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Hi @Ed209, I’m a lot older than you. I also have ocular hypertension. I’ve had laser treatment twice, but it didn’t resolve the problem. Latanoprost is unlikely to cause worse eye floaters. I became l obsessed with the veins in my eyes! Sheer anxiety in my case. It’s so easy to become scared...

A round peg in a square hole gives room for manoeuvre! How could you possibly be a disappointment when you have such a great sense of humour and self-deprecation. I think you are a sweetie (pun intended) @Damocles.

Hi. I wonder what your profession is @Damocles? You write so eloquently. I’m still laying off the Werther's!

I asked if I could use Lenire if I had hearing aids and the answer was in the negative. I think they are still moving the goalposts a bit. They are very nice people but I spent a lot of money in airfare from the U.K. and hotel accommodation. There seems to be a very mixed response in outcome...

I went to Dublin last year but was refused treatment as I have high frequency hearing loss. Neuromod had not reported that this treatment would be unsuitable and only made it known post my trip. There are other treatments on the way so don’t despair.

What a sadness beyond words Dave. Nothing we can say will ease your pain but your tinnitus family are thinking of you. With love ❤️❤️

My tinnitus got worse. GP’s comment: “I wouldn’t like to have it, it drives you mad”!! The usual ‘advice’ was that you have hearing loss so get hearing aids.

Hi jcb. I’m still struggling with severe tinnitus and more hearing loss. Had frequent ear infections!!! Hope you are ok and I’m rooting for Ed. Never met him but what a genuine man x @Jcb

Hey Ed, not all of you is broken so hold onto that. It’s a huge betrayal for your Mom and probably triggered her deepest fears about something no longer being a secret. You can help by just being alongside her, hard as that may be. Sometimes it takes decades to work through trauma sadly. @Ed209

Hi Ed You are a wonderful compassionate man. To be targeted in that spiteful way is beyond belief. I work as a counselling Therapist and I’m required to keep notes about sessions. It is not necessary to write up verbatim. What is omitted is part of the confidentially contract that is agreed at...

Done.

Oh I’m so devastatingly sorry to hear this. He posted his photo outside the Heritage Centre in Dublin and was hoping that Lenire would work for him. R.I.P Allan. Thank you Markku and Hazel.

Hi Allan, yes most of them did. Still have the original T with added hissing, thank you Universe! It’s hard to describe T but the most scary noise has gone. It’s still severe quite often which is why I went to Neuromod. As reported I have hearing loss so no good for me. I know you are having a...

I think you regret your choices Allan. It’s part of the ‘if only’ way of thinking. If only you had or hadn’t made a particular decision. Somehow a belief that the outcome would have been different. Every day choice has to made and sometimes we get it right. Hugs to you. Eve @Allan1967

@Allan1967 I’m devastated for you Allan. I have the photo of you outside the Heritage Centre in my mind. Is your tinnitus worse because of Lenire or could it be the alarms in your home? Eve

I had a complete breakdown when tinnitus became catastrophic. It’s still severe and limits how I can live and it’s raging every morning. I found a wonderful Clinical Hynotherapist who helped with the depression and anxiety. Tinnitus is the nastiest, invasive condition when severe. Good luck at...

My T was evoked in 1992 by an Audiologist!!!!! maybe she introduced a too loud noise, I don’t know. I’ve had 2 more recent audiograms, one at Neuromod, with no apparent adverse effects. Pick your audiologist carefully and explain your concerns. Eve @Joshua12345

I know what catastrophic tinnitus was like for me. It’s never quite reached that level again although it’s severe very often. I really hope they can adjust Lenire and give you some much needed relief. The team that I met were united in wanting the help their patients. Good luck Eve

I’ve been following your posts Allan. I went to Neuromod also but my hearing is not good enough to try the device. I think you are planning to go back to Dublin this week? Your T seems to be super reactive and will probably calm itself down again. Try not to panic, easier said than done I know...

