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I have enough hearing loss I think. I had enough hearing loss for the last trial.

It's been a long time. I was pretty much tinnitus free or highly habituated at least. I got exposed to some very loud music two days ago, so back I've come. I've also been comforted that FX-322 is doing so well. I'm confused as to how they've got a fast track but haven't done 3 phase yet? Also...

I've been inactive and trying to get used to my tinnitus. Stupidly went to fireworks... Did plug my ears but my tinnitus has since spiked. Though it could be due to a peptide I’m taking... Sooo I’m back. What’s the news with Frequency Therapeutics?

I went to a party at a friends that was outdoors. There was a band and they were pretty loud, but I was wearing 32 dB NRR earplugs the entire time. I already have hearing loss, but my tinnitus feels like it’s spiked from the party and maybe have a little less hearing, but I can’t be sure. I also...

Why do you say you’d never make money off of it? If the drug is approved and the company is public wouldn’t the stock price likely go way up? I don’t know a lot about stocks. I just figure a drug the cured hearing loss would be pretty valuable.

Too fast with the clinical trials. It’ll be out in the next couple years.

Did someone say they were starting 2A in a couple of weeks?

It doesn’t need injected. It can be ingested also... it comes from the stomach. I’ve been using it as a nasal spray. I wasn’t using it to correct hearing exactly but improvement in tinnitus did happen. I also can’t be sure what that was from. I never said I was using it for hearing loss or tinnitus.

I don’t know if I’m happier about it working or that I get to know I was right and so many other skeptics were wrong?

BPC-157 is still being tested and it has not been tested on humans much as far as I know. The body building world has been using it for a while though. I haven’t experienced any side effects at all and haven’t heard of anyone else either. It is a naturally occurring compound in the human body so...

Sorry I haven’t been around but that’s awesome news your tinnitus is getting better!! I ran the BPC-157 with Lion's Mane for a month which boost NGF and saw a decrease in tinnitus and my hyperacusis has completely gone away. I’m still using the Lion's Mane. My tinnitus does spike if I’m exposed...

Niacin is vasodilator and BPC-157 builds new blood vessels. I’d be interested to see if BPC-157 would work with DSMO. Sounds like the perfect way to get BPC past the eardrum. I used BPC along with Lion's Mane that helps with nerve regeneration and saw a change in my tinnitus.

Non-disclosure agreement and likely will get them kicked out of the next study.

No idea, I watched a clip on YouTube.

I’m starting to think FX-322 might be BPC-157 lol but not really.

Well Frequency Therapeutics was on ABC News two days ago. Gotta be a good sign!!

Why are you here?

He’s like 20 years old, he’s got time. It’s like you just pop up from time to time and spread your negativity.

Experimenting with a healing peptide called bpc-157 and my sound sensitivity is gone. I use it intranasally but it does work systemically, figured nose was the best route. I also started taking Lion's Mane around the same time, which could be enhancing the BPC-156. Tinnitus is also a much much...

Do you just have hyperacusis or do you also have tinnitus but with no measured hearing loss? I have a friend with just hyperacusis that causes her pain. She doesn’t really know what’s wrong with her and I think maybe if you have something similar you could shed some light on the possible cause.

Frequency Therapeutics' drug might help with those synapses. I saw that somewhere but don’t ask me to find it. You might have even posted it for all I know. Decibel Therapeutics are going the gene therapy route, right? I saw another company on YouTube is also doing the same thing but I believe...

No man that’s not what they’re doing at all. They used the drug to deafen the animal subjects. They had to have hearing loss in order to see if they had improvement. They did not do this to humans... we don’t even have the results from the last clinical trial. Trust me when I say they will not...

Dude what are you talking about? They aren’t destroying your remaining hair cells. The drug doesn’t kill your remaining hearing. I think you’re thinking of another drug.

I wish I knew. The investigators for the last trial might not be the same ones.

I think we already have a cure with Frequency Therapeutics, just have to wait 3 years for it to come out. MuteButton is also coming out in the coming months, which isn’t a hearing loss cure but device to train the brain to stop making the sound. I think MuteButton is a great start.

This is the second trial but nothing yet.

The “experts” say we get hyperacusis because our brains are amplifying sound to try to make up for the frequency we can no longer hear. Correct the hearing; correct the sound amplification. I’m just speculating but I’m sure other smarter people have done the same.

Well I spoke to the investigators and they are testing for improvements. They said if they see improvement, some of the participants could be asked to come back for another dose. They are 100% testing for efficiency. Stop saying they aren’t. If you’re new here, be new here, and don’t pretend...

