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Thanks for your kind replies. Sorry to anyone that is going through this as well. I honestly wouldn’t wish it upon anyone. I personally think I’d handle the situation slightly better if I at least knew exactly what was causing my issues but the not knowing is half of the battle. I’ve now...

My pulsing tinnitus began last year in February. It was there every day but I did get moments of silence. Over the months I felt it was getting slightly better as I was having days of silence rather than the odd moments. However, over the past month or so things have got bad again. The...

Hi, Please can someone give me some advice and guidance on where I need to go from here? Any suggestions are welcomed at this stage because I’m at my wits’ end. I will try to keep this post as short as possible but please bare with me. I am a 37-year-old mum that lives in the UK. No...

Hi Andrea, Thank you for your post. Your symptoms sound a little like mine. Just a quick question for you please? Is your ringing tinnitus also linked to the SSCD? I’ve seen quite a few GPs, ENT consultants and a Neuro surgeon but I still don’t have a clear certain diagnosis. I developed...

Hi, Thanks for your post. I was wondering the exact same thing because I’ve noticed that my tinnitus is bad during my period too. Very loud. I was wondering if my pill (Norgeston) was the cause to my issues but my GP doesn’t think so. I wish I knew the reason behind my onset. Steph, your...

Hi, Are stents permanent or do they need replacing eventually? I’m so happy that you have been diagnosed and have had some treatment. I still haven’t had any answers or diagnosis myself yet. I had a lumber puncture but my levels were all normal apparently so I’m still none the wiser as what’s...

Congratulations. That’s amazing. I’m very happy for you :-)

Hi, I had the lumbar puncture done as I’ve been suffering from pulsatile tinnitus and regular tinnitus for months and it was suspected I had a raised ICP level. I regret having it done now as I feel worse than I did before. The tinnitus is louder and more invasive and my head feels like it...

Hi all, I had a lumbar puncture done last week but have had really bad worsening of tinnitus ever since. It’s even louder than before and the tones are now mixed and keep changing. I’m concerned that this huge spike is now permanent and I can honestly say that I regret having the lumbar...

I’m located in the UK. I think I possibly have IIH especially because of the eye symptoms. This has been mentioned by the consultant but nothing has been confirmed yet as I haven’t had any of the tests done. An angiogram and lumbar puncture are both what have been suggested. Regards.

Thanks. There’s only one doctor I know of over here that can perform one. It’s the risk of a stroke that bothers me. Do you know if the angiogram can make the tinnitus any worse? I asked if I could just have the lumbar puncture done but he said no and that he would only do the lumbar...

Hi. Can anyone please share their experiences with their cerebral angiogram? I’m curious to know about the procedure and how you felt during and after etc? I’m awaiting an appointment to have one done but keep worrying about the risks as I’ve heard there is a risk of stroke. My consultant...

Are you in the UK? I think stents sound promising but I don’t know too much about the procedure itself at the moment. I’m very worried about the angiogram as the procedure sounds a little scary. But I guess it’s worth having done if it means a diagnosis and hopefully a treatment. Please keep...

Hi @Taneisha Have you had an angiogram done at all? I have pulsatile tinnitus and am awaiting an angiogram. I’ve been told it’s possible that I will need to have a stent too. I’m also awaiting a lumber puncture test. Hope you get some answers soon. Regards

Thank you:-) I will take a look. So I wonder if your normal tinnitus will subside once your pulsing tinnitus is rectified as the blood flow should hopefully then return back to normal. Fingers crossed. Regards.

Hi Steph1710, Just a quick question regarding your “normal” tinnitus, please? Did that begin at the same time as the pulsatile tinnitus and do you have any idea what could be causing your “normal” tinnitus? I first got pulsatile tinnitus and then “normal” tinnitus about six weeks later...

Thanks for the all the info. I’m glad you’re getting sorted and hope the rest of us get sorted soon too. Stay well everyone.

