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  1. Tavia R

    4th of July has always been my favorite, I'm in love with fireworks. But I hate it now! I can't...

    4th of July has always been my favorite, I'm in love with fireworks. But I hate it now! I can't get away from the noise or pain!
  2. Tavia R

    Stupid. Freaking. Migraines. I'm glad that I had that two day break from the constant battery...

    Stupid. Freaking. Migraines. I'm glad that I had that two day break from the constant battery, but I think I'd give my leg to have it again
  3. Tavia R

    It's amazing isn't it? It's like your whole soul dissolves into the melody. At least I felt that...

    It's amazing isn't it? It's like your whole soul dissolves into the melody. At least I felt that way when I played my first song in 6 months. Mine was Otherside by Red Hot Chili Peppers. What was yours?
  4. Tavia R

    I thought once I got used to it my Alice in Wonderland Syndrome would be cool, but it just...

    I thought once I got used to it my Alice in Wonderland Syndrome would be cool, but it just scares me every time. Minor episode every day now
  5. Tavia R

    I’m completely okay with the pain coming back right now. For the past 2 days I’ve felt like a...

    I’m completely okay with the pain coming back right now. For the past 2 days I’ve felt like a real person again, I’m living. Hallelujah
  6. Tavia R

    My migraines technically haven’t stopped the whole time I’ve been pain free, but the H is coming...

    My migraines technically haven’t stopped the whole time I’ve been pain free, but the H is coming back as the M intensifies.
  7. Tavia R

    Doc said noise exposure won’t make H worse in the long run, but too much can trigger a migraine...

    Doc said noise exposure won’t make H worse in the long run, but too much can trigger a migraine. So yeah I’m totally risking triggering another migraine and going back to the pain, but it’s more than worth it.
  8. Tavia R

    Look down at my other comment to see the meds.

    Look down at my other comment to see the meds.
  9. Tavia R

    So the med I'm taking is gabapentin (a nerve pain medication and migraine blocker). I've been...

    So the med I'm taking is gabapentin (a nerve pain medication and migraine blocker). I've been told this is ototoxic as of yesterday so keep that in mind. But at the same time I was put on propranolol, another migraine blocker, so I don't know which one is stopping the ear pain. I am still having...
  10. Tavia R

    Yes I know, it's amazing! Turning on my favorite song and just hearing it again put me in tears...

    Yes I know, it's amazing! Turning on my favorite song and just hearing it again put me in tears. I feel like the weight of the world came off of me, so even though it's settling back on again I feel okay. One amazing day is all I need
  11. Tavia R

    Thanks LindaS! If you guys already know, I don't have hearing loss H, I have migraine H. None of...

    Thanks LindaS! If you guys already know, I don't have hearing loss H, I have migraine H. None of the many drugs I've tried have touched it and suddenly out of the blue these new ones started working! Feels good to finally have a break, even though right now a new migraine is starting up again.
  12. Tavia R

    MY MEDICATION IS WORKING! MY PAIN IS REDUCED TO THE LEVEL IT WAS 6 MOTHS AGO! I'M LISTENING TO...

    MY MEDICATION IS WORKING! MY PAIN IS REDUCED TO THE LEVEL IT WAS 6 MOTHS AGO! I'M LISTENING TO MUSIC!!!!! PRAISE GOD HALLELUJAH!
  13. Tavia R

    Oh then you will love them, they should be discrete (if you don't get florescent pink like I...

    Oh then you will love them, they should be discrete (if you don't get florescent pink like I did) so walking the streets with them will be great. Be warned though, they told me replacing EACH filter was $50 and that was through my doc who was the best deal.
  14. Tavia R

    Thanks aot, means a lot from you!

    Thanks aot, means a lot from you!
  15. Tavia R

    Y'all I think I'm seeing improvement! But is it too pessimistic to say it's not enough to really...

    Y'all I think I'm seeing improvement! But is it too pessimistic to say it's not enough to really make a difference? I'll take it any day tho
  16. Tavia R

    I feel you there, sometimes it feels like if you could only get a break for one day you'd...

