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Hm. Maybe tinnitus sufferers with burdensome or debilitating tinnitus who may already struggle financially are the wrong 'niche market.' Especially, if they're being told that there's nothing that can be done for them by M.D.s. Something's amiss that so few people donate. How about trying to...

Similar with Dr. Rauschecker fundraiser. It's not that people don't want to donate. They literally don't know about it. The right way to go about this is to drive traffic to the fundraiser by utilizing Facebook and social media ads, Google ads etc.

If that's the case I think it's safe to assume they just got better and moved on with their lives. That's good news.

No no. "An anxiolytic is a medication or other intervention that inhibits anxiety." Try red wine e.g (just don't mix with the drugs you mentioned).

I'm sorry to hear that. The thing with neuro drugs is that they don't target only a specific brain region. They affect the chemistry of the whole brain (tapping into its communication system). Did you try any natural anxiolytic?

I'd be all over the moon, if it helped silence chronic tinnitus. I just haven't seen any data yet (human or primate trials) that'd support that notion. There's not enough available info to draw a definitive conclusion. If you're talking a community worth of millions of patients, then yeah...

The only bad paradigm I see here is certain members bashing others for actually getting better. If habituation (getting better) ensures one will live long enough to see a treatment/cure, then so be it. Also, regenerative medicine doesn't ensure anything. Acute tinnitus = a problem of the ear...

Whoa, was looking forward to this :) Thanks! Will check it out for sure.

That's a success story right there. Thanks for sharing.

Thanks heaps @Hazel for travelling all the way to TRI Taiwan to help keep us up-to-date with current tinnitus research. It is much appreciated :thankyousign:

This makes very good sense. Thank you for taking time out to answer my question.

Thank you for your response. Just a side note: the compilation of references and theory was done by @JohnAdams.

Dear @Dr. Ancill, @Dr. Jay Hobbs and @brownbear As medical professionals yourselves, can I ask what your opinion on Dr. Minbo Shim's method of treatment of the sensorineuronal hearing loss and tinnitus is? http://cmclinics.com/category/about-our-clinic/ Thank you for your attention.

The debate handled with grace and class. Nice.

I’m really sorry to hear that. I didn’t know it can get this bad. After my last dental visit my tinnitus is spiking really badly. I guess my mind is clouded a lot too.

See what I mean?

So you want more people suffering and be miserable, habituation = no success, so as to drive more attention to the 'otological research'? Well, sorry to hear about your noise-induced pain but tinnitus is the biggest problem here for most.

Huh, sorry, but what kind of support is this? It's almost as if some members here didn't want others to get better.

Yes, they did discuss anything like, uh science. From what I can remember one of the problems right away was with the whole drug delivery process (so the healing agent actually gets to the cochlea & dissolves/stays there, the number of injections was concerning, etc.), then the healing component...

I guess you are right. However, there are new MRIs that are not as loud and other ways to get around this problem. For some reason, I'm concerned with the strength of the magnetic field and what it can do to the body along with the noise. Isolating the auditory system from acoustic noise during...

$13.4 million to build next-gen MRI brain scanner at UC Berkeley "...National Institutes of Health to build the NexGen 7T by 2019 to provide the highest resolution images of the brain ever obtained, able to focus on a region the size of a poppy seed." This could help.

Yo, good to hear it's not too bad. It may not even be a permanent increase. Don't eat topical corticosteroids.

To be honest I'm quite looking forward to this event. Maybe the speakers who had tinnitus for a long time and got to that stage where they can now hear silence in a quite room will have some helpful tips.

I think you mentioned somewhere else that "it's hearing loss" but if you look at all the centres in the brain that take part in the creation of tinnitus then the answer is: We don't fully understand it (yet). Cochlea → Formatio reticularis (Hirnstamm → Mesencephalon → Talamus → Cortex) → The...

Not really. I don't want to take hope away from anyone but companies like Frequency Therapeutics are focused on treating primarily hearing loss and not tinnitus (correct me, if I'm wrong). I've not seen a paper yet from them stating that their curative research targets tinnitus. I wish hard that...

This is so important. Understanding the pathology of tinnitus is absolutely key to treating the condition. Developing new diagnostic tools is the right way to go. It will help with tinnitus subtyping → personalized medicine → tailored treatments with the best response and highest safety margin...

Don't do that. Much safer alternative: http://hearinglosshelp.com/blog/vitamins-a-c-e-combined-with-magnesium-help-prevent-noise-induced-hearing-loss/ + NAC

Aight, time to pick a different sport..

