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Providing a brief update on my story: it has been 1.5 years since my original post and 5 years and 2 months since the onset of my tinnitus. I no longer do the one-ear trick. When did I stop doing this? I have no idea. I didn’t even remember that I used to do it. I guess that’s more concrete...

Yes. Diary led to continuous hypothesis testing. But in the end none of the hypotheses held up. I basically concluded there are no triggers or if there are their impact is not consistent enough to be useful. The point is to focus on your life. Your brain will habituate but the process is slow...

I have successfully habituated to tinnitus after almost 4 years. How do I know? The other day I was reading a newspaper, and the story mentioned tinnitus. I did not react to the word tinnitus in any way, and it took me almost 10 seconds to realize that I do have tinnitus as well. Some notes...

Yes and also because tinnitus is very prevalent. If their treatments worked, word would spread from mouth to mouth. Has anyone checked Korean social media posts? If this works as reported, I would expect to see testimonials on social media.

I did some armchair assessment on the results. 1) What Sedley points out in above worries me a quite a bit. In general in science, it is very uncommon for things to appear like this... out of the blue. 2) I checked the authors. I could not find their profiles or almost any previous papers...

I find that ever since Russia attacked Ukraine my tinnitus has bothered me even less. As I do doom scrolling in Twitter my tinnitus can be super loud but the bothersomeness is very low. Worrying about Russian invasion, seeing blown up houses, killed children and burned soldiers is unpleasant but...

I would love to see a pointer to Phase 1 results. Is there a paper somewhere?

Sure. "Comparing before and after each drug, clonazepam significantly improved tinnitus loudness (74% of subjects), duration (63%), annoyance (79%)" This sentence means two things: 1) There is a statistical significant difference between clonazepam and placebo (gingo). Please note that...

Benzos also work only in part of the population. In a study 23% (9/38) got really big improvement, 2/3 or more reduction in tinnitus loudness, from Benzos, while 55% got almost nothing: https://pubmed.ncbi.nlm.nih.gov/22626945/ Interestingly the share of people that get improvement is roughly...

Like for so many in this thread alcohol seems to work for me as well. I have made several tests and the usual pattern is like this. 1-2 makes tinnitus worse. 3-4 my left side prominent tinnitus moves completely to right side. This is actually the weirdest part. So alcohol suppress left side...

The audio-file pick up is not working

Maybe he is on the correct path. If one looks at YouTube for tinnitus sound therapies then many of the most popular ones have sound components that are totally unpredictable. This kind of YouTube “market analysis” is no scientific fact yet it can give hints on what kind of approach might work.

They should build a regression model to show what type of patients get the most benefit. This is very old fashioned ”all tinnitus patients are the same” type of paper. Of course it might be in the company’s best interest to not do this as it would reduce the number of possible clients.

I second that. Encouragement but not being dismissive. It is amazing what can one get used to. I think one of the tinnitus researchers said to Hazel that he has tinnitus “sometimes it is louder than your voice”. That line has really resonated with me.

Fluctuation is the name of the game. For me it has been like that still. This week Mon-Wed good / decent. Thursday is about as loud as ever. I also have no idea what causes variations. I have tried all sorts of things. Results appear to be that nothing impacts for better or worse.

I have accepted. I no longer hope for cure. All is good. I mostly ignore it and it does effect my work or family life in any way.

She is a professor. They know shit about commercialization. Trust me I know. I hope a company like Neuromod buys the results. It will be much faster that way.

What does this mean in practice? Does it mean that treatments where you work on your tinnitus frequencies will actually increase your tinnitus? For example in https://plasticity.szynalski.com/ use frequencies that are far away from your tinnitus if you want accelerate cortical plasticity? Any...

I've had a great two days. Maybe habituation / reduction is for real. I am not expecting this to continue but I can always keep dreaming.

This good-day bad-day cycle is annoying. Also, it is not just the volume that changes between the days. On bad days there are many different sounds and sounds in both ears, buzzing, bells, morse code, fleeting tinnitus, etc. In good days there is just a low high pitched hiss in my left ear. If I...

