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So sorry that your PT is still causing you so much distress. Do not give up in trying to find a cure. If possible take your scans to other specialists. If you haven't already check out Whooshers.com.There are some success stories of PT sufferers who were able to get help after years of trying...

Hi Jane.Sorry that you now have to deal with Pulsatile Tinnitus following such a serious surgery. I have PT . I get by fine but the first 2 years were an extreme struggle. I saw several specialists. Dr Shapiro was by far the best. He's a nice person.Extremely knowledgeable with PT. Will take the...

Yes you can habituate to pulsatile tinnitus. I have pulsatile tinnitus. Over 4 years now. Crazy hissing noise 24 /7 in sync with my pulse. First year was absolute hell. Things got better and better over time. Once or twice a day it may distract me but over all I'm doing great and thank God for...

Hi Ann. Just some encouragement. I have Pulsatile Tinnitus as well as tinnitus.All kinds of crazy sounds.Im just past the 4 year mark.Check some of my first couple of post and you will see how bad I was hurting early on.I literally thought my life was over. Here's the good news ; It took a good...

AGAG.Hello.i read your post as and I'm sorry your suffering so much at the present time.Quick story .3 &1/2 years ago I came down with pulsatile tinnitus.loud hissing noise in sync with my heart beep.Fast forward .I still have this crazy disruptive noise.3&1/2 years later. I know what is like...

Hi James.There is a doctor in New York city .Maksim Shapiro out of NYU.He's a specialist with Pulsatile Tinnitus .I believe ,for a fee ,he will look at your scans to see if any thing was missed.I saw this doctor in person a couple of years ago.He seemed extremely knowledgeable with PT.Also very...

Hi James.Yes I have PT.just over 3 years.Early on I had several tests/scans.MRI,MRA CT.The one I didnt have done is called a Cerebral Angiogram.One specialist recommended it and two others strongly recommended not having it done.It's invasive and there's a small risk of a stroke and some other...

Hi James.there are some other test you can have done .One of which is very invasive and has some risk of complications.Is your Pulsatile Tinnitus Objective?That is That a doctor can hear it by placing his stethoscope in the area of the ear in which you hear your PT.Also I did hear of a center in...

Awesome post Michael.perfectly said .post like that is what makes TT a great forum.just being able to support each other as best as possible.Happy Thanksgiving to you also and God bless you!

hello Worker.im so sorry you are not doing well at this time with your PT.Please do not feel alone with this maddening condition.i cant tell you how many times I said to myself :HOW CAN ANYBODY LIVE WITH THIS #&$%#*.What caused my PT?I don't know and will never know.IT may have been caused by a...

hello worker.i also have somatic PT mixed with reg.T.Mine is also loud.In the morning im talking really LOUD.mine is a hissing that changes with anything I do .and I mean ANYTHING.chewing,bending over .head, neck jaw tongue,you name it.when i exercise?louder than my mp3 player at its...

hi Stephanie.very sorry that your PT seems to be getting worse with time.I also have PT.in my research in some cases the patients who were able to quiet there PT by pressing on their jugular vein were also the lucky few who eventually found a doctor who was able to find a cure for them.usually...

hello Sergio.i also have a pulsatile tinnitus mixed in with reg.t. Ive had it for around 19 months.for me time has definitely helped.the first 4 or 5 months were absolutely horrible.but im happy to say im doing a lot better and lead a fairly good life.there are several other tests that you can...

Hi Kathi.so glad you are doing well. I love your story because its so similar to mine.im 19 months in.still pay way to much attention to my T.But thank God also never experience that feeling of absolute terror that I went through the first 4 or 5 months.lLike you I also am so happy to say that I...

hi lily.the tinnitus you have is pulsatile tinnitus.i also have PT.only someone who has tinnitus and especially pulsatile tinnitus can understand how difficult it can be to deal with.the good news is in some cases pulsatile tinnitus is curable.also the fact that you developed PT while pregnant...

hello pilot.i also have PT.mine also changes with jaw movement or head movement.but thankfully quiets down when I sleep.just wondering.was that dr Eisenman that you saw for your pulsatile tinnitus?

hi Dr Nagler.just wanted to add my 2 cents to this thread.i was lucky enough to attend one of your presentations in person.it was here in NJ last year.i just want to say you are the real deal. i left that place feeling so much better than when i got there.i know you are going thru a tough time...

hi nills.I love that story of the two wolves.i first read it on this forum several months ago posted by Charlie .a retired ENT.i had to read it a couple of times .and then it was like WOW.i get it .it has helped me so much with dealing with T but also in life in general.i realized even before I...

sorry Felix that you are going through such a tough time.i have pulsatile tinnitus as well as reg. T .Ive had it for close to a year and a half.i know what you are feeling.early on I went through the same thing.i was convinced I was going to lose everything.my family ,my house,my job and my...

