Search results for query: *

So I spent a lot of time searching and trying to find MRI machines that wouldn't irritate my tinnitus and ear pain. I ended up having a scan done on an upright MRI machine, and while unfortunately they weren't able to get the scan done in the specific area I needed, I will say it was not...

Exactly, just because it did not work very well initially doesn't mean you shouldn't try a couple more injections. If you have any sort of relief, even for a few hours, it likely DID work like it was supposed to. By the 5th injection, the patient in Myriam's paper had a month of relief.

Did you have it done with Botox or just the standard stuff? Because the effect only lasted for a couple days with Myriam's patient with a regular SGB. The patient had 4 or 5 total done, each one lasting longer than the last. The Botox is what lasted for months.

Everyone is different and the reason for ear issues may stem from different things. With that said, I think walking around always worried about ear protection and loud noises only exacerbates the issue and basically turns your life into a game of avoiding everything and constantly worrying. I...

Are you in the US? I've emailed Cannon and called them and they have yet to find me an MRI machine with Pianissimo. Last time they sent me a location that didn't actually have the technology.

No one else has wanted to try the SGB was what she told me. While she did say it was moderately invasive, all the research I've done says it's a pretty minimal risk procedure. But it is essentially unproven except for one case so I can understand why other may be hesitant. She also has yet to...

I hope it goes well for you. I asked Myriam during my consultation if she knew of anyone else who had been given an SGB and there wasn't anyone, so I'm sure she'd love to hear from you whether it works or not (hopefully it works just as well as it did for her patient!). I'm very much...

Get some musicians earplugs, wear them if you feel like things are too loud, but don't wear earplugs unless you really need to. The small amount of research done on a acoustic shock suggests the symptoms are caused by the body's response to sound, activating the Tensor Tympani Muscle too much...

The vibration you're feeling is probably your tensor tympani muscle. It seems to be a possible cause for a lot of people here who have ear pain, especially when you feel vibrations or fullness.

Ah little ways off. Hope it goes well and you get some relief.

You get that SGB yet?

Never had any hearing loss, slight muffled sound for maybe a few days or so. Mostly just fullness and pain.

For many people the symptoms get better. I'm still having some issues but between ignoring it and it (I think) getting a bit better, I can generally get through every day okay without it bothering me too much. The worst is things like sirens, I cover my ears when things like ambulances go by...

You think you experienced an acoustic shock? What happened and what are your symptoms?

Still dealing with inner ear issues. I've been ignoring the issues as much as I can and it's definitely helped. Been able to get on with my life and enjoy things, however it's still a fairly constant annoyance. At best still constant mild pain, moderately loud noises set of more pain. The more...

Possibly, how long did it take you to get to where you were at prior to this setback? If you get to that point quicker, than it's likely you are improving. And keep in mind, there is no scientific evidence linking damage to human ears and hyperacusis. We simply don't know if that's the case, and...

Some people will recover quicker and quicker after each setback. That would show progression.

I'm still waiting to see more people try the stellate ganglion block. It worked quite well for one patient, and more specifically blocks nerves relating to the ear and not the entire CNS. There is a paper being worked on right now involving that patient. I will probably give it a shot myself...

I contacted Myriam Westcott in Australia. While I do live in the US, the clinic I went to was willing to try the treatments she suggested even though she isn't an American clinician. Your results may vary on whether or not a pain clinic or your own personal doctor would be willing to do the...

That depends on your audiologist. Mine recognizes it's likely trigeminal nerve pain and not TMJ. I don't know what country you live in, but I was able to go to a pain management clinic and request procedures for trigeminal nerve pain and they were willing to try just about anything I wanted. I...

Have you tried any medications or treatment for trigeminal nerve pain? I haven't yet but it was suggested to me by my audiologist.

I think it's unfortunately a lot to ask for any of us to completely recover, but based on posts I've seen from you, you did get better regarding some of your symptoms right? I just don't think telling people that everyone just suffers and you're lying to yourself if you feel improving symptoms...

Didn't your hyperacusis get better or go away completely? Are you just lying to yourself that it's better?

Lyrica and gabapentin are both used for nerve pain. For some people it helps take the edge of the pain caused from hyperacusis. Some people have side effects and can't take it, others are able to take it for years. Really depends on the person. I'd recommend going to a pain management clinic and...

Have your tried any medications for nerve pain?

How did your hyperacusis start? Also you're getting tingling sensations? What are the main symptoms you have?

That's totally unfounded. The Tensor Tympani muscle is what dampens noises like yelling and chewing. Some people with hyperacusis do develop issues with the muscle, however it's usually because it is OVER active, and tenses up at even the slightest noise, causing a bunch of issues. Your voice...

Yeah it's totally different. Right ear is what I think most people here consider hyperacusis. Sensitive to high frequencies, ear pain and fullness after loud sounds, pain is usually gone after a few hours or the next day, and some loudness hyperacusis. Left ear includes sharp pain, dull pain...

No. I don't think you guys even read my initial post. My left ear was subject to the acoustic shock. It was literally totally fine until then. My right ear I've had hyperacusis since 2014, it hasn't gotten worse. I've been to concerts with and without earplugs since then. Shot guns (always with...

