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  1. Tweedly

    Should Tinnitus Research Focus on Brain Instead of Ear?

    That’s some story you carry with you Dave. And it shows the difficulty of this whole tinnitus thing, though I assume it’s not the only thing that is on your mind if you have a brain tumor. Also, in a deaf ear, sound enrichment or masking would be nearly impossible I assume? I hope it is...
  2. Tweedly

    Hope Through Suffering — Pain Will Cross All Our Paths

    As we journey through life, pain will cross all our paths. It is not a question of if, but when. I myself feel very much in limbo. Being only four months into tinnitus. Not knowing if it will improve, worsen or even if I can handle life this way at all. In these times we can draw from previous...
  3. Tweedly

    It’s a Strange New World — Tinnitus Connected to Migraines/Barorauma/Sinus Issues?

    Just to update: Whatever is causing the pressure in my head is affecting or affected my eyes as well. When the ringing started, I also experienced visual snow, flashes and a sudden increase of floaters. I went to an eye doctor and my retina in both my eyes turned out to have tears in them...
  4. Tweedly

    How Habituation Occurred For Me

    What would be your way then? Do you mean living life not caring about spikes etc. and just doing whatever you want to do? I guess it comes down to fear of the future. If you are “habituated”, but afraid it will get worse, then you are still dealing with tinnitus and not really habituated...
  5. Tweedly

    How Habituation Occurred For Me

    So sorry to hear about you having to go through that over and over again. I guess that’s striking at the heart of this condition too, the fear of it getting worse. But you must be one strong individual to keep on going and giving tinnitus the middle finger!
  6. Tweedly

    How Habituation Occurred For Me

    Thanks @PaulaH for coming back and revitalizing your succes story after more than 5 years! That is the greatest proof that habituation is not only possible, but also can be enduring (which is even more important). It’s one of the questions I (and possibly others) ponder a lot. Yes, one might...
  7. Tweedly

    Should Tinnitus Research Focus on Brain Instead of Ear?

    This would seem highly logical to me too. Question remains then, why most (actually virtually everyone, since everyone will experience hearing loss when they age) still not get tinnitus, even after sudden hearing loss.
  8. Tweedly

    Should Tinnitus Research Focus on Brain Instead of Ear?

    I’ve been wondering about this. I had two audiograms up to 8000 Hz, both above average. One audiogram up to 18,000 Hz, also above average. And also an OAE (where they send signals into your ear and measure the feedback from specific hair cells), also excellent. I have the notion that my hearing...
  9. Tweedly

    Should Tinnitus Research Focus on Brain Instead of Ear?

    Added to this: This view of tinnitus being an ear related issue might actually be damaging to patients. When I started asking questions to my neurologist about my tinnitus and a possible connection to my migraines because I read research about it, she just said she never heard about this and...
  10. Tweedly

    Should Tinnitus Research Focus on Brain Instead of Ear?

    I am really curious what people are thinking about the following... To put it in a sentence, I’ve been thinking that: The root of tinnitus is always the brain. It doesn’t matter what caused your tinnitus. Therefore research should focus on the brain and not the ear. I believe research like...
  11. Tweedly

    Anyone Been Diagnosed with Cochlear Migraines?

    That’s something I am curious about as well @Pre55ure. I’ve been diagnosed with an “altered migraine pattern”, but not specifically cochlear migraines. I get attacks with aural fullness and an increase in tinnitus. My neurologist prescribed me Amitriptyline and later Beta Blockers (I’m taking...
  12. Tweedly

    It’s a Strange New World — Tinnitus Connected to Migraines/Barorauma/Sinus Issues?

    Well, I am just a little over a week on the way. The neurologist said it takes about 6 to 8 weeks to start taking effect. I do think it helps me with sleep a little though. I have had migraines since I was 10. Late November the pattern changed and after a flight it turned into a 24/7 pressure...
  13. Tweedly

    It’s a Strange New World — Tinnitus Connected to Migraines/Barorauma/Sinus Issues?

    Update: I started the Amitriptyline about a week ago, because the pressure attacks kept on coming and every attack makes the tinnitus permanently worse. Apart from that the pressure attacks also seem to affect my eyes (light flashes, increase in floaters). So I didn’t really feel I had much to...
  14. Tweedly

    It’s a Strange New World — Tinnitus Connected to Migraines/Barorauma/Sinus Issues?

    To put it in one sentence: I am afraid I am dying... not now, but maybe in a year's time or so. My medical situation: migraines from a young age onwards. Worsening in the last decade. More and more accompanied by pressure in my head. Now the pressure has developed into a 24/7 present thing...
  15. Tweedly

    It’s a Strange New World — Tinnitus Connected to Migraines/Barorauma/Sinus Issues?

    Hey @AliasM, Yeah the link between migraines and tinnitus is not something do be dismissed. There’s lots of research and literature that connects the two. Unfortunately, migraines are just as much not understood as tinnitus. So, two for the price of one... I had two hearing tests done, with a...
  16. Tweedly

    New to Tinnitus — Cause Migraines, Ibuprofen, Blood Pressure Meds, or Autoimmune Disease?

    Hey @AliasM, First of all, I am so so sorry for what you are going through right now! I want to let you know you are not the only one going through this not noise induced tinnitus. You are not alone... My story sounds pretty similar to yours. I suffer from migraines most of my life. Recently I...
  17. Tweedly

    It’s a Strange New World — Tinnitus Connected to Migraines/Barorauma/Sinus Issues?

    Hey thanks @billie48 ! You’ve been around here for quite a while I can see... Hope you’re doing well in life and are happy with who you are and life in general... As I thought, my scans came in clean. So the Neurologist went back to the migraine theory. Which I tend to agree with. It sounds...
  18. Tweedly

    It’s a Strange New World — Tinnitus Connected to Migraines/Barorauma/Sinus Issues?

    So, here I am. After reading the forum for the last months I thought it’d be nice to introduce myself and my “case”. I am Ruben, a social worker from Holland. I’ve been working in the humanitarian field in Greece in a refugee camp for the last 3 years. Recently I started to relocate to Turkey...