Weird. I normally do not drink. Today half a bottle of wine and my T that is normally in left or center is now complete in right side.

Washout = No Treatment. Decibel reduction I don't know

I have to disagree. Even after removal of "the super two" the treatment shows benefits. See figure. Also Lenire paper (if you are referring to this one [1]) had no sham group. Simulation took 10 weeks in Lenire paper vs. 4 weeks. [1]...

You might be in the sham treatment arm so even if would be negatives it would not matter. I did small computation based on https://stm.sciencemag.org/content/scitransmed/10/422/eaal3175.full.pdf They said "Tinnitus reduction reached an average of 12.2 dB in the fourth week of active treatment...

Thanks Will for your efforts. I read your paper. So in the past sound therapies (notched noise, notched music and ACRN) the idea is that 1st tinnitus frequency is discover and 2nd sounds are created that are around that frequency. However, once the sequence is set the brain can predict those...

I have tried one of the YouTube sessions. Did not help me.

Speculating. They seem like two contradictory ideas. But it might be that bimodal stuff just inhibits neuronal activity in other way. But that would mean that one needs to stay with bimodal for the rest of the life because otherwise elevated TNF levels would bring tinnitus back.

The side effects of the TNF inhibition will not be worth it for me. https://en.wikipedia.org/wiki/TNF_inhibitor I wonder how the elevated TNF levels fits with the idea that bimodal simulation can be a cure. Does bimodal stimulation reduce TNF levels or do they just reduce the effects of high...

I think this helps with Tinnitus related anxiety (40% reduction) and Tinnitus itself (15%). Of course the Tinnitus component reduction could come from the reduced anxiety. I have been eating this now for two weeks with mild dosage 75mgs per day. I have no bad side effects. Perhaps I am more...

I have no idea. I have been eating turmeric supplements with very little effect so I doubt it had anything to do with it. I have no retested this since I do not have easy access to the food that was made by an Indian friend. I have also been eating Lyrica that might have produced some lowering...

Yesterday was a record low day for my tinnitus. Noise was reduced at least 50% or even more. This was remarkable as I do not have a lot of variation in my tinnitus anymore. In the day before yesterday I have had a very spicy food in the evening, which I consume almost never. Maybe there is...

To me this seems like useful data. Tinnitus prevalence at ~10% (tinnitus most of the time/all of the time + a lot of the time). I'd like to feed the tinnitus responses into a huge regression model and see what predictors surface on the other side. Most likely hearing loss but what is there...

In HBOT I think it is the pressure change. The oxygen has not been flowing yet when I find silence and neither am I super relaxed in HBOT when it starts. But this still leaves the question of why pressure change puts T to zero and keeps it very low during the entire time? I have also another...

Two times I have tried HBOT. After the pressure is increased I hear dead silence for some minutes. During the entire time my T is 95% gone. I talked to the HBOT operator and he said that many people have similar experience. Of course it does not last after the pressure is back to normal. But...

To me that would be a good as cured. I hope to be there some day. This morning I actually had to search my T and it took a couple of seconds before I found it. This is good progress for me and gives confidence that this sound can be made as meaningless as any background noise. I have never...

I have a super hearing in my left at 1khz and 2khz (-5db). In a way I have always know this as I have been able to hear sound most cannot. Unfortunately, it is not so great at 6kz and 8khz with +60db. Left has also tinnitus.

There are two things here 1) Thinking, and 2) Listening. Thinking. This is a classical question of how to not think about something. Internet has some tricks for this https://www.wikihow.com/Stop-Thinking-of-Something-or-Someone...

Thanks for this. Step 1 is very hard. I guess when you have spent months and many people years of doing something (listening and analysing T) then breaking the habit is next to impossible. I have only tried 3 days so will keep on working in this. Step 2. This is easy and very helpful. Step 3...

There is a bug that should be fixed. There is no way to load previous hearing test results. You can only save hearing test results but loading appears to be impossible. I could not figure out any workaround.

