Search results for query: *

My tinnitus started out so faint I could only hear it in absolute silence, and then only barely. It's gotten slowly but consistently worse since onset and today it's so loud I hear it over traffic noise. Years ago I thought if I never looked at the tinnitus forum and never thought of the word...

We do have thousands of useless cures like that. How do you think the vitamin and herb companies stay in business? I have tinnitus as part of visual snow syndrome. On the visual snow forums posts like this are also a recurring theme. The posts with "cure" in the title but in the actual post...

Notice how in most of these cure posts the person doesn't claim to be really cured but only some degree better, which of course makes it harder to take seriously due to things like the placebo effect.

My tinnitus has gotten very slowly but consistently worse since onset. At first I could only hear it in silence, now I can hear it over traffic noises. I have tinnitus as part of a rare neurological disease called "visual snow syndrome." In addition to tinnitus, I also have visual snow, which...

My tinnitus has gotten gradually worse since onset and is still getting worse. I have tinnitus as part of a neurological disease called "visual snow syndrome", along with the tinnitus I also have visual snow which is basically optical tinnitus, seeing a bunch of flicking noise in your visual...

I often deal with my anxiety by eating. I often buy and eat an entire tub of frozen yogurt because deep down inside I'm scared of what's happening to me with both my worsening tinnitus and visual problems. I never used to binge on food so excessively before I got my health problems and I know...

I have the same thing, a tone in both ears, a hiss in both ears... It's kind of good in a way because I can never pay attention to all of them at once. When I do notice my tinnitus I can usually just make myself notice the hiss which is much more tolerable than the tone.

Well that's where habituation comes in. You say it's hard to talk to people while hearing tinnitus, but remember high school and the cafeteria? It was really loud in there, yet, no one cared and everyone talked to each other fine, because they didn't see the noise as a threat.

If the volume of your tinnitus varies perhaps this is a good sign, since maybe yours will get quieter in the future. Give it some time and see what happens, meanwhile try not to let it disrupt your life too much.

Yes, I have a hiss in both ears as well as a tone in both ears. Larry has a good idea, think of it as a shower, or a waterfall, a nice relaxing waterfall. I find also that the hiss helps distract me from the tone. As it's kind of hard for my attention to focus on both noises at once.

Here some encouraging thoughts I often think to myself. First we know there are people with very loud tinnitus who have habituated so we know it's possible. Second, I think all of us forget about our tinnitus at times during the day. If you can do an activity for an hour and not think about...

I use earplugs to sleep also and have since I was around 15 years old, I'm 31 now. My tinnitus is caused by a neurological disease that also affects my vision so I know wearing earplugs is not the cause of my tinnitus, by the way. I still wear earplugs to sleep even though they do make the...

I also have progressive tinnitus. The sleep thing, I go through bouts where it bothers me and I don't get much sleep, but then all it takes is one good nights sleep to realize "hey this can't really prevent me from sleeping". Another thing I do is, as I'm laying in bed, I think of some cryptic...

Or it's like if someone who got their toe cut off calls themselves an amputee. It seems like everyone who has ever at one time heard ringing in their ears goes around claiming to have tinnitus. Even if it's just their ear ringing for 30 seconds once and going away, or just some very faint noise...

When I told my cousin I had tinnitus, he replied "I have it too", I then played him a tinnitus simulator on my computer of around the same pitch and volume of my tinnitus. When the sound started playing he got an annoyed look on his face then quickly reached out and unplugged the speakers. "Wow...

"50 million Americans have chronic tinnitus defined as not having tinnitus. Now that the misleading headline has gotten you to read this, it can be said that if you, like most people, associate the word chronic with something problematic and lasting 24/7, then only 100,000 -200,000 Americans...

Perhaps doctors, knowing they can offer no real treatment or cure whatsoever, say things like "the tinnitus is just your anxiety" because at least that sounds better than "Sorry, I can't help you. Next patient."

Carol I was referring to the original post, not your reply to it which I agree with.

There is a slight amount of offensiveness to this post, especially because some members of this forum have tinnitus extremely bad. But I think, if someone can, they should perhaps try to think tinnitus if not as a "friend", then not as an enemy either. The alternative is just to become...

You have to be relentlessly optimistic. As people with tinnitus, especially those of us who have tinnitus as only one symptom of a disease, there is always a reason right there to be depressed. It's very easy to to start going down that path into depression. So you just have to immediately, any...

