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I am gonna be so mad if histamines end up being one of the answers in the puzzle of tinnitus...

This is no life.

Argh! Antidepressants can be so helpful especially since most of them are also antihistamines but they make my dry eye worse!

I don't give out this personal poem often, but I might as well stop holding onto it as I have for years. Maybe it'll help someone. Or, if I'm gone someday, a piece of me will not be locked away forever :) “I live with entire universes inside of me” - a poem by me I live with entire universes...

How many times have I posted to this thread in the last 10 years? Another bout of hearing loss and more tinnitus despite protection. It just amazes me that a) I can't go a year without losing hearing and b) normal sounds that are non-damaging seem to cause me hearing loss... Truly it does feel...

Getting more used to my hearing aids. I need to start learning ASL but the anxiety over this whole thing is so paralyzing.

Eh, there's a lot of people who don't get to enjoy their short time here, as dismal as it sounds. We like to ask "Why me?" when really the answer is "Why not us?" There is nothing special about anyone in the end. Everyone is susceptible to get whacked with a disability. If it doesn't happen...

Progressive hearing loss is a thief. It feels like I need to become a new person to accept that one day I will be deaf.

You sound like me. :huganimation: All the evidence from birth till now has proven that I really wasn't SUPPOSED to be here. I was never actually supposed to even make it out of the womb or be created in the first place. But somehow, I am here. I sometimes genuinely hopeful it means that I'm here...

I think when we are in pain, or suffering, we all sometimes become a bit of a pain in the arse. That's why it is so important for human beings to have empathy, apologize when we need to, and give each other as much grace as we can.

Yeah. I feel like my other symptoms just make dealing with severe tinnitus worse. Funnily enough, I did some researching a while back and found that with Autism and ADHD, the potassium channels and such (kinda like the ones that are supposedly whacky for tinnitus) are also somewhat messed up...

Yes, but also no. AI/AGI will only have as much intelligence as humans do to start out with. And even the smartest of us as humans have limited knowledge. We STILL do not understand even a tenth of what there is to know about the human brain. AI can scale up the research but they can only work...

9 years of just worsening T and hearing loss. Why was I born? Why am I here?

First off, what does neurodivergent mean? So it's all one big umbrella really. I've also been wondering if there is a sort of link between tinnitus and neurodivergence (aside from the obvious ones where some people on the spectrum have sensory processing disorder or sound sensitivity)...

I feel you on the neurodivergent bit. I recently got a new therapist and it was just the first appointment but when I detailed my struggles with my diagnosed ADHD and possible Autism and then told her that was barely scratching the surface of things I have had to struggle with my whole life or...

You and me both <3 When it comes to tinnitus, I feel like you and I are two peas in a pod, so to speak. I'm sorry that your condition has worsened. I wish I could say mine was any different. Only thing keeping me alive is people I love. I sometimes pray. I don't know who I'm praying to...

I have had a lot of sleep paralysis in the last couple of years. Luckily I had heard of it before they started happening and when I feel it happening, I make sure to never open my eyes. I don't want to see the hallucinations when I'm already feeling/hearing them lol.

Usually I only get the feedback during audiology tests because they give pure tones for the most part. I can't tell you what tones those are but maybe I can get my audiologist to give me a copy of my next hearing test. My hearing loss is soooooooo bad. I'm amazed I can still hear speech.

I had that experience with my audiology test and my audiologist said it is likely feedback from damaged hair cells. The sound hits them and because they are damaged they make a sort of feedback noise. So likely you have some hair cells in your cochlea there that are already damaged :(

I remember you too :) How many tones do you have now? If I concentrate (some of my sounds morph together with others because of how close in pitch they are), I am up to 15.

Through all this pain, one thing is interesting to me. I was going over some of the articles that Elouise Koops (who was a benefactor of the Daniel Ballinger Memorial Fund we raised years ago) on the neuroplasticity of tinnitus. I am blind on my right side. I was born with a congenital defect...

I wish I could have your mindset Glynis. :( You've always seemed to handle tinnitus far better than I ever did.

Hello again. It's been 8 long years. I am now considered severely and profoundly deaf and I wear hearing aids. I can still hear speech level so at least I can talk to people without wearing hearing aids. I am just so... hopeless. My tinnitus is beyond catastrophic levels. So beyond the scope of...

Hey you, I remember you too. I'm sorry you were still suffering. I feel bad now that I was enjoying two years while you were stuck here by yourself. Just wish this would go away. The hearing loss I could eventually deal with. This worsening is different this time. It's so intrusive that it...

Wish I had a clear answer Brian. All tests normal save for audiograms. Fixing to go in for another one soon to see what the damage is now but it's a whole process since insurance in the USA is a bit of a nightmare especially since COVID-19. No tumors. No deficiencies... Just losing like huge...