Super! I hope that the next step is connecting a TENS device to this sound machine. There are iPhone and Android controlled TENS devices as you probably know. This would effectively make this a bimodal neurostimulator. https://apps.apple.com/us/app/omron-tens/id1225437437 https://itens.com/

Well Shore device is basically TENS + sound. However, the timing is the problem as the electric impulse and the sound need to be synchronized to be most effective. However, a good hardware engineer should build such a thing quite easily. Too bad I only know about software.

^ I plan to do the same with Audacity. I cannot figure out my tinnitus frequency. However, by running a pure tone sound through all frequencies I found I am half deaf in left ear between frequencies 7100-7300 Hz. It is very strange when the pure tone sound completely disappears in that range...

Updates. I discovered I have hearing loss. When using the pure tone from ACRN web page and the lowest volume 1 my right ear can hear up to 9500 Hz. In left ear hearing stops at 5500 Hz. If I put the volume to 2 my left can go up to 8400 Hz while right gets to 10400hz. That sort of explain my...

Seriously? That sounds pretty amazing. Congrats.

I hope the myNoise thing works. That sound machine allows different parts of the noise to be muted or increased. I think it would be beneficial for the research as well to see what parts of the sound are more / less useful. Your sound has truly helped a lot of people I see. However, there might...

Exercise is definitely good for you and your tinnitus. https://www.researchgate.net/profile/Dennis_Colucci/publication/322965646_Tinnitus_Hyperacusis_and_the_Autonomic_Nervous_System/links/5c8fca78299bf14e7e84a95a/Tinnitus-Hyperacusis-and-the-Autonomic-Nervous-System.pdf

@R. David Case have you asked myNoise to implement your sound. He has done something similar in the past: https://mynoise.net/NoiseMachines/neuromodulationTonesGenerator.php

How can you tell the frequency? With a pure tone (that I used to have) determining the frequency was very easy. However, when I transitioned in to hum, hiss, or bells determining the frequency is much more difficult.

Wednesday Nov 6 was a very good day. My T was very loud as I could easily hear it in a loud restaurant. I simply did not care and was happily socializing. I guess habituation is really kicking in. Since then I also had 4 low T days on row Nov 10-13. I don't think that has happened for couple...

Most of the medical research treats tinnitus as a static or a slowly changing condition. This is inline with most diseases that are static or evolve slowly. I think a new line of medical research should start to understand the variations of tinnitus. I think understanding is missing on many...

What tools do you use to generate modulated sounds? I found this one for Android but user interface requires some audio engineering understanding. I am using this to match my tinnitus frequency as my tinnitus is no longer tonal...

Interesting observation. I was on vacation in Canary Islands. During that time Tinnitus was still present. However, I simply did not care as I was so consumed by all the activities. The tinnitus might have been lower but it is hard to say as I did no monitoring of it. I think this is how it...

Hello Hazel, Can you share this data? I am interested in the bad vs. good day variations. For example can we predict the individuals with higher day to day to variations. I'll post some results here.

I tried your advice and have not used it for 3 days. I seem to be OK. Another advice I should add to my "remedies that work for me"-list is that visit tinnitustalk.com less often. This site increases my T albeit I have also found some useful hints. I think many other users have also reported...

Venlafaxin. I read about 50 user experiences after starting the drug. One out of the 50 matched my experience perfectly but most others were way off. So the effects are very individual. For me the drug had almost immediate effects. Only after 12hours I could tell for certain that the drug was no...

My hiss is also often pulsating. Specially, the low volume hiss is nearly always pulsatile. High volume hiss less so. Is this also same for you? My hiss is also louder when I lie down. When I get up it is lower. So this has led me to speculating that maybe the single note is the "real...

1) I do like to hear the truth. Truth needs to be backed up by scientific evidence. There is plenty of evidence that loud noise can cause hearing loss. There is plenty of evidence that hearing loss can cause tinnitus. 2) So far ZERO evidence has been given for the claim "headphones even at low...

Not really. However, being in a loud restaurant can increase the volume, e.g. hiss or single note would increase its volume. But even this is not consistent. Sometimes volume would increase and in other times it would not. Yes. But I think this is very common even many deaf people can generate...

You keep pushing this" headphones even at low volume" will worsen tinnitus. Please provide evidence or stop it!