I've honestly just tried my best to ignore it lately. It's still there all the time, but living life in a shell afraid to do anything is almost worse than any pain I've felt. I'm avoiding obviously loud situations but have been doing my best to getting back to normal everyday life. Thinking...

No, the hyperacusis from 2014 is my other ear. I've been to concerts and shot guns since then and it hasn't gotten worse.

It's a private group so it looks like I can't link directly to it. You can search hyperacusis surgery success and it will come up though.

For some yes it has. You can watch videos from patients on Silvertein's website, and also on the Facebook group pertaining to the surgery. Some people had noise trauma (gunshots, a nail hit with a hammer very close to the ear, etc.). The only story I haven't seen a success case for yet is...

Because it is very hit and miss on who it helps. It's not a "cure", however for some it can alleviate the symptoms of whatever hyperacusis really is. Which is of course the next best thing if you're one of the lucky ones it works on.

Online consultation. Acoustic shock disorder seems to lead to a bunch of other issues on top of hyperacusis. Issues I've had are, hyperacusis, constant sharp stabbing pain (even in silence), dull ear pain, and pain radiating to the jaw and throat. Many of these issues are believed to be cause...

I've been in contact with her recently and have a consultation coming up. Myriam did give me some more info on the SGB though. I won't go super in depth as a lot of it is in her paper she is still waiting to get published and it would be better to contact her directly if you're interested...

You have acoustic shock, which can sometimes turn in to acoustic shock disorder. It took me awhile after my incident to actually figure out what the issue was, you can Google it to find more info. If it makes you feel better, acoustic shock symptoms usually resolve themselves within days or...

Did you ever get over your ASD symptoms?

I've seen your recovery a few times. How were your symptoms the first 3-6 months? Did you have constant pain? Was it dull or more of a sharp pain?

You haven't been here in forever, but by chance if you ever show up again, did your symptoms get better eventually again?

Yeah I've seen a few of your posts. Did you have constant pain too? Glad to hear the pain you did have went away within 4 or 5 months. I'll be the happiest dude on the planet if this pain is gone in two months.

Did you have constant pain at times? Or just when exposed to noise? I've definitely tried to protect my ears more lately. I really don't believe the whole TRT it's in your head thing. It may be to an extent but there is real pain happening, not some imaginary made up thing.

I realize many members who have recovered from symptoms probably aren't here any longer, but has anyone experienced an Acoustic Shock (specifically) and had constant sharp stabbing pains in the ear that eventually went away? I certainly have what Myriam Westcott would deem as acoustic shock...

Yes that's what it is. I'm hoping some people from here try out the surgery and have good results. I know it doesn't work for everyone but the small sample size is giving some positive numbers. We just need a bigger sample size now.

Pretty sure he's on the hyperacusis surgery success Facebook group, there's a guy named coz there. He said his one ear is pretty good now and he's waiting to do the other ear next year I think.

I saw you had the oval window surgery, how are things going with it?

So you didn't feel pain with hyperacusis before? Do you know how you got hyperacusis initially? I've had it for a couple months, and am curious if this diet thing could help.

You're already seeing improvements, if noise isn't brining you pain and it once did. Give it some more time, do and enjoy the things you are able to do in the mean time. There's a good chance you'll be in a much better spot months from now.

Do your ears actually hurt due to sounds? If so, it is likely hyperacusis, or similar to it. Hyperacusis is generally more difficult to deal with. If you don't have actual pain to noise then be thankful, that's one less issue to deal with. Both T and H do go away or significantly reduce for a...

Did all sounds bother you if they were loud, or just high frequencies?

You need to relax a bit. Are you still able to get through the day pretty well besides the ringing? It sounds like you don't have a ton of pain, your hyperacusis is mild. There are plenty of people on this forum that have severe hyperacusis and literally cannot function, can't even leave the...

How long have you been having issues? Is it only tinnitus or also hyperacusis? The occasional pain, is it caused by noise, or is it just random? And is the pain debilitating or is it mainly the ringing that is hard to deal with?

It doesn't need to treat those things. In a perfect world we'd know exactly how to fix everything that's wrong, but in cases where we don't know the answers, alleviating symptoms that are crippling people is the next best option.

I think it really depends on the person. There's plenty of people who've had hyperacusis and never had it return. The symptoms gman had return could go away much quicker if they are only being exacerbated by a cold.

As someone currently dealing with pretty painful sound sensitivity and I have no idea when or if it will go away, stop before you regret it. Take a look through these message boards and ask yourself if you want to deal with what many of us have had to.

Do you believe the TRT led to you actually being cured, or that you would have perhaps recovered without the treatment? And thanks for the info.

I've seen a number of your posts and how you recovered from severe hyperacusis years ago, do you know what exactly caused your hyperacusis to begin with?

I'm also very curious about this. Right now that surgery seems like the most realistic thing that could currently help hyperacusis sufferers. It's had good results supposedly, but the sample size is so small (30 people or so) that it's hard to get too excited about it without more information.

100% agree. The lack of research on something that can be as debilitating as hyperacusis is a joke.

Yeah, a car alarm sounds more like an acoustic shock then an acoustic trauma. Shock is from a sound not loud enough to do actual damage (hypothetically at least), but your body reacts in a way that causes these issues. I'm dealing with acoustic shock right now, Prednisone did nothing for me.