Search results for query: *

Hey! I’ve read through some of your posts on here and you yourself describe things in a wonderful way! I know what you mean about renewed resolve, some days feel like simply getting to the next moment of hope that occurs because everything both in and outside ourselves is a chaotic blur, but...

Hi everyone, it’s been a while! Thought I’d stop by and see how everyone is doing. I’m not really sure what to say about my own situation, just that somehow things continue to get easier. Of course my brain is still ringing but I’ve noticed that the choice to be bothered about that is mine...

Hey, I’m doing ok I think, getting loads of rest and taking it a day at a time. I’m having a bit of time off work too. How are things with you? xxx

Thank you all so much for your kind words. Life really does throw us some curve balls, doesn’t it. It’s been an interesting time for sure. It appears there’s a lot of similarities between grief and suffering from tinnitus... the shock, the fear, the rumination, the uncertainty about the...

Hey, I guess that’s what it comes down to, yes, despite the enormous variations and fluctuations in the noises. I had to consciously choose to not be afraid because I was going downhill pretty fast.

Hi guys, thought I’d check in and see how everyone is? I really hope you’re all doing ok and managing to find some peace. As usual, it’s been wild. The last couple of weeks have tested me beyond anything I’ve ever known, waking up in a panic, literally shaking, I didn’t eat for 5 days, couldn’t...

Billie you are a true hero. What amazes me about you is your ability to separate an uncontrollable physical ailment from your core being as a person. The recognition that what happens to us happens, but there is still a life to live and it’s up to us to find as much joy as we can, whatever state...

Oh no, this was never about being cured. It’s more that it was at a level where it didn’t bother me so much and it didn’t consume my life. I accepted it. That took two years. And now it’s appreciably worse. I know that people say it’s about perception but times like this you realise that’s not...

Hey everyone, I hope you’re doing alright. I thought I’d give a quick update on the situation... Last weekend I woke up and couldn’t hear out my left ear but I had SCREAMING tinnitus. I ignored it for a little while because when you’re used to putting up with stupid hearing problems you can...

Hey, nice to hear from you. How are you doing now? I know that feeling of struggling through a train of thought. Sometimes I feel like I’ve been blown in to a million pieces and at any given moment, I can’t put all the pieces together. My thoughts are all jumbled, my emotions don’t match the...

Hey, thank you for your reply, you’re so very kind. I’m so glad you’re doing better now, I still find it alarming how tinnitus can devastate a person and how close it pushes people to the edge. I’m glad you had the courage and strength to see it through. Have you found any positives from having...

Hey, I’ve never read a Charlotte Brontë book I’m ashamed to say! I may have to give that a go. I read When Breath Becomes Air, an account of a neurosurgeon who suddenly found himself a patient in his own hospital and some of the realisations and challenges he discovered through this. I found it...

I have that sporadically, and I think the honest answer is... you live with it. You live with it the same way that others live with other conditions that they would rather not have. I work at the hospital and every day I see people in horrific pain, some acute conditions, some that are terminal...

Hey, that’s a lovely thing to say, thank you. It’s been a while since I’ve been on here and things are ok. Am I cured? No. Do I care? Not really. Have I heard silence? Yes. Was it amazing? Yes. Can I live without it? Yes. Do I feel like I’d saw my own leg off to have permanent silence? Most...

Hey, so sorry for the mega slow reply. No, there’s no difference with a whole head or IAM scan, the images will be the same but the IAM will cover a smaller area. The radiologist report will cover everything available so in my opinion, a whole head is better as it gives more information. Yeah...

Hey, nice to hear from you :) Wow did I ever. It wasn’t days, it was months. Literally months. Every day felt like torture and like I was screaming inside. It was the most crippling, claustrophobic, panic inducing time of my life. I probably do still hear it a good percentage of the time, I...

Hey, thanks for the reply :) you make a really interesting point about the audiologist and it’s something I’ve wondered about many times before. What if, secretly, somewhere deep down we are now scared to be without the tinnitus? We have become so accustomed to being annoyed/frustrated/scared by...

How are you xxx

I totally agree. There is no answer that fits everyone, because everyone is different. We will find our own ways and find peace in a multitude of different ways. But a magic pill would still be nice, right? xx

Hey, no, I don’t actively seek any treatment. I’ve given up on all that as the disappointment is hard to take. I’m very wary of anything that makes me question if it’s better or worse because I worry about it taking me down a path that does me no good if you see what I mean. And I’m a...

Hey, I’m sorry it’s bothering you still. And it’s ok to be bothered. This is the most insanely annoying, relentless, pointless shit EVER. Dark thoughts are ok, in a way I think they can be comforting because they provide us with the security of escaping the unescapable. I still have them...