    I feel you there, sometimes it feels like if you could only get a break for one day you'd recover enough to handle it again. I hope you get a break soon
  17. Tavia R

    Photo Album of Tinnitus Talk Members

    Haha I'm flattered, but thank you I'm good. Though you'll totally have me blushing for a good while :LOL::oops:
  18. Tavia R

    "The Lord did strengthen them that they could bear up their burdens with ease, and they did...

    "The Lord did strengthen them that they could bear up their burdens with ease, and they did submit cheerfully to all the will of the Lord"
  19. Tavia R

    Vitamins to Take Prior to Noise Exposure to Prevent Hearing Damage

    Hell yes! Live your life, don't let anyone tell you it's a bad idea! I mean it totally is and all, but it's wonderful :p Good luck!
  20. Tavia R

    Yes! Those things are the absolute best! I got the 25 dB filter even though they tried to talk...

    Yes! Those things are the absolute best! I got the 25 dB filter even though they tried to talk me out of it, said I wouldn't be able to hear people talking. I still can jut great, but I have perfect hearing so that helps ;)
  21. Tavia R

    Taking Benzos for Hyperacusis Until Better Treatments Are Available

    Just a thought for you @jordan chis, Do you feel maybe that one of the reasons you are struggling so hard with coping these past two weeks is because of guilt and regret from your music in your car causing it? I can imagine it would be very hard to deal with emotionally just going over that...
  22. Tavia R

    Hyperacusis in Early Stage: Give Ears a Break or Expose Them to Everyday Sounds?

    So sorry Linda, I never saw that post of yours, it got lost in my other notifications! Well I'm sure you've already figured it out for yourself, but I've found that with recovering from my family getting home took 2 days, an MRI machine took 4, and a 10 minute plane ride took 2 weeks. Just...
  23. Tavia R

    God be with you hon! It's comforting to know He already went through all this, knew us...

    God be with you hon! It's comforting to know He already went through all this, knew us personally, and still saw fit to give us our trials. He definitely knows something we don't. I'm sorry you're not doing well though, message me anytime, I mean it
  24. Tavia R

    Brenda I am seriously curious if your T has anything to do with migraines. You've made so many...

    Brenda I am seriously curious if your T has anything to do with migraines. You've made so many comments that make me think that. I can elaborate if you'd like.
  25. Tavia R

    Oh I wish I could send you more help than words, I'd trade places with you emotionally if I...

    Oh I wish I could send you more help than words, I'd trade places with you emotionally if I could, give you my happiness. Have you read any of my posts about the paper I typed up to brainstorm who I was, my identity, aside from the pain? That was the turning point in my depression, it took a...
  26. Tavia R

    I should be much more depressed than I am. What a miracle that I am so happy even though I'm...

    I should be much more depressed than I am. What a miracle that I am so happy even though I'm struggling so much. Praise God
  27. Tavia R

    Hi @Kain, I got the nitrous oxide for my H pain when I went to the dentist. DON'T! Tubes of...

    Hi @Kain, I got the nitrous oxide for my H pain when I went to the dentist. DON'T! Tubes of rushing air sit on your ears, I had muffs too
  28. Tavia R

    To Those Who Are Now or Have Been Working from Home, How Are You Dealing with Conference Calls?

    K I tried the apps, on iPhone I had Rogervoice and myCall-to-Text available. Both freaking sucked and we’re obviously made by the same people, they were exactly the same. It only picked up on a third of what I had my mom saying on the other line, if I wouldn’t have had the volume on and was...
  29. Tavia R

    Does Life with Tinnitus Actually Become Better?

    Hi Emgee, there is no shame at all that you have only had tinnitus for 3 months. My H only became debilitating 6 months ago and it feels like years have passed. There's no time limit as to how long you have to suffer before you are valid, suffering is suffering and it deserves compassion -...
  30. Tavia R

    Earplugs in the Shower (the Occlusion Effect): Don't Do It!

    Tara I know how you're feeling right now. I wish saying that could make it feel better, take some of the hurt away. I really think, if you are not already seeing one, that a therapist would do you a world of good. I seriously don't know how I'd be getting by without mine. A therapist isn't...
  31. Tavia R

    I've made peace with H. Of course I'm still fighting tooth and nail to heal from the migraines...

