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Hoping we'll all be sleeping without any noise soon.

I know I've been helped by Lenire, but I get it might not help everyone, whereas this is kind of what we've all been waiting for. If you've been thinking of getting Lenire, I recommend holding out for this instead. Hoping we'll all be sleeping without any noise soon.

Not really. What I noticed the first few times after using Lenire is that it would change an otherwise always stable set of ringing sounds, and would make it whoosh and variable. It was kind of gradual that the reactivity went down. Things might be a little different for me though because I was...

My tinnitus had already been better for sometime after using Lenire, combined with healthy lifestyle and tincture of time starting back in 2020. Mine used to be reactive to fan type sounds and airplanes. I live near an airport so the planes were always super loud and often, each time one would...

Not here to sell Lenire. Just stating the fact it works for my tinnitus, and wondering if it's worked for anyone's VSS.

Hello Tinnitus Talk, I haven't been on here in a while. Last I posted I was doing much better, thanks to a little Lenire use plus a healthy lifestyle. And by doing much better I mean quiet tinnitus, not habituation. If you all recall, I was "brave" enough to go with Otonomy's OTO-313 trial...

I am. Thank you so much, and good luck to you finding an increase in peace for yourself too.

Initially, I actually only used it for about a month. After every session, my high pitched steady ring would become wooshy, it's hard to explain but it would definitely be different but not exactly quieter. This way alone it, wouldn't change long term for me. About 2 months after that, shortly...

Hello everyone, just came back to update. I really did improve, no more pain, and tinnitus much quieter. Pretty much gone aside from when I go to bed or am somewhere super quiet. I used to hear it everywhere I go, on an airplane, by a highway, near a busy intersection, under airplanes...

Can confirm.

I saw this post on Reddit recently. It's a guy from Russia who got tinnitus and looked around the forums in his country and found out about this medication that other people were saying helping and/or eliminating their tinnitus. He tried it himself and says it is helping him a lot, reducing it...

Hello people, I've been using Lenire for about 6 weeks now, 30 minutes a day, this is my initial review. I'm taking a break from it already. My high pitch ringing is so loud that Lenire doesn't even come close to masking it, not even at the not recommended max volume. Again, for those that...

Your sounds like mine in terms of loudness. That damn OTO-313 drug permanently worsened the tinnitus so that it is about that loud, where pretty much only the shower masks it. I've been using Lenire for about 4 weeks, at only 30 minutes a day. I feel like doing the hour makes it temporarily...

No I believe there are a few out there. I've been using Lenire for about two weeks now, but I've been taking it easy by doing only one 30 minute session a day. So far I'm liking the results so I'll probably start using it for the hour daily soon.

1. It was worth mentioning even though he never came back to report further. 2. He has had tinnitus for much longer than that. 3. Your "two years" is completely anecdotal speculation. There is no real data to support this as the standard for it to be chronic. Some people just want to make...

You're missing @dfl. Last he updated it sounded like success.

Did Neuromod push it back a little since you stopped using Lenire for a little?

It's not Keyzilen. It's more akin to what Dr. Tzounopoulos is working on, potassium ion channels.

Received “Intention to Grant” notice from European Patent Office Application covers invention of oral treatment for tinnitus Hamilton, Bermuda, January 10, 2020 – Auris Medical Holding Ltd. (NASDAQ: EARS), a clinical-stage company dedicated to developing therapeutics that address important...

Ditto question but hasn't been answered, where did you get that specific Ginkgo Biloba?

Hinting at some good news?

Has the tinnitus still been all elevated and reactive?

You believe in God now?

Not if it is only changing the delivery method.

Just putting his bias out there.

GlennS is just trying to make himself feel better about backing out of his own Neuromod appointment. In case it's new information to you. That's why I just ignore him.

Most audiograms don't cover high frequencies that most of our tinnitus probably is in.

My first, most logical thought of a "trend" that can't be a negative is that tinnitus would improve when the specific frequency's hair cells are regenerated. Just one possibility, but it's the first one that comes to my mind given the fact it can't be a bad trend.

I listened to it and someone asks if they saw any improvements in secondary measures (tinnitus is one of them). What they said is they saw "trends". They mentioned they will be doing ultra high frequencies next as they know those are the areas the drug reaches the most.

This is great news. I really hope we can learn more about the effects on tinnitus soon.

Hahahaha!!!!

I think some of the Lenire users mentioned it has helped them with the fleeting tinnitus too, just don't remember which ones.