Hey, it’s been a little while and I thought I’d come back and say hi. I hope you’re all doing ok and getting through as best as you can. I’m not sure if anyone would be interested in an update but here it is. Nothing has really changed in terms of the noises in my head, it’s still wild and loud...

I get where you’re coming from, and the anger at no one being able to fix this is apparent. But here’s the thing. Habituation is not a cure, we know that. A cure would be amazing, but we don’t have one and being angry about that is a waste of energy. It’s just not there. Do you have to give up...

This is going to sound really weird, but I’m glad that you had tears in your eyes. You see, your emotional and psychological self are still in there and functioning. And if you’re at rock bottom then the only way is up. It’s probably going to be a very slow, painfully frustrating ascent but it...

Yeah, things can and do change. I’ll be honest, the pulsatile noise really freaked me out, that one really got to me and made me feel sick. Not sure why but that one really bothered me. But it’s been months since I heard it. I know of loads of people on here who’ve had the same experience, it’s...

Hey, it’s ok to care and to worry, this thing is horrid and it’s totally understandable that we don’t want it to get worse. The pressure and fullness is grim, I get that a lot too, it’s like someone has their fingers all the way inside my ears and nothing I do eases the pressure. I tend to find...

Hey, I believe you’ll make it through. I also had the pulsing on the left for a while, I don’t have it now so, I hope that gives you a little hope. I know what you mean about movements making it worse, I still sometimes get what sounds like squealing train brakes when I turn my head/chew. I...

Ha, I wish. It’s more like being tasered for a split second. But what can you do :rolleyes:

Hey, absolutely no idea. They general consensus is it’s neurological as my hearing is fine, excellent for my age even, and I get other strange symptoms that appear to be emanating from my nervous system, like bursts of adrenaline down my back and in to my legs and arms. It’s all very odd. I...

I’m not going to lie, it took a good few months for me to even be able to consider living with this. And the odd thing is, you’ll improve without knowing it because it’ll be so slow sometimes. The quietening down and the backing off seem to happen simultaneously, even if there’s no change in...

Hey, I’m really sorry you’re struggling so much. I just want to let you know that a few months about, I was 10/10 suicidal, often unable to speak because the tinnitus was so bad and intrusive. The noises themselves haven’t changed I don’t think, still erratic, still occasionally painful, but I...

Hey, nice to hear from you. How am I? That really depends on in what respect! The tinnitus is as vile as ever, head zapping, constantly changing sounds and feelings, my hearing feels like it’s dipping in and out, I get dizzy, I can’t concentrate, I’m just always very aware that something odd is...

Totally agree with you. I wonder if I hadn’t panicked so bad initially then would it even have become so much of an issue? I will say this though... I think there’s a lot of self deception and settling for less involved. I can convince myself I’m ok day to day, and I suppose I am, but sometimes...

I genuinely think it’s different for different people. Tinnitus itself is nigh on impossible to accurately quantify in terms of characteristics and what people experience, therefore accurately defining ‘habituation’ is equally as difficult. I personally know quite a few people with tinnitus who...

It is definitely hard to decide and as you can tell from the responses of the people who work there, there’s no definitive answer unfortunately. In the case of tinnitus, the scan performed may only be an IAM (internal auditory meatus), that’s certainly the case where I work but each hospital’s...

Hey, I don’t think anyone can truly advise you on this, as you can see some people appear to have worsening after an MRI, a lot of people don’t (myself included), but I do know that recently a former colleague of mine developed tinnitus, had an MRI and they discovered a neuroma, so it really is...

I 100% agree. Throughout all this I’ve often felt lost amongst the noises, and maybe this is what it all comes down to. We have got so wrapped up in what should be background noise/sensations that we’ve lost ourselves. I think that’s where the true suffering comes in, not the noises themselves...

Hey, nice to hear from you. I completely get where you’re coming from, it can be incredibly difficult to step back and realise exactly how much you’ve changed. I think living with a constant experience that ultimately you have to deaden yourself to will change you, in my experience happiness is...

Hi, just a little update for anyone who’s interested. I have been back at work for around a month now, working full time again and doing just fine. That’s not to say the tinnitus has magically disappeared, that’s definitely not happened and my right ear is doing some proper weird stuff, think I...

Hey Billie, nice to hear from you. It’s like I’ve said earlier on I guess, no matter how you feel, facts in life still remain. These weird experiences don’t change the fact I need to pay my mortgage and if I don’t work I can’t do that so I better suck it up and go to work :rolleyes: When...