@PeteJ If you're going to read all that nonsense around here regarding (over/under)protection no wonder you get anxious af. Been there. Yes. I wore them for about a year and they are very tight. They would cut into my skin. Jaw Hurts When I Wear Earmuffs — Help? This is how I go about hearing...

Excellent work @Ed209! I really enjoyed this episode. I found interesting that tinnitus subsided quite a lot for CJ at his age even after all those years of him being a professional musician. He protects his ears only while doing his job so no sign of phonophobia/hyperacusis. Interesting.

For anyone located in the UK or London, this could be interesting: Julian Cowan Hill's event information: "I am holding an event at 630pm on Thursday 18th July in central London called "Tinnitus to Silence." I am inviting speakers who have made a very good recovery from tinnitus to hearing...

Never knew Facebook groups had over 100,000 people in total. I usually don't like sweeping statements but in a publication 100 Fragen Zum Tinnitus (Thora, Goebel, 2005) they mention that roughly 90% of tinnitus patients are ok with the noise (or learn to live with it) and that 10% is debilitated...

According to BTA more than 1 in 8 people suffer from tinnitus. That's 13.2 %. The world population was estimated to have reached 7.7 billion people as of April 2019. That means 1,016,400,000 of people suffer from tinnitus to date. There are 27,938 registered members with only a few active users...

Can you still modulate your tinnitus with eye movement?

Well, asking for permission to go to a concert on a tinnitus forum is generally not a good idea. If it's an open space event where you can control the distance between you and the speakers + hearing protection: ON, no alcohol (the inner ear -- an organ filled with fluid -- is affected by...

The price for Parasym tVNS Device is £599. Maybe the final price for the Neuromod kit won’t be £2-3k?

Neuromod advertisement in Tinnitus Today Vol. 44, No. 1, Spring 2019, p. 16, Link.

I know how people feel here about P. Jastreboff but his TRT sound therapy could actually work in the treatment of hyperacusis. “Cochlear hyperacusis can be treated with acoustic therapies such as tinnitus retraining therapy (TRT). The Jastreboff TRT method is the treatment of choice and can...

It causes the body to crave sugar and carbs. That’s how people get overweight while on this medication. Mirtazapine/Remeron is regarded as safe even for tinnitus patients: https://www.tinnitusformula.com/library/ototoxicity-medications-that-cause-tinnitus/

I see. Then get those earplugs. I like the ones with filters from Dynamic Ear Company that also minimize the occlusion effect & 'hot ear' + irritation with their membrane tech, e.g. ProGuard Lin-Ear PR20 linear attenuation, or DEC's own brand Crescendo, filtered foam earplugs etc. So even when...

Hi @Amv You need to consult this with your doctor. I hope you got that Prednisone (with dosage regimen) from an ENT? Also, look here (consult anything you take with a doc or a pharmacist, just to play it safe)...

Hi @carlover Yeah, I sub'd to receive her email newsletter. She's a vestibular audiologist and had tinnitus for 4 years (I think) before she got rid of it. I was thinking of getting that Rock Steady program, then I saw the price tag.

Try to keep a distance between you and the speaker. Keep in mind that it's not only the loudness that matters but also frequency. The human voice frequency is natural to us. To be safe you can wear some hi-fidelity earplugs with flat attenuating filters. Check out: Voice Level at Distance and...

You tried to comfort and help the best you could while also providing some interesting materials in support of your claims. You also highlighted the importance of getting a proper medical examination to rule out possible acu trauma. As for the 'self-appointed TT experts' comment, I understand...

Hey buddy, I have good days and not so good days. As for the shockwave therapy for the knee, that might be ok. I mean it's quite far from your head and c. spine. If it feels uncomfortable then stop it. Hi Mikejl, thanks for the nice words. Yes, we gotta keep pushing forward and hope for the...

@Michael alm Well, I guess an apology is in place to you for hijacking your intro thread now. What you can see here, though, only demonstrates what I tried to warn you about when you asked what this support group is like. The real problem with this forum, in my opinion, lies within a few fear...

Firefly is the opposite of waterfall.

True. A tip of an iceberg in that you keep saving and bringing up the worst case scenarios you find online, which really isn't representative of the group, and seem to ignore to a great extend the positive good examples. True. Let me address it now. The OP suffered a head injury. Not a noise...

Thank you for making this clarification. You're welcome. I asked my doctor and she replied to me that the best you can probably do now is to make an appointment with an Otoneurologist. Try to get treated there. Not a standard ENT. With regards to the forum, you can spend some time around to...

More like only your biased and idiotic thread "Learn from others' mistakes." The only "amazing" thing is that you are still allowed to continue with your bs on this forum. You have the cheek to ask me to provide "references" for what I say here when all you have yourself is anecdotal evidence...