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Sometimes I feared the insane electricity in my head would be persistent, but I read effects of withdrawal were not permanent so I had hope

My original T more stable controlling the diet, meat based. How are you?

Hello, Benzo worsening is over since months, my last benzo was in June 2021. I did the cut and hold.

I had no breaks unfortunately, it was horrible. I hope it will be better for you.

Yes! It is a great classic and it used to be read, studied and analyzed in deep at high school in my times. There have been a lot of film/ series based on the book, mostly in Italian as far as I know. The parodic version by the trio of comedians Lopez Marchesini Solenghi is memorable.

Hello, despite the stellar cast I didn't like the film. The images are not effective as the words of the book to transmit the oniric atmosphere and the anguish of time that passes in vain. What is your opinion?

Hello, I do not think my doctor would offer me LDN but I will ask in the next call. She was considering immunosuppressants but she is not completely sure, and neither am I. I think my autoimmune condition is driven by Cytomegalovirus or some other herpes virus, as it worsen with cold weather...

Hello, I am taking Huang Qin and it has some effect, lasting about 4 hours. I plan to increase the dose and to add Danshen, as soon it arrives. I have an autoimmune condition and at this point I am quite convinced to have small blood vessels inflammation affecting the adjacent nerves in my...

Hello, they are: Tinnitus Clogged ears Mild hearing loss Sounds reactivity Tingling in the ear, face and left side of the body Insomnia Fatigue Visual snow, sensitivity to light Large dark spots in my visual field Dry eyes Troubles swallowing Dry skin, dry ear canals Sore throat Canker sores...

Hello, this includes extra virgin olive oil? I really like it...

Thank you for posting this, I also have an autoimmune condition, I will try this elimination diet.

One of my favourite breakfasts now, + Spanish ham or smoked sheep cheese.

Beautiful place! Sorry for my ignorance, from Wikipedia it seems like a more luxury version of Harrods? I had a clash of cultures with Black pudding and Haggis, coming from "cornetto e cappuccino" standard breakfast. Since then, I introduced non-sweet food into my breakfast which is now sugar free.

This is the breakfast I used to have during my holidays in Scotland more than ten years ago (the day I took the photo beans and mushrooms were missing). I could go through the day without having lunch and being full of energy!

Hello, Benzodiazepines were really effective at the beginning but I soon developed dependence and they made my tinnitus worse for months until I healed from the physical dependence, so definitely didn't help. I now take Zolpidem once per week, max two, in order to avoid falling into dependence...

The helmet does not provide sound attenuation. The sponges are added and fitted manually. I had my MRs in Creu Blanca, it is considered the best center for scans in Barcelona.

Thank you for this info, this give me hope. I think I have found a really good doctor. She is young and still doing research. Also really listens when I explain my weird symptoms, just the opposite of "it is all in your head" we are used to hear.

Hi @Lukee. Finally I had salivary glands biopsy and results are positive. I have incipient Sjogren. I will take cortisone and then doctor will evaluate immunosuppressant drugs. The doctor also explained me angiography can only evidence mophrological changes in blood vessels, not inflammation...

I am really sorry @aura. I wish I could help you. Me too, I have been awake almost all night, I just had a crying crisis and woke up all my family :cry: :banghead: A great hug :huganimation:

I have had three head scans until now. Earmuffs were not allowed, not because of incompatibility with MR, but because my head was put inside a sort of helmet in order to keep it in place and still, there was no space for earmuffs. They put their sponges inside the helmet to cover my ears. I have...

Hello @Majom, I am sorry you got low drone. Me too, I have always enjoyed calm and silence, what a cruel destiny this insane sound. I have my theory about this sound. For many months I believed I had nerve damaged by antibiotic I took for a bronchitis- faringitis in March 2020. But after a...

Funny, there are conspiracy theories and even a novel inspired by low hum: Cracking the mystery of the ‘Worldwide Hum’ Can you hear the Hum? The mystery noise that says a lot about modern life :) :)

The first benzos I took at the beginning of my original tinnitus were of short action, as Lormetazepam and Alprazolam. I soon developed tolerance, so my tinnitus got worse even before starting tapering! I noticed further worsening especially reaching small doses, altough I did it really slowly...

My favourite italian classics: - Cesare Pavese; "The moon and the bonfire". A book about the memory of the past, sense of belonging and nostalgia, with the background of the conflict between the fascists and partisans in rural Italy during World War II. - Beppe Fenoglio: "A private affair"...

I think this is all: - bilateral hissing/electrical - high pitch whistle - squeal - pipe organ after loud or prolonged sounds Yes, benzo tinnitus was reactive but also my original one :( The pipe organ reaction to external sounds let me think maybe my inner ear is more vulnerable during benzo...

Hello @Clerkp, Look at these papers: Sleep and Immune Function Sleep associated regulation of T helper 1/T helper 2 cytokine balance in humans First half of night sleep is pro-inflammatory while second half is anti-inflammatory. Probably this is the reason why if I wake up early in the...

Oh, I forgot, I also had that squeal some days. I was on several benzos since June 2020 (because of my original tinnitus), I switched to Clonazepam in November. Started tapering in December. So, 6 months on Benzos, 6 months of tapering. You are in a better position, so I hope you will recover...