Awesome Kathi.im so happy for you.great to hear that your ok

hi Kathi.I cant blame you for beingvery upset.i would be the same way. i recently read that in most cases glaucoma, if it is caught early its treatable.and that would be a worst case deal.hopefully your exam with the specialist goes well and everything is ok.best wishes Billy43

hi Jim.i agree with kevin.ive been dealing with pulsatile tinnitus as well as reg.T for about 15 months.the first 6 months were horrible.but things began getting better for me once I started to get a full nights sleep.im doing a lot better now .have some bad days but also have a lot of good...

congratulations Karen.like you Im one of the few who have Pulsatile tinnitus as well as regular tinnitus.i just want to thank you for all the supportive and knowledgeable post.when I first found this forum I was really struggling.it helped so much to talk to you.you were so supportive .just...

hey Larry.fellow jersey guy here. I know how you are feeling because I been there.i remember at the sixth month mark .things were still horrible.depression that I cant even describe.still telling my wife terrible things about what lie ahead for me.and she tried her best to understand .but no one...

hi amandine.i have pulsatile tinnitus .ive had it for over a year. the first 4 or 5 months were absolute hell.thank god im doing better now. to answer your question on Xanax. during that terrible time early on if I was extremely upset or anxious I would take a low dosage of Xanax.it helped...

hi Cathrine.sorry to hear that your PT is causing you so much distress.in regards to CT of the temporal bone.im not sure if that is the same as what you already had with your CT -native.Karen may know more on that,my PT is a pulsating hissing just like yours.best I can tell you is at the six...

hi jon j.i also have Pulsatile tinnitus.mine is also a hissing that is in sync with my heart beep.my ct of the temporal bone came out ok.i would definitely get a second and even a third opinion.it sounds like serious surgery and my guess is they wont be able to guarantee that your PT will be...

awesome Karen.getting out and staying active helps me so much with my pulsatile tinnitus.reminds me that im alive and that there are so many wonderful things in life to enjoy .thanks for the positive post.its what I like most on this forum. Billy43

Hi Martin.please try to hang in there.back in January I was into my fourth month of battling pulsatile tinnitus.every day was a living hell . I truly didn't want to live anymore .the only thing keeping me going was my wonderful wife and daughter.when I didn't think things could get any worse my...

hi Neil.please try to hang in there.i had a really bad concussion 2 months prior to my onset of pulsatile tinnitus. most doctors and specialists didn't think the pt was caused by the concussion because of the 2 months in between.but like one doctor told me theres no way to know .I know what is...

Demi.just wanted to thank you so much for starting this thread.and also want to say thank you to billie48.your posts are awesome.always so positive and provide so much hope .thanks again

hi Worker.the best thing I can tell you is in my case time has helped.at three months or so I thought my life was over.every day seemed like a living hell.i truly didn't want to live any more and had horrible thoughts.at six months things were still awful but here and there I would start to have...

Hi Ervan.awesome positive post.so glad your doing so well .thanks billy43

hi worker.welcome to the forum.alot of great people and support here.i also have pt.mine is a hissing noise that is in sync with my heart beep.mine also gets louder when walking,running or bending over.it also gets louder with jaw movement too.my pt also came out of no where.but might be related...

hi laura89.my pt is a hissing that gets louder and faster with exercise ,jaw movement body movement ect.mine is also constant and is bilateral.but at least im able to forget about it at times when im keeping busy.thank god for some reason it doesn't bother me when sleeping. thanks billy43

Hi Adamj.I also have PT.and also have all the same scans you had.mine is also subjective.i saw several specialist including Dr Shapiro.who like Rog says is excellent.only dr Shapiro recommended I go for the angiogram.i have decided against that for now. it just seems like such a longshot to me...

hey Eric.try to hang in there.your only 3 months in. I agree with Rube.just try to stay busy with things that you enjoy.believe me it aint easy .ive been there .just try to stay positive.your T could still go away as fast as it came.when I get down about my T I go to success stories on this...

I also was lucky enough to see Dr Shapiro .he was by far the best and most caring specialist I saw.he couldn't find anything unusual on my scans but at least he wanted to run some other test.but there were risk involved with such test.but I would recommend dr Shapiro to any one who has pulsatile...

