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@*TG, you seem very knowledgeable and well-informed. I am jumping in here to ask your opinion about the Berard AIT approach. I am considering giving it a try, but I have not found anyone who knows anything about it.

What does that mean? I am not sure what that is referring to. The website about AIT says it is a treatment for tinnitus. The practitioner I met with for an initial consultation said she had tinnitus, and this treatment got rid of it. Sometimes it comes back, and she does the listening sessions...

Has anyone heard of this or actually tried it? An acquaintance told me she had good results with lowering the volume of her tinnitus and even experienced some quiet days using this treatment system. I found a practitioner who is almost local and spoke with her about trying this approach to...

Apparently, they are now planning to research drugs that might help with tinnitus based on what they have been learning.

Has anyone tried NeuroQuiet, the ear drops that are being advertised frequently? It looks like a scam to me, but like all of you, I’m willing to try just about anything to quiet my screaming head.

@Ernesto, how’s it going? Any news? We’re all holding our breath and crossing our fingers for you! 😁 We’re eager for any updates, no matter how small.

Hi from NC! My response to your TRT question is just my opinion: it doesn’t do anything at all to your tinnitus—you just “learn” not to listen to it. For 14 years, I’ve been searching for something to make the noise go away. Lately, I’ve been trying self-hypnosis with a glimmer of success. My...

I’ve been researching the Lion’s Mane/Niacin idea and trying to work up the courage to try it. I’ve already gotten some of both, but I’m missing the other ingredient and have no way to get it. I’m always terrified of experiencing a big spike that might never go away. Has anyone tried this and...

Hi @Arnaudswiss when will you be starting your Neurofeedback treatments? I hope so much for you to find success with this. I applaud anyone who courageously steps forward to try whatever seems hopeful to defeat this beast that torments us. Please keep us posted about your experience. You know...

@ErnieMassri, I am really hoping you find some relief! I agree it would be easier to cope with tinnitus if the volume could be dialed down. I have had mine for 12 years, and it is extremely shrill and loud. It also seems to get louder as the years go by, with lots of spikes. Fingers crossed for...

@ErnieMassri, hey there! I'm so excited to see someone posting who is currently doing this! I've been considering it for a long time but haven't come across many people with tinnitus who reported good results. My psychologist has been really encouraging me to try it. He believes that because I...

I’m sorry to learn this was not successful for you. Since we all have different causes for our tinnitus there’s never going to be one cure that helps everybody.

Yes that’s true it is a synthetic version of a natural hormone. It’s given intravenously to induce and control labor, usually the IV remains in place throughout the entire labor until close to delivery. In women whose labor is slowing down, the Pitocin is increased and speeds it up, for example...

I know everyone is eager for an answer but people, if this could be purchased from Walmart and worked, then NYU would not have spent $$$$ on clinical trials for it. It should not be so difficult to understand that a patent for a new drug (that is efficacious) is not going to be the same thing...

Pitocin is a drug used to induce labor. Oxytocin is a hormone that helps a new mother’s milk flow. Two different things altogether.

@hears4fears, I’m still taking the same regimen that I outlined a few posts above, it’s working great for me. I only take the Taurine if I’ve eaten something that’s on my NO list and am having a spike, and at that point I’ll take 1000 mg of Taurine and it often brings down the spike some. At...

Yes indeed and there are at least 100 products that contain glutamate in high enough doses to trigger a spike. Peas, grapes, beans, nuts, citric acid, pectin, tomatoes, corn, corn syrup, I could go on and on. I’ve also learned that when my blood sugar gets low that can trigger a spike. So I...

I had the same reaction. Screaming head for 24 hours. I was hoping the Curcumin (Turmeric) would be a good substitute for NSAIDs for my knee joint pain since of course NSAIDs make tinnitus so much worse. Obviously not going to work for me!

@ploughna, are you still doing the Oxytocin Rx? Would love to hear an update from you. My tinnitus is like yours, very unpredictable. Mine is caused by dysfunctional Glutamate neurotransmitter re-uptake system so the volume goes up unbearably sometimes depending on what I’ve eaten... something...

