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Hi @Padraigh Griffin. I have been to the apparent tinnitus expert at MA Eye and Ear in Boston, but he didn't mention anything about this, and didn't have any many good suggestions. I had basic hearing tests, but I don't know/think they checked for anything regarding MEM, but I don't really...

Hello @Padraigh Griffin, Thank you for all the information you provided. I have high pitched pulsatile tinnitus, and occasionally, maybe once or twice a week, I notice the low pitch fluttering/thumping for maybe 10 minutes or so. My question is whether you had the high pitched (pulsatile?)...

Probably better to write on the forum, this one is too limited in amount of characters allowed.

adequate. Do you have Pulsatile type of Tinnitus? That is one that generally requires some imaging.

agreed with my desire to get the MRI imaging without contrast, and that is what we did, and apparently the quality is

gone out of his way to help me, but we have not found any solution to this maddening condition. He understood and

Hi Tom, I did see Dr Grundfast on Feb 1. He is friendly enough (unlike too many of the staff in Boston) and I think he has

Hi Tom

Hi Kaelon, I have all the symptoms that you say that Mass General said define somatic PT. I have also been to MA Eye and Ear and not gotten much clarity from them. I live in western MA, and wonder, have you found any good doctors/ physical therapists in Massachusetts to help you with the...

Thanks for the encouragement Tom, sometimes it is really maddening. I think I will give the melatonin a try one of these days, seems like it has been helpful for some. By the way, what type of imaging did you get on your neck? thanks Chris

Hi Halsy, You have said that the somatosensory tinnitus generally goes away on its own within 6 - 18 months. Where is that information coming from? thanks Chris

Hi Tom, Where are you in Mass? I am out in Northampton area. It is so frustrating because it seems so muscular/skeletal related. Did you have any imaging in your neck? If so, did it show anything unusual? I have an appointment Feb 1 (long wiat!) at Ma Eye and Ear at the Lauer Tinnitus...

Thanks Halsy, that all makes sense. By the way, not sure everyone has seen this: https://hearinghealthmatters.org/hearingnewswatch/2018/new-treatment-device-somasensory-tinnitus/

Thanks Greg

Thanks Jeremy

Hi Jeremy, Wow, I imagine you had some hopes when you tried the ultrasound. I wonder when you got the MRI and MRA without contrast, did your doctors think it would be adequate to rule out problems, and then only use contrast if something found needed to be better viewed? thanks Chris

Thanks Greg, I have already had the CBS and thyroid check. I wonder if they can also scan the neck while they are doing the MRA for the head!

Hi Tinniger, Yes, definitely high pitched, so maybe that helps rule out vascular issues.

Hi Greg, Where in Mass did you grow up? I am in western MA, Northampton. I have had a lot of smash ups to my head and neck in the past. Here are a couple of them. About 30 years ago we were sitting on the shoulder of the Maine Turnpike for work (I am a civil engineer) so we had no...

Hi Jeremy, Thanks again for your thoughts on this, it confirms my opinions. I have already had a CT scan and ENT exams that they say ruled out the neuroma and some other bone issue causing the PT, so maybe just an MRA without contrast would make sense now. If only there were and experienced...

Hi Jeremy, Thanks for all that information. Did the doctors you saw say the MRI and MRA without contrast were good enough to rule out brain/vascular issues? Is the idea that if something vascular is found without contrast MRI/MRA, then a more detailed MRV with contrast would be required...

Hi Greg, It sounds like you should become a doctor for this condition! Have you found anything that has given you some relief from your PT in all these years?

Hi Jeremy, Yeah, poor Dr. Levine, he did try to be helpful. I noticed he does not provide his number on his website, maybe too many calls from stressed out PT'ers! The PT definitely gets much louder when I turn my head to either side and much quieter if I lean on my chin. So if that...

Hi Jeremy, Yes, definitely high pitched and also affected by pushing on my temple and round my ear, and also by pulling my head back, and looking down it gets almost quiet. Did it just start up for you out of the blue? I had a bad earache one day and mild ear infection and it seemed to start...

Hi all, I hope everyone is hanging in there well enough with this distressing condition. My issue is what I believe is continuous "somatosensory" pulsatile tinnitus, 90% of which is in my left ear that started March 2018. I believe this PT is related to neck, head and jaw muscular tension...