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Sounds good, I look forward to hearing from you! @Markku I just changed my email settings so please make sure you send it to my @buffalo.edu account as I rarely check Yahoo anymore.

I would LOVE to join in on this. This forum got me through some dark times in 2012. Today, although I still have tinnitus (and now I have it in both ears), I never give it a second of thought. The tinnitus journey is a big part of why I became a psychiatric nurse practitioner. You can video me...

I'm a very sensitive and fearful person too. I didn't realize that I even had a problem with anxiety until I developed tinnitus and hyperaccusis, increasing my already high levels of anxiety to full blown, almost non stop panic attacks. Now that I've habituated to tinnitus I'm still struggling...

The Wedding Singer, nice : ) My tinnitus is 75-80 dbs approximately. I can "hear" it whenever I listen for it, but I don't anymore. Sure, some people who have had mild tinnitus don't notice it, just like you don't notice the disturbance of your eyelids when you're blinking. Most people don't...

Glad to see you're doing better Kris!!

Hi Sandra, I hear a constant high pitch ringing that changes once in a while in frequency. Sometimes it turns into static, but that's usually only if my blood pressure is high or if I drink caffeine. My T doesn't change in loudness but it doesn't seem as loud anymore because I've habituated to...

Hi Taterlady, You sound a lot like me. For every tool I used to help my "T" my brain would counter it with "But how I can I use this tool (medicine, mantra, background noise) forever." The key hear to remember is that you WON'T have to use it forever. Eventually your brain will get bored with...

Hi DutchGuy, My hyperacusis went away with my first dose of klonopin and it hasn't come back since, hallelujah!! I continued taking it for several months to help with the panic attacks related to the T though. I stopped the Cymbalta after four months because I developed Seretonin Syndrome (which...

WONDERFUL! After 40 years, that's amazing and such an inspiration for others on here to read. I used the same technique as you, and that's really what finally made habituation possible for me. I would "hear" it then tell myself, "Ugh, that sound again, well I hate it now, but I will forget about...

I'm happy for your Kris! You're going to do phenomenally well, I can tell, as you have a light and optimistic spirit. Make sure you come back to share your success story with us.

Hi Joan, I don't remember how much I took. Your doctor will prescribe the correct amount for you. Thanks, Claire

Glad I could be of help Kris! When I was 8 years old my mom moved us to an apartment complex right next to an airport. The planes were so big and loud, they would literally shake the ground. This drove me crazy!! My mom said I would get use to it, but I was furious at her for moving us there...

Hi Joan, I sent you a message in reply. Best of health! Claire

Yes she does Dan, thanks.

It's been approximately 9 months since I developed tinnitus and hyperacusis from ididopathic sudden sensorineural hearing loss. I am happy to say that although my tinnitus is just as loud (75 db) and fluctuating as before (sometimes it sounds like someone is frying bacon in my ear!) it doesn't...

Hi Caff, It just takes awhile to adjust to the new way things sound after SSNHL. I know, they don't sound as good as they use to, but over time you won't notice the squeaky's and bass sounds as much. Basically, your sense of hearing has been altered, and now you're super tuning into it, which...

Well that's good to hear Matt! No, my hearing loss is still the same. My doctors put me on SSRI's at first, which helped immensely, but I had such horrific side effects that I've had to stop them, which has put me in a bit of a slump. I've decided to just stick with Klonopin, headphones and...

Hi Telis, I've found masking works best with a good set of headphones, have you tried that yet? They have to be of good quality so that you can really get lost in the music. You will still hear your tinnitus, but when you have a great set of headphones on, and you're playing some really...

Hi Matt, How have you been?!? Yes, I go back and forth with my good days and bad. Did you ever join the study for AM-101? I backed out since my T is from hearing loss, and I didn't think it would help.

Also, the more you talk to people about it, the more you will discover how many people have T and hearing loss that you weren't even aware of. Several people in my family have it, and it doesn't bother them in the slightest (because they have habituated) including my dad who has bipolar...

Hi Caff, I'm sorry to hear about your hearing loss. I had an experience similar to yours. Caught a nasty virus, was misdiagnosed with just a sinus infection, then a month later a new ENT I got said, "You have SSNHL." Great!! So now the hearing loss I'm experiencing, hyperacussis (which it sounds...

I slept the last two nights a full nights sleep WITHOUT any meds!! First time that's happened since I developed T two months ago. That's a big positive.

Maybe that's where I should go then! If Oahu is mostly developed, and without coqui's, I might sleep well there. The coqui's make such a high pitch noise I think it would interfere with my sleep. Definitely something I'll consider when planning a vacation there in the future. Thanks for the...

They said it works best if you do it with a counselor. I think it's probably difficult to do it on your own because it also involves a change of thought process and patterns. The music and sounds is only part of the therapy. If you can afford it, maybe you could hire a counselor who specializes...

That's a good point. If the AM-101 study doesn't pan out for me I think I'm going to try the TRT approach. If anything, maybe it will help me to habituate faster.