Your part of your Country sounds good so you never know! Eve @spinnaker

Shame about Facebook but hopefully someone closer to you will pick up on your post. You are a tinnitus veteran and you’ve managed for all these years somehow. Living alone might make your tinnitus feel even more debilitating. First line is not meds but to get some support - human contact...

@spinnaker Sadly I’m in the U.K. so a visit is not possible by me. Do you have a Facebook local tinnitus group? We all know what is like to be completely floored by severe tinnitus so I wonder if you might find a more local contact? A daily text or email from someone might just give you a...

@spinnaker What part of the world are you from? Are any Tinnitus Talk members near by who could visit you? Hideous for you to feel so trapped and alone. You have received some wonderful advice but maybe it’s difficult to take it when your personal resources are so depleted. Is there ANYONE you...

Glynis is going to contact you Candy x Eve @Candy

I went to Neuromod 3 weeks ago from the U.K. I was not suitable for the device due to hearing loss, unfortunately. The Medical Centre where Neuromod has rooms (plural) is large and with lovely grounds. Neuromod was professional, they phoned the day before my appointment and gave advice on...

@JohnAdams Not my idea at all. It was actually a tongue in cheek follow up to someone else’s post. Lol, I’m the mother of a serving police officer, just couldn’t do it John.

@ajc I took my audiogram with me to Neuromod. It was still necessary to take their in house hearing test. I was refused the device based on my hearing loss. Forging an audiogram!!!!!!!!!! Hmmmmm.

@Allan1967 Good luck Allan. Grace Kelly called me today (yes I know!) about something. They really want this device to help their patients. Lenire might be a significant positive to your life, we certainly hope so. Eve

@Allan1967 We’re all rooting for you Allan x Eve

@Allan1967 Hi there. I went to Neuromod but was refused the device - too much hearing loss. We have both met Caroline the audiologist I expect. Could you talk on the telephone with her? She might be able to reassure that continuing is the correct way forward. So much extra stress for you...

It’s documented that Neuromod will first rule out other methods of trying to reduce tinnitus. It’s most probably that Caroline was diagnosing that hearing aids hadn’t been tried by me. If you can travel and have the finances then their assessment can be a positive. You won’t know if you don’t...

Back again! I think Caroline, the Neuromod audiologist, believed that my tinnitus could be reduced by hearing aids. My daughter sat in but we are both certain that I was told I couldn’t be retested if I got hearing aids. Don’t despair people, they are a caring team and want to help you. It’s a...

@Liz Windsor Hi Liz. I’m really pleased for you that you can go ahead with Lenire. I agree with you that it was a much shorter hearing test. Your hearing is probably better than mine, I’m 70! How did that happen! I thought there were a lot of gaps too and perhaps pressed for my tinnitus noise...

@ruud1boy The first line N.H.S option is hearing aids. I have painful psoriasis in my ears! U.K. audiologists suggested trying hearing aids, ow, ouch, and this was written in my latest audiogram. Stupid me and absolutely why no option to return for a retest. Disillusioned and much poorer of...

@Jack Straw I can’t answer that question Jack, only to say that I seemed to be able to press the button more during my N.H.S. assessment. I was told the results were similar but I don’t understand the graph. I asked for a print out of their graph but they operate a paperless system. I may...

An add on. A fellow sufferer on Tinnitus Talk reports that she has approval for Lenire and wears hearing aids. My daughter apparently asked if I could be retested if I got some hearing aids but the answer was in the negative. I'm beginning to doubt everything I thought I was told!

Hi all fellow tinnitus sufferers. A quick report as I just got back to the UK. I think I was trying to avoid disappointment by thinking I wouldn’t be accepted for Lenire. I took a copy of my latest audiogram and then Caroline the audiologist gave me another hearing test. For some reason it...

