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Lady, I'm pretty sure you'll just ignore me but as someone who lost my life to this disease and can't even whisper without pain I'll say it anyway. 1 - Your doctor know nothing, you should never go back to him again. 2 - He does only know nothing but he's advising you knowing nothing. If you...

Oh, my, god. Thank you for that, at first I thought Michael was just an egocentric arrogant ignorant. But after seeing him mocking suicidal people, saying severe hyperacusis sufferers' symptoms are a "little sensitization" and things following this level of psychopathy, I truly believe this...

@MindOverMatter, I'm sorry but avoiding telling horror stories is completely wrong and bullshit. We who are the horror stories have a right to speak, we shall not be silenced, because we also seek support and understanding just like the mild cases. Also, I feel it's almost a duty for us in...

Look if you have hyperacusis and you are doing those stuff especially without protection you are really risking your life, seriously. I have extreme hyperacusis and i cannot even whisper, I do not know why you are feeling better but if you truly have hyperacusis your ae entering in a non return...

So I have really bad tinnitus/reactive tinnitus and a very extreme case of hyperacusis. After wearing nicotine patches for three days I've got a massive setback both in tinnitus and hyperacusis :(. Be careful with it guys, because right now I want to die.

Shine on, you crazy diamond.

After a huge setback I'm stuck inside a room for a year already and I honestly don't know how to advise you how to get better. What I can advice is that if you follow stuff like normal sounds can't hurt you and do not overprotect if you have to, you're going to get worse. And btw...

I took nortriptyline once five days ago, my H and T got heavily spiked and still is LOL, im not taking meds again

Hello you all. I have extreme pain hyperacusis, and reactive tinnitus. Maybe the culprit of both were antibiotics, i guess I'll never know, but since the onset literally any med I try at all spikes my tinnitus, including benzos... Also Carbamazepine gave me a hyperacusis setback. Does...

After listening an audio, huge new tone in t, H is so bad thar brush teeth, eating makes my 24/7 pain even stronger... Oh god...

@Michael Leigh "A fool is a man who doesn't change his mind in the face of new facts." (FHC) I shouldn't have compared you to a door. Doors do not think people suffering are funny.

@Lucifer @Zugzug @serendipity1996 @lapidus @Autumnly Guys, lapidus is right. This is a good thread that hopefully would open the eyes of new sufferers. @Michael Leigh has proven to be ignorant who isn't open to scientific discoveries or to a mature exchange of ideas. It isn't worth it...

@TheDanishGirl hey DG, good to hear your diet helped your H, ill give it a try. Is ur h noise induced?

No wonder why people are asking to ban him.

When i thought i was having some kind of progress, life throws me back to a greater hell...

Holy jesus after a thunder that seemed like explosion T is so spiked...

To me pain hyperacusis is like more an injury, where sounds make that injury worse, that's why TRT isn't effective treating it and time in silence makes it better.

@MrCrybaby That's what I'm talking about bro! You look great, nice knowing you better. :)

@MrCrybaby get over it and show the world your beauty bro xd

@slimsanghvi Honestly? Biggest tip is cancel the appointment lol. Jastreboff is completely outdated, TRT has shown to be no more effective than placebo. In the end of the day you're going to spend money, risk a setback/spike with loud exams, and end up in the same only option regardless of...

It's complicated, pain hyperacusis has a delayed effect, I have like 20 LDL and heard a hammer hitting a wall, at the moment had zero pain, three hours later hell came...

@Angel377 Hey hang in there... Things can get better and if they don't there will be help sooner than you think!

Hey I'm so sorry you're dealing with something tough like CFS and with tinnitus on top of it... I understand your pain. I've been home bounded for 8 months due to hyperacusis. By the way do you have it too I suppose? Or is your tinnitus so severe that it's debilitating you therefore making...

Oh @Contrast, it's a pleasure to see people like you here. Thanks for spreading the truth around. It's time to people stop blinding defending outdated stuff and accept what research is showing us, it breaks my heart that the huge majority of MD's still believe in that outdated crap...

Before anything I'd like to tell @Lane that you have my full respect and sympathy for living with ME/CFS, I have pretty extreme and crippling hyperacusis and even so I can't imagine how hard must be living with such conditions, you're a warrior and your struggle is totally recognized by me, I...

Hey jazz, thanks for keeping up the thread, it's pretty cool! I'm a pianist since I was a kid so it probably influenced. No, I was a professional fighter/teacher before this and had to quit it all sadly, but hey, life goes on! :) Wish you the best mate.

That's really unusual to me tbh, if it was from hyperacusis, putting pressure wouldn't help at all imo... Do you have issues with other sounds around 60-70 dB? Wish you the best!

Before my giant setback I was like that too, talking with plugs make it hurts more because of the occlusion effect :/ BTW at the time I had the same doubt if it was mostly my voice or others, and my conclusion was definitely my voice being worse than others, making both combined being tough...

So, time to get over my shyness :p Before crippling hyperacusis Some BJJ lol (I'm in the white Gi) Post crippling hyperacusis with with super sexy muffs :p

@OnceUponaTime Joyce and Ben's story is beautiful, they had plastic plates and forks only at the wedding! But being realistic, holy s@#$ the odds of finding someone from your town with hyperacusis are sooo low, they were unbelievable lucky! Thank God for those who have tinnitus only, the...

I honestly have no idea how I ended up so fucked up with 26 yo

@FGG omfg and he had the balls to say you're the narcissist...

Hey man you have had it longer than me, I have a preeeeetty bad case of hyperacusis and never felt any hearing loss or even suspected... Never made an audiogram tho.

Wouldn't moving to a small town give you better chances of getting better? I mean, it would be way more quiet, also less to worry about.

It's complicated, but if you think about it that's who you are now, you have to do it to don't get hurt, and someone who isn't a jerk would totally get it. I'm not sure if mine was due to noise exposure or to meds, but what made it extreme was noise. If you feel you're getting worse, the most...

@Orions Pain I believe that you can find someone who doesn't like going out too much, there are people with this kind of life style even in big cities! You're not a burden, it's who you are and I'm sure you'll find someone who'll love you despite of your issues. My hyperacusis is extreme and...

Is this true real life? Is this just fantasy? Caught in a landslide, no escape from reality...

@MarkLud Hey Mark, sorry about the delaying to answer. Thanks for your feedback about ur story and how you deal with it. If I may ask some questions, is your hyperacusis loudness, pain or both? Do you have long standing burning and pain symptoms after loud exposure or only your tolerance...

Just wanna vent. Having extreme pain hyperacusis with no hopes of getting better is so devastating.. Sometimes it doesn't seem real, like I'll wake up from this anytime soon, seeing the extreme cases living in isolation and totally crippled for years without a change makes me so sad... Peace...

So FX-322 won't be good for those whose problems are caused by ototoxicity :( I love being myself.

Broken ear, broken heart, broken soul...

What I've read about this is that when you wake up you are more sensitive because of silence while sleeping and at the end of the day your ears are tired... It used to be like that for me too.