    I've made peace with H. Of course I'm still fighting tooth and nail to heal from the migraines causing it, but I'm starting to learn to live
  32. Tavia R

    Wow, I've been reading the research articles about it, seems pretty legit. Thanks LilSass! Hope...

    Wow, I've been reading the research articles about it, seems pretty legit. Thanks LilSass! Hope you're well
  33. Tavia R

    FrontRoomFanaic how you been? Haven't seen you in posts in a while, hope you're doing okay

    FrontRoomFanaic how you been? Haven't seen you in posts in a while, hope you're doing okay
  34. Tavia R

    Photo Album of Tinnitus Talk Members

    Daaaaaaaang girl! Absolutely gorgeous! But I understand, I miss eyeliner, I just cry from pain too many times a day to be bother to deal with it anymore.
  35. Tavia R

    Specialist Says Treating Migraines Will Cure My Hyperacusis? I'm Skeptical

    My hell, fire them they sound awful. I had an ENT that was in the same category of "useless doctor" and he ended up making me a lot worse so I fired him and found a new doctor. Best decision ever, my new one is great. Just keep firing and hiring till you find someone worth a crap Have you...
  36. Tavia R

    Hyperacusis in Early Stage: Give Ears a Break or Expose Them to Everyday Sounds?

    Hi hon, sounds like we're in the same boat so I'll tell you just how I've learned not to rock it too hard. Yes you need to be exposing yourself to everyday noise! My family went out of town for a week and I had complete and utter silence that whole time and when they got back I was dying! Oh it...
  37. Tavia R

    Earplugs in the Shower (the Occlusion Effect): Don't Do It!

    I'll tell you how I live and hopefully some part will speak to you. First, I have to believe that life is beautiful, that it's worth it. I believe that there are moments and people that make it so. I have my family that loves me so much and a dear friend that comes rushing over when I'm having...
  38. Tavia R

    Earplugs in the Shower (the Occlusion Effect): Don't Do It!

    Not at all hon, this isn't a pissing post competition as to who has it the worst. Right now I feel guilty acting like my life is falling apart because my dear next door neighbor is going through chemo and radiation and may not survive. Could you imagine? We just have to acknowledge the fact that...
  39. Tavia R

    Earplugs in the Shower (the Occlusion Effect): Don't Do It!

    I understand, traveling is really hard for me too because of how much pain the noise of driving puts me in. However, my favorite place in the world is a three hour drive from where I live and I know that the drive up there going to be excruciating, but I also know that the drive home is never as...
  40. Tavia R

    To Those Who Are Now or Have Been Working from Home, How Are You Dealing with Conference Calls?

    I recently heard these apps, I haven't tried one yet, that were developed for hard of hearing people. They transcribe phone calls in real time and put the words up on your screen. I really want to find a good one so I can turn the call volume way down and rely mostly on reading the words. Maybe...
  41. Tavia R

    Earplugs in the Shower (the Occlusion Effect): Don't Do It!

    Y'all listen to the ridiculous thing I tried a few months ago when I was trying to figure out how to shower. I can't shower anymore because it's too loud for my hyperacusis and earplugs don't cut it. So, I had to figure out how I was going to get my very nice 31 dB reduction ear muffs in the...
  42. Tavia R

    Vodka Lowered My Hyperacusis

    K so excuse the underaged Christian over here who has never touched alcohol in her life, but I'm to the point of trying to get a medical marijuana licence and sobbing in every doctors office I'm in so y'all know I'm desperate for pain relief. How drunk is low key tipsey, I know obviously you...
  43. Tavia R

    Photo Album of Tinnitus Talk Members

    Oh I miss wearing those earrings! Can't wear anything bigger than a stud with ear muffs, maybe developing hyperacusis was the universe telling me to calm down with my hoop choice haha :p
  44. Tavia R

    Photo Album of Tinnitus Talk Members

    I can't find a comment button for "too hot to handle" but I seriously need one right now!!!
  45. Tavia R

    Hope you're all good up in canada ;x

    Hope you're all good up in canada ;x
  46. Tavia R

    They already filled out my botox papers because I started crying in the middle of my appointment...

    They already filled out my botox papers because I started crying in the middle of my appointment (I had to drive 30 minutes and driving hurts my ears too bad) so they're like honey as soon as you call we'll tell the insurance to go to hell and get you botox ASAP.
  47. Tavia R

    Oh tell me about it ;D I went in for an emergency appointment today and they told me no matter...

