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Yesterday my tinnitus was silent. For the whole day. Like plug my ears in a silent bathroom silent. It's back and kind of loud today. Ugh.

Holy shit this is literally what I hear when I turn the faucet on.

I got stoned yesterday for the first time in 6 months and it was amazing. Nothing bad happened! My tinnitus didn't get louder, in fact it got SUPER quiet for like the next 2 hours. I had a great time with my friend at the park and we got ice cream and looked up at the clouds. This is the...

Did the spike ever subside??

This was so wonderful and positive. Thank you so much! I think I'm going to try and get high with my friend this weekend and see how it goes. I want to reclaim things that I love. And yes, weed is one of those things lol.

I think I might try an edible and microdose next weekend with a friend. I just don't want to let tinnitus stop me from these things that I love. Is there ANYONE who has a positive or neutral experience using marijuana with tinnitus??

I miss weed so much. I really want to get back to doing what makes me happy.

I wonder if there is some merit to this. I did see an audiologist who did an extended audiogram and I only have mild hearing loss at 14 kHz and 16 kHz in my right ear. I definitely have hyperacusis but maybe that's related to my hyper awareness and hypervigilance? Maybe I do need a break here.

I'm so sorry that you're going through it. I totally feel you. Some days it'll be quiet/silent and some days it'll be loud and intrusive. Sometimes it fluctuates between those two extremes multiple times throughout the day.

I think I'm going to start a tinnitus and hyperacusis support group for Southeast MI. Reply if you're interested.

I really hope so. My tinnitus has changed so much since getting it at the very beginning of December. I know it's still really new and I hope it fades and calms down as time goes on.

I'm not doing well at all. I thought I was recovering and things were getting better but today a new sound just came out of nowhere. It's almost like one sound got exchanged for another one and moved to a different ear. I can't habituate to this. Are setbacks a part of the recovery process? Or...

I also had an extended audiogram. 15 dbc notch at 4khz in right ear and a 30 dcb drop at 14khz and 16khz in my right ear.

Was formally diagnosed with hyperacusis today. LDLs at best are at 50 and worst at 30....

@Syb, I'd love to hear how get on with some CBD oil. I'm tempted to try just straight up smoking a joint with my roomie this weekend but I'll more than likely chicken out lol.

Hey @Syb, I tried a full spectrum CBD oil (the kind that has THC) and I did 1:18 ratio. I can't remember how much I took but it was a very small amount and I had a spike that ended up lasting 24 hours. I know it's really scary any time a spike happens but I wouldn't worry too much. I don't think...

My morse code tinnitus is back...and I'm just exhausted. I won't make it if this is the rest of my life.

It's so weird. Every time I get my blood pressure checked they say it's normal. But I've been having a fast resting heart rate which came out of nowhere a week or so before the tinnitus began. I thought I was having panic attacks. I notice my tinnitus gets LOUD whenever I lay down but when I'm...

That's something to consider. Marijuana and CBD are completely legal in Michigan for medicinal and recreational use. I've been considering hitting up the dispensary and giving some pure CBD a try. Interestingly enough the Xanax hasn't ever changed my tinnitus level or the reactive buzzing...

It's still an up and down battle. The reactive buzzing sound is still there and it's keeping me down. My regular old tinnitus has been incredibly quiet lately *knock on wood* I even today had about hour of total complete silence. I mean true silence. Like in my silent bathroom with my ears...

It's been one full week since I have had the J&J vaccine. No change in tinnitus.

I had J&J vaccine about 44 hours ago and no effect on my tinnitus. I had body aches, fatigue, chills, and soreness at injection site. I feel much better this morning.

Got the J&J vaccine today!

My smoke alarm went off. Please help me. I was wearing ear plugs. Please. Do I need to go to the emergency room?

I thought I was crazy... I recently have been dealing with floaters and tremors in my non dominant hand...

Update on my condition: It still fluctuates quite dramatically between days and even hours. I still hear electric cicadas in white noise like the faucet/fan/microwave etc... the reactive morse code beeping for the most part is gone (after one month thank GOD). Most of my favorite songs still...

Saw a new doctor today. He wants to see my other audiogram. Looking at a diuretic and anti-convuslant. He wants an MRI.

I feel like I'm never going to be able to sleep without medication again.

