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I also get a 3 day pattern, every now and then it changes to a 2 day pattern. This is the first time I have ever seen anyone else on Tinnitus Talk describe that. I also need to sleep for it to reset.

I did Hashir's online tinnitus course. It's just Jastreboff style CBT gaslighting. He doesn't know the first thing about tinnitus in my impression.

Sorry, I've been off line, I'm in Central Queensland. Suffering very very badly with my intrusive tinnitus. Hyperacusis has improved some. I've been diagnosed with a spinal fluid leak. I need to get to Sydney for a CT Myelogram. First it was a border issue preventing me getting there, now...

Every single night. It doesn't randomly get loud, it' always loud and incredibly intrusive, even in my sleep. The metallic sounds are the worst and slice my brain through the night. My tinnitus sounds are all over the brain, top, back, sides... not just ears. The sounds that have been waking me...

Thank you. I'll look at it more.

No. It is very unlikely. My issues are bilateral which would be super rare. I have the classic onset of a CSF leak, and I have classic symptoms. I have orthostatix head pain 24/7 (better lying down, worse standing), I have tinnitus which is red flag as 90% of people with leaks do. I have the...

I have started my application and made a lot of enquiries. On top of that you need to become a lifetime member of Exit International if you need a volunteer to identify you. That is around $1000. You also need to pay for your volunteer's travel, accommodation, COVID-19 testing and other...

The weight I lifted was only 10 kg but it made my head explode. I knew at the time it wasn't good. This wasn't normal. The rest of the class were lifting 20 kg dumbbells for this particular exercise. 6 days later the headache was still there so I went to emergency and underwent a traumatic...

Pressure in the head with headaches is really key information here. Raises red flags for me. It is how mine started and I think you should get that checked out.

Sorry to hear of your pain. I really sympathise. I have a feeling I might have had underlying IIH. I really don't know. This all started at the gym when I lifted a 10 kg dumbbell and my head exploded. 6 days later I had a badly performed lumbar puncture which finished me off. Interventional...

I understand. I was fit, well, happy, loving life. Just finished paying off our house and were planning a week away. Then, at 8.40am on 22nd August 2020 my life changed in a split second. My biggest fear was dying before my time and not seeing my kids grow, yet here we are. I'd say most...

Thank you. I have been doing no bending, lifting, twisting as best I can. I have had very little to do with my kids since this nightmare began. My husband does everything for them. My symptoms have changed since the blood patch. My head pressure felt good for 1 hour post patch. That is clear...

I joined the program and quit. I was/am so desperate for relief, I gave my money to a charlatan. If you're into woo woo, pseudo-science and conspiracy theories, it's the course for you. I don't think Liam had severe, intrusive, or debilitating tinnitus. I also don't think people who say his...

Sorry I just read over my post and I wasn't clear. I meant that my doctors HERE won't realise that you can want to die, and not be suffering with your mental health at the same time. They're pretty ignorant.

Yes, I'm not going to do a DIY job. I have been cleared of any metal health issues but if I try and fail, they won't recognise non terminal physical torture and suffering as separate from mental illness. If I try and fail I could also get worse and not be able to fly myself around the world solo...

I haven't been to this forum in months. I've tried a lot of things since taking a forum break and none have helped. I even signed up to Liam Boehm's course which was a complete waste of time and money. If woo woo, pseudoscience and conspiracy theories are your thing, then go for it. My...

Not at all. Only ever been to a couple of concerts in my life and none in almost 2 decades. Never even listened to music. I liked my peace and quiet. Pod casts in the background on Alexa if I ever listened to anything at all. At first I didn't know the cause of my tinnitus because I was gaslit...

Did you have an epidural?

Scam for sure. These posts about "herbs" without details (they want you to fish by privately messaging them) are under almost every tinnitus video on YouTube.

Such blatant gaslighting. The noises in my head are straight from hell. It has completely ruined my life. These people wouldn't last 5 minutes. Yes though, it isn't the noise that is the problem, it is our reaction to it that is the issue. That is literally the TRT (Tinnitus Retraining Therapy)...

