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Almost 4 years and i can't concentrate properly.. feeling really lost

2080 for noise-induced hearing loss and noise-induced tinnitus.

What an age to live in, where you rather have any other disabillity or impairment but severe tinnitus and hearing problems. With no urgency withing the hearing field, how am I supposed to survive any longer? Almost 4 years to get better, but only got worse. If there was a last ditch effort -...

You should have your hearing evaluated, at least have a standard hearing test (audiometry) - I hope for your own good that you don't have any hearing impairment to accompany the tinnitus. I completely disagree with this, even though everyone around is glued to their PMPs, less people will...

What were the hearing levels at the audiogram (if you mind sharing)? If you have elevated thresholds, it's unlikely that the concert was the culprit, it was more the last straw that broke the camel's back.

I'm at a stage where I can no longer go on with the severity of the disability. I can't comprehend 90% of what's being said daily. Bear in mind I've not been exposed to noise in the last 3 years, at all. The tinnitus itself is still as bad as it can be, maintaining concentration for 1 minute is...

Almost 4 years of complete dysfunction and for what?? for a damned stupid part time job. No treatment, no prospect of future treatment.

My hearing is at a stage where following a 10 second conversaiton is impossible. i can't comprehend 90% of what's being said.

I'm completely done with this BS. I'm going to finish my semester at uni and apply to Pegasos. Stupid to lose your life over a BS job at a café but it is what is is. I'm just fu*king done.

Too real.

We as a community should articulate to researchers that bad tinnitus causes cognitive disabillity that few conditions cause at that level.

I can't take another day of this torture, i can't! I have already thrown away more than 3 years of what should be my prime years for it to get better and it's STILL severe. I'm not going to waste my life away and survive countless days of torture and dysfunction because of my stupid mistake...

Seeing the Adderall shortage right now, imagine we had the same lobby that ADHD has, then we would also be functioning human beings as well.

If it wasn't for my audiometric loss at 6 kHz, I would tend to believe it, but I have 15 dB and 20 dB loss at 6 kHz which is a massive loss, especially being so young. It's classic NIHL. How did I end up with such damage so young is another question (It can normally take up to 20 years to...

At this point I sound like a broken record. 3 years is more than enough to wait to get better, and my functional hearing and my tinnitus (which was really bad from the onset) only seem to be getting worse. I'm only 23 - seeing everybody, whether my age group or not, without tinnitus and...

Hi Elliot. I know how it feels, believe me I do. I have acquired tinnitus and hearing problems about half a year before starting university (only at 20 years old) and I know the cognitive disability that tinnitus causes - it's unreal that the cognitive disability it causes is swept under the...

Hi Denis, it's unlikely that the hearing damage is from the Azithromycin you shortly took. Can you post your hearing levels from the audiogram up to 6 kHz? It's unlikely that you have such high thresholds in 8 kHz, and up to that everything is in normal range (up to 10 dB).

That's great that your hearing functionality is fine. I'm hard of hearing with hearing levels 15 and 20 (dB) at 6 kHz. Goes to show that hearing functionality is too complex to quantify in today's measures. You say that your tinnitus volume is low, which is great news as well, so my advice is to...

Your hearing loss is very substantial. It's really interesting that your hearing loss is greatest in the 8 kHz region, because in noise-induced hearing loss the main reduction is in the 6 kHz region and a recovery is seen at 8 kHz. And you are telling me that you have not noticed any issues in...

My life has no value since I have become disabled due to tinnitus and hearing problems. It's been over 3 years and there is no purpose in surviving any longer like this. I can't concentrate for a single minute due the screaming tinnitus that never decreased in volume one bit, my experience in...

It's surreal that i (inadvertently) threw my life away because of a noisy part time job, life ruined and there is nothing i can do about it.

Hey man, i seem to have the same threshold loss as you do at 6khz albeit i'm about a decade younger than you. Do you feel the loss there makes it harder for you to comprehend speech? in quiet settings in particular? TIA

Why the inclusion criteria doesn't take into account the 6 kHz threshold? It's as important as the frequencies up to 4 kHz in speech comprehension. Albeit I don't think it will affect the WR score after treatment because they demand a PTA of over 30 dB up to 4 kHz or somewhere in that range to...

Thanks. It's really heartwarming. I wish I had left for good preferably by going back to normal life but by being dead is the other option which seems like the probable one for now. I wish all of us would get the treatment we deserve so that we can go back to semi-normal or god forbid our old...

I don't see any reason for myself to continue living like this, I have nothing to fight for anymore. For the past year I have tried going back to normal even with my catastrophic symptoms but it just isn't possible to continue in my current state without any remedy/treatment - none of which...

Man I feel the same. And tbh, if you ask me, there is no such thing as habituation, most tinnitus sufferers just naturally get better to the point where tinnitus is mild/non existent in the best case scenario (whether they have done the right things or didn't!) - I did everything right and the...

ANA titter - positive 1:80. ANA pattern SPECKLED. DNA ab conf - negative. I don't know what to make of this really.

My friends visited me today and I couldn't help but cry immediately. Catching up with them I realized how much I'm missing normal life and how I'll never experience my 20s like a normal healthy young person. I'll try for another few weeks to see if my limbs can return to function again. If they...

Same:( I never thought modern medicine can't handle a ayriad of debilitating medical problems. At least we tried, I wasted over a year visiting countless specialists and trying everything but everything got worse. I'm too young to be disabled like this. Without normal health life turns into...

Well, instead of speculating to no end you should undergo a battery of audiological tests to prove/disprove cochlear damage and find the cause. I can bet the reason is audiological. You might have not assessed your past exposure correctly, or you are denying it. Good luck.