    Oh tell me about it ;D I went in for an emergency appointment today and they told me no matter what pretty much in one week I can call and tell them I hate it.
  48. Tavia R

    Adrenaline Rush Preventing Me from Sleeping at Night

    My cousin has this nocturnal adrenaline shot, but hers is caused by an autoimmune and thyroid disorders I believe. I would more suspect that you would have developed some kind of condition that helped in the bringing on of your tinnitus as well, it just wasn't so obvious because acoustic...
  49. Tavia R

    Alice in Wonderland Syndrome (AiWS) — It Was Trippy Y'all

    K so I've heard about this disorder and I though it had sounded cool as hell, but it's so rare it's just one of those things you hear about and just forget you know? Well I'm sitting in my room last night just typing on my computer when I look up and lo and behold my shelves by the door way are...
  50. Tavia R

    But I don't know if I'll keep taking meds while doing botox, I'll bring that one up to Doc...

    But I don't know if I'll keep taking meds while doing botox, I'll bring that one up to Doc. Thanks honey
  51. Tavia R

    The propranolol is gonna lower my blood pressure like crazy but I already have really low blood...

    The propranolol is gonna lower my blood pressure like crazy but I already have really low blood pressure and get dizzy spells so they said as soon as I start passing out I can stop taking it and call the insurance, tell them go to hell, and to pay for the $600 botox every 3 months for the...
  52. Tavia R

    we've tried amitriptilyne (never again), topiromate right now which I want to get off of because...

    we've tried amitriptilyne (never again), topiromate right now which I want to get off of because I literally never feel hungry ever and have to force feed myself. and I just barley got on propranolol two days ago too. This is my third med and when I get terrible side effects (because I will for...
  53. Tavia R

    Zopiclone Worsened My Hyperacusis

    Yes I am and I am all the better for it! Satan himself made that crap, I wouldn't recommend it for anyone. I remember you said you were taking it for your trigeminal neuralgia through, I hope you were able to find another medication that was able to alleviate that, you know, without screwing you...
  54. Tavia R

    Surgery to Make You Deaf for Relief from Hyperacusis — Any Doctor Willing to Do It?

    Honestly the thought has crossed my mind and assuming they were willing (I have absolutely no concrete research to back this up this is just my own logic from my background in anatomy and biology speaking) I don't think it would be possible surgery wise. With removing eardrums, that's all find...
  55. Tavia R

    Y'all I cannot be home alone! I'm seeing/hearing stuff every two seconds because of T and VS and...

    Y'all I cannot be home alone! I'm seeing/hearing stuff every two seconds because of T and VS and can't just turn on music because of H. Ahh!
  56. Tavia R

    Home alone and heard a door open! You know how hard it is to listen for an intruder when your...

    Home alone and heard a door open! You know how hard it is to listen for an intruder when your tinnitus is so loud!? Didn't find anyone tho
  57. Tavia R

    Hahaha gotta be better than in canada, I HATE the cold! I can't even stand it here durring...

    Hahaha gotta be better than in canada, I HATE the cold! I can't even stand it here durring winter so props to you hon. And yeah, life is nothing but misery, but at least she's beautiful. ;)
  58. Tavia R

    I find it amusing that when the entire earth is too loud what always comes to mind is Billy...

    I find it amusing that when the entire earth is too loud what always comes to mind is Billy Corgan's "the world is a vampire sent to drain"
  59. Tavia R

    Zopiclone Worsened My Hyperacusis

    Do you feel that the reason medications have such a heavy hand in your hyperacusis is because the origins of your disorder is from chemo and not acoustic trauma? Just a thought, the amitriptyline just screwed you over too. I'm just saying it's possible you could be very sensitive to meds - not...
  60. Tavia R

    Specialist Says Treating Migraines Will Cure My Hyperacusis? I'm Skeptical

    Thanks for the info! Yes the 90% seems so odd to me as well or else you think everyone on here would be talking about migraines? I tried to ask so many questions to this hyperacusis "specialist" but he just ushered me out of the office as he was apparently unqualified to treat me. Who knows...