould try an antidepressant? In 3-4 months they can help you and solve sleeping solutions. (ADs help relieve stress in the brain) . I have been taking Valdoxan for...
  17. Stina

    Still No Sleep Even on 2 Sleeping Tablets :(

    I also had sleeping problems due to stress last year and in fact I still have them occasionally when I become stressed (Im writing my stupid Master's thesss and it is extremely stressful). Anyway , I also took sleeping pills, sometimes more than 1 but the problem is that 1) Taking too many...
  18. Stina

    Annoying Tinnitus When Watching TV

    Maybe it is, maybe not - I just stopped monitoring it.
  19. Stina

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Nothing new for us but a great way to inform people about tinnitus! We are always speaking about how tinnitus is not in the media enough - so its a good thing!
  20. Stina

    Anyone Else Avoid Antibiotics Because of Tinnitus?

    I think instead of avoiding antibiotics it is possible to discuss the problem with the doctor. If the doctor is not aware whether an antibiotic causes tinnitus you can read the information sheet (I think they are available online, at least in Estonian we have them) and then act accordingly. And...
  21. Stina

    Retigabine (Trobalt, Potiga) — General Discussion

    Are floaters listed on the side-effects sheet? Sometimes eye floaters just occur: for example I havenät had them for almost 10 years and now I do for no apparent reason (I of course also have a huge minus, -7,5).
  22. Stina

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Why is it weird? Everybody is different and it is not uncommon at all with any medication to have side effects and no effect on the problem. No one drug gives the same effect on all people. The same goes for food, exercise, life situations etc. For example I'm sensitive to coffee and if I...
  23. Stina

    Health Anxiety

    Hello Lisa :) I didn't read the whole thread so sorry if my post is off topic. Anyway after I developed an anxiety disorder last year I also developed hypochondria. I managed to diagnose myself with diabetes, cancer and Sjogren's. Of course internet "helped" a lot. So my advice to you is to stay...
  24. Stina

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Just wanted to point out that after 15 years of arthritis and trying various combinations of treatments it is completely normal that drugs have side effects. People are different and no one drug has the same effect on everyone. Therefore after the first trials (which include ca 100 people) it...
  25. Stina

    Rough Time For Me — Need Medical Advice

    Hello Martin! How are your wife and you doing?
  26. Stina

    Can Tinnitus Be Cured? What Is Going to End Up Being the Cure?

    I think we should differ a cure and treatment here. A cure means eliminating a disease completely after treating it (for example that is often the case with pneumonia). A treatment means that it will temporarily fix the problem or relieve the symptoms but probably needs to be done again or...
  27. Stina

    Valdoxan Anyone? Any Other Medications That Help? CBN?

    Ive taken Valdoxan only (25 mg a day) for about half a year. Has helped a lot with my generalized anxiety disorder and panic attacks, sleep has become better (sleeping issues was a side-effect of my anxiety disorder). It worked in the long term though, after 3-4 months: no immediate result. So...
  28. Stina

    Scared of Dentist — How to Cope?

    Nowadays the drills dont exceed 80 db so its not going to cause any damage. If you have hyperacusis it might affect that but probably that should settle down or you can prevent with earmuffs.
  29. Stina

    Rough Time For Me — Need Medical Advice

    Hello Martin. Haven't been very active on this thread but I have been thinking about you and your wife. What kind of treatment will she be receiving? A quite well known Estonian singer recently suffered from breastcancer as well. She got treated in Germany in Bad Sonen in a private clinic called...
  30. Stina

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    So perhaps its better to say he was treated effectively? I am not very well informed about the Retigabine thread, but I do remeber reading that some people had pretty bad side-effects. Am I correct?
  31. Stina

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Im sorry but I have to disagree with the depression example - if it is clinical depression it is not curable in most cases. It can be curable if you start treating it as a child, however, if you are too late it is often not curable, although treatable. Depression due to certain life situations...
  32. Stina

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Agreed. However, most neurological and psychiatric conditions nowadays can not be "cured": they can be treated. I think that is the difference here. I myself also have a chronic condition that can not be cured, however I take my weekly pills + supplement due to side effects and Im fine. I also...
  33. Stina

    Do You Ever Habituate to Complete Silence (Silent Room)?

    After getting tinnitus I have never really been in a completely silent room. Even in the nature - in bogs or swamps for example - where there is nobody but myself there is always some kind of sound (wind, birds, animals..). I think silence is only possible in a soundproof room (artificially...
  34. Stina

    Concerts/Shows

    I honestly would never go to a concert/club/loud bar. Ill rather limit my social life than deal with sleepless nights and crying during the day and potential hearing aid at 40. You are wise to stay away.
  35. Stina

    Taking pills and psychoactive support

    Just wanted to point out that a lot depends on the person. There are people who are indeed able to treat themselves however it is not always an option. For example I have generalized anxiety disorder - a condition created due to a long period of uncertainty and problems (tinnitus was just one...
  36. Stina

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    No, a psychiatrist can't make your tinnitus go away. However, he can help cope with it. Also, he can help you cope with the anxiety related to the drug (eg. whether it will or will not work). I agree with Dan that at this point there is no reason to think such thoughts as we know very little of...
  37. Stina

    Chronic Severe Pain and Tinnitus

    If you have to live with severe chronic pain you must be doing pretty well considering that you are still trying to live. Do not put too high expectations on yourself or beat yourself up that you should be more productive or happier etc. Give yourself moments to feel sorry for yourself as well (...
  38. Stina

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    If you are having suicidal thoughts I do advise you to see a psychiatrist who might be able to help you.
  39. Stina

    Chronic Severe Pain and Tinnitus

    If I understand the pain comes from the TMJD? Can't anything be done for that? What do your dentist/GP think? Perhaps do try antidepressants. Normally with ADs the loudening comes if you taper off too fast, if you too it slowly it shouldn't do anything. I advise you too see a good psychiatrist...
  40. Stina

    What are you eating?