Hey guys. Some of you might remember me, some of you will not. But I'm back. Back again in the depths of despair. Worsening hearing loss and worsening tinnitus. I don't want to scare the true newbies. You guys will likely take the normal route of getting better and moving on with your lives...

Tinnitus still screeching and screaming away. The fact that I can sleep at night after all these years is still nothing short of a miracle.

Oof. Lost more hearing again. Guess dead silence during a power outage makes ears work harder :(

Having tinnitus in the silence and darkness of a power outage is not fun at all.

I have also read and agree with what Greg has said regarding MRIs and MRAs. In my experience and others' experience, CTs are a bit quieter and "safer" but radiation is still a big concern as well as reactions to contrast dye. No test is 100% safe for everyone but I would say that recommending...

I have habituated again to a point where I can now watch videos on YouTube on good ear days. Any recommendations for hilarious videos to get me laughing. Laughter is the best medicine! (Feel free to send me videos with any type of humor. I'm game for almost anything but please refrain from...

Gotta Area 51 it. They can't stop all of us ;) :LOL:

In the United States, probably in the thousands of dollars or even hundreds of thousands because I assume that a lot of insurance companies will not pay for it.

In relation to that, this article is interesting, sobering, and informative on the inferiority of using mice models.

Having a huge hunch right now that brain inflammation is the difference between hearing loss with tinnitus and without tinnitus.

me: Logs onto Tinnitus Talk to catch up on what I've missed me: Sees annV actually say "Suck it" me: "...Am I somehow in an alternate timeline???" Jokes aside, I really really hope that the BTA actually listens to the patient base on this one rather than just doing whatever.

Let me know how it turns out. I have the results of my brief stint with turmeric and I'm gearing up to give it another go (I am poor and ran out of money to buy more).

Brain inflammation might make sense for me alongside the hearing loss because ever since getting hearing loss/ tinnitus, inflammation symptoms in other areas of my body started and have gradually gotten worse (though I'm not sure the worsening is correlated with my subsequent incidents of more...

if anyone's been wondering what i've been, i've just been taking a mental break away from here. gotta survive somehow.

Done :)

Trying to write but my sinuses/allergies seem hellbent on forcing me to take antihistamines which make me sleepy

Another ear infection. Super.

ETD sucks so much. Two straight days of tinnitus so loud because of the fluid in my ears...

Sailor Moon Rose of Versailles Ancient Magus Bride Trinity Blood Oniisama e Anohana: The Flower We Saw That Day The Secret Life of Arietty Spirited Away Hotarubi no Mori e Say I Love You Kimi ni Todoke Kamisama Kiss Inuyasha Violet Evergarden (highly recommend this one!!) Nana Revolutionary...

I take 4-5mg of prednisone on days my ETD acts up and causes fluid buildup in my ears (which makes these horrible squeaks and shrieks sound off in one of my ears). It kinda decreases the inflammation enough so that the fluid can start draining out and I can have some peace.

The official word was Sudden Adult Death Syndrome (SADS). :(

Mmmm still not something about yourself, though that is a positive. I'll take it. :) (I was hoping for a meme or two out of you since you like them hahah)

You didn't follow the rules! You have to post one "good" thing along with it! ;)

None only worsening. However, you failed to post what you've learned ;) Gotta follow the rules!

What I've learned: I let my emotions control me more often than not. I am not good at saying no or speaking up for what I want in real life because I'm afraid of inconveniencing others or making people dislike me. I wallow in my own despair a lot. Despite everything, the fact that I am alive...

Since getting tinnitus, no matter your severity, what have you learned about yourself? Rules: You can post as many things you've learned as possible but you must at least post one "good" or positive thing that you've learned in each post you make. Sounds like a challenge but I think, if you...

That and the state of healthcare systems across the globe. I am no expert on healthcare in other countries besides my own but I can tell you that healthcare in the USA is walking a tightrope right now due to political divisions and such. If Frequency Therapeutics's treatment makes the market, it...

That could still be in Frequency Therapeutics's favor. From what I understand, they are being REALLY CAREFUL not only with their trials but also their information, their press coverage, interpreting data, etc... Regain might be going faster but sometimes faster isn't better. Sometimes faster...

I literally just spat out my drink! Holy crap!

You can also make a comment or two in the comment section below the article itself on the STAT site. https://www.statnews.com/2019/04/08/michigan-wins-stat-madness-popular-vote-tinnitus-treatment/#comment Make your voices heard. Do not take this lying down. We are truly grateful for any crumbs...

In the meantime, I'm calling them out on Twitter. My account there is a personal one and isn't affiliated with Tinnitus Talk so this forum won't be getting in trouble. But I'm already calling them out. I've had enough of this kind of crap and I will not take it. I just lost more hearing over...

I've had ETD for about 5 years now with no known causes (did allergy meds and everything). It showed up after a really bad cold (before I got tinnitus) and never fully went away. I'm currently trying turmeric supplements for inflammation. So far I'm seeing some positive results but I'm not...