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Yeah gave an update on the last page. Had surgery to remove part of the lateral tubercle of my c1 and some calcified ligament/muscle in my neck that was massively compressing my IJV. they only did one side for now, I have follow up in a few weeks to see if the vessel has been cleared and...

Anyone could work. Make sure to reach out!

Figured I'd update this. Just had surgery about a week ago to remove the compression on my internal jugular vein. It's bilateral but they insisted on only doing one side at a time. So far the wooshing is still there, but they said that's to be expected for a few reasons- 1. Tons of swelling, and...

Ask as many questions as you'd like! The cta was the initial scan I did thanks to tiniturtles guide. Funny enough my initial doctor who was at Lahey Burlington told me I was just anxious and it was all in my head and rushed me out of there. Got my scans on a disc and found a neuro...

Ooooo that's perfect that's the gold standard for imaging outside of a traditional angiogram.

That CT with contrast can be useful, but I'm not 100%. Was it a CTA? What you want to do is get those scans on a disc and bring them to Mohamad, if it's there he will absolutely find it. If it's not enough he'll order some tests for you. I strongly recommend at least giving him a visit.

Absolutely. Mohamad Abdalkader out of BMC helped me. He's a really great doctor and a very compassionate guy. Can I ask what tests you've had and who you have seen?

Stenting is great depending on the condition. It's a super simple procedure and it's easy to monitor. What is your condition? I don't remember tiniturtles exact condition, I believe it was DAVF. according to my doctor my condition is incredibly rare in terms of reports/literature. I have...

Thanks! The visual symptoms were the ones that triggered me to really start looking again. As I mentioned this is the abridged version but it's been over 15 years of doctors telling me I needed anxiety meds so every few years I'd get remotivated with new symptoms and would take a deep dive...

It's a little whooshing, like water rushing by my ear in sync with my heartbeat. Valsalva pushes it past for a second then it returns. They're searching now for the best angle. There are only a handful of cases. Stenting is a possibility but results have been mixed. I'm pushing for a...

You can absolutely pm me. Did you seek the opinion of a neurointerventional radiologist?

I've considered craniocervical instability because I have extreme crepitus and crunch in my neck. My cta revealed an incomplete fusion of the posterior arch at c1 and the angiogram confirmed my c1 transverse process is compressing my internal jugular vein between it and the styloid process...

This will be the abridged version and I'll answer any questions people have. I've had tinnitus (ringing), pulsatile tinnitus (whooshing), occasional bouts of nasty vertigo, brain fog, and other fun symptoms for over a decade now. They all basically started at once. I always assumed the...

Do you take ssri/snri?

Are you experiencing this?

Ok so why are you commenting on a thread regarding pulsatile tinnitus? The author of the thread is discussing pulsatile tinnitus which is a totally different condition than tinnitus. And I'll say again, the idea that MRIs induced tinnitus is asinine and pure fiction. That is dangerous...

So as I said you had an MRI not an MRV/MRA or a CTA. An MRI is mostly useless for PT outside of major issues such as tumors. So first off you got the wrong scan for your issue and I'm sure you haven't seen the proper doctor either, ENTs are not the right doctor for PT. Either way you placing...

There is a difference between tinnitus and PT. If you have PT you almost certainly can find the cause. Do you have PT or ringing? If you got MRI did you get an mra/mrv? If not an MRI really isn't gonna show you why you have PT. Also an MRI is NOT going to make pt worse factually. It could...

If you're really worried about MRI in terms of sound and length you can get a CTA, but the radiation on that is way more damaging than anything an MRI can do.

Most pulsatile tinnitus is benign, but it is absolutely worth looking into since it's new.

Probably not. How long have you had it? It's definitely worth getting a scan done and seeing a specialist.

I think a huge chunk of people who have PT only have it situationally. I have it and it only appears when my neck is turned a certain way or if I'm laying down in certain positions. It has to do with blood flow and blood pressure.

I'm convinced my neck is the source of my tinnitus. A CT scan revealed an incomplete fusion of c1, and my tinnitus is modulated based on my neck/jaw position. I've read lots of studies of neurovascular decompression having great results on tinnitus. Who is the specialist I should see for this?

How does one go about signing up to participate?

I'm doing the angiogram in a week and already had a CT done. Is the angiogram significantly clearer?

Are you also in mass? I'm currently working with Dr. Abdalkader at Boston medical. Brilliant doctor.

They want to run some more tests I may have that as well. I've asked before but what were your other symptoms? Any vertigo? Any ringing?

You had a dilated emissary vein? I just got an update actually for a few more findings. High riding jugular bulb and prominent condylar vein.

Fortunately mine is benign. He can basically seal off the vein if the PT is bothering me, but otherwise no need. I'm just glad it's not something dangerous

I went through the same thing Dr. Abdalkader found the issue instantly it was so surreal. I wonder if you could email him and find a way. What kind of doctors have you seen? Have you seen a neuro interventional radiologist?

Been a few weeks since this post so hopefully you find this. Dr. mohamad abdalkader out of BMC is absolutely brilliant. I had a cta done in January, have seen multiple doctors who couldn't say anything. Spent 5 minutes with Dr. Abdalkader and he found my issue instantly (oversized mastoid...