It would be funny if there weren't so many naive people who actually believe mystical new-age things like this, allowing a whole industry of scammers like Thomas Coleman to target sick people.

There's something called Mal de debarquement syndrome that sounds similar to what you describe. It's where people go on a boat trip, and after coming back to land they still feel a rocking sensation like they're on the boat, and it never goes away. There is thought to be a connection with that...

Maybe the anticipation and uncertainty of knowing it would be your first night trying to sleep without pills also contributed to your restlessness.

Glad to hear that Sue. Hey everyone, let's get some more *hugs* going. Not just on this thread, but on all the threads.

It seems like my symptoms get worse before a storm. I have not only tinnitus but visual problems as well thought to be related to migraine somehow. If I'm not mistaken, there is an established connection between migraine and weather changes as well as migraine and tinnitus.

No. Do people who live next to the ocean still hear waves when they're away from it? As tinnitus sufferers we're constantly told about habituation and all that, but I don't think it's this powerful. Habituation is just a fancy way of saying "ignore it", I don't believe it's some kind of powerful...

It depends on what's causing your tinnitus. I have tinnitus as part of a neurological disease, visual snow syndrome, and my tinnitus along with all my other symptoms has gotten worse. At the beginning I could only hear tinnitus in complete silence when I was lying in my bed at night. Now I hear...

One of the theories about visual snow syndrome is that it's an autoimmune disease. This would explain the rarity (as the vast majority of auto-immune diseases are rare) as well as the fact that a lot of people with visual snow syndrome have known autoimmune issues, and having one autoimmune...

Yes it has a name, and it's been on the news too. Pretty much everyone who has visual snow bad enough to be bothersome also has tinnitus. Tinnitus was actually my first symptom, it started out so faint I could only hear it in complete silence and wondered if I was imagining it. Then the snow...

You're welcome for the hug. I know that we can learn to ignore our tinnitus, stay strong.

I got tinnitus as part of Visual Snow Syndrome, a disease characterized by the symptom cluster of visual snow, tinnitus, palinopsia (increased afterimages), halos around lights, increased blue field entoptic phenomenon, and more. Here's a video simulation showing how I see (and hear) The...

Keep us updated and I hope you get better. I think it's very interesting that many people in the visual snow, tinnitus, and floater forums have symptom constellations that are similar but it's just different which symptom bothers them the most. This is why I believe there's something here worth...

My tinnitus/crunchy ears/visual problems also began with a headache. It's perhaps migraine related. Isn't there a relation between migraine and just plain tinnitus too?

Visual Snow Syndrome doesn't show up on CT or MRI scans. It does show up on fMRI scans as problems with how the brain processes contrast, though most neurologists aren't equipped to do fMRIs. There was some research done recently by Dr.Schankin at UCSF, the results are currently being peer...

That sounds like increased visibility of Blue Field Entoptic Phenomenon (aka Scheerer's). This is another related symptom of visual snow. If so, what you're seeing is your white blood cells as they move through the capillaries in front of your retina. Technically you're not seeing them, but...

Do the floaters you have look like little circles within circles?

I have this problem too, the crunching, crackling noise whenever I swallow of even move the muscle in the back of my throat. Presumably it is, as you wrote, something to do with the eustachian tube. I have tinnitus as part of a disease called Visual Snow Syndrome. Most people with this have...

Tinnitus Miracle is a multi-million dollar scam that uses internet marketing to reel in victims.

Maybe at the time you learned about it you already subconsciously knew you had it and this is why you were researching it. When my tinnitus first started it was extremely faint so that I could only hear it at night when it was silent, and at that time I didn't know if I was imagining it. Since...

I would prefer to give people a little more credit, if someone says their tinnitus has increased I assume it has instead of assuming that the person is just imagining it.

I recall also how up until very recently (into the 1990s) doctors thought ulcers were caused by "stress and spicy food" (sound familiar?) then they found out ulcers were caused by the bacteria H.Pylori, and instead of taking ulcer drugs for the rest of their lives people just needed a one time...

I agree completely. Why do some doctors do this? Perhaps this quote from From “Bedside Manners Skills for the Clinician” partly explains it - “…when you are unable to provide a tangible treatment or therapeutic option, it is often best to give the patient some hope that their condition will...

Great post. I've had tinnitus since 2009 and after reading this I wanted to register so I could tell you that. What you've written here is pure truth and it's exactly how I feel. I have tinnitus as part of a rare neurological syndrome called "visual snow syndrome" which is believed to be a...