Reading through that exclusion criteria made me think to ask the question, which I think has already been mentioned, but are we thinking this will help with vestibular ear issues?

The investigators literally said they are testing to see if there is improvement in hearing. This is an efficacy study disguised as a safety study. They are mainly testing for efficacy from what I gathered. They are giving you the drug, keeping you overnight, testing hearing, bringing you back...

Does anyone have any idea when the next study will be or how to find out when it is starting?

I’d like to get my life back at some point. Be nice to know when Frequency Therapeutics is holding the next trial. Sound causes me no pain just the distortion and heightened sensitivity. The way I describe it to people is kind of like a bad hangover with sensitivity to sound aspect.

This is what I feel on an everyday basis along with tinnitus and mild hearing loss in the affected ear. “In both cochlear and vestibular hyperacusis, headache is common. In addition, many subjects with hyperacusis feel distinct cognitive changes during these exposures and will describe...

I didn’t screen with anyone else. I think they only screened one person a day. I thought about waiting outside in the bushes for the next person to come along but didn’t.

Maybe if you got on Clomid or something to boost your sex hormones you’d get boners again? I don’t think FX-322 is going to harm you in anyway though. It’s working with the body, not against it like 99% of drugs do. Treatments come with side effects; cures, cure.

I wonder if it is open to the public? I live in the area.

These threads have been quiet the last couple weeks. We’re all just waiting to see what the result of the clinical trial will be. lol

It might man.

No neither... left ear tinnitus lol.

Lol no. The ringing in my left ear.

It has since stopped since I wrote this. The tinnitus in my right is still there.

Jeezus another naysayer. My hopes are up because it’s been tested on the human ear outside of the body, mice, and a primate. I’m a primate.

Yeah I agree. If they plan another trial and tells us that means it worked imo.

Bad news... I don’t think we are going to get an answer to whether or not they improved in hearing. https://clinicaltrials.gov/ct2/show/NCT03616223?cond=Hearing+Loss,+Sensorineural&draw=2&rank=3 Doesn’t say they are measuring hearing improvement even though they are. Maybe they will say in the...

They are going to provide the information and outcome of the trial lol. This information is very detailed. They provide answers to every single thing they measured in detail. I honestly can’t believe the negativity some of you have but I guess tinnitus will do that to someone. I think you’re...

Maybe longer exposure to the device was needed? People said they felt it fading more and more as time went on.

How much is MuteButton going to cost? Anybody have any idea?

Wow really good thinking which makes me think maybe they found success. Oddly I think I have some tinnitus in my left ear but I haven't been exposed to any sound recently. I have it in my right but now I’m feeling it in the left but I really can’t be sure. No hearing loss over there but who knows.

They changed it to January.

Well if it doesn’t cure tinnitus, MuteButton likely will, but I’m convinced this is going to cure tinnitus. Maybe not right away because the brain needs to adjust. They told me if my hearing got better so would tinnitus. Hearing aids are also really helpful for tinnitus.

Generally speaking low frequency hearing loss is treatable and a lot of the time curable. It’s the higher frequencies that are normally affected by noise trauma and causes nerve damage. This is for people with high frequency hearing loss.

Yeah just one ear but most people only get tinnitus in one ear.

Yeah they are no longer tirelessly searching for a cure. They are no longer consumed. They are free.

25 minute video I just posted explains it perfectly. Worked on mice, macaques (primate), and human cochlear outside of the body.

If you haven’t seen this video watch it. I think a lot of keywords are going to be difficult for a lot of people to understand. Maybe we should make a glossary or something so they can better understand the video.

Man the mice in both groups were made deaf and the mice treated responded to the sound and the ones not treated did not. That’s how you know it’s not natural recovery. I think what would be helpful is if some of the people who don’t believe understood the science behind it better. They even used...

Yeah flying small aircraft damaged my hearing. You’d never hear a word your copilot said if you didn’t have a mic and this goes on for hours. Sounds like your dad likely did the most damage to his hearing in the navy if he was in jets. They start those things up with your face next to them. I...

Dude, mammals don’t restore hearing, we just don’t. It was pretty much enough for me to know it restored hearing in mice. Genetically similar and mammal. Now not all drugs work on humans that work on mice but this isn’t a drug. It worked on human hair cells and it’s going to work on live humans.

i hate when people speak in scratchy loud or whiny voices. It sounds so loud and stressful. It’s so much worse than tinnitus. Tinnitus barely bothers me anymore.

Next month we will know.