I've been looking into TRT, but my problem with it is this; 80% of people naturally habituate to T, and TRT has an 80% success rate. What if the success rate is just people who would have habituated on their own in due time? TRT proponents say treatment may last up to 1-2 years. That's how long...

Yes, it sounds like a lot of money for something that may not work, or make it worst!

Yes, it would be amazing! I'm still waiting to hear back from the doctor. They said I may be disqualified since I took predinsone for a short time. The consent form said you just have to be off the meds for two weeks prior to the treatment, so now I'm just waiting to see! My mom has pulsatile...

Hi Mark! Yes the results look good! I'm really hopeful, as you know, that this works too. I very much appreciate your prayers and support. On Monday I'll be talking with the doctor who is running the study and hopefully he won't rule me out for any reason. I'll let you know how that goes! Until...

Hi Stina, thanks for the input. I looked into it and AM-101 works just as well for noise induced as well as otitis media induced T. I talked to my primary doctor today who basically said I could do the study if I wanted to but it was a personal decision. He also said he has T from scuba diving...

That was my question, if it was permanent. When I asked the nurses they said they didn't know. They didn't run the first study so all the information they had was the same as the informed consent that I got.

Hi Everyone, I just recently joined this group, as I developed tinnitus (6db) and slight hearing loss in my right ear a month ago. I have been given the opportunity to participate in the AM101 study. I'm debating on whether it's a good idea or not. They said I have a 40% chance of receiving the...

I wish I could give you a real hug. You feel very close to my heart : )

Hi Mark! I had a similar experience yesterday. I cleaned the whole kitchen! It felt good. I know this whole thing is just a mind trip that I have to overcome. Can you believe the challenges God gives us? Today as I was taking the kids to school I was talking to God and I said, "Lord, I know...

Your story sounds much like mine!! Who ever thought a virus could cause such havoc? I was talking to a woman, Mel, that I just met at my daughter's school the other day who has a friend with a similar experience. She had a virus, went to bed, woke up blind. I kid you not. What really drew me to...

Thank you Greg. I know that staying busy is important so I'm trying but I'm having to leave school. I just can't concentrate. The lack of sleep (but primarily ringing in my ear!) does not help : ) I'm trying to step back into life slowly. For instance, I consider getting the kids ready for...

Thank you Karen. I'm trying to get into the AM101 study right now, so I want to try that first, then maybe this if that's not effective. Have you habituated to yours? How loud is it?

Hello, My name is Claire and I am pretty new to this forum and tinnitus (one month....of hell) that I developed from a virus that attacked the nerve in my ear. I'm reading like crazy about all the different treatment options in case it doesn't go away, and I found some interesting research about...

Thank you Carlos! I've read some stories about people who develop T and they just move along, like "Hey no big deal!" I have no idea how they do that, and I don't think it's the norm. For the rest of us (you and me) I guess we have to rely on time and prayer. I pray A LOT and I'm going to pray...

How many days into your T did you not let it master your mood? I'm going to mark that number on my calendar for a day to look forward to : ) I'm still in the throws of despair (and 60 mg of prednisone daily, which is making me crazy!) over this sound. I went to an audiologist on Friday who...

Oh, ok, yes, that's what I want to get. Mark said they've helped him a lot.

I'm glad you're doing better now though Sue. What are SG's?

I'm sorry Sue, I know H is hard. I had it really bad when I first got this virus, and I still have it a little. What is yours from?

Thank you so so much Mark, you are a God send, truly you are. You're right, it doesn't say that about punishment anywhere in the New Testament. It is the equivalent of what you said, drinking the ocean, that's how I feel. I spent my entire day at the hospital today crying or trying not to cry...

Thank you Sue for your feedback. Were you crying everyday until then?

Thanks for the reassurance Raul, I hope you're right! I don't even have time to adjust though, because I'm in nursing school, although, I guess we were all in the middle of life when this happened, huh? Thanks for your support.

Hi Mark, Yes, I try to remind myself constantly, "God is in control". I feel like this a major test of faith too. I've been having a hard time with guilt because I'm an honest person 99% of the time, but I came down with this viral infection when I was doing something dishonest and I feel like...

Hi NeoM, Thanks for responding. My hearing loss mild in my right ear and I also am having some mild problems with hyperacusis in that ear. You're right about staying in school and staying busy, it's just very hard. I feel like all I can think about is this stupid ringing in my ear. How long did...

Hi, I'm new on here but reading your story has helped and is giving me hope. I don't know if my tinnitus is permanent (I've had it for 3 weeks, plus hearing loss from a viral infection) but with the 24/7 sound it feels like it is!! Thank you for sharing.

Hello, My name is Claire and I am a faithful follower of Jesus Christ, mother to three, wife to one : ) and a nursing student in my last semester of school in Western New York. I have been spending most of my days crying over the past three weeks due to tinnitus in my right ear and hearing loss...