Hi Steph, I’m not sure where Nadia is from but I’m Living in England. What was your diagnosis If you don’t mind us asking and what hospital did you go to? I’m so glad you’re getting treated and have some answers. Stay safe and good luck with your treatment.

Hi sorry to hear that you are going through the same thing as me, it is horrible and I feel for you:-(. My ENT doctor basically told me the same thing as yours. I’m awaiting an angiogram and lumber puncture. Idiopathic intracranial hypertension is suspected. The angiogram sounds pretty scary...

Thanks. I just wanted to know if it’s possible for both types of tinnitus to go or if I am definitely stuck with this. It’s nice when I read that people have received treatment for theirs and it’s helped them. My doctor just phoned me but basically said it’s likely I’m stuck with mine as...

Yes you have. Many thanks. You have been a great great help because before hearing from yourself, I assumed that ENT were my last point of call. I just get really insecure days whilst waiting to be referred and guess I want reassurance that there is hope of it eventually going. Kind regards

Hi All, I’ve got a few questions that I’d like to ask please. 1) Can pulsatile tinnitus go away on its own? I’m concerned that the cause of mine isn’t going to be detected as I’ve read that this is the case For around 30 per cent of people. I’ve also read that it rarely goes away on its own...

Hi, I posted on here a while back about pulsatile tinnitus but now need some more advice please. I’m a 36 year old female with no known underlining medical conditions and recently started to get both tinnitus and pulsatile tinnitus. I’ve had an MRI scan and CT scan which both came back ok. My...

Hi Mandro, Sorry you’re experiencing this too. It isn’t pleasant at all. I wasn’t really getting anywhere with my GP and referral so I had to pay to see a private ent and paid for the mri and ct scan. For me I’m not sure what the next step is. Hopefully you will get some answers when you have...

Thanks. Its very concerning I can feel it rumbling away. I find it really difficult to describe what I’m Experiencing as I feel that it keeps changing. do you know what causes the blocked ear feeling at all? Regards and again thank you for your advice. I’m going to ring my dr again next...

Hi, Does anyone know why PT is worse some days more than others? I’ve noticed that some days I can hear it constantly, no matter how I move or what I do but then on other days, it’s more apparent when I turn my head to the right? Sometimes it’s really loud and other times it’s really quiet. It...

Good luck with your follow ups. Thanks again for your advice. . Regards

I did. Thank you. The information has really helped me. I called the gp and she agreed to refer me so hopefully it won’t be too long before I hear for an appointment. I just want to know what’s going on and hopefully get it treated. Thanks again

I forgot to mention that I don’t get any pain. the only symptoms I currently have is a very blocked feeling left ear with whooshing and then ringing in my right ear. Kind regards

Thank you for your replies. This is just horrible. It feels like it’s going to be a game of looking for a needle in a hay stack type situation as it seems like there’s a lot of things this can be. The ringing is horrible but I can just about handle it at the moment but the pulsing is...

Thank you. What tends to be the treatment for those things Mentioned and do they tend to stop the PT once they’re treated? My blood pressure was normal when checked when I saw the drs. Is it common for ringing to start in the other ear after the onset of PT as that’s what’s happened to me. I...

Thank you for the information. It is much appreciated.

Thank you for the reply. I will look into doing that. Are there tests that can check for problems like this other than mri and ct? Can medications rectify this sort of PT if it’s blood flow related? The ct and mri I had done didn’t show anything abnormal. Thanks again for replying.

Thank you for your reply. I don’t listen to headphones or go to clubs etc. I’m confident that this isn’t noise induced. It’s the pulsing Part in my left ear that’s bothering me a lot more than the ringing In the right ear as I can’t mask it with noise as I can even feel it pulsing and buzzing...

Hi. I’m new to this forum and am wondering if anyone can give me some advice please. 3 months ago I started randomly getting a whooshing type noise in my left ear whenever I turned to the right. I didn’t think too much of this to begin with but after a week I decided to see my GP. He...