I've been to Neuromod and refused the device, gutted. I have moderate high frequency hearing loss and took the audiogram with me. I had their test and have been refused on hearing loss grounds. Nowhere in the questionnaire does it ask for details of hearing loss. Feeling tired and humiliated...

@Allan1967 Thanks Allan. There seems to be a lot of doom laden posts about Lenire on here. If we have the money and are not getting into debt then why not give it a go. I’m going next week for 2.15 pm appt on 23rd. I’m under no desperate delusion that it will be a miracle cure. It’s an...

@Allan1967 Why were you wrecked for a week? Oh heck I’m going to Dublin on 23rd July. Might I see you there? Best wishes Eve

@Candy Probably Premier Inn or Travelodge by the airport.

@Candy I have ocular hypertension and laser treatment didn’t work for me although it has for others. I’ve seen the Hospital tinnitus therapist, Consultant, tried hypnotherapy, cranial therapy, homeopathy! Erm a long list so I guess I’m jaded in expectations now regarding tinnitus. Where are...

@Dizzyhead888 I’m already going on 23rd July, appointment at 2.15 pm. Was thinking about a taxi to the Centre. I think I will be refused Lenire but plan to go for assessment. I thought we were going to have a coffee or Guinness together!

@Watasha Almost immediately. I’d been on it at a low dose for tinnitus ironically!! My GP upped the dosage, went back to low dosage but severe tinnitus remained.

@Jcb Devon is lovely in spite of the local authorities determinedly and endlessly digging up roads! I haven’t been on Tinnitus Talk much at all until a friend outside the U.K. alerted that Lenire was all systems go. Hope you are well in spite of the ear din. Best wishes Eve.

@JohnAdams My tinnitus goes back a very long way John. I’d had a severe virus that left me with slight hearing loss. I went to a NHS Hospital for a hearing test WITHOUT TINNITUS. Who knows what the audiologist did but instantly I had tinnitus. I was then hospitalised and given oxygen treatment...

@Cojackb Thank you so much for your extensive report on your visit to Neuromod. There have been negative/wary opinions about the device and, on that basis, I had a sleepless night of worry. I’ve got my appointment and booked my flight. Who knows if I will fit the criteria but I suspect that...

Hi Dave, Tinnitus hasn’t been too bad, back to seeing clients etc. I was going to cancel but it’s gone berserk again the blighter. I’ve stayed off Tinnitus Talk but someone, out of the U.K., that I’m touch with sent me the Neuromod details. Will you consider it for yourself, maybe wait for...

I’m not at all sure it’s the right thing to do but a night in Dublin can’t be bad. Lovely place. @Dizzyhead888

I have my appointment for assessment on 23rd July and it was offered by email. I can't go alone so need someone to keep taking time off work to accompany me! Would do it in a day but there are no evening flights back, sugar! Need to travel from Exeter Airport. If I knew it was coming to London...

The “I know how to get out” got me Emmalee.? X @emmalee

What a wonderful post Ed. Brought tears. xx @Ed209

Hi emmalee Thanks you for your kind words. T has been so so bad it brings on black thoughts. If only time could turn back!! Hope you are doing ok? x @emmalee

@Jazzer Went before I was ready!

We do come here Dave, especially when we are having particularly bad T days. I think I’ll pass on the free bear hugs though. Life before and after severe T has no comparison does it. x

Might be blepharitis which can be a cause of painful dry eyes. Not related to tinnitus though. @Ray552

Apology accepted Bill. Thank you. @Bill Bauer

I have no wish to converse with someone who cannot understand what is written. I have no solution, merely to offer a possible explanation for why there is a sensitivity to fabric. Your response is why I have not posted for months and shall abstain again. @Bill Bauer

It is reported that a percentage of the population are psychologically highly sensitive. They will react more strongly to stimuli and this can preclude wearing certain fabrics. Whether this over sensitivity can impact on tinnitus? I have no idea. Their reaction can be to bright lights and...

Sorry to hear that you are so low Bam xx @Bam