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No idea. High functioning aspie here with a PhD (philosophy), and doing a postdoc. I don't think of myself as more intelligent than most - I simply have an ability in a fairly specific area. My emotional intelligence could certainly use some work. I'm no longer significantly bothered by my...

I'd say it depends upon the individual. I have 24/7 low frequency T that I hear over everything, and I do mean everything. Last week, I heard it clearly over an aeroplane engine for three hours. Right now I'm watching the t.v and it's blaring away. Would I say this is severe? No. It's just ...

I'm 37 and have had T, plus musical hallucinations, for at least 32 years that I can recall. Recently, low pitched sounds have joined the 24/7 orchestra. But mine is clearly a manifestation of sensorineural deafness: it has (recent changes excepted) always been my normal.

By that scale, mine is a 9-10. I have 24/7 low frequency sounds, including musical hallucinations. By my own scale, I'd rate it a 2-3. I have mostly stopped caring: it is just another manifestation of my deafness and can do me no harm. I confess I'm always perplexed by people massively stressed...

Hi Tracy, If you don't fear most side-effects from anti-depressants, then why fear an exacerbation of your T? It's most unlikely to occur. I was in your position from Feb-May: in fact, I spent nearly three months in bed terrified to move, interrupted my post-doc, and had my partner watching me...

This is me. I am deaf and have always had high-pitched ringing (don't care about it - it's my silence). Then, in Feb, 24/7 low frequency T started: it was horrendous, overpowering my entire head, multiple sounds (banging, static, electrical zapping, whooshing, etc) along with my cochlear...

The visual disorder is called Charles Bonnet Syndrome: at it's worst, people hallucinate entire scenes that take over their visual field. I imagine if this was every day, you'd quickly become extremely depressed. My deafness has never bothered me. I know it sounds odd, but I've never regarded...

I too am struggling with this. Some tones seem to occur only when I think about them, so I am hopeful that this may start extending to more of them. However, it's like saying 'Don't think of an orange' (I bet you're now thinking about one). If I wake up and it's quiet I think "great, no T" and...

Yup. Though I was relieved that there is no serious cause, I'm annoyed that I can't do much about it. Turns out I have a "high jugular bulb" and something about the sigmoid sinus vein protruding into the mastoid. My mastoid bone is also opacified (cloudy) but not from infection - seems to be a...

Well let's see. Prior to the onset of my 24/7 unmaskable T, I had finished my PhD with excellent results, had started a postdoc after lecturing, and am fortunate enough to be financially comfortable: we have a nice house, go on regular holidays, can more or less afford to do what we want (within...

@Bam (Knoll? ;-]), The BTA are indeed strange. There was a representative at my local tinnitus support group, and she started going on about how we can all mask it by hearing aids, listening to nature sounds, and being mindful etc. Then about 4-5 of us said that ours is unmaskable and 24/7. She...

@Bam, Yup, have Valium as needed too! Though my GP is reluctant to prescribe it unless I'm having a major mental health episode. I'm on Sertraline for now which seems to be doing something in that my anxiety levels are coming down: I don't fear the T anymore, it's more how are we supposed to...

@Bam PTSD is right. I feel like my life is divided into 'before' and 'after' this insanity began. Life is presently lived at a very slow pace as I simply do not have the mental resources for anything else. It is an achievement to get out of bed knowing that you have to face the day with a...

@Bam, Like you, I had a trip to A & E shortly after onset. I was shaking and suicidal. I thought my cochlear implant might have been infected as I couldn't believe that "normal" T could manifest itself as a noise that overpowers the entire head with banging sounds, sound distortion, and...

This is why I'm somewhat exasperated by my audiologist suggesting, despite my being profoundly deaf enough to have a cochlear implant, that my severe unmaskable 24/7 is largely psychological. I also went to a local tinnitus support group and a representative from the British Tinnitus Association...

Dogs are very therapeutic! At my worst, we had a dog walker come as I could barely move. Now we're back out twice a day. I'm not 100% yet, but compared to where I was, it's a massive turnaround. I suppose my big fear is that it will come back, but realistically, there is no reason why it...

Hi All, I thought about posting this in Success Stories, but I'm not quite there yet. However, I still thought it worthwhile to share that, as of now, I am someone for whom extreme 24/7 tinnitus has significantly abated, and moreover, I am someone in whom it shouldn't as I'm deaf. There is...

Hi JKPH, Well, things have moved on a little for me and, fortunately, the worst of the sounds seem to have stopped! The zapping, banging etc started fading over a few weeks and WENT last week. I now have a sort of low drone/sort of like a motorbike revving up (?) - hard to describe. At any...

Hello! Waiting for my CT scan, and then we'll go from there. My implant centre are also getting a clinical expert from Cochlear to come to my next programming appointment as there is a lot they can do which the audiologist might not necessarily know about. I'd be thrilled with suppression...

More alleged "scar tissue" - even I can see the anomaly. Makes me feel like I'm going insane! Cannot see how the CT won't show this up too.

I thought I'd update this. My implant centre have dismissed my MRI report as showing "scar tissue." I would point out that the "scar tissue" is on both sides (albeit to a less significant degree on the left), and that the sounds I am hearing, along with the physical sensations, coincide with...

I empathise with not knowing what you're going to wake up with: sometimes I fall asleep terrified I'll wake up to the electrical storm sounds (worst one for me). Generally, whatever I wake up with is what I'll get for the day with only minor variations. It's been the most debilitating experience...

Oh, and when I went to get my implant checked out by the audiologist this week, she said: "Things will sound loud and distorted if you don't use it enough. You may have brought this on due to stress" !!!!!! I was using it most waking hours until it suddenly went mental: it's been brilliant for...