My progress seems to have gone. Tinnitus is back loud, single wine glass tone is back, sound distortion, & hyperacusis. I want to be dead.

It's been a really, really rough day...

This is one of those posts that I feel like could have been written by me. I hear the auto-tuned crickets with white noise like the fan/faucet/microwave. My regular tinnitus is slowly but surely subsiding, with some spikes here and there, but the over all patter is gradual fading. But wow the...

This may seem dumb, but I wonder if it's blood pressure related? I've noticed my distortions/hyperacusis/morse code tinnitus gets significantly worse after I've done anything to make my blood pressure increase like stress, exercise, or eating something high in salt.

It's not even that I can hear my tinnitus that bothers me, is that I can FEEL it.

My initial tinnitus *knock on wood* has faded SO much over the last 2 months. The sound distortions and hyperacusis are a whole other thing.

I'm so tired of grieving myself.

Hi Danielle, Thank you so much for your kind words. I found this message to be incredibly comforting. It's nice to know that I'm not alone and not crazy for being so upset by all of this. I'm so sorry to hear after your initial recovery you had another bout of tinnitus, this time seeming for...

And your brain and my brain will adapt to this as well! We will find peace in the new noises. Our brains are powerful af. I don't think anyone imagines that something like horrible health conditions will happen to them. I know I certainly didn't think anything like this would happen to me...

My ideal future partner will be someone who uses the same masking sounds as I do for their tinnitus.

Hi Guywithapug, it's good to hear from you. I'm having an ok day today which I will happily take. I woke up in complete silence but after an hour of being up and about my tinnitus came back like normal. Last night I had a spike that brought me to my knees so the shocking silence was welcome...

Thank you for the answer! I really hope this is available in the next few years...

You're probably thinking of someone else. Although, he did prescribe me a diuretic which I haven't taken. I'm seeing another doctor to get a second opinion in a few weeks. I had a few days of no distortions but came back with a vengeance and I have no idea why.

This is a dumb question, but in terms of noise distortions, I'm assuming FX-322 would help with that, correct? Or is that a synapse issue?

My doctor told me today "I agree, you have no quality of life." Wow, first time we have agreed about something!

Why is it only white noise that sounds distorted and spikes my tinnitus? Other sounds don't seem to make my tinnitus loud.

Do you have a success story posted anywhere we could read?

I'm so tired of suffering ya'll. Is there any assisted suicide available in the United States?

Tinnitus has been good today...the sound distortions and hyperacusis have been horrific....

I think this is definitely progress. I've been using the settings on my car heat as a gauge. When this first started happening even setting my heat to 1/4 would set off the distortions, now it takes getting up until 3/4 to set it off and it's not as intense. Today is a really, really bad day...

I actually work with other trauma survivors and have done a lot of research on how trauma affects the brain. Trauma actually does change the structure of your brain, including the frontal lobe.

Thank you for your update! Unfortunately no. I still have sound distortion and have a new morse code beep in my left ear that wasn't there before. My right ear thumps now when I hear loud sounds or my blood pressure goes up. My sound sensitivity seems to also be about the same but I will say...

I'm so sorry to hear about your loss. I can truly imagine that was a very difficult time for you. I know this is an old thread but I was reading somewhere that hyperacusis can actually be a symptom of PTSD. I have PTSD and quite a classic case as well. I'm incredibly anxious, stressed, and...

My doctor prescribed me a diuretic but I was terrified to take it because he said it would make my tinnitus worse. There's some days I can start my morning without sound distortion but it's always back by the afternoon, not sure why that is. I really hope you find something that works for you. I...

I agree with @Aaron91, I'm really holding out for FX-322. I also feel hopeless in all of this. No answers, no way of knowing if this is the rest of our lives or not. I don't blame you for feeling this way. But maybe we really might just get lucky with FX-322. Hang in there!

God that's so weird. I hate this so much lol.

Oh wow that sounds awful. It's definitely a beeping and not clicking and I definitely have a ringing lol. The beeping competes with other noises like the faucet/heat/fan etc. How long did it take you to get rid of your beep? I hope your drones go away like the beep did.

I had a coughing fit and my tinnitus spiked...ugh.

I was also on Methylprednisolone and it only made things so much worse for me... I just had tinnitus. Now I have hyperacusis and sound distortion.