    Im on a low glycemic index diet but only because otherwise I get mild acne. Everyone has certain things that suit better to their body so try to find what suits you. There is no one helpful diet, just different diets that are helpful for a certain person.
  41. Stina

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    With all due respect there is a lot of guessing on this board regarding dates, scientific data etc. so I doubt my guessing will make it any worse:)
  42. Stina

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    @Lisa88 Of course it might mean more phases but then it took them a year to finish the 1st phase (also a four-week trial) so why should other trials take less time?
  43. Stina

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    2016 should be listed in their webpage. They obviously donät have the timeframes for the 3rd trial as they do not know whether the drug will make it there or not. Im just assuming based on how long it is taking Auris Medical and considering that in the 3rd phase there might be trials in other...
  44. Stina

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Im sure its in Autifony's interest to get to as many countries as possible but as it depends on the country as well it can't be said before the drug is about to go commercial. The trials take place in the UK.
  45. Stina

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    They finished Phase I (side effect trial) successfully. Now they will start with phase 2 estimates to end sometime in 2016. After that they will know if it had a positive outcome and then they can see if they continue with the trials or not. Normally the 3rd trial takes around 1,5-2 years + time...
  46. Stina

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Its for chronic sufferers and the 6-18 is for the study:)
  47. Stina

    Best Tinnitus Advice in One Sentence/Tweet

    Eventually we are all able to bear a lot more than we think and often suffering equals wisdom.
  48. Stina

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Is that 800 mg a day, a week? Would you take it for some months, after regular intervals or for years?
  49. Stina

    Why TRT Fails People ...

    I did not really read the comments above but I just wanted to say smth I have thought about when it coes to TRT. I think it has a lot to do with acceptance: the understanding that life might not be the way we want it to be but somehow we have to carry on anyway. Therefore I believe it might be...
  50. Stina

    Otonomy Acquires Assets and Patent Rights for Tinnitus Program

    Please read the posts of ResonanceCeo on this page: https://www.tinnitustalk.com/threads/am-101-tactt1-results-released.1994/page-22#post-39453 He is a scientist who also has tinnitus and is currently working in the field. He clearly states that in the 2nd phase there were no significant...
  51. Stina

    Do You Think Tinnitus Will Be Curable In Our Lifetime?

    I think we can all agree that there have been many promising results in the scientific field. Working out treatments takes a long time so the fact that there isn't smth out now doesn't mean that research isnt being done. Also, people might know about heart disease, cancer etc. because so many...
  52. Stina

    What Is Silence?

    Silence is the absence of sound.
  53. Stina

    Do You Think Tinnitus Will Be Curable In Our Lifetime?

    Cures are very rare in medicine. None of my chronic conditions have been "cured" and I've been told by doctors straight up they don't see a cure coming in the near future. Successful treatments are much more common and I don't see why that shouldn't happen for tinnitus.
  54. Stina

    Autifony Therapeutics Phase II Study for AUT00063, for the Treatment of Hearing Loss and Tinnitus

    Agreed, but I think maybe stem cells research and the like might help in a longer perspective :) I doubt in 20 years we will know as little as now. And Autifony might still turn out to treat the condition quite effectively giving people with loud tinnitus a better quality of life. :) But yes, I...
  55. Stina

    In Loving Memory of David Craig Muller

    @dan I hope you are getting the support you need in coping with this.
  56. Stina

    In Loving Memory of David Craig Muller

    Lets just hope in the future there shall actually be treatments to avoid this type of situations. Clearly ADs and TRT don't help everyone. However I remain hopeful that a treatment will come.
  57. Stina

    Hello, My Name Is Amanda and I Need Help. I'm Becoming Suicidal.

    Please see a psychiatrist ASAP (go to ER. They can help you with the problem immidiately, sometimes hospitalization is required. Do not wait till it gets worse. ADs might be more helpful than sleeping pills, but consult a good doctor.
  58. Stina

    In Loving Memory of David Craig Muller

    My point was that the scientists already know what it going us (suppose thats what you meant by researches) and awareness has to do with the public sphere- raising awareness is more the business of doctors and NGOs, not scientists. Patients themselves can raise awareness to, as for example with...
  59. Stina

    In Loving Memory of David Craig Muller

    Lisa, I think researches know what patients are going through and thats why they are in fact researches. Btw a while ago there was another similar story here. There was a lot of talk about how it should have an impact on scientists and make them compassionate. So I sent the story (translated...
  60. Stina

    What Is Your Biggest Problem With Tinnitus?

    Hhehe maybe keeping the mind young is the best anti-wrinkle cream!