It *may* not be a tumour: it may be chronic mastoiditis. I am just SO angry. I'm sure many here can empathize at feeling frustrated with ENT's. You go thinking something will happen, and all that happened to me was a cursory look at my eardrums - a little dull they said, but not to worry, off...

Hi All, I have posted a few times since suddenly developing 24/7 low frequency T nearly three months ago, and now I have found the cause. I have had: - Whooshing whenever I yawn/turn over in bed. - Banging-thumping-rumbling sounds all over my head. - Electronic...

Sure. My hearing level and ability to discriminate sounds when its on is comparable to, say, an elderly person who doesn't quite catch everything on the t.v or the entire conversation. Which is why I'm particularly upset by whatever's happening to me now as, on some days, it's just unusable...

For me, it's very much like natural hearing (what I can remember of it!). I have a profound loss in my other ear so only really hear very loud low frequency sounds. I use a hearing aid, but that's more to provide a sense of balance and to help me better localise where sounds are coming from.

Hi Mike, Sorry this reply is a bit late. I have one CI due to progressive sensorineural deafness. I had it at age 33 (36 now) and heard everything within 10 seconds of being activated. I gather this is NOT the norm, and I was told to expect beeps and robotic voices, possibly for weeks/months...

Yes. Off is definitely the right word: it's hard to articulate. In my case, I am having episodes where words start to break up, so instead of 'hello', I'll get 'hellllllllllo'. But other sounds are normal: it's just voices and the t.v. I'm terrified my implant is malfunctioning as, for me, it's...

Thanks Glynis. I too was wondering about a low salt diet: it's shocking what's in food when you're not paying attention. The ENT did suggest that the various sound effects could be related to some sort of fluid imbalance in the inner ear and said it wasn't full-blown Meniere's but might well be...

Apparently alone on a T forum ...

Hi All, I posted a month or so ago as I had had a sudden onset of various low frequency sounds in late Feb. I no longer have: - Rumbling sounds - Electrical zapping-buzzing - Vibrating sensations - Musical tones - Hymns/extracts from songs But I *am* left with a thumping-banging-static type...

A lot of these options are interlinked. For me, it's anxiety/panic which naturally affects most areas of my life. What I find especially disturbing is the sheer relentless of it: mine is 24/7 and it's terrifying to think you may not know silence again in your life. Thankfully, some of the low...

I use a cochlear implant and had, up until a few weeks ago, been experiencing sound distortion for a month: words were sort of breaking up, so instead, of say, hearing "hello" I'd get "he-l-l-l-l-l-l-o". Now, the most obvious thought is that my implant was malfunctioning, except tests revealed...

Yes. I am going through this now. I am congenitally deaf and well-used to the high-pitched ringing: it is my silence and I am perfectly content with it (I know it drives other people insane, hence this forum!). I also have a cochlear implant which I do really well with. Seven weeks ago...

The type which bothers me, and which set in 7 weeks ago is: - Low rumbling all over my head - so low it almost feels like a vibration. - Bangs, booms, and thumping sounds all over my head. Like thumping bass sounds from a car, but a little lower. - Thumping against my right eardrum on and off...

UK member here with lifelong (high pitched T) but a sudden onsent of low T (rumbling, vibrating, all sorts of buzzing and droning sounds over my head) which began late Feb. The story so far is this: - First, I went to A & E when it got so bad sounds were echoing around my head and things were...

Hi all, Got an appt tomorrow to reprogrammed my implant, and then I'll be seeing the consultant in a few weeks as they might want to do an MRI. I'm not sure that reprogramming will fix it as the booming etc is there without it, but it may help with the worst of the effects. The centre did say...

I can't do much until Tues when the lady who deals with my case is back at the implant centre (I'm not regarded as an emergency as I have e.g. no pain, dizziness etc). I think I'll be called in to possible re-map the implant and to see if something is going on internally - I just wish I could...

Us there a specific type of steroid to ask for? I've only had prednisolone before for an asthma flare up. Or is there another sort to ask for?

Hi Singer, So you too had booms in your head and distortion of sounds? I felt that the ENT was slightly dismissive and just wanted the implant centre to deal with it (waiting to see them), but just because I have a CI doesn't mean I can't get unrelated ear things - I'm actually more susceptible...

And can normal tinnitus, like a roar, become even louder by simply moving? Have never experienced anything like it and half expecting to drop down dead from some brain event!

First one was amoxicillin after left eardrum looked about to burst. Second one is clarithmyocin which is making me throw up. The noises started before the antbis, though I'm sure the whooshing has gone more mental since taking them. I'm finding it hard to believe that 24/7 booming can be...

Really? Wouldn't you get pressure/pain with sinus issues? I guess if there is fluid the echoing/distorted sounds might be a result of bouncing off it. I will try. Nothing to lose at this point.

Hi All, There is a bit of a puzzle going on, and I wondered if anyone has any suggestions. I have a cochlear implant, and over three weeks this has happened: - Booming-thumping-all kinds of mad low frequency tones in head. I swear I was hearing hymns at one point. - Sounds are echoing when I...

Hi Glynis, Thanks for taking the time to reply. Stress can really cause huge thumping sounds? I get scared when they seem to be in my head, but I try to remember that I don't process sound like hearing people so it may not always be in my ear. I don't have vertigo with this tinnitus attack...

Hi All, I posted a few days ago and now I'm wondering about Meniere's. I have: - Occasional episodes of vertigo. They do not start gradually. For example, the last time, I simply turned over in bed and BOOM, I was incapacitated for about 3 days. Things actually seemed to move and I fell over...

Hi All, U.K member here. Caveat: I have a cochlear implant so am well used to hearing all manner of weird things inside my head, just not what has been plaguing me for the past week! I am slowly being driven insane by what seems to be an extremely low humming/buzzing/thumping noise (it's not...