Has it only been this week that it's been fluctuating? If so, maybe something else is causing a spike to fight against the treatment. But even if it's not that, isn't "ups and downs" what all the users as well as Neuromod says is normal to happen?

Not sure if to rate informative or informative.

That's just out of nowhere speculation. There has been no mention of anything like that in the works by Neuromod at this time. Yes. The brain is fickle like that. I'm sure you've read of people who have had it for even longer and one day their tinnitus was suddenly gone.

It's the brain working on its own to fix itself. It's the best thing that can happen to any of us. Let's hope your improvements will persist in the long run.

Your brain might be trying to fix it... Have you done anything different lately?

Neuromod had way more patients/participants, but what she has over them is RCT and double blinding for placebo. Not to say one is better than the other but hers seems more promising efficacy wise, and if shown so, she may not have to do another trial after this one. She has said she aims for...

Hough Ear Institute has a pill that regrows nerves and shows great promise for tinnitus but needs more funding for phase 2. They finished phase 1 in 2015. Money is the only thing stopping them. I myself wanted to help Tinnitus Talk by working on promotional materials as that is my background...

It'll more likely reduce it, not remove it altogehter. But habituation with a less severe quieter tinnitus sound would likely be easier than with a more severe louder sound. That was the case for me exactly.

I want them to say what it does specifically. If it does nothing, reduces, cures, etc. We may have to wait until about halfway this year for those answers.

Yes, that fact is interesting. But I want to hear exactly what it does. Nothing? Reduce? Reduce a lot? Full on cure? That is what I'm most interested in. I want them to come out and say what they're seeing.

They may start phase 3 this year if they keep up the pace. What I really wanted to know is what they say it does to tinnitus.

That's probably the smartest thing you've ever said. Money and power. Greed.

The main researcher is working for Neuromod right now. I think he might be spending some time with this too but most of it is with Neuromod.

How many more of these deaths until something is done about this? May he rest in peace.

That's your opinion, and a pessimsitic one if you ask me. I'm sticking to mine. I may be a severe sufferer now, but I was once very good at business. Commercialization and globalization are two completely different things.

That alone is reassuring. Thank you for your insight.

My sleep isn't exactly good but I can usually sleep not too bad with melatonin and rain sounds through headphones playing rain sounds at just enough volume to mask the tinnitus, which is at about 30-40% volume for me. It probably wouldn't be a good idea if they had to be louder than this. Some...

I'm not going to ask too much to help keep you anonymous but have you seen any reduction in your tinnitus? You don't have to answer if you don't want to either.

She pretty much just said clinical trials should be blinded, randomly controlled and have placebo.

The FDA. I remember last I emailed them they just responded with a big generic signature type email with a bunch of gibberish about things having to be proven safe for people and what not. Yes I agree with the what, but if it seems safe and it might help people they shouldn't make it so hard for...

It's that kind of speculation that made me want to try it more, trying to think that I was lucky to have it as an option. On the day of it I was incredibly nervous, I didn't even want to show up, but I asked someone close to me what to do and she said to be brave. As you can see, that didn't...

It's likely considered class 2 medical device so it has to go through approval. They also really want to hit the US market because there's nothing else really available. That other junk doesn't have to but that's why they have to add "not evaluated by the FDA" on the packaging. It is still bull...

Oh sorry, I hadn't looked over it in a while. Still the results look promising.

They're hoping the phase 2 will yield better results from what they have learned of the phase 1. There weren't many people involved because of how invasive it is but it looks to me worth the risk if I am still suffering from this in two years (I'm not too far from San Francisco)...

They prefer acoustic traumas. Somatic just means you can modulate the tinnitus with head, neck, or other body movements. I don't recommend OTO-313 at all, but especially if you are getting better naturally. I felt I was before too before I got it. In my desperation I made a stupid move, as I...

Usually only about 6 months. So Dr. Shore might actually hit her target of this year!

My hearing hasn't changed but like @WntRelief said, I don't know for certain if I got the real thing or placebo yet. Hopefully I'll be finding out soon but I'm pretty sure it was real since it all happened right after it. I say stay safe and make an appointment with Neuromod's Lenire. Don't...

It's not available in the United States yet but I'm flying over to Ireland for my first appointment very soon! It's just another option to look at if you can find the money for the flights and treatment costs. Curcumin seems like it might help some people, I'm not one of them but it wouldn't...