To anyone who is thinking about giving this a try, I want to remind you that it will not work if you are ALSO not consuming any foods or beverages that contain Glutamate or Aspartate. No caffeine, no dairy, no soy, no tomatoes, no grapes. Yes there’s Glutamate in almost all foods but you have...

@Uklawyer, yes that’s correct.

My results stay positive except when I veer off into dangerous territory by consuming foods that contain a lot of Glutamine or Aspartate. That includes dairy, MSG, Aspartame, and any of the 100 or so names that MSG uses as an alias. I take 2400 mg NAC divided in 4 doses through the day, and 600...

@Uklawyer, today I don’t even hear it at all, actually!

Btw don’t confuse a holistic doctor with a naturopath. A holistic doctor is an MD who looks more for the cause of the problem, still uses medical means, but doesn’t just prescribe meds to fix the problem. A naturopath is likely to offer herbs and homeopathy (which is mostly distilled water) and...

@Uklawyer, yes I am still taking the amino acids and being very careful to maintain a low free glutamate diet and my tinnitus is only loud when I first wake up in the morning, since all the stuff is no longer in my system. As soon as I get up I take my “cocktail” and within 30-45 minutes it’s...

Did you try it? What results did you get?

@ploughna, being even a little improved sounds wonderful to me! Do you have any idea when the report from the study is going to be made available to the general public? Will you be getting a copy of the report since you participated in the trial? I’d really like to keep informed about this!

@ploughna, are you still participating in the Oxytocin study? I’m feverishly awaiting any news from that study that you can share!

They are able to change their tinnitus sound by applying pressure to their heads or clenching their jaws. This is disconcerting to me as I certainly can’t do that! So now I’m wondering if this is going to be helpful! Here’s the link to that article: This Small Device Could Silence the...

In Dr. Shore's clinical trials there was great success. Some people actually had their tinnitus go away completely and the others had much quieter tinnitus. They found that the effect was not permanent so I think there's going to be a small device you use at home maybe every day or maybe once a...

I’ve read in more than one place that the volunteers were all chosen because they have the ability to alter the sound of their tinnitus by putting pressure on their head or clenching their jaws. So I am assuming the device will only help those with that kind of tinnitus, which is not me...

@DebInAustralia, I wonder if anyone has even a clue what they mean by commercialization? Clinics where we go for treatment? Devices for home use? I’m afraid they will be successful but so expensive I won’t be able to afford treatment/purchase so I will be no better off.

Oh Deb, that is awesome news! Keep us updated please!

It’s amino acids, not vitamins. My holistic integrative medicine doctor said it’s good for me to take them every day from now on. This is based on his diagnosis of my “broken” glutamate receptor recycling system, as he puts it. I can only tell you what works for me, it may not be what your...

I read somewhere that their next clinical trial was delayed by COVID-19 but has now begun with report out in late fall.

@twa, you got it! My doctor says the Memantine might help because it’s a drug that is used for Alzheimer’s patients, and this NMDA dysfunction is linked to that, so the Memantine is a drug that helps control this dysfunction. I always like to add the reminder that I’m not a doctor, people need...

Just found this quote: Noise can cause excitotoxic trauma to cochlear synapses by triggering excessive release of the neurotransmitter glutamate from the auditory sensory hair cells.

I’ve done a great deal of research (doing literature research was part of my career job) and I don’t remember where I read this but a noise trauma can damage the Glutamate receptors re-uptake system. Look up neuroexcitotoxicity.

Yes, except I quit taking the L-Carnitine. It seemed to cause a little spike rather than doing the opposite. I also take L-Theanine, 200 mg 2x day. My holistic doctor also recommended decaf green tea (instead of my beloved coffee mocha) which contains Quercetin and I’ve added one Quercetin...

Puritans Pride. I get all my supplements from them, they only sell online but prices are lower because no middleman. I researched them and trust their purity and production. By the way. This may not work for others but it does for me. Through experimentation I’ve learned that if I am about to...