Are you sure you never exposed yourself to excess noise? No headphones at all? No noise from a job you held? You should have full audiology evaluation including OAE to objectively detect subclinical damage, I'm more than certain you have some. Cumulative damage can show up in teens as well...

You probably have some damage to your auditory system and, if you will have the full battery of tests, the damage will be detected. Otherwise don't bother if you are sure it's not somatic, you probably don't have TMJ like many people here think they have. You seem to be obsessed with finding...

Same here. Life is pure hell with damaged health and inability to function like a normal human being. One can't be tortured like this forever.

Chronic neuropathy in the limbs (they are still unsure of the cause), permanent cartilage damage in both knees due to an unfortunate accident that is basically leaving me disabled for the long term, there are some other chronic conditions which I won't disclose. Like being basically deaf apart...

Some of the conditions don't seem to result from lupus. I'm waiting for the ANA results to confirm diagnosis. I probably will have an answer later in the week.

I made sure to point out the reason for my suicide several times in the letter - the severe tinnitus and hearing problems (and other physical problems that started after the ear problems, like a snowball effect). I also wrote that I don't forgive my family for belittling my problems and blaming...

Yesterday was the first time I fully accepted my inevitable suicide as the only mean to end this unimaginable suffering I'm enduring. I'm still shocked that health and life in general can deteriorate so fast when you are only 21 but that's my kind of luck. Took care of the letter and the...

I'm having a hard time believing that COVID-19 caused my ear problems to that extent but I will never really know. I lean towards the noise in the cafe causing the damage. There is actually a very good chance I have an autoimmune disease according to recent blood work but I'm still waiting for...

I did try everything. Apart from drugs that are unavailable. I tried also everything to diagnose my hearing problems that baffled even a professor of audiology. I'm also dealing with other physical ailments that make me even more dysfunctional than I already am. Suicide is the only choice left...

I'm wondering what should I do with all the money I have saved. I thought about going on a trip to burn my money before I off myself but then COVID-19 happened and my physical health deteriorated beyond repair. As much as I accepted the fact that my life is over I can't help but be jealous of...

Man I don't even think I will wait for my legs to get better. I'm so done with this hell already. I'm looking for a rental apartment in a high building I can jump from. I will write a letter in the meantime. How life can go from normal to this at my age, so young. Unreal. I actually have...

If I had told you the amount of medical problems I acquired after tinnitus and hearing problems it would sound like a cruel joke. I'm f***in 21 with the health of a 80-year-old. But it doesn't really matter as I was debilitated when I 'only' had the hearing problems and tinnitus and should have...

Thanks everyone for the support and help thus far. I have been tormented more than one could ever fathom, but if nothing can get better so I can somehow function, this nightmare has to end.

Don't be sorry for the negativity. We severe sufferers have no reason to be positive after suffering tremendously for so long and without any treatment. I agree it degenerates cognitive abilities very much. I hope that whatever you do can mend your suffering. I'll probably end it soon myself...

Undergoing TMJ surgery today. Will update if there is any effect on the tinnitus/hearing problems.

Life is stupid, no way what's waiting behind the corner - destroying your health and thus your life. Life up to that point was a simulation.

I have been feeling detached from normal life for many months now. Now I'm feeling detached from my body and brain - both deteriorated beyond repair. I can't wait to undergo the surgery next week so I can finally end this nightmare and life, as relief due to the surgery is not probable. I...

It will take up to a week and the surgery is next Thursday. It probably won't affect the tinnitus let alone the hearing problems but it's the only thing left to try. My parents are already devastated, they are tired of dealing with my hopeless situation and my futile existence - they don't want...

What keeps me somewhat sane these days is the fact that I won't have to survive like this any longer than 2 weeks, I only have to try the jaw surgery. I have already set a date and a method for my departure. I can accept having to end my life if this means I won't live a life of full...

The last thing I'm really going to try is the jaw surgery, albeit I know it will probably have no effect on hearing problems and the tinnitus. I feel like I have turned senile from months of not understanding speech 95% of the time and the severe tinnitus - can't remember what I did 2 seconds...

I truly understand this. I live near an operational air base and F-15's are rattling the sky every few minutes, on some days less action and on others there is non stop noise and my tinnitus which is already severe reacts to this. Well is working in a noisy/semi-noisy café dangerous? How big of...

Can't wait to be done with this nightmare.

It's living like a normal person that I seek, not surviving as I have had enough of this - almost a year of merely surviving, nothing got better during that period. I also have severe hearing problems that are unexplained, imagine all you hear is consonants suddenly for no reason and audiologic...

Even though I made peace with my inevitable ending it's still depressing to have my life ruined by something so petty... Part time work in a café. I had the future ahead of me. My physical health problems started after the ear problems - neuropathic pain in all my limbs. I'm just burning...

I often wonder what my life would be like without all of this, just living like a normal human being. Human life is about overcoming obstacles, not enduring unbearable suffering with zero quality of life and 100% dysfunction, there is only so much dysfunction that I can accept at 21 - severe...

Hey Christian - sorry to hear about your situation. I don't know if you were exposed to dangerous amount of noise but I got it from working in a café for 2 years which is a joke taking into account the severity of my symptoms. I have been dysfunctional for almost a year having to cancel...

Consonants are actually the more significant part regarding speech comprehension problems in HFHL and speech comprehension in general. Speech audiogram can measure some function of IHC. Restoring frequencies around 6 kHz should be a top priority or else the drug doesn't treat true hearing loss -...

Hey man. I truly feel the same, I'm only 16 months into this but mine was severe from 6 months of onset even though I protected my hearing extensively when needed. I also have severe hearing problems that can't be explained as all hearing tests don't explain the severity. I will probably kill...

Let me guess, you are right handed and have a history of power tools or firearms? If you do, it does explain the difference between the ears.