Hey, no. It will randomly shut off for a few seconds and oh my days, it’s like coming back to real life, but other than that it’s there all the time. There’s so many different noises and sensations I can’t describe what I hear most where etc, but there’s always the sensation of noise wherever I...

Just came across this on my friend's Facebook page. It wasn't posted in relation to tinnitus but I can't think of anything more fitting xx

Anxiety 100% makes it worse. You literally become so sensitised to any noise, your mind will play tricks on you, you become terrified about the future, everything becomes a big scary mess. Once your anxiety lowers you’ll feel better. Can’t promise you you’ll feel great because it’s like a door...

Hey, yes, I think you may be right. I felt unusually tired the day before this started, not ill as such but not quite right. I’ve never been tested for COVID-19 nor had the antibody test to see whether I’ve ever had it and I don’t feel inclined to do so as whatever caused it is kind of...

Hey, nice to hear from you :huganimation: How are you doing? xxx

Hey, I saw the neurologist, he showed me the MRI, said it isn’t MS. Have you had any imaging done? As far as I can tell it’s pretty rare to have tinnitus as a single symptom of tinnitus and I know some people on here are worried about MRI making things worse but if you’re genuinely worried...

Hey, nice to hear from you, how are you? It’s been a pretty big week for me, I finally went back to work after 6 months off. I’m not going to say it was completely easy, but it was easier than I thought it was going to be. I think the hardest part for me about going back to work has been the...

That’s really interesting because I saw my neurologist today and he’s convinced that my tinnitus is linked to migraines, even though I’ve only ever had one. Just goes to show that even amongst experts, an opinion is only an opinion :rolleyes:

I definitely think the brain. The brain is the perceptual center of us so whatever else is going on in the body, it’s the brain that perceives it. You won’t get very far studying phantom limb pain by examining the removed limb, for example. Not everyone has hearing loss/ear damage so by going to...

Hey, I don’t even know where to start, all yours words are so lovely. I’m rubbish with technology, don’t know how to tag people so here goes Billie - Yeah, the ability to separate yourself from something that is literally in your head all day every day is hard learned, but this is not my first...

I don’t think I could have described it any better myself. I feel like I’m in a constant state of irritability, and my confidence is pretty much non existent now. Life just generally feels exhausting now overall. Things definitely aren’t the same at all, and I still struggle to accept that. As...

Hey, thanks for your reply xx Yeah 100%, the possible potential of hearing damage may need more attention in regards to MRI but we also have to be our own advocates with health. If you have hearing issues and are wary of noise, you’re probably cautious of MRI anyway. Like I say, it’s all...

Hey, you’re right, you don’t know how bad mine is, but let’s just say that I ended up in a psychiatric hospital after my work colleagues found me in my bedroom after being in bed for god knows how long. I didn’t know what day it was and could barely speak because the tinnitus and the stress was...

This is the thing, how far do you go trying to solve something that isn’t actually harmful but can definitely make life miserable? This is definitely the most frustrating condition I’ve ever come across, in terms of symptoms and lack of resolution. Ah yeah, I remember those days of thinking it...

That article gives no indication of the individual’s previous lifestyle etc so we have no idea how healthy his ears were previously, again it’s assuming that noise is the culprit and not the mechanism of MRI itself. You really don’t need to find more cases to convince me because I don’t need...

You said it’s not the noise that’s the issue with MRI, then gave an example where noise is believed to be the culprit? I’m not disputing that MRI machines are loud, they obviously are. You might know a lot of people who have got worse from an MRI, I know loads of people who didn’t. All I’m...

Hey, I’m sorry you’re dealing with this. I also have crazy tinnitus, sounds constantly changing etc, it’s not pleasant. I am certainly not doubting your experience, I’m just saying I highly doubt that an MRI scan caused any physical damage by the mechanism of obtaining the images. It is a form...

Thank you, that’s sweet. Getting out more is definitely a good thing, a bit of sunshine and exercise is great. Yeah, negative thinking doesn’t help really, positive thinking can definitely help but I’ve come to find my favourite is not thinking about it at all. It’s kind of a relief to just go...

Hey, no problem. I think we are all very much the same, if there was an identifiable cause that could be corrected then we would all jump at that chance. I totally get it. I’m not 100% sure that that is indeed what the water pump would be for, because like I say, they usually use liquid...

Hey, nice to hear from you. I’m doing OK I guess. Tinnitus is still an absolute joke, I can’t even count the number of noises etc., but I feel pretty cool with it. There’s nothing I can do to magically switch it off so I’m just hanging in there. Supposed to be going back to work in a few weeks...