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After a big cold I got tinnitus, so probably a ear infection. A few weeks later I got the balance problems. By "label" I meant to say it's not a clearcut diagnosis. They can't see directly the vestibular organ so they go by inference. I agree re: maladaptation. I have a great specialist who...

Thank you for your reply and sorry to hear you are still struggling. I don't react well to SSRI, and SNRI are notoriously difficult to get off. PPPD is probably just a label, they don't really understand what's happening in detail but I had read that sometimes it goes away or can be reduced...

I was wondering as well. Also, "Lenire® is not suitable for everyone with tinnitus. If the audiologist determines that you are not suitable for treatment with Lenire® and that an alternative treatment is more appropriate, you will be provided with a detailed referral recommendation." Any idea...

Sorry to bump this old post but I'm quite interested in this. @Dizzyhead888, I have been diagnosed with PPPD too. It started about 1 month after tinnitus. Together with tinnitus this is a terrible combination, you try to relax lying down and tinnitus freaks you out, you try to get a walk...

I'm very interested in this. May I ask what kind of shop can take measurements and produce custom ear plugs? I googled it but didn't find much. I found this for example https://www.acscustom.com/uk/how-to-buy but I am not so sure. I'm often in London UK and could try to find a shop there.

Re: why hasn't the doctor presented his results at TRI2019. I don't know. Is the conference by invitation only or can you submit a paper? Is there a committee that scrutinises the submitted papers? It could be that this doctor is good and well meaning but outside the academic loop and doesn't...

It is. Lenire should be much closer, though. Are the FX-322, REGAIN and Otonomy programs that far? I was hoping for a few years rather than a few decades, even if at the moment I live hour by hour.

I am in a similar situation, Allan1967. I am sorry you are going through this. I hope Lenire and the hearing regeneration programs may help us in a not too distant future, and in any case I hope you can habituate again soon.

Very encouraging and heartening. Thank you for this, @billie48

Sorry for resurrecting an old thread but I would be interested in this. I seem to be experiencing louder and louder tinnitus while tapering Pregabalin. Has anyone else had the same experience and has it calmed down once off the drug?

Thank you very much for taking the time to write this very helpful reply, Henry. I have experimented today and there were long intervals of time where I could do nothing but observe the tinnitus without judgement. It is difficult, the mind kind of rebels and wants to start the usual commentary...

Thank you very much for this, inspiring and encouraging. My main difficulty is that now I hear it all the time. In particular, in the morning and at night but also in the street and over TV, at work etc. Troubleshooting the three steps: 1- STOP talking about tinnitus, measuring it, comparing...

They told me the cochleography si not compatibile with Meniere

I'm new here. I have had balance problems starting 2 months after tinnitus. It looks more like PPPD or disembarkment syndrome than vertigo. ENTs have not helped much so far, I had a number of tests. I'll see a balance specialist next week. The main theory at the moment is that a virus has...