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You’re welcome Margaret! Yes there are MANY people that live successfully with this! I have good and bad days so I’m hopeful that it’s gonna continue to get better! I too went to a neuromuscular dentist and was told by an ENT I have TMJ so I now I have a mouth guard. I don’t think that’s what...

No he cannot hear it. I went to an ENT but he specializes in the ear. I went to two other ENTs who had no clue and sent me on my way...there’s a clinic in San Francisco that specializes in PT and a guy Dr. Shapiro also in NYC that you can send your scans too for a fee and they will take a look...

@Tinniger I still have the tinnitus. I haven’t done any surgery or anything like that yet. I’m taking diuretics which my doctor told me half to 2/3 of people have success with the diuretics. Success meaning it resolves itself or it’s not as loud and intrusive. if that doesn’t work then I will...

Hey all! Just a suggestion here to make sure if you have PT you need to be getting an MRI/MRA or a CT scan and get to a good ENT that specializes in the ear or a neurosurgeon even. They discovered I have possible mild dehiscence of my right sigmoid plate which is probably causing this. I’ve...

@DougDude what are they doing about your fistula? Will it stop this nonsense? Thanks

Thank you @Mellow7 so much for this... all of you on here are so amazing. ❤️

Thank you all for your kind words and encouragement. I am intending to return the favor sooner than later on here. @emmalee @Jason37 @MeBeSurfer @fishbone Hugs to you all.

I didn’t want to post this. But I’m struggling so bad today. This has been going on for 8 weeks. I thought it was longer. I feel positive and upbeat for a couple days then today I’m back to feeling hopeless. I can’t stand this. I’m not myself anymore. I hate that I’m negative. This is SO not...

I haven’t had one of those yet no. Thank you @DougDude

How are those meds? Are you sleeping?

I haven’t seen a neurologist yet. I see him in July. I’ve seen 3 ENTs 3 audiologists and one neurosurgeon and one primary care doctor. I don’t think that is so low that we would need meds for our bp...if that is what you’re referring to? Did you get any meds for this? The low bp? I did read...

My blood pressure is super low. 107/71. Stress ... YES! Work and this is making me a crazy person. Do you think stress can cause this head pressure? I’m visiting a TMJ dentist Friday

Has anyone else had tremendous pressure in their head and ears with pulsatile tinnitus? I’ve had every test known to man and apparently I’m fine except for some minor hearing loss in higher frequencies-yet still “normal”. I also have some ear popping and crackling. My jaw crackles a bit too...

Oh wow! I’m new here. I’m sorry to hear about this accident of yours. Wishing you a quick recovery ❤️❤️ And a fun time at your sons wedding!

Hello, I’m new to this forum and grateful to have found this as people have been so gracious and kind. I am trying to stay away from any negativity for obvious reasons. I have tinnitus in my right ear. It’s pulsatile. I’m not sure if it’s my mild (still in the normal range) hearing loss of...

Thanks so much for this info. I have not seen this chart. I will have a look. My T is pulsatile most of the time but I’ve had MRI and MRA and neurosurgeon look at my scans...I do have slight (yet still in the normal adult range) hearing loss in the higher frequencies which seems to be common...

Good morning, I’m new to this experience. 7 weeks in today of it being ON all the time. Initially it was at night. I think mine is caused by stress. As I had an unreal amount of it when this began. I’ve read so many things about sleep. Like everyone else I’m scared to take anything that is...

Hi Caff... I see it’s been a while since you’ve been on here which I’m assuming is a GREAT thing for you! I’m new to this. 7 weeks today if it being constant. It started at night only. Your story was uplifting for a newbie to this as I have and am experiencing all these same emotions thoughts...