It was hissing/electrical in both ears (my baseline tinnitus is hissing + low hum in right ear). In worst days I had high pitch sound. Also I have noticed external loud sounds generated multitonal tinnitus (like pipe organ) lasting couple of days. I was on several dosages, max was 2 mg/day...

Hello, I also had "benzo" tinnitus during Clonazepam tapering. I finished tapering last June, "benzo" tinnitus gradually decreased, then started to be present only some days per week, then once per week, and now is gone.

Yes, weather affects mine.

Hello. My tinnitus is at its worst when weather changes from good to cloudy and rainy. Should be inflammation related. Also people with arthritis feel worse in bad weather.

Hello Aura, I see from your medical report you had cesarean section in 2014. You mentioned formerly you first tinnitus disappeared after about 1-2 years. May I ask you if this happened when you become pregnant? The reason why I am asking this is because, after looking at and discarding many...

I had angio-MR in 3T machine four days ago. It was much louder than 1.5T. Even with double protection, the sound was entering through my bones, the bed was trembling under me. I took NAC before and steroids in the following two days, just in case. No spike or tinnitus change until now...

The buzzing of Barcelona increases a lot my tinnitus. I always go for pedestrian streets, parks, or seaside when I want to have a walk.

Hope is the thing that keeps me alive. It is something my psychologist understood very well. Instead of pushing me to acceptance, which is what most of psychologists and psychiatrists do, invited me to pursue the root cause, due to my analytical personality (I'm mechanical engineer...) which...

Hi @Lukee, nothing has been found in angio-MR. It is like I am having mild Sjögren's syndrome symptoms not enough strong to come out in clinical examinations. Nevertheless I am now embracing the immune Th1/Th2 imbalance theory. Sjögren is associated with increased Th1/Th2 ratio. Both my father...

Hello, Yes I can understand speech. OAEs say I have pre-cochlear affectation. I have finally abandoned drug induced neuropathy hypothesis. I now think my issues are more autoimmune related. I am from Sardinia, the land of autoimmune diseases unfortunately. My internist is looking for...

Sjögren's syndrome can give dry eyes, tinnitus and other ear/nose/throat symptoms. Actually it is what my internist wants to discard by a salivary glands biopsy (the other markers in blood samples are negative).

No ANCA antibodies found... Next Monday I will have MR with angiography to check for possible vessel inflammation in my head.

Hello, my tinnitus is from inflammation, probably vasculitis. Magnesium lowers cortisol levels, our natural anti-inflammatory hormone, so in my case it worsens my tinnitus a lot. Same thing happens with vitamin C and all supplements and herbs which lower cortisol. I discovered this only...

Hello, Today I have a blood sample taken for ANCA antibodies. According to the internist, vasculitis could be a possible cause of neurological + ear issues, although in this case tinnitus is more frequently given in both sides. I will let you know. I will have results in two weeks.

Hello @Ben Winders, Good finding! Any effect once you turn them off? I mean like the drone increasing after a car ride.

The monk by the sea Caspar David Friedrich, German Romantic landscape painter. Romanticism contrasts the immensity of nature with the finiteness of the human being who, however, becomes aware of his own nature and spiritual greatness.

You are right, I have to manage it. I live in an apartment with windows facing an internal quiet garden ;) I avoid busy streets as possible and go to parks and beach to have a walk. Where do you live?

I also like Sitges, the modernist centre and the spectacular villas on the seaside. Last time I was there was before the pandemic...

Paradise in my eyes, hell in my ears. So sad.

Hello: https://www.abigo.com/products/ear-care/otovent/

Some additional tricks from my side, to limit the risk of a too forceful Valsava: - before doing it, put a balsamic oil (I use Rinostil, an Italian one) into each nostril and by inclining the head on each side let it run over the ET opening, it will lubricate it and facilitate a smooth air...

Yes but now it is more complicated, I have to do it by ferry, no more flying with my chronically clogged ears :(

You are all welcome. Be aware of "butaneros", sellers of butane bottles, announcing themselves by loudly striking into the bottles...

Ohh you have been in Cagliari, my town! I am also currently back in Sardinia for holidays, rest of the year I live in Barcelona.

What happened to you and your symptoms are really similar to my case. I was also doing better on antivirals. Then I stopped Turmeric as I thought I had been too many months on it, changed brand of Boswellia and added Andrographis and I worsened. So I am going to resume my previous regime. I do...

Hello, it is not clear, the paper says "A throbbing, rushing, or humming sound suggested a vascular etiology", so it seems to include non-pulsatile sound.

Hello, one ENT has told me my humming is of vascular origin, and that this is why I can modulate it by neck movements. I found this paper now: Single-Center 10-Year Experience in Treating Patients With Vascular Tinnitus: Diagnostic Approaches and Treatment Outcomes It says many vascular...

Hello, do you think this new behaviour is related to Cat's Claw? I have bought it to add to my antiviral supplements, but I am hesitant to take it based on your feedback.

Hello, it is not clear to me if Tegretol + Cat's Claw is being beneficial to you or it is worsening the drone. Any effect on the hissing?