Wow that’s awesome news! Yes I think the spray you’re using is nothing like what some have ordered from online sellers which is why they never got any relief. The Rx spray we used to have for nursing mothers was as you described, had to be refrigerated and expired quickly. It’s no longer...

Okay I’ve been doing this for 3 weeks and it is really making a huge difference. I have 2 kinds of tinnitus: one is a sort of buzzing noise, which by itself is not too annoying though the other is a fire alarm sound (it was a fire alarm that started my tinnitus and thus it’s that same sound.)...

I’ve researched this further, since the Oxytocin lozenges I tried didn’t do anything. I learned that Oxytocin does not pass through the brain blood barrier except through one place high up in the nasal cavity, thus the use of the nasal spray. I have not been able to find anything more from the...

Hey @Conan156, I’ve been trying your 10-day regimen and it actually seems to be doing something amazing. I have had tinnitus for 6 years and when I first got it I tried the entire laundry list of searching out what was wrong with my head. Finally concluded exactly what you said, Glutamate...

I had my first vaccine (Pfizer) shot yesterday afternoon. By late last night I was noticing a significant tinnitus spike starting and when I woke this morning my head was screaming. No other side effects other than a sore arm, no swelling or redness. Hoping this spike subsides because if it...

The latest news on Dr Shore’s progress towards rolling out this device to the public. She has secured global patents, and plans are moving forward to manufacture the device! https://innovation.medicine.umich.edu/portfolio_post/shore/

I checked out the link! That’s exactly what I was looking for... but it says it’s for research use only, do you think an individual can purchase it? I received my Oxytocin lozenges yesterday and today I’ve been doing 2 sublingually 4 times. No idea if this will help or not. I’m not doing this...

Hi Deb, I think the use here would have been considered pediatric and not obstetric since the Rx would come from a pediatrician. It was used to facilitate milk letdown in nursing mothers. I don’t know much about the pharmacology as I was just there to assist the mother.

It depends on what you have. Is it a Rx and has it been refrigerated? If not, it probably is heavily diluted and that means it’s not what they are using in the clinical trials. When I was a doula and my new mothers were using the spray, it was a prescription and had to be refrigerated. It was...

I’ve been in touch with a doctor who agreed to prescribe oxytocin nasal spray for me to try it out. She knows I have a chain saw running full blast in my head and is trying to help me. Anyway, we have found that the spray that was once used for lactating mothers is no longer available. So on...

Actually, it definitely does in my experience (blush).

Has anyone seen any info on how Dr. Shore's treatment will be offered? I read somewhere that she hopes “eventually” to offer home-usage devices but have not seen anything about where the treatment will be available before that. I’m sure they will be very expensive but I’ll sell all my children...

Not a word of information or encouragement. Just sat across the room messing with his laptop. “Wellllll. You have tinnitus. Nothing can be done about it. You just have to learn to live with it.” He had looked into my ears and pronounced them fine. Then he said that thing about keeping the TV up...

I heard a rumor that Dr. Shore and one of her colleagues have filed for a patent on this device so that makes me think at least SOMEbody has a lot of confidence that it’s going to work!!!

I wish the ENT I went to had been even remotely informed of anything about tinnitus and had at least one empathetic cell in his body. He was callous, condescending, rude and offered no help other than to keep my TV on all the time to drown out my tinnitus. I went out and sat in my car and cried...

I’m not familiar with the brands but I am a retired postpartum doula and the Rx kind of oxytocin was very effective for the new mothers who used it to increase their milk supply. Maybe it depends on the brand of oxytocin spray that’s used? I certainly don’t think what Amazon sells would be worth...

Clinical trial on Oxytocin as tinnitus treatment, in NY state: https://clinicaltrials.gov/ct2/show/NCT04210310

Looking for a doctor of any kind in Raleigh Durham Chapel Hill NC who understands tinnitus. Bonus points if s/he has it too.