Hi Martin. I've had pulsatile tinnitus for 8 months now. Mine is a hissing that is in sync with my heart beep. I also had a severe concussion 60 days prior to when my pt started. Most doctors felt the concussion and my PT weren't related due to the 60 days in between. But I will always wonder if...

hi leecey. if possible I would recommend seeing a nuerologist. I also have pulsatile tinnitus.ive had it for 8 months.ive seen several specialist and had several tests .all came back negative.sometimes youll find a nuerologist who is more interested in trying to find the cause of your PT than...

hi Ashlie.my PT is strictly sound.no pulsing but still really tough to deal with.mine is a hissing that gets louder and faster with any type of physical activity.and yes sometimes people can get PT for no reason.if the actual sound is not that bothersome for you i would try to avoid the cerebral...

hi Ashlie. ive been battling pulsatile tinnitus for 8 months.and Its been some struggle.in the first month or so i was petrified that the pt was related to something life threatening;tumor and some other scary stuff.but when all my test came back negative my emotions quickly shifted to why...

hi paul.I have pulsatile tinnitus for exactly eight months now.had mri with contrast,mra ct of brain and a ct angiogram of the neck.all came back negative.one nuerologist wanted me to go for a cerebral angiogram also.but two other doctors didn't think it was worth it due to the risks involved.so...

Hey Ryan.well you definitely have pulsatile tinnitus because the pulsing is in sync with your heartbeep.it may be that you also have regular tinnitus as well.that would explain the constant sound you hear.it is possible to have both.i think I also have a combination of both but it the PT that by...

hi ryan.ive had pulsatile tinnitus 7 months.yes mine gets louder with jaw movement ,bending over and when running.Theres a site ;Whooshers.com That has a lot of information on pulsatile tinnitus.did your ent run any tests?most of the time PT isn't serious .In my case the first doctor I saw ,an...

hi Rosie.im also battling PT.7 months now.some good days some bad.but at least im able to sleep whitch wasn't the case the first four months.theres hope in your case.objective PT is much more curable.mine is subjective so I have taken a break on any more test and just trying to deal with it one...

hi tychobrae.ive had my pt for about 7 months.mine also doesn't sound like a whoosh.mines more of a hissing which is in sync with my pulse.of course it gets faster with any exersion.like Karen ive had several test which came back negative.i agree with her that many times your better off seeing a...

hi DR Nagler.just wanted to thank you for your presentation today in nj.I thought you were great and I am so glad I went.also like that you mix in some humor to lighten things up.thanks again. billy43

wow.just read your update.it really seems Dr Shapiro is one of the few doctors who will exhaust all options in an effort to find a cure of the PT in his patients.he was the only doctor I saw who recommended a cerebral angiogram test to me.did he give you an opinion on how certain he was that...

hi Dr Nagler.I also live in the area and look forward to seeing you on the 26th. thank you .

thank you.same here.lately I have been able to sleep.i also have taken a break on seeing doctors for my pt.i did find a very good hospital here in nj where they said they would run the cerebral angiogram.but im holding off on that for a while due to the risks involved.

a little better.thank you.taking it one day at a time.how are you doing?

hi Karen.thank you for the post.

hi daver.objective pulsatile tinnitus means that it can be heard from outside your body.example;a doctor using a stethoscope can hear it usually behind one of the ears.from my research it seems to be much more curable than subjective PT which is what I have.subjective PT can only be heard...

by the way my blood press is borderline high.but all the other doctors felt is wasn't the caus.i also had a pretty bad concussion 60 days prior to my onset of PT.but again most of the doctors felt they weren't connected due to the 2 months seperaration between the concussion and the onset of PT.

yes.I had mri with contrast mra ,ct of the temporal bone and ct angiogram of the neck. all neg.dr Shapiro looked over all my scans while I was in his office.he was the only doctor who reviewed my scans.unfortunately he didn't see anything unusual.but he still suggested the cerebral angiagram to...

I have pulsatile tinnitus the past 5 months.mine also increases in loudness with any exersion and is subjective and bilateral.ive had multiple tests and seen multiple doctors with no luck so far.i have also seen dr. Shapiro and will say he was by far the best doctor out of all them.he spends...

hi Karen. I had mri.mra,ct of the brain and ct angiogram of the neck area.the pulsating noise is worst at night.and loudest at night and in the morning.also very frustrating because it gets louder with any physical activity.it just started out of the blue.had a bad concussion 2 months earlier...

hi Karen.ive had mri with contrast,

hello everyone.just wondering if anyones unfortunate enough to have both.the pt is the one that's the toughest to deal with.have had it for about 14 weeks.all test came back negative.losing hope and wonder if ill ever get use to the noise in my head.