I am thinking that if you can't hear your tinnitus outside, it would be quite mild on the spectrum, and you wouldn't be in this thread. I can't even imagine the immense relief I'd get by simply going outside and not hearing it. Again though, if that were the case it wouldn't be that bad in the...

I can make my tinnitus rev up louder by turning my head to the left (mildly to the right), yawning, chewing, talking, touching my cheek, pressing on my scalp, raising my eye brows and blinking. It has nothing to do with the neck or jaw. Just somatosensory tinnitus. I can't work at all anymore...

I wouldn't have gone Sash. Not worth the potential consequential hell. I am not into that game, it isn't really a thing here. I did see some of the phone camera footage of violence and racism posted on Facebook though, that occurred even BEFORE the match and I am glad England lost. An Indian...

I can tell by your posts that you just do not get it. I suppose how could you though. Before I was cursed with this hell, I could not have imagined the suffering it causes. The reason 'she doesn't want to try anything even though she is crying out for help' as you say, is because she is...

I wish he had said how he got tinnitus in the first place.

I have been doing 16:8 with 2x 24 hour wet fasts per week with a strict diet - sugar free, dairy free, gluten free, complex carb free, nightshade free. I've been gluten free, caffeine free and very low sodium (approx 400-700 mg per day) since January 2021. No difference at all whatsoever to...

Absolutely nothing. Not even a 0.5 out of 10 improvement. Diet, relaxation techniques and more and no change. Nada, nothing. I'm losing hope I have any chance of getting my tinnitus down to a comfortable level. I never fall below a 6-7/10 these days. Honestly, suffering.

How did you get tinnitus? Was it severe? Bilateral? More info please.

How are you @roy1159?

Wow, leave your partner when they are at rock bottom with a debilitating condition? What shocking advice and high 5 for throwing a fellow tinnitus sufferer to the dogs.

Wonderful to hear!

To add, I was speaking to my son's speech therapist's assistant 2 weeks ago. She had tinnitus for 7 months and got the usual learn to live with it advice. Then another GP happened to do bloods and found she had hypothyroid. They treated the hypothyroid and the tinnitus was gone within a week...

For sure. ENTs are absolute swindlers with a license to take our money and provide no treatment or meaningful advice. I can't think of any other industry that gets away with charging so much money and providing no results, or expecting payment even after they do harm!

TRT for me began with an explanation of how hearing and sound works including an anatomy and physiology lesson on the ear and auditory pathway. I was also gently reassured that the sound was not harmful and wouldn't kill me, and that once 80% of patients learn this information, they are no...

Yes. I wrote a whole thread on how the accepted academic dogma around tinnitus is abusive. I honestly feel like the relationship I have had with doctors and audiologists since this began has been like being in an abusive relationship. Them telling me that my lived experience isn't real, and...

Thank you. I have my script for LDN but I decided not to proceed. I have read all the comments relating to LDN for hyperacusis and tinnitus. I came across only 1 person saying it helped their tinnitus. Many people said it caused tinnitus and no one had anything to say about hyperacusis. I...

I am going to do the 8 week course. I have nothing to lose but a few hundred dollars which is nothing. I have drawn some conclusions to people saying he is a scammer. Honestly, if I was a scam artist, I wouldn't focus my scam on tinnitus. Despite this figure of 10% doing the rounds, there is no...

I have started 18/6 fasting. I am on I think day 6. My tinnitus follows a pattern and I keep a diary. Only one time ever have I had 2 tolerable days in a row. I call them tolerable days, not good days because I don't have good days. My tinnitus is always loud, severe, multi-tonal, intrusive and...

Thank you so much. I really appreciate it, and I am relieved to hear that the somatic and pulsatile element of it can stand down somewhat. You are not patronising at all. I strive to be where you're at. Thank you again.

That sounds horrendous. I'm sorry you went through that and I hope you make a full recovery.

Thanks for the info! I am overweight at 97 kg. I have just started 18/6 fasting - 11am-7pm and have cut all complex carbs. For now I will keep fruit, and sweet potato etc to keep my options open food wise. I hope it makes a difference. I saw one guy on YouTube does 23/1 fasting and his tinnitus...

I watched that helicopter video on YouTube. I think I am the only person that gave his video a thumbs down. The title is very misleading. 'A permanent cure for tinnitus' aka, habituation... because it isn't the noise that's the problem, it's YOU!!! Oh, and yes... he was a cheerleader for...

Thank you. When did you start to improve? I feel like I am a lost cause. I need it to actually quieten down, back off a bit to get back any kind of quality of life.

Why can't they just say 'there are a lot of things we just don't know". Why the power trip all the time? I have far more respect for a doctor that says they don't know rather than ones that make out as if they do.

Cold showers is something that I have heard Julian Cowan Hill and Liam Boehm talk about. I am not sure if this should be a daily thing? If so how long under cold water? Can you warm yourself up afterwards by turning up the hot water or do you need to keep it cold from go to woe. Thanks.

I am happy to try it. I wouldn't know the first thing about it though (how long, how often etc) so I have a fair bit of reading to do.

I watched a Liam Boehm YouTube video. It said to go to his website and click a link which would send me a free eBook. It turned out that I had to watch a video over an hour long, but if I got to the end I would automatically be sent the eBook. In the video he said he would offer all kinds of...

100% accurate. This is my life.

My tinnitus changes day to day. I never know what I will wake up with but it resets in my sleep. No 2 days in a row are ever the same.

Yep, I've heard that one in a few YouTube clips. My audiologist threw the refrigerator analogy at me - 'you don't hear the fridge motor running in the room 24/7'. I wanted to say you can't be serious! The fridge isn't INSIDE MY BRAIN, it doesn't follow me around the house, I don't take the...

Another little gem that pops up A LOT is the 1954 study where they put participants in a completely sound proof chamber and after 5 minutes they apparently heard low rumbling tinnitus. The punch line that is supose to make us feel better is 'see, everyone has a little bit of tinnitus'. I don't...

Thank you. I have had to put my 2 year old son into full time day care which kills me. I wanted to do all the new mother things with him. Last year I couldn't because everything was shut down for COVID-19, and now this in 2021. Breaks my heart! I think my hyperacusis is improving though. My...

Was your tinnitus ever loud and intrusive? You describe your tinnitus as low and faint. I think I could definitely live with mine if it was as you describe. I'm glad to read you are in a good place. All the best.

I have been having tinnitus counselling with an audiologist. I also completed Hashir Aazh's iCBT program online. Nothing my audiologist says resonates with me or my truth and I always feel like I am being patronised. I felt nothing but anger as I proceeded through Aazh's modules in the iCBT...

Yes, I have zero hearing loss yet I can't hear my ceiling fan anymore because the tinnitus is so loud. I never have to look for it either. It is front, centre, and intrusive. Multitonal noises all over my brain. It's living hell.

Whole right side of my brain is loud pulsatile static. The tinnitus increases in volume when I chew, yawn, dry my face with a towel, turn my head to the left (10/10) and less so (8/10) when I turn it to the right, and when I walk. It is very intrusive and loud. I am unable to perform any...

I hope you are doing better.

I saw my psychiatrist again yesterday. It is a waste of time, but you know... everyone screams GET HELP, GET HELP (e.g. my family) when you say that you are suffering so badly you just want to die. I went to appease them, not because I thought there is actually any help. Psychiatrist agrees I am...

Honestly, I don't watch TV or listen to music. I never have. Always liked my peace and quiet. It is the absolute truth that the last time I sat and watched TV on purpose was the 2011 London Olympics! I have watched some YouTube clips on my tablet though and I was able to follow ok. I have echo...

My psychiatrist gave me a script last week for Mirtazapine. Not for depression because I'm not depressed, but for sleep. I decided not to take it though. I searched this forum and Facebook posts and it seems to have made so many people worse. I